Re: can't think of a subject line

[Guest guest]

He has asked for a

> photograph of my full body, back and front and then will give me a

detailed

> diagnosis and treatment plan.

I think the above statement needs a little more explaining. Doesn't

that seem odd to you, , that he wants photos rather than

giving you an exam? Just my thoughts, there may be a rational

explanation. Butt, what would photos show?????

Mike

[Guest guest]

Hmmm...

Obviously he didn't " take it matter of factly " but your post left me

wondering why in the world you take what he said about himself " matter

of factly " ? Are you serious?

Good luck,

Gail

> I am slated to go to Japan this summer to lecture on art and the

point

> person who is making the arrangements happens to be an MD. I had to

just

> tell him about having CFS, because he is arranging my flight and I

will need

> 02 on the plane. Instead of taking this matter-of-factly or as an

> inconvenience, he has offered to help me and just told me that he

gave up

> his mainstream practice and do alternative treatments. He has asked

for a

> photograph of my full body, back and front and then will give me a

detailed

> diagnosis and treatment plan. His thoughts on CFS were totally

right-on in

> my opinion, in keeping with the best. I will keep all informed.

> Interesting turn of events.

[Guest guest]

Wow that is super stressful. You don't need that. Keep us posted on the results!

________________________________

From: meencantador <meencantador@...>

Sent: Thursday, June 25, 2009 4:24:18 AM

Subject: [ ] can't think of a subject line

As many of you know, I have had the traditional open gallbladder surgery, 4

weeks later a hysterectomy.

A year and a half ago, I was told I have costochondritis. The costo....has been

getting worse.

I am at the point when I get the Xolair shot, I get a shot of cortisone as well.

As time goes on, the chest pains/spasms have been getting worse. The dr had me

get blood work, an angiogram and a CT scan. That was Tuesday. Wednesday, the

dr's office called to pack a bag, I was going to be admitted into the hospital.

Long story short, tests indicate I have nodules on my lungs. Now I have to get a

biopsy.

For those of you who know how warm and caring my family is (NOT), at this time

I am not sharing with them for self preservation reasons. They got me all upset

when I had the gallbladder and hysterectomy.

I am scared though. This is 5 biopsies in one year. (All different reasons)

Has anyone else experienced this?

The xolair dr does not think this is from Xolair. He does feel that years on the

evil candy, opening me up for the gallbladder surgery, then the hysterectomy,

plus the costochondritis and lungs usually inflamed, these all contribute for

nodules.

I don't know. I just know I am tired of constantly being in a dr's office.

Time will tell. I just feel I am too young to be this old.

__________________________________________________________________

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[Guest guest]

Looong before I was on Xolair I went to an allergist (actually several and they

were all a waste of money) who ran a chest xray and saw a nodule on my lung. I

was totally freaked. They ordered a catscan without contrast (I get sick on

iodine) and the " nodule " was gone. His assistant muttered something to me on

the phone about a " nipple shadow " as the explanation. (Never happened before or

after that incident) I had another catscan of my lungs a few years later and

still no nodule but showed some damage to my lungs from the frequent infections

that often left a bit of stuff in the lower part of the lung.

Yes, I do personally think that long term lung infections plus evil candy do add

up to more complications. I guess the best thing is to do everything one can to

reduce the incidence/use of evil candy and the infections. Easier said than

done, I know. I hope they have put you on replacement hormones after

hysterectomy. Genetic predisposition plus being female tends to increase the

likelihood of gall bladder disease. Had that experience too quite young.

Onward and upward!

>

> As many of you know, I have had the traditional open gallbladder surgery, 4

weeks later a hysterectomy.

>

> A year and a half ago, I was told I have costochondritis. The costo....has

been getting worse.

>

> I am at the point when I get the Xolair shot, I get a shot of cortisone as

well.

>

> As time goes on, the chest pains/spasms have been getting worse. The dr had me

get blood work, an angiogram and a CT scan. That was Tuesday. Wednesday, the

dr's office called to pack a bag, I was going to be admitted into the hospital.

>

> Long story short, tests indicate I have nodules on my lungs. Now I have to get

a biopsy.

>

> For those of you who know how warm and caring my family is (NOT), at this

time I am not sharing with them for self preservation reasons. They got me all

upset when I had the gallbladder and hysterectomy.

>

> I am scared though. This is 5 biopsies in one year. (All different reasons)

>

> Has anyone else experienced this?

>

> The xolair dr does not think this is from Xolair. He does feel that years on

the evil candy, opening me up for the gallbladder surgery, then the

hysterectomy, plus the costochondritis and lungs usually inflamed, these all

contribute for nodules.

>

> I don't know. I just know I am tired of constantly being in a dr's office.

>

> Time will tell. I just feel I am too young to be this old.

>

[Guest guest]

WOW. I am so sorry to hear you have ONE MORE THING on your plate, when you

already have such a full plate!

Lately I have been reading about immunity and hypersensitivity. Very simply:

those of us with these allergies that are IgE mediated have Type 1

hypersensitivity. But there are other types of hypersensitivity and a number of

ways that hypersensitivity can manifest itself.

I am wondering if you have a particularly weak immune system and/or a

particularly oversensitive, hyperresponsive hypersensitivity response and that

all of these various medical issues you have relate back to that.

Please let us know what you find out in this next biopsy, and please take good

care of yourself.

Addy

Group co-owner

>

> As many of you know, I have had the traditional open gallbladder surgery, 4

weeks later a hysterectomy.

>

> A year and a half ago, I was told I have costochondritis. The costo....has

been getting worse.

>

> I am at the point when I get the Xolair shot, I get a shot of cortisone as

well.

>

> As time goes on, the chest pains/spasms have been getting worse. The dr had me

get blood work, an angiogram and a CT scan. That was Tuesday. Wednesday, the

dr's office called to pack a bag, I was going to be admitted into the hospital.

>

> Long story short, tests indicate I have nodules on my lungs. Now I have to get

a biopsy.

>

> For those of you who know how warm and caring my family is (NOT), at this

time I am not sharing with them for self preservation reasons. They got me all

upset when I had the gallbladder and hysterectomy.

>

> I am scared though. This is 5 biopsies in one year. (All different reasons)

>

> Has anyone else experienced this?

>

> The xolair dr does not think this is from Xolair. He does feel that years on

the evil candy, opening me up for the gallbladder surgery, then the

hysterectomy, plus the costochondritis and lungs usually inflamed, these all

contribute for nodules.

>

> I don't know. I just know I am tired of constantly being in a dr's office.

>

> Time will tell. I just feel I am too young to be this old.

>