Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Addy, vent all you want here, you're not alone! I also have extreme allergies where I can't eat much of anything, haven't tasted anything good, really miss foods like bakery, pizza, pasta, bread, ice cream etc, can only eat a few foods and can't drink anything but water. It feels good to vent sometimes.... > > Sigh. I realize that I am an extremely atopically hypersensitive individual, BUT it is still frustrating to be taking more than $3000 worth of allergy meds each month and still, albeit rarely, wake up in the wee hours with my eyes almost swollen shut and tearing uncontrollably and my nose running everywhere. > > Sigh. > Addy. Group co-owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2009 Report Share Posted June 21, 2009 Hi Addy - I know this is virtual sacrilege, but I'm beginning to wonder if perhaps we don't, in some respects, overmedicate. In addition to the Xolair, I take Pulmicort, Nasacort, Combivent, Foradil and Zyrtec. I've been experimenting lately and find I can discontinue one or more of these meds without any apparent effect. I was taking all of these meds when I started on Xolair, and I think maybe I can get along without them. I remember at one point, I was taking Allegra D, and the dox told me to get off it. I was sure I'd have a terrible time without it, but found I didn't even notice the loss, except for a slight increase in sniffles, which I eliminated with generic Zyrtec at $.25 a pop. I'm going to keep experimenting and see what happens. Even though I get all my meds from Canada (when plan D poops out into the donut hole) at about one-third of domestic prices, it's still a lot of money I could be spending on booze and a more dissolute lifestyle. Ohldepharte ----- Original Message ----- From: pyle456 Sent: Friday, June 19, 2009 7:48 AM Subject: [ ] vent Sigh. I realize that I am an extremely atopically hypersensitive individual, BUT it is still frustrating to be taking more than $3000 worth of allergy meds each month and still, albeit rarely, wake up in the wee hours with my eyes almost swollen shut and tearing uncontrollably and my nose running everywhere. Sigh. Addy. Group co-owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2009 Report Share Posted June 21, 2009 Thanks! I am SO thankful I don't have to deal with food allergies. (Although I do wonder that if I went to only organic natural foods if I wouldn't have fewer symptoms generally). I don't know how some of y'all do it. I have not had any other acute episodes, but I do still have some inflammation around that one eye. I was sufficiently scared to refill all my emergency meds, which I've decided to call SAS medicines - Scared as Shit. Addy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2009 Report Share Posted June 21, 2009 Terry, I have a slightly different theory than yours. Mine is that our allegic process will find a way to get out, no matter what we take. It seems like every time I add something new (like when Astelin came out), some other, new symptom will appear. I don't take many meds on a daily basis, mostly thanks to Xolair. I took a whole bunch the other night when I woke up with that flare. I felt " poisoned " all that day, but so far, no more flares, and no lung symptoms. Zyrtec has never done anything for me. It's like water. Actually, all the antihistamines are like that for me now. I miss my dissolute lifestyle, too! Addy > > Hi Addy - I know this is virtual sacrilege, but I'm beginning to wonder if perhaps we don't, in some respects, overmedicate. In addition to the Xolair, I take Pulmicort, Nasacort, Combivent, Foradil and Zyrtec. I've been experimenting lately and find I can discontinue one or more of these meds without any apparent effect. I was taking all of these meds when I started on Xolair, and I think maybe I can get along without them. > > I remember at one point, I was taking Allegra D, and the dox told me to get off it. I was sure I'd have a terrible time without it, but found I didn't even notice the loss, except for a slight increase in sniffles, which I eliminated with generic Zyrtec at $.25 a pop. I'm going to keep experimenting and see what happens. Even though I get all my meds from Canada (when plan D poops out into the donut hole) at about one-third of domestic prices, it's still a lot of money I could be spending on booze and a more dissolute lifestyle. > > Ohldepharte > > > ----- Original Message ----- > From: pyle456 > > Sent: Friday, June 19, 2009 7:48 AM > Subject: [ ] vent > > > > > > Sigh. I realize that I am an extremely atopically hypersensitive individual, BUT it is still frustrating to be taking more than $3000 worth of allergy meds each month and still, albeit rarely, wake up in the wee hours with my eyes almost swollen shut and tearing uncontrollably and my nose running everywhere. > > Sigh. > Addy. Group co-owner > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2009 Report Share Posted June 21, 2009 I had NOT thought of grass pollens getting into grains. Ergh. I am very allergic to grass. Also very allergic to crepe myrtle, which is very prevalent here right now, and may or may not be the culprit for my current symptoms. I have been skin and RAST tested for food allergies, albeit not recently (last 10 years). Usually something turns up, but not on a major scale, and with some inconsistency. I know that elimination diets are the best methods of testing - I just don't have that much will power. I do have issues with milk increasing my mucus levels, so I try to keep my dairy consumption to a minimum. Take good care, Addy > > I hear you. Addy you would know if you are allergic to milk because most people have immediate reactions like drainage, etc. > And I don't know where you live but grass pollen is very prevalent here in Texas and being allergic to grass pollen crosses over into > most of the grains like wheat, etc. for me. I live on veggies and proteins and some fruits, etc. Sigh. I crave mac and cheese and homemade > biscuits with butter all the time. > Leigh > > > > > ________________________________ > From: pyle456 <jamcculloch2@...> > > Sent: Sunday, June 21, 2009 10:19:18 AM > Subject: [ ] Re: vent > > > > > > I don't. But currently food allergies and sleep apnea go into the following category: I'm already allergic to everything that grows, and have to take meds for high BP and osteoporosis. I'm not bothering to get diagnosed for anything else. > > Addy > > --- In , Leigh McCall-Alton <mccallalton@ ...> wrote: > > > > Addy, > > How do you know for certain that you have no food allergies? > > Igg based food allergies are delayed reactions and it takes a lot of investigation to uncover them. > > Leigh > > > > > > > > > > ____________ _________ _________ __ > > From: pyle456 <jamcculloch2@ ...> > > > > Sent: Sunday, June 21, 2009 7:17:19 AM > > Subject: [ ] Re: vent > > > > > > > > > > > > Thanks! > > > > I am SO thankful I don't have to deal with food allergies. (Although I do wonder that if I went to only organic natural foods if I wouldn't have fewer symptoms generally). I don't know how some of y'all do it. > > > > I have not had any other acute episodes, but I do still have some inflammation around that one eye. I was sufficiently scared to refill all my emergency meds, which I've decided to call SAS medicines - Scared as Shit. > > > > Addy > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2009 Report Share Posted July 6, 2009 , Please give it a little more time. I was the same way but it paid off. I am currently 55 years old and I have been in battle with Samptet's Triad disease for about the last 15 years. Xoliar has made a big difference in my asthma. Gwendolyn Rafter,MAOM,MBA/HRM From: Alderete <adge2159@...> Subject: [ ] vent Date: Monday, July 6, 2009, 5:17 PM Hey everyone, I first want to say that this group is great and I really appreciate how supportive and helpful everyone is. The reason I am emailing you all is because I am growing impatient with my xolair and I just need to vent out. I started xolair for my urticaria in late May but I haven't felt anything different, I know that it takes time for it to work but it just sucks because I physically can't do the things I want to do, and the fact I turn 21 in a week sucks to because I know it wont better by then. I just needed to get this off my chest because I am frustrated with my condition, but I just want to thank you all for listening and will continue to read and get your advice, thanks guys. adrian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 > > Hey everyone, I first want to say that this group is great and I really appreciate how supportive and helpful everyone is. The reason I am emailing you all is because I am growing impatient with my xolair and I just need to vent out. I started xolair for my urticaria in late May but I haven't felt anything different, I know that it takes time for it to work but it just sucks because I physically can't do the things I want to do, and the fact I turn 21 in a week sucks to because I know it wont better by then. I just needed to get this off my chest because I am frustrated with my condition, but I just want to thank you all for listening and will continue to read and get your advice, thanks guys. > > adrian > , Vent away! This is one of the reasons I created this group in 2003. You are among friends who understand here. Doug Quote Link to comment Share on other sites More sharing options...
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