Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 my daughter has been approved and is to start xolair shots(2 shots every 2 weeks) in a week ans a half. She has asthma but we are doing this more off label for her severe allergic skin. When I started the ball rolling on this her skin was extremely itchy, red all over and rash pretty much everywhere, She has been this way for 4+years, getting worse all the time. She also had hives on and off. My dd has been on heavy meds. to calm her skin like immune suppresants, doxepin, mega dose antihistamines, etc.(none of which helped) been doped up for weeks at a time to get much needed sleep. She has been seeing a naturopatic dr. and is on various supplements(natural anti histamines, natural anti imflammatory) probiotics, and just put on vit D because her levels are very low. Also on dairy free diet.the redness is less, rash less mostly on her arms and wrist, no hives(yeah) and well the itching is still there. I don't know if it is the supplements or her immune system kicked in to help or what caused the change. Ok, the point of this. I don't know what to do. I have fought for the xolair but now that she is better(about 30%) than she has been in years I am afraid to start the shots in fear things may go back to where they were, that xolair might cause reactions. Because of her high IgE and all her allergies she will be getting the maximum dose every two weeks. should I leave things alone because there is improvment or do you think xolair will help even more? make things worse? I know most of you are on for asthma but there have been some that xolair has helped their skin so pls. help if you have any suggestion. thanks for listening and for any help you can give. jean Quote Link to comment Share on other sites More sharing options...
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