Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 , I have a Freedom in one ear and a Med-El in the other ear. My Med-El has done this twice over the past 6.5 years. Both times the problem was in the battery case. The contacts, or whatever you call them, went bad. It behaved exactly as you described. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Kat It can't be fixed. The whole implanted part has to be removed, I am waiting for a CI version before replacing it, as I never understand much with the CI in the first place. L-deafened Re: NOT WORKING Yes I had the same problem, it's starteda you outline and withing 2 weeks the system went back to silence. The Doctor said moisture in the implanted part was the culprit. L- deafened ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 , I am very sorry for your distress. I would be very upset if this occured to me, two weeks after activation, moisture getting inside the internal CI. I might have missed your earlier post, but what implant did you get? Chris On Fri, Feb 15, 2008 at 9:06 PM, Ismael Varga <ahmeva@...> wrote: > > > > > > > Kat > > It can't be fixed. > > The whole implanted part has to be removed, > I am waiting for a CI version before replacing it, > as I never understand much with the CI in the first place. > > > L-deafened > > Re: NOT WORKING > > > > Yes I had the same problem, it's starteda you outline > and withing 2 weeks the system went back to silence. > > The Doctor said moisture in the implanted part was the culprit. > > > L- deafened > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Hi I had that - cutting in and off all morning, then suddenly silence by lunchtime - then just shocking sensations. All was due to internal implant failure (moisture in the internal implant). I have the MEd- El, this was the COmbi C40+... Had to be re-implanted, now with newer internal implant (Pulsar CI 100) and had an upgrade from Tempo+ BTE to OPUS 2 BTE 6 mths post re- implant. You'll need to see the CI Team, then have extensive tests by the manuafactuer - to confirm failure if neccesary. If thats the case, the +ve thing is you'll be re-implanted with latest implant/processor. IF I didn't have the failure then I'd won't be using the OPUS 2. Hoep this helps - it is horrible, I know, but you can get thru it. > > The past 2 days my over the ear processor has stopped working... It sounds like it is shorting out as it just keeps going off and on... I have tried replacing the ear piece, the battery but nothing is changing the problem.. Has anyone else had this problem.. I tried the bwp to see if it did the same but that seems to be working fine.. Hoping that my audio can see me today to try to find out what is happening here.. > > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 , Sorry to hear of your distress. Where did you have your surgery ? > > Kat > > It can't be fixed. > > The whole implanted part has to be removed, > I am waiting for a CI version before replacing it, > as I never understand much with the CI in the first place. > > > L-deafened > > > > Re: NOT WORKING > > > > Yes I had the same problem, it's starteda you outline > and withing 2 weeks the system went back to silence. > > The Doctor said moisture in the implanted part was the culprit. > > > L- deafened > > > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 In another group I posted about my implant cutting in/out that started doing it last summer that I had to keep going back to Audie to increase the RF and change some maps to stop cutting in out. But around Decemeber it finally cut in/out so bad and last month it gotten worse that I could no longer maintain stable audio. Last week a rep from AB came by to my audie office and she determined that I have an implant failure. So they set me up a surgery date to have it replaced. I was first implanted 4 year ago and during that time I was told that there were bad batch with bad sealant allowing mostiures to get into the interal implant but it was highly unlikly I had the one of those bad batch implant. Now it turn out that I do have one of those bad batch implant and will need it to be replaced. Well at least I will be getting the newest one now and hopefully they seal it better this time. I don't know if it an upgrade over my 4 year old implant or it the same circuity. I know it sucks having to do all those surgery and recovering deal but I like my CI better than my hearing aids that I am willing to tolerate it all again. Bill > > > > The past 2 days my over the ear processor has stopped working... It > sounds like it is shorting out as it just keeps going off and on... > I have tried replacing the ear piece, the battery but nothing is > changing the problem.. Has anyone else had this problem.. I tried the > bwp to see if it did the same but that seems to be working fine.. > Hoping that my audio can see me today to try to find out what is > happening here.. > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > ____________ __ > > Be a better friend, newshound, and > > know-it-all with Mobile. Try it now. > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 I'm sorry to hear that - do they know why there was so much moisture in the implant? Kat From: Ismael Varga Sent: Friday, February 15, 2008 9:06 PM Subject: Re: NOT WORKING Kat It can't be fixed. The whole implanted part has to be removed, I am waiting for a CI version before replacing it, as I never understand much with the CI in the first place. L-deafened Re: NOT WORKING Yes I had the same problem, it's starteda you outline and withing 2 weeks the system went back to silence. The Doctor said moisture in the implanted part was the culprit. L- deafened __________________________________________________________ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ [ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Hello Bill I thought Advanced Bionics KNEW exactly which implants were affected, right from the beginning. They talk about Manufacturer " A " and Manufacturer " B " , one or the other was supplying the faulty implants. I would have thought it would be prudent of them to replace ALL of that particular manufacturers implants, without waiting to see if they fail. If its a KNOWN problem, which it is, it should be fixed with a reliable implant. I'm sorry to hear about people having to go through this surgery a second time, with always the chance of problems and that the re- implantation might not work. Ted F. > > > > > > The past 2 days my over the ear processor has stopped working... > It > > sounds like it is shorting out as it just keeps going off and on... > > I have tried replacing the ear piece, the battery but nothing is > > changing the problem.. Has anyone else had this problem.. I tried > the > > bwp to see if it did the same but that seems to be working fine.. > > Hoping that my audio can see me today to try to find out what is > > happening here.. > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > ____________ __ > > > Be a better friend, newshound, and > > > know-it-all with Mobile. Try it now. > > http://mobile. / ;_ylt=Ahu06i62sR 8HDtDypao8Wcj9tA cJ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 Kat, Kat, From what I have heard there may have been a case where some vendors for a short period of time did not seal the case in a dry enough environment and the electronics will start to corrode after a period of time is just one possibility I have heard on the web. > > I'm sorry to hear that - do they know why there was so much moisture in the > implant? > > Kat > > From: Ismael Varga > Sent: Friday, February 15, 2008 9:06 PM > > Subject: Re: NOT WORKING > > > Kat > > It can't be fixed. > > The whole implanted part has to be removed, > I am waiting for a CI version before replacing it, > as I never understand much with the CI in the first place. > > > L-deafened > > Re: NOT WORKING > > > > Yes I had the same problem, it's starteda you outline > and withing 2 weeks the system went back to silence. > > The Doctor said moisture in the implanted part was the culprit. > > > L- deafened > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > [ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 At least that would be your own choice, Virg. Was manufacturer B, the good one or the dud one? Ted F. > > I have the implant from manufacturer B, Ted, and I'm not about to want > a replacement unless this one fails. They don't all fail. If they > offered a reimplant right now for everyone I wouldn't take it. > > Virg > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Thanks Virg, I hope your implant is one of the ones that doesnt fail and that it outlives you. Ted F. > > > > > > I have the implant from manufacturer B, Ted, and I'm not about > > > to want a replacement unless this one fails. They don't all > > > fail. If they offered a reimplant right now for everyone I > > > wouldn't take it. > > > > > > Virg > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Reliability is the name of the game. So whenever one chooses an implant manufacturer, check the reliability stats before making a choice. Also would be nice if manufacturers had 24/7 hotlines to take care of problems that occur even over long weekends. We are totally at the mercy of the manufacturer, so choose a good one. Messages in this topic (19) 1d. Re: NOT WORKING Posted by: " tadyen " zesuit@... tadyen Sat Feb 16, 2008 8:05 am (PST) In another group I posted about my implant cutting in/out that started doing it last summer that I had to keep going back to Audie to increase the RF and change some maps to stop cutting in out. But around Decemeber it finally cut in/out so bad and last month it gotten worse that I could no longer maintain stable audio. Last week a rep from AB came by to my audie office and she determined that I have an implant failure. So they set me up a surgery date to have it replaced. I was first implanted 4 year ago and during that time I was told that there were bad batch with bad sealant allowing mostiures to get into the interal implant but it was highly unlikly I had the one of those bad batch implant. Now it turn out that I do have one of those bad batch implant and will need it to be replaced. Well at least I will be getting the newest one now and hopefully they seal it better this time. I don't know if it an upgrade over my 4 year old implant or it the same circuity. I know it sucks having to do all those surgery and recovering deal but I like my CI better than my hearing aids that I am willing to tolerate it all again. Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Oh Ted, you ray of sunshine, NO implant company is going to replace a model until it starts not working. Or stops working. They can tell you all they want about manufacturer A vs manufacturer B, but will rarely admit you got stuck with the lemon. When it fails down the line, then they say, " oops, it must have been Mfg. B " , let us replace it. But I know of none that replace until it stops working. Let's remember, there are still people using the implant with the positioner that has been linked with, and still is closely associated with the risk of meningitis. But as long as the implant works, they don't insist you be explanted and reimplanted. Some people have lots more patience with this than you or I do! I thought Advanced Bionics KNEW exactly which implants were affected, right from the beginning. They talk about Manufacturer " A " and Manufacturer " B " , one or the other was supplying the faulty implants. I would have thought it would be prudent of them to replace ALL of that particular manufacturers implants, without waiting to see if they fail. If its a KNOWN problem, which it is, it should be fixed with a reliable implant. I'm sorry to hear about people having to go through this surgery a second time, with always the chance of problems and that the re- implantation might not work. Ted F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Give it at least 6-9 months and rememeber the purpose of LDN is to slow/halt disease progression, symptom improvement is a bonus not everyone experience's. Art -- > > Hello > I have MS and I am on LDN since 3 months ago! > i have 1 attack. When we can say LDN that dont work for me? > REGARDS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 Have you been tested for Acid Reflux? I just had Endoscopy and Brava Implants which measure ph and Acid Reflux? It was determined that I have Acid reflux. I have to undergo surgery to correct this condition. I was just evaluated at National Jewish in Denver, Co and they determined that I am aspirating into my lungs which contributes to my " Asthma " symptoms. Have you been tested for Acid Reflux? Befroe xolair, my IGE was around 250, then went up as expected to 800 about 6 months later, but now hovers around 50 to 150 depending on the day and the lab where the study is performed. Leigh ________________________________ From: shirl.halpern <shirl.halpern@...> Sent: Tuesday, April 7, 2009 2:50:09 PM Subject: [ ] not working I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 I know you have posted here quite a few times, but what exactly are your symptoms? Do you notice a connection between allergic reactions and asthma attacks? Not asthma exacerbations or difficulty breathing. I have very mild asthma and difficulty breathing sometimes with strenuous exercise. Xolair did nothing for that despite IgE levels around 300. But, it shut down my EE for the most part and most of my skin atopy. So, not all that seems part of atopy is truly atopic. > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 you say that you have very mild asthma, yet Xolair did nothing for you in that regard. this seems redundant; if your asthma is very mild, as you say, assuming you are only using albuterol for rescue, and nothing else whatsoever, then any improvement in your asthma status by way of adding on Xolair would be marginal to none anyhow. This is why Xolair is only indicated and used for people with severe, usually steroid recalcitrant asthma. All a part of atopy IS truly atopic, it is the very definition. But there are a large percentage of asthmatics who are non-atopic, who also experience releif from Xolair, suggestion more than one mechanism of action for this drug/antibody. There is a lot of pressure brewing for the research community to research non-atopic asthma. However, I am very excited to hear that it has improved your EE...may be worth a case report for that. > > > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Eosinophilic Esophagitis. Actually, I have Eosinophilic Enteritis (pretty much the entire digestive track), and you don't want it. > > > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Mild to moderate asthma, that is controllable through inhaled corticosteroids, but where the lung functions fall below the 80th percentile, is within the protocol for prescribing Xolair. It isn't only indicated for people that aren't helped with inhaled or swallowed steroids. At least that is the guideline in California. I can say that Xolair might have helped me in that I don't use an inhaled corticosteroid anymore and rarely a rescue inhaler. BUT, I had used an inhaled corticosteroid for so many years without an attack, that it was uncertain when I went on Xolair how much asthma I still had. I was put on it because my lung functions dropped from the 90th percentile over 20 some years to about the 72nd percentile in a matter of months. I also presented with severe skin problems, sinusitis, and EE....all at once. I was atopic with an IgE of about 300, but only moderate allergies to wheat, gluten and mold. Everything else was considered mild or not considered. I never really reacted to the above when exposed to those three and yet when I went on Xolair the symptoms of atopy (as noted above) disappeared. Most specialists concede that I might be self-immune and/or have so many mild allergies that it creates a persistent state of atopy. And, that is true.....none of the symptoms I stated above ever diminished once they started three years ago. 24/7. Yes, my specialist as already submitted the results of my biopsies. > > > > > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 That is incorrect, by both the prescribing information and the most recent updated national (NHLBI) guidelines, Xolair is indicated only for moderate to severe asthma. From Xolair's prescribing information: INDICATIONS AND USAGE: Xolair (Omalizumab) is indicated for adults and adolescents (12 years of age and above) with moderate to severe persistent asthma who have a positive skin test or in vitro reactivity to a perennial aeroallergen and whose symptoms are inadequately controlled with inhaled corticosteroids. Xolair has been shown to decrease the incidence of asthma exacerbations in these patients. Safety and efficacy have not been established in other allergic conditions. on page 225 of the 2007 NHLBI guidelines it states: The Expert Panel recommends that omalizumab may be considered as adjunctive therapy in step 5 or 6 care for patients who have allergies and severe persistent asthma that is inadequately controlled with the combination of high-dose ICS and LABA (Evidence . (See Evidence Table 13, Immunomodulators: Anti-IgE.) For clarity, steps 5 & 6 are considered severe asthma. I tend not to go by state guidelines, however, they would likely follow national guidelines. Falling below 80% alone is not a reason to undergo Xolair treatment, especially when there are much more cost effective and efficacious treatments. As far as your being initiated on Xolair, you have had so many other contributing factors, that your physician likely thought it would help out. > > > > > > I know you have posted here quite a few times, but what exactly are your symptoms? Do you notice a connection between allergic reactions and asthma attacks? Not asthma exacerbations or difficulty breathing. I have very mild asthma and difficulty breathing sometimes with strenuous exercise. Xolair did nothing for that despite IgE levels around 300. But, it shut down my EE for the most part and most of my skin atopy. So, not all that seems part of atopy is truly atopic. > > > > > > > > > > > > --- In , " shirl.halpern " <shirl.halpern@> wrote: > > > > > > > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Ok, now you are just being literal as opposed to the practical or functional management of allergic asthma. These are the prior approval guidelines for Xolair, which are likely rather common state to state. I met all this criteria without consideration of EE. I was put on it because I had fallen below the numbers on #3, and because of #6. The issue remained whether I had moderate persistent asthma because I was not using a rescue inhaler with any frequency or having attacks but, my peak flows had changed about 30% from previous years. As this was all happening along with raised IgE and other atopic symptoms, it was assumed to be all part of the same root cause. But, I concede my situation is far from the standardized reason why Xolair is prescribed, but I still fit the criteria below. APPROVAL CRITERIA: CHECK ALL BOXES THAT APPLY NOTE: Any areas not filled out are considered not applicable to your patient & MAY AFFECT THE OUTCOME of this request. & #9633; Yes & #9633; No Patient is 12 years of age or older AND & #9633; Yes & #9633; No Patient has a diagnosis of Moderate Persistent or Severe Persistent asthma AND & #9633; Yes & #9633; No Patient has a FEV1 < 80% predicted AND & #9633; Yes & #9633; No Patient has a positive skin test or in vitro reactivity to a perennial aeroallergen AND & #9633; Yes & #9633; No Patient has an IgE level that is greater than or equal to 30 IU/ml AND & #9633; Yes & #9633; No Patient has symptoms that are inadequately controlled with combination controller therapy (medium to high dose inhaled corticosteroids plus long acting beta-2 agonists and/or Leukotriene receptor antagonists), or cannot tolerate these medications > > > > > > > > I know you have posted here quite a few times, but what exactly are your symptoms? Do you notice a connection between allergic reactions and asthma attacks? Not asthma exacerbations or difficulty breathing. I have very mild asthma and difficulty breathing sometimes with strenuous exercise. Xolair did nothing for that despite IgE levels around 300. But, it shut down my EE for the most part and most of my skin atopy. So, not all that seems part of atopy is truly atopic. > > > > > > > > > > > > > > > > --- In , " shirl.halpern " <shirl.halpern@> wrote: > > > > > > > > > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Fpa9 - you are absolutely right, but I just wanted to chime in that there are any number of Xolair patients who are using it for off-label uses, including and especially severe allergic skin conditions. Shirl, I know we've had a handful of folks who didn't see improvement until 12-15 months into Xolair treatment. What does your doctor say about staying on Xolair? Addy Group co-owner > > > > > > > > I know you have posted here quite a few times, but what exactly are your symptoms? Do you notice a connection between allergic reactions and asthma attacks? Not asthma exacerbations or difficulty breathing. I have very mild asthma and difficulty breathing sometimes with strenuous exercise. Xolair did nothing for that despite IgE levels around 300. But, it shut down my EE for the most part and most of my skin atopy. So, not all that seems part of atopy is truly atopic. > > > > > > > > > > > > > > > > --- In , " shirl.halpern " <shirl.halpern@> wrote: > > > > > > > > > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 - apologize if I appear inflammatory. I agree on most of your statements, and appreciate your commentary. My original statement was based on you saying you had " very mild asthma " which enabled my response involving that Xolair should not be used in the very mild asthmatic. I do generally disagree that Xolair would be used in an asthmatic who is of mild-moderate category. I reserve Xolair for the poorly controlled asthmatic. In regards to your check-box below, I am a little wary that 80% FEV1 is the threshold, although FEV1, even though still a 'gold stanadard' of diagnosis and treatment, tends to lose validity more and more each year. This is even seen more and more in the literature each year, as primary endpoints move away from FEV1, but more to exacerbation rate. But I digress. All this being said, the guidelines are guidelines, and each person is and should be treated on an individual case. You appear to have more than one allergic malady persevering right now. And, again, I am thrilled to hear it working in treatment for them. If you don't mind my asking, what is your current FEV1? > > > > > > > > > > I know you have posted here quite a few times, but what exactly are your symptoms? Do you notice a connection between allergic reactions and asthma attacks? Not asthma exacerbations or difficulty breathing. I have very mild asthma and difficulty breathing sometimes with strenuous exercise. Xolair did nothing for that despite IgE levels around 300. But, it shut down my EE for the most part and most of my skin atopy. So, not all that seems part of atopy is truly atopic. > > > > > > > > > > > > > > > > > > > > --- In , " shirl.halpern " <shirl.halpern@> wrote: > > > > > > > > > > > > I have been on Xolair for 13 months with absolutely no result. The frequency and dosage is appropriate for my IgE value and weight and I am not on the border of the next dosage up either. Have any of you with only moderate IgE levels have had to wait a long time to see any improvement at all? > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Response time and response category to Xolair (or any asthma therapy for that matter) may be variable. 15 months is pushing it though, and you may be considered a non or subresponder.' Are you not experiencing any decrease in asthma exacerbations, nighttime awakenings, albuterol use, emergency room/unscheudled doctors visits, or any improvements in lung function or symptoms? Have you maximized all of your other meds at all? Are you taking Xolair in conjunction with oral steroids, and while decreasing the oral steroids not experiencing any relief in any form? Is your condition getting worse? are you female, and if so, perimenopausal? > > Somehow my question got entagled with someone else's- I have severe allergic asthma and have not responded at all to the Xolair after 13 months. I am on the correct dose for my IGE and weight. Can anyone out there respond to me without giving details about their own asthma that are not relevant to my question, and that is actually helpful? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 > > Somehow my question got entagled with someone else's- I have severe allergic asthma and have not responded at all to the Xolair after 13 months. I am on the correct dose for my IGE and weight. Can anyone out there respond to me without giving details about their own asthma that are not relevant to my question, and that is actually helpful? > It took me a few days over a year and I hear that it does take some people longer. Sorry I wasn't much help. What does your doctor say? Mine told me to stay the course and I did. Doug Quote Link to comment Share on other sites More sharing options...
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