Cystic Fibrosis, Asthma, Xolair

[Guest guest]

Recently I saw an infectious disease doc as I seem prone to infections; in fact

spent 3 months this winter with the flu and have trouble maintaining normal

bacteria in my digestive tract. I have been low on Vit D and had no trace of

Vit B6 both of which have been remedied with Rx treatment. I was told it was

from a lack of enzymes re B6. Also have trouble absorbing ferrous iron from

pills (causes diarrhea) which I forgot to mention to the doc.

The infectious disease doc suggested the possibility of an atypical presentation

of cystic fibrosis as the symptoms I've described (along with lifetime asthma

and sinusitis/infections)are known to be a part of cystic fibrosis. They know

now that adults can develop cystic fibrosis - it's not just a kid's disease.

I looked it up and noticed that Xolair has been used experimentally for cystic

fibrosis. Xolair did lower symptoms of asthma for several months and definitely

helped with the chronic sinus headaches. I stopped taking it when required to

go to an infusion center because I can't hold down a job and camp out there.

Furthermore, I was doing fine injecting at home in the first place.

Wondering if anyone else has heard this from their doc - that their severe

allergies including asthma and sinus infection might be atypical cystic

fibrosis? The infect dis doc is pushing nasal sprays and antihistamines.

Neither works for asthma or sinusitis and they do sometimes exacerbate both the

asthma and sinusitis.