Re: Re: not working

[Guest guest]

In a message dated 3/3/2001 5:27:50 PM Eastern Standard Time, rkba@... writes:

I personally quit going to public pools because I got tired of the stares

Ron - I often get stares as well - Not from P but at the pool from being overweight. Most times from children. My rebuttal to them is to say "You really should tell your Mommy and Daddy to teach you not to be so rude" and of course I say it loud enough for Mommy and Daddy to hear. So what if it's obnoxious?? I think we have a right to speak up when we are made to feel uncomfortable by someone due to physical appearance.

Just my 2 cents,

[Guest guest]

Thanks for the info... I will give it a shot...

" Judy G. " <judy40@...> wrote: Maybe if you put it in

your dry'n'store and leave it for at least 24 hours it might be okay. I

don't know for sure, but it's worth a try. A few times when my hearing aid got

wet while

the hair stylist was coloring my hair (I know, I know, but this happened almost

40 years

ago), I placed the aid in a warm spot and hoped for the best. It did " repair "

itself.

>

> Well Friday turned out to be one of the worst days in a long time.. For some

stupid

reason I had my processor on when I went in to take a shower.. I did remove the

body part

and the headpiece and placed in on the stand in the bathroom.. BUT after taking

a shower

I put it on and the headpiece is not working.. Could I have ruined it by having

it in the

bathroom while I showered.. This is the first time I have ever left it in the

bathroom while I

showered and there is a lot of humidity buildup while showering.. I am so mad at

myself

for not remembering to get it out before I showered.. I have to contact my Audi

Monday

and find out what will happen.. Any ever have this happen before??? Help

please..

> Much thanks

>

>

>

>

> ---------------------------------

> Need Mail bonding?

> Go to the Q & A for great tips from Answers users.

>

>

[Guest guest]

Well good and bad news came with my Bionic CI

Went to the audio, well my guy who I have dealt with since implanted was not in

so I dealt with someone else.. She said that it had to be sent back to Bionics..

In turn the would send a loaner , which because we are in a long weekend I will

not get until Tuesday..But I have the BWP as a back up .. It has cut out a few

times but I do not know if it is the cord or what is going on.. So I a, on pins

and needles keeping my mind on this... It is causing much stress worrying what

is happening and hoping for

the best.. So I will not know until Tuesday where I go from here.. But do know I

am not a happy customer with the way these things are handled by all...

Re: NOT WORKING

Hi

I had that - cutting in and off all morning, then suddenly silence by

lunchtime - then just shocking sensations. All was due to internal

implant failure (moisture in the internal implant). I have the MEd-

El, this was the COmbi C40+...

Had to be re-implanted, now with newer internal implant (Pulsar CI

100) and had an upgrade from Tempo+ BTE to OPUS 2 BTE 6 mths post re-

implant.

You'll need to see the CI Team, then have extensive tests by the

manuafactuer - to confirm failure if neccesary.

If thats the case, the +ve thing is you'll be re-implanted with

latest implant/processor. IF I didn't have the failure then I'd won't

be using the OPUS 2.

Hoep this helps - it is horrible, I know, but you can get thru it.

>

> The past 2 days my over the ear processor has stopped working... It

sounds like it is shorting out as it just keeps going off and on...

I have tried replacing the ear piece, the battery but nothing is

changing the problem.. Has anyone else had this problem.. I tried the

bwp to see if it did the same but that seems to be working fine..

Hoping that my audio can see me today to try to find out what is

happening here..

>

>

>

>

>

____________ _________ _________ _________ _________ _________ _

____________ __

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

>

>

>

[Guest guest]

I had the same thing happen to me in June 2006 but couldn't have it

replaced as was pregnant! It was such a shocking and tough time! I

only had it for 9 months in my left ear! When it happened it came

cutting in/out and they got an AB rep to come in and did a variety of

tests but eventually confirmed it was an implant failure. I cried and

my audiologist cried too. I didn't have any thing to hear hear with as

my right ear was " dead " .

It was 16 months before I could start to hear anything again! Since then

I had a reimplant op in my left ear and a new implant for my right ear

in Oct 2007 and I'm doing really well. I've not had any problems since

touch wood!.

Elaine from the UK

Bilateral CI user: 29th Oct 2007

tadyen wrote:

>

> In another group I posted about my implant cutting in/out that

> started doing it last summer that I had to keep going back to Audie

> to increase the RF and change some maps to stop cutting in out.

>

> But around Decemeber it finally cut in/out so bad and last month it

> gotten worse that I could no longer maintain stable audio. Last week

> a rep from AB came by to my audie office and she determined that I

> have an implant failure.

>

> So they set me up a surgery date to have it replaced. I was first

> implanted 4 year ago and during that time I was told that there were

> bad batch with bad sealant allowing mostiures to get into the interal

> implant but it was highly unlikly I had the one of those bad batch

> implant.

>

> Now it turn out that I do have one of those bad batch implant and

> will need it to be replaced.

>

> Well at least I will be getting the newest one now and hopefully they

> seal it better this time. I don't know if it an upgrade over my 4

> year old implant or it the same circuity.

>

> I know it sucks having to do all those surgery and recovering deal

> but I like my CI better than my hearing aids that I am willing to

> tolerate it all again.

>

> Bill

>

>

> > >

> > > The past 2 days my over the ear processor has stopped working...

> It

> > sounds like it is shorting out as it just keeps going off and on...

> > I have tried replacing the ear piece, the battery but nothing is

> > changing the problem.. Has anyone else had this problem.. I tried

> the

> > bwp to see if it did the same but that seems to be working fine..

> > Hoping that my audio can see me today to try to find out what is

> > happening here..

> > >

> > >

> > >

> > >

> > >

> > ____________ _________ _________ _________ _________ _________ _

> > ____________ __

> > > Be a better friend, newshound, and

> > > know-it-all with Mobile. Try it now.

> > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> > >

> > >

> > >

[Guest guest]

I have the implant from manufacturer B, Ted, and I'm not about to want

a replacement unless this one fails. They don't all fail. If they

offered a reimplant right now for everyone I wouldn't take it.

Virg

> Hello Bill

>

> I thought Advanced Bionics KNEW exactly which implants were

affected,

> right from the beginning. They talk about Manufacturer " A " and

> Manufacturer " B " , one or the other was supplying the faulty

implants.

> I would have thought it would be prudent of them to replace ALL of

> that particular manufacturers implants, without waiting to see if

> they fail. If its a KNOWN problem, which it is, it should be fixed

> with a reliable implant.

>

> I'm sorry to hear about people having to go through this surgery a

> second time, with always the chance of problems and that the re-

> implantation might not work.

>

> Ted F.

>

>

>

>

> > > >

> > > > The past 2 days my over the ear processor has stopped

> working...

> > It

> > > sounds like it is shorting out as it just keeps going off and

> on...

> > > I have tried replacing the ear piece, the battery but nothing is

> > > changing the problem.. Has anyone else had this problem.. I

tried

> > the

> > > bwp to see if it did the same but that seems to be working

fine..

> > > Hoping that my audio can see me today to try to find out what is

> > > happening here..

> > > >

> > > >

> > > >

> > > >

> > > >

> > > ____________ _________ _________ _________ _________ _________ _

> > > ____________ __

> > > > Be a better friend, newshound, and

> > > > know-it-all with Mobile. Try it now.

> > > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> > > >

> > > >

> > > >

[Guest guest]

I have the implant from manufacturer B, Ted, and I'm not about to want

a replacement unless this one fails. They don't all fail. If they

offered a reimplant right now for everyone I wouldn't take it.

Virg

> Hello Bill

>

> I thought Advanced Bionics KNEW exactly which implants were

affected,

> right from the beginning. They talk about Manufacturer " A " and

> Manufacturer " B " , one or the other was supplying the faulty

implants.

> I would have thought it would be prudent of them to replace ALL of

> that particular manufacturers implants, without waiting to see if

> they fail. If its a KNOWN problem, which it is, it should be fixed

> with a reliable implant.

>

> I'm sorry to hear about people having to go through this surgery a

> second time, with always the chance of problems and that the re-

> implantation might not work.

>

> Ted F.

>

>

>

>

> > > >

> > > > The past 2 days my over the ear processor has stopped

> working...

> > It

> > > sounds like it is shorting out as it just keeps going off and

> on...

> > > I have tried replacing the ear piece, the battery but nothing is

> > > changing the problem.. Has anyone else had this problem.. I

tried

> > the

> > > bwp to see if it did the same but that seems to be working

fine..

> > > Hoping that my audio can see me today to try to find out what is

> > > happening here..

> > > >

> > > >

> > > >

> > > >

> > > >

> > > ____________ _________ _________ _________ _________ _________ _

> > > ____________ __

> > > > Be a better friend, newshound, and

> > > > know-it-all with Mobile. Try it now.

> > > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> > > >

> > > >

> > > >

[Guest guest]

Kat

New York University.

L-deafened

Re: NOT WORKING

>

>

>

> Yes I had the same problem, it's starteda you outline

> and withing 2 weeks the system went back to silence.

>

> The Doctor said moisture in the implanted part was the culprit.

>

>

> L- deafened

>

>

>

>

>

>

____________ _________ _________ _________ _________ _________ _

____________ __

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

>

>

>

[Guest guest]

Hello Ted

I am sure AB knew about manufacture A or B moisture problem; so did NYU

and I wasn't told. Not even a caution word.

Nothing at all.

L-deafened

Re: Re: NOT WORKING

I have the implant from manufacturer B, Ted, and I'm not about to want

a replacement unless this one fails. They don't all fail. If they

offered a reimplant right now for everyone I wouldn't take it.

Virg

> Hello Bill

>

> I thought Advanced Bionics KNEW exactly which implants were

affected,

> right from the beginning. They talk about Manufacturer " A " and

> Manufacturer " B " , one or the other was supplying the faulty

implants.

> I would have thought it would be prudent of them to replace ALL of

> that particular manufacturers implants, without waiting to see if

> they fail. If its a KNOWN problem, which it is, it should be fixed

> with a reliable implant.

>

> I'm sorry to hear about people having to go through this surgery a

> second time, with always the chance of problems and that the re-

> implantation might not work.

>

> Ted F.

>

>

>

>

> > > >

> > > > The past 2 days my over the ear processor has stopped

> working...

> > It

> > > sounds like it is shorting out as it just keeps going off and

> on...

> > > I have tried replacing the ear piece, the battery but nothing is

> > > changing the problem.. Has anyone else had this problem.. I

tried

> > the

> > > bwp to see if it did the same but that seems to be working

fine..

> > > Hoping that my audio can see me today to try to find out what is

> > > happening here..

> > > >

> > > >

> > > >

> > > >

> > > >

> > > ____________ _________ _________ _________ _________ _________ _

> > > ____________ __

> > > > Be a better friend, newshound, and

> > > > know-it-all with Mobile. Try it now.

> > > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ

> > > >

> > > >

> > > >

[Guest guest]

The dud one, Ted. They sent me a letter maybe a year ago simply

telling me that mine was from that manufacturer and that some from

there had failed. I'm sure that should mine fail they would pay for

reimplantation.

Virg

> At least that would be your own choice, Virg. Was manufacturer B,

the

> good one or the dud one?

>

> Ted F.

>

>

>

>

>

> >

> > I have the implant from manufacturer B, Ted, and I'm not about to

want

> > a replacement unless this one fails. They don't all fail. If

they

> > offered a reimplant right now for everyone I wouldn't take it.

> >

> > Virg

> >

> >

>

>

>

>

[Guest guest]

I don't understand that, . AB notified everyone who received an

implant from that supplier after they discovered the connection. They

didn't wait and then say " Oops, it must have been mfg B " when one

failed. Why would I want mine replaced when it's still working as

well as ever?

Virg

> Oh Ted, you ray of sunshine,

> NO implant company is going to replace a model until it starts

not

> working. Or stops working. They can tell you all they want about

> manufacturer A vs manufacturer B, but will rarely admit you got

stuck

> with the lemon. When it fails down the line, then they say, " oops,

it

> must have been Mfg. B " , let us replace it. But I know of none that

> replace until it stops working.

[Guest guest]

I have asthma always in response to severe allergies to pollens, dust,molds and

do not have reflux.Also have all the other allergy symptoms re: eyes, nose and

skin. Severe.

________________________________

From: billybaroo1958 <cajjz109@...>

Sent: Tuesday, April 7, 2009 8:26:33 PM

Subject: [ ] Re: not working

I know you have posted here quite a few times, but what exactly are your

symptoms? Do you notice a connection between allergic reactions and asthma

attacks? Not asthma exacerbations or difficulty breathing. I have very mild

asthma and difficulty breathing sometimes with strenuous exercise. Xolair did

nothing for that despite IgE levels around 300. But, it shut down my EE for the

most part and most of my skin atopy. So, not all that seems part of atopy is

truly atopic.

--- In , " shirl.halpern " <shirl.halpern@ ...>

wrote:

>

> I have been on Xolair for 13 months with absolutely no result. The frequency

and dosage is appropriate for my IgE value and weight and I am not on the border

of the next dosage up either. Have any of you with only moderate IgE levels have

had to wait a long time to see any improvement at all?

>

[Guest guest]

What's an EE?

----- Original Message -----

From: billybaroo1958

Sent: Tuesday, April 07, 2009 9:26 PM

Subject: [ ] Re: not working

I know you have posted here quite a few times, but what exactly are your

symptoms? Do you notice a connection between allergic reactions and asthma

attacks? Not asthma exacerbations or difficulty breathing. I have very mild

asthma and difficulty breathing sometimes with strenuous exercise. Xolair did

nothing for that despite IgE levels around 300. But, it shut down my EE for the

most part and most of my skin atopy. So, not all that seems part of atopy is

truly atopic.

--- In , " shirl.halpern " <shirl.halpern@...>

wrote:

>

> I have been on Xolair for 13 months with absolutely no result. The frequency

and dosage is appropriate for my IgE value and weight and I am not on the border

of the next dosage up either. Have any of you with only moderate IgE levels have

had to wait a long time to see any improvement at all?

>

[Guest guest]

Have you been checked for Acid Reflux/Gerd? Unresponsive asthma is often

triggered by this condition. You can asctualy aspirate into your lungs.

The reflux can also be silent.

________________________________

From: uca79iii <uca79iii@...>

Sent: Thursday, April 9, 2009 5:25:46 PM

Subject: [ ] Re: not working

--- In , " shirl.halpern " <shirl.halpern@ ...>

wrote:

>

> Somehow my question got entagled with someone else's- I have severe allergic

asthma and have not responded at all to the Xolair after 13 months. I am on the

correct dose for my IGE and weight. Can anyone out there respond to me without

giving details about their own asthma that are not relevant to my question, and

that is actually helpful?

>

It took me a few days over a year and I hear that it does take some people

longer. Sorry I wasn't much help.

What does your doctor say? Mine told me to stay the course and I did.

Doug

[Guest guest]

My Pulmo has stated to me over and over that it is well documented and

proven that GERD does effect asthma and in fact brings on asthma

attacks.

Ron

On Apr 10, 2009, at 8:06 AM, fpa9 wrote:

>

>

> I like this notion. Although JUST yesterday the New England Journal

> Of Medicine reported that drugs that fight GERD (namely

> esomeprazole, Nexium) do not have an effect in the treatment of

> asthma.

>

>

> > >

> > > Somehow my question got entagled with someone else's- I have

> severe allergic asthma and have not responded at all to the Xolair

> after 13 months. I am on the correct dose for my IGE and weight. Can

> anyone out there respond to me without giving details about their

> own asthma that are not relevant to my question, and that is

> actually helpful?

> > >

> >

> > It took me a few days over a year and I hear that it does take

> some people longer. Sorry I wasn't much help.

> > What does your doctor say? Mine told me to stay the course and I

> did.

> >

> > Doug

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

did anyone read the recent article on the net about research that found the acid

reducers don't work in asthma cases?  I should have saved it and sent it.  I

found it very interesting since my allergist is insistent that I take Nexium OR

aciphex.  Right now he has me on aciphex.  I had an endoscopy and it showed no

damage.  I do have a very large hiatal hernia that my allergist insists would

help the reflux problem if I had the hernia operated on.  I am still

apprehensive about having hiatal hernia surgery.

 

And as to the xolair.....I think it was a little over a year when I looked back

and discovered that the benefit from the xolair, at least for me, was very

gradual.  I had my first sinus infection in over three years in January,

probably because my immune system was stressed out anyway.  My infections

usually started with the nasal drip (and previous to xolair) and would be

accompanied by more intense asthma.  So as I look back at my years on xolair, it

has been a gradual  " bettering " of my asthma condition.  I still have breathing

problems when I do too much physically, but I will always have some asthma which

is not connected to allergies.

 

Have a wonderful blessed Easter, all. 

 

 

From: Leigh McCall-Alton <mccallalton@...>

Subject: Re: [ ] Re: not working

Date: Thursday, April 9, 2009, 9:31 PM

Have you been checked for Acid Reflux/Gerd? Unresponsive asthma is often

triggered by this condition. You can asctualy aspirate into your lungs.

The reflux can also be silent.

____________ _________ _________ __

From: uca79iii <uca79iiigmail (DOT) com>

Sent: Thursday, April 9, 2009 5:25:46 PM

Subject: [ ] Re: not working

--- In , " shirl.halpern " <shirl.halpern@ ...>

wrote:

>

> Somehow my question got entagled with someone else's- I have severe allergic

asthma and have not responded at all to the Xolair after 13 months. I am on the

correct dose for my IGE and weight. Can anyone out there respond to me without

giving details about their own asthma that are not relevant to my question, and

that is actually helpful?

>

It took me a few days over a year and I hear that it does take some people

longer. Sorry I wasn't much help.

What does your doctor say? Mine told me to stay the course and I did.

Doug

[Guest guest]

So....I should have read your post before I wrote mine.  That is what I read

about.....Thanks for mentioning that article.  I wonder if my allergist will

read it and immediately take me off of aciphex!

From: fpa9 <fpa9@...>

Subject: [ ] Re: not working

Date: Friday, April 10, 2009, 8:06 AM

I like this notion. Although JUST yesterday the New England Journal Of Medicine

reported that drugs that fight GERD (namely esomeprazole, Nexium) do not have an

effect in the treatment of asthma.

--- In , Leigh McCall-Alton <mccallalton@ ...>

wrote:

>

> Have you been checked for Acid Reflux/Gerd? Unresponsive asthma is often

triggered by this condition. You can asctualy aspirate into your lungs.

> The reflux can also be silent.

>

>

>

>

> ____________ _________ _________ __

> From: uca79iii <uca79iii@.. .>

>

> Sent: Thursday, April 9, 2009 5:25:46 PM

> Subject: [ ] Re: not working

>

>

>

>

>

> --- In , " shirl.halpern " <shirl.halpern@ ...>

wrote:

> >

> > Somehow my question got entagled with someone else's- I have severe allergic

asthma and have not responded at all to the Xolair after 13 months. I am on the

correct dose for my IGE and weight. Can anyone out there respond to me without

giving details about their own asthma that are not relevant to my question, and

that is actually helpful?

> >

>

> It took me a few days over a year and I hear that it does take some people

longer. Sorry I wasn't much help.

> What does your doctor say? Mine told me to stay the course and I did.

>

> Doug

>

>

>

>

>

>

>

>

[Guest guest]

My asthma does better when I am being treated for GERD and flares up when I stop

(on my own, without medical advice....my bad) the GERD meds.

 Mike McBride

Don't cry because it's over, laugh because it happened. Dr. Seuss

________________________________

From: Carpenter <cowtrail@...>

Sent: Friday, April 10, 2009 6:13:41 AM

Subject: Re: [ ] Re: not working

My Pulmo has stated to me over and over that it is well documented and

proven that GERD does effect asthma and in fact brings on asthma

attacks.

Ron

On Apr 10, 2009, at 8:06 AM, fpa9 wrote:

>

>

> I like this notion. Although JUST yesterday the New England Journal

> Of Medicine reported that drugs that fight GERD (namely

> esomeprazole, Nexium) do not have an effect in the treatment of

> asthma.

>

>

> > >

> > > Somehow my question got entagled with someone else's- I have

> severe allergic asthma and have not responded at all to the Xolair

> after 13 months. I am on the correct dose for my IGE and weight. Can

> anyone out there respond to me without giving details about their

> own asthma that are not relevant to my question, and that is

> actually helpful?

> > >

> >

> > It took me a few days over a year and I hear that it does take

> some people longer. Sorry I wasn't much help.

> > What does your doctor say? Mine told me to stay the course and I

> did.

> >

> > Doug

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

My Pulmo prescribes 1 Prevacid, 30 mg, daily as a " preventative " . It

seems to work very well for me over the last 4 years, YMMV. I also

have Reglan 5 mg if I have an " episode " of GERD which occurs maybe

once every two months, 1 Reglan and it goes away. I am aware of a FDA

black box on Reglan, but for my occasional use I am not concerned.

My GERD symptoms seemed to have diminished greatly since I started

Xolair over 3 years ago and although I still take a lot of meds, My

quality of life has improved to the point I would not want to stop the

Xolair, everything is relative.

Ron

On Apr 10, 2009, at 1:45 PM, heather wrote:

>

>

> i'm wondering if nexium/aciphex only helps asthma if you actually

> have GERD...but not as a preventitive thing. i have gerd (plus a

> " farm of ulcers " as my GI put it) confirmed by endoscopy. i know for

> a fact when my gerd acts up, i have trouble breathing, and feel like

> i'm breathing " wet " if that makes sense.

>

>

> > > >

> > > > Somehow my question got entagled with someone else's- I have

> severe allergic asthma and have not responded at all to the Xolair

> after 13 months. I am on the correct dose for my IGE and weight. Can

> anyone out there respond to me without giving details about their

> own asthma that are not relevant to my question, and that is

> actually helpful?

> > > >

> > >

> > > It took me a few days over a year and I hear that it does take

> some people longer. Sorry I wasn't much help.

> > > What does your doctor say? Mine told me to stay the course and I

> did.

> > >

> > > Doug

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Yes, , you are right.  I do have GERD which the endoscopy did show.  And

I do feel better when I take nexium or aciphex regularly.  I do have trouble

breathing when the reflux is bothering me, but I have also thought the hernia

was not allowing food to go down which also causes breathing problems.  I have

learned that if I eat too quickly or eat too much bread in one bite that I feel

a knot in my throat and my breathing becomes short and labored for a few

minutes.  Usually resolves itself if I quit eating and just sit quietly and as

straight as I can.

From: heather <heaven1975@...>

Subject: [ ] Re: not working

Date: Friday, April 10, 2009, 1:45 PM

i'm wondering if nexium/aciphex only helps asthma if you actually have

GERD...but not as a preventitive thing. i have gerd (plus a " farm of ulcers " as

my GI put it) confirmed by endoscopy. i know for a fact when my gerd acts up, i

have trouble breathing, and feel like i'm breathing " wet " if that makes sense.

>

> From: fpa9 <fpa9@...>

> Subject: [ ] Re: not working

>

> Date: Friday, April 10, 2009, 8:06 AM

>

>

>

>

>

>

>

>

> I like this notion. Although JUST yesterday the New England Journal Of

Medicine reported that drugs that fight GERD (namely esomeprazole, Nexium) do

not have an effect in the treatment of asthma.

>

> --- In , Leigh McCall-Alton <mccallalton@ ...>

wrote:

> >

> > Have you been checked for Acid Reflux/Gerd? Unresponsive asthma is often

triggered by this condition. You can asctualy aspirate into your lungs.

> > The reflux can also be silent.

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: uca79iii <uca79iii@ .>

> >

> > Sent: Thursday, April 9, 2009 5:25:46 PM

> > Subject: [ ] Re: not working

> >

> >

> >

> >

> >

> > --- In , " shirl.halpern " <shirl.halpern@ ...>

wrote:

> > >

> > > Somehow my question got entagled with someone else's- I have severe

allergic asthma and have not responded at all to the Xolair after 13 months. I

am on the correct dose for my IGE and weight. Can anyone out there respond to me

without giving details about their own asthma that are not relevant to my

question, and that is actually helpful?

> > >

> >

> > It took me a few days over a year and I hear that it does take some people

longer. Sorry I wasn't much help.

> > What does your doctor say? Mine told me to stay the course and I did.

> >

> > Doug

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Woooo---I am actually regurgitating and aspirating into my lungs which is

killing me asthma wise.  My brava study was in the 95th percentile and I must

have fundoplication and HH correction.  Have you been checked for a HH/GERD or

were you randomy placed on acid meds? 

________________________________

From: Adah Voigt <asthmatic50@...>

Sent: Friday, April 10, 2009 11:33:32 AM

Subject: Re: [ ] Re: not working

So....I should have read your post before I wrote mine.  That is what I read

about.....Thanks for mentioning that article.  I wonder if my allergist will

read it and immediately take me off of aciphex!

From: fpa9 <fpa9@...>

Subject: [ ] Re: not working

Date: Friday, April 10, 2009, 8:06 AM

I like this notion. Although JUST yesterday the New England Journal Of Medicine

reported that drugs that fight GERD (namely esomeprazole, Nexium) do not have an

effect in the treatment of asthma.

--- In , Leigh McCall-Alton <mccallalton@ ...>

wrote:

>

> Have you been checked for Acid Reflux/Gerd? Unresponsive asthma is often

triggered by this condition. You can asctualy aspirate into your lungs.

> The reflux can also be silent.

>

>

>

>

> ____________ _________ _________ __

> From: uca79iii <uca79iii@.. .>

>

> Sent: Thursday, April 9, 2009 5:25:46 PM

> Subject: [ ] Re: not working

>

>

>

>

>

> --- In , " shirl.halpern " <shirl.halpern@ ...>

wrote:

> >

> > Somehow my question got entagled with someone else's- I have severe allergic

asthma and have not responded at all to the Xolair after 13 months. I am on the

correct dose for my IGE and weight. Can anyone out there respond to me without

giving details about their own asthma that are not relevant to my question, and

that is actually helpful?

> >

>

> It took me a few days over a year and I hear that it does take some people

longer. Sorry I wasn't much help.

> What does your doctor say? Mine told me to stay the course and I did.

>

> Doug

>

>

>

>

>

>

>

>

[Guest guest]

Ron

Your doctor is exactly right. 

Leigh

________________________________

From: Carpenter <cowtrail@...>

Sent: Friday, April 10, 2009 10:13:41 AM

Subject: Re: [ ] Re: not working

My Pulmo has stated to me over and over that it is well documented and

proven that GERD does effect asthma and in fact brings on asthma

attacks.

Ron

On Apr 10, 2009, at 8:06 AM, fpa9 wrote:

>

>

> I like this notion. Although JUST yesterday the New England Journal

> Of Medicine reported that drugs that fight GERD (namely

> esomeprazole, Nexium) do not have an effect in the treatment of

> asthma.

>

>

> > >

> > > Somehow my question got entagled with someone else's- I have

> severe allergic asthma and have not responded at all to the Xolair

> after 13 months. I am on the correct dose for my IGE and weight. Can

> anyone out there respond to me without giving details about their

> own asthma that are not relevant to my question, and that is

> actually helpful?

> > >

> >

> > It took me a few days over a year and I hear that it does take

> some people longer. Sorry I wasn't much help.

> > What does your doctor say? Mine told me to stay the course and I

> did.

> >

> > Doug

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Xolair not only helps my asthma but helps tremendously with my allergic skin. 

Soooo much better after I take the injections.  It is a miracle.

LMc

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Thursday, April 9, 2009 1:24:18 PM

Subject: [ ] Re: not working

Fpa9 - you are absolutely right, but I just wanted to chime in that there are

any number of Xolair patients who are using it for off-label uses, including and

especially severe allergic skin conditions.

Shirl, I know we've had a handful of folks who didn't see improvement until

12-15 months into Xolair treatment. What does your doctor say about staying on

Xolair?

Addy

Group co-owner

> > > >

> > > > I know you have posted here quite a few times, but what exactly are your

symptoms? Do you notice a connection between allergic reactions and asthma

attacks? Not asthma exacerbations or difficulty breathing. I have very mild

asthma and difficulty breathing sometimes with strenuous exercise. Xolair did

nothing for that despite IgE levels around 300. But, it shut down my EE for the

most part and most of my skin atopy. So, not all that seems part of atopy is

truly atopic.

> > > >

> > > >

> > > >

> > > > --- In , " shirl.halpern " <shirl.halpern@ >

wrote:

> > > > >

> > > > > I have been on Xolair for 13 months with absolutely no result. The

frequency and dosage is appropriate for my IgE value and weight and I am not on

the border of the next dosage up either. Have any of you with only moderate IgE

levels have had to wait a long time to see any improvement at all?

> > > > >

> > > >

> > >

> >

>

[Guest guest]

My new allergist is pulling his patients off the GERD medications, if they have

no proof of active GERD. (Gastroscopy etc).

One less medication to monkey around with.

Nan

Adah Voigt wrote:

> So....I should have read your post before I wrote mine.  That is what I

read about.....Thanks for mentioning that article.  I wonder if my allergist

will read it and immediately take me off of aciphex!

>

> From: fpa9 < fpa9@... >

> Subject: [ ] Re: not working

>

> Date: Friday, April 10, 2009, 8:06 AM

> I like this notion. Although JUST yesterday the New England Journal Of

Medicine reported that drugs that fight GERD (namely esomeprazole, Nexium) do

not have an effect in the treatment of asthma.

> --- In , Leigh McCall-Alton <mccallalton@ ...>

wrote:

>>

>> Have you been checked for Acid Reflux/Gerd? Unresponsive asthma is often

triggered by this condition. You can asctualy aspirate into your lungs.

>> The reflux can also be silent.

>>

>>

>>

>>

>> ____________ _________ _________ __

>> From: uca79iii <uca79iii@.. .>

>>

>> Sent: Thursday, April 9, 2009 5:25:46 PM

>> Subject: [ ] Re: not working

>>

>>

>>

>>

>>

>> --- In , " shirl.halpern " <shirl.halpern@ ...>

wrote:

>> >

>> > Somehow my question got entagled with someone else's- I have severe

allergic asthma and have not responded at all to the Xolair after 13 months. I

am on the correct dose for my IGE and weight. Can anyone out there respond to me

without giving details about their own asthma that are not relevant to my

question, and that is actually helpful?

>> >

>>

>> It took me a few days over a year and I hear that it does take some people

longer. Sorry I wasn't much help.

>> What does your doctor say? Mine told me to stay the course and I did.

>>

>> Doug

>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

I was on Xolair for 4 years, and it didn & #39;t do much and made somethings

worse.

I & #39;m so jealous of all you people who have fanastic results. Everything

doesn & #39;t work for everyone. (pity party for me!

I & #39;m seeing a new allergist and getting worked up for idiopathic

anaphylaxis/mastocytosis. He laughed at least we can scratch Xolair off the list

of medications to try.

We talked about Xolair. The following is HIS opinion, he ran one of the big deal

Xolair trials in my state. (I hope the following isn & #39;t true because it will

limit folks trying to get on Xolair & lt;---my opinion.)

Xolair works about 60% of the time, though most people will not see a huge

decrease in the amount of medication they take. He doubts Xolair will do much

for food allergies/eczema, but with less than stellar results for asthma, the

company is trying to find other uses for the drug.

He said in their clinic, after four months if no improvement is seen, you are

taking off Xolair. I was surprised and said I had heard it could take up to 18

mons for improvement. He said no medication should take take that long to show

that is helping symptons. Though, when Xolair really works, it & #39;s great, and

he is disapointed it isn & #39;t the wonder drug for asthma.

I & #39;m guess the 4 month deal is fueled by the insurance companies not want to

pay $$$ for & quot;mininal & quot; benefit.

Nan-- & gt;strung out on pred, zantac, benadryl and Intal

heather wrote:

> it only took me 8 months or so to see some kind of improvement. ...but

i've heard it can take up to 18 months. what does your dr think? i'm sure its

frustrating just waiting...

>

>>

>> --- In , " shirl.halpern " <shirl.halpern@ >

wrote:

>> >

>> > Somehow my question got entagled with someone else's- I have severe

allergic asthma and have not responded at all to the Xolair after 13 months. I

am on the correct dose for my IGE and weight. Can anyone out there respond to me

without giving details about their own asthma that are not relevant to my

question, and that is actually helpful?

>> >

>>

>>

>>

>> It took me a few days over a year and I hear that it does take some people

longer. Sorry I wasn't much help.

>> What does your doctor say? Mine told me to stay the course and I did.

>>

>> Doug

>>

>

[Guest guest]

Jean

I am not sure because I wasn't really paying attention to the sensitivity to

touch. Maybe that symptom went away in a few months. Still get contact itching

particularly with spring pollens and adhesives. Right now I am regurgitating

and aspirating into my lungs so I need fundoplication (what a misnomer) and

Hiatus hernia surgery. Creates impossible asthma but xolair has kept me alive.

I plan on going to the Mayo Clinic for surgery. National Jewish in Denver

diagnosed me. I am lucky to be able to get appointments at the best places for

this.

Are you on prednisone--it thinned my skin and made my itching and atopic

condition much much worse.

LMA

________________________________

From: gigles_1955 <fgigles55@...>

Sent: Thursday, April 16, 2009 12:57:23 PM

Subject: [ ] Re: not working

Hi, I'm sorry if I already ask you this but how long did you notice the xolair

helping your allergic skin? thank you. jean

>

> Xolair not only helps my asthma but helps tremendously with my allergic skin.

Soooo much better after I take the injections. It is a miracle.

> LMc

>