my loving family of asthmnostics

[Guest guest]

Those who have been here a while know my family makes the Gotti's or Soprano's

look like Litte House on the Praire.

This post is no different. I am upset and am venting

teacher at my job insists on bathing herself in this perfume. 2x in two weeks I

was shackled to the neb (by the way, I am on the evil candy indefinitely bc of

the costochondritis...that stinks big time..after 2 surgeries and 2 procedures,

I lost weight, now...it's coming back on)

anyway, I am a teacher, school nurse had me transported to the ER

Somehow, my family was contacted. It is bad enough at the job I get a lot of

hassle from this bathing perfume fouled lady, now the family. They said this has

to be in my head bc I am on asthma meds. I told the nurse to tell my mom she

should be grateful she does not suffer from allergies or asthma. My mom's

response " If I were there, I'd slap her across the face to the mouthing off " / (I

am 34...give it up mom)

The good news out of this, I guess....that teacher (who also meddles in other

people's affairs), was told the next time, a grievence will be filed against her

bc like the rest of the staff, she's aware of the severity of the asthma. Thank

God my friend, the union rep heard the school nurse when she said that, bc this

womnan went to her to complain but my friend said she cannot back her up.

My mom has been leaving voice messages all night (phone is now off). The

messages are how dare I disrespect her, no one at my job believes me, I am being

a drama queen. I just love how my own family is so caring and loving. And yet

to total strangers, they extend themselves. I don't get it.

Will they finally believe me when I am down for the permament dirt nap?

Meanwhile, bw all the surgies and dr appointments, I met my out of pocket

expenses...actually that was as of May 15. The allergist said the insurance

company is giving a lot of problems with the Xolair and 2x in a row it was never

delieved. a 90 minute drive...ok...not a long drive as some of you out

there...but still...90 minutes is 90 times. That's time and gas

I will have to do another skin test in Dec again as well bc of the insurance

company. They are also not happy bc I have been unable to do the spirometry test

bc between the gallbladder surgery and the hysterectomy, I can't blow into the

device bc the muscles are still sore.

Sept I got for another CT of my lungs. I am hoping for negative results or else

they are doing a biopsy. When is enough? I am about to say enough and let nature

takes it course. This is too much for one person and I am alone here. I have

friends but friends are not family and my family lacks in the support dept.

(sorry, had to vent)

Ciao

[Guest guest]

It is very sad that family can be so much less supportive than friends. My

own mother has struggled to keep her negative comments to herself.

In fact I heard her commenting to someone once that my poor sister had so

many disturbed nights thanks to my asthma which was astounding to hear as

she had never once commented how growing up with severe allergic asthma had

been for me!

Some people in life are very fortunate to rarely get ill and are simply not

able to empathise. I have never wanted sympathy but certainly needed

understanding and enabling support.

If you have understanding people around they can then support you in leading

a normal life as much as possible.

I learnt to expect nothing from my mother and then you cant be disappointed,

I have learnt that due to her own life experiences she does not have the

capacity to understand its not her fault, its not my fault its just the way

it is, its not going to change so there is no use expecting it to.

On the last occassion I was unwell I did not inform her and it was very

liberating. Strangely enough she has since found out and her attitude is

definately different towards me(for the better).

I hope you can back to work soon and perfume lady gets the message

Take care of yourself.

_____

From: [mailto: ] On

Behalf Of meencantador

Sent: 26 August 2009 01:39

Subject: [ ] my loving family of asthmnostics

Those who have been here a while know my family makes the Gotti's or

Soprano's look like Litte House on the Praire.

This post is no different. I am upset and am venting

teacher at my job insists on bathing herself in this perfume. 2x in two

weeks I was shackled to the neb (by the way, I am on the evil candy

indefinitely bc of the costochondritis...that stinks big time..after 2

surgeries and 2 procedures, I lost weight, now...it's coming back on)

anyway, I am a teacher, school nurse had me transported to the ER

Somehow, my family was contacted. It is bad enough at the job I get a lot of

hassle from this bathing perfume fouled lady, now the family. They said this

has to be in my head bc I am on asthma meds. I told the nurse to tell my mom

she should be grateful she does not suffer from allergies or asthma. My

mom's response " If I were there, I'd slap her across the face to the mouthing

off " / (I am 34...give it up mom)

The good news out of this, I guess....that teacher (who also meddles in

other people's affairs), was told the next time, a grievence will be filed

against her bc like the rest of the staff, she's aware of the severity of

the asthma. Thank God my friend, the union rep heard the school nurse when

she said that, bc this womnan went to her to complain but my friend said she

cannot back her up.

My mom has been leaving voice messages all night (phone is now off). The

messages are how dare I disrespect her, no one at my job believes me, I am

being a drama queen. I just love how my own family is so caring and loving.

And yet to total strangers, they extend themselves. I don't get it.

Will they finally believe me when I am down for the permament dirt nap?

Meanwhile, bw all the surgies and dr appointments, I met my out of pocket

expenses...actually that was as of May 15. The allergist said the insurance

company is giving a lot of problems with the Xolair and 2x in a row it was

never delieved. a 90 minute drive...ok...not a long drive as some of you out

there...but still...90 minutes is 90 times. That's time and gas

I will have to do another skin test in Dec again as well bc of the insurance

company. They are also not happy bc I have been unable to do the spirometry

test bc between the gallbladder surgery and the hysterectomy, I can't blow

into the device bc the muscles are still sore.

Sept I got for another CT of my lungs. I am hoping for negative results or

else they are doing a biopsy. When is enough? I am about to say enough and

let nature takes it course. This is too much for one person and I am alone

here. I have friends but friends are not family and my family lacks in the

support dept.

(sorry, had to vent)

Ciao

[Guest guest]

<<Some people in life are very fortunate to rarely get ill and are simply not

able to empathise>>

Man, I can sure relate to that! I have other chronic health problems too and

have some who think I am a hypocodriac or faking.

One of these people got real sick and found out real fast how things can be when

you have a chronic health malady.

Doug

Group founder

[Guest guest]

Thankfully, I don't have it quite that bad but when I was in my teens (and it

was my mom's theory when I was a child) the GP told my parents that my various

ailments were emotional and although proven otherwise (including asthma) the

image has stuck and my mother and family still do not completely believe me.

They even advised my husband not to wait on me when I was sick. I want to visit

my elderly mother in a northern state but if I stay with her, besides being in a

very dirty house with " stuff " piled so high there's no place to sit, the windows

have to be open and that's tantamount to absolutely shutting down my lungs and

head. Ragweed is in bloom up there now. Not even Xolair could fully protect me

if I was on it (had to go off it a little over a year ago)

Sometimes, in families, there is one child who is singled out for reasons

(usually psychological) not always known to the child. That is, singled out for

bad treatment even though they're not at fault. That sounds like it might be

the case in your family. I'd have to admit that when I'm feeling well, I'm

probably slightly less patient with people who have to go to all kinds of

extremes to avoid med problems. Don't worry; I get my hands slapped quickly as

I have too many things wrong and will quickly experience at least one of them

rearing its ugly head!

>

> Those who have been here a while know my family makes the Gotti's or Soprano's

look like Litte House on the Praire.

>

> This post is no different. I am upset and am venting

>

> teacher at my job insists on bathing herself in this perfume. 2x in two weeks

I was shackled to the neb (by the way, I am on the evil candy indefinitely bc of

the costochondritis...that stinks big time..after 2 surgeries and 2 procedures,

I lost weight, now...it's coming back on)

>

> anyway, I am a teacher, school nurse had me transported to the ER

>

> Somehow, my family was contacted. It is bad enough at the job I get a lot of

hassle from this bathing perfume fouled lady, now the family. They said this has

to be in my head bc I am on asthma meds. I told the nurse to tell my mom she

should be grateful she does not suffer from allergies or asthma. My mom's

response " If I were there, I'd slap her across the face to the mouthing off " / (I

am 34...give it up mom)

>

> The good news out of this, I guess....that teacher (who also meddles in other

people's affairs), was told the next time, a grievence will be filed against her

bc like the rest of the staff, she's aware of the severity of the asthma. Thank

God my friend, the union rep heard the school nurse when she said that, bc this

womnan went to her to complain but my friend said she cannot back her up.

>

> My mom has been leaving voice messages all night (phone is now off). The

messages are how dare I disrespect her, no one at my job believes me, I am being

a drama queen. I just love how my own family is so caring and loving. And yet

to total strangers, they extend themselves. I don't get it.

>

> Will they finally believe me when I am down for the permament dirt nap?

>

> Meanwhile, bw all the surgies and dr appointments, I met my out of pocket

expenses...actually that was as of May 15. The allergist said the insurance

company is giving a lot of problems with the Xolair and 2x in a row it was never

delieved. a 90 minute drive...ok...not a long drive as some of you out

there...but still...90 minutes is 90 times. That's time and gas

>

> I will have to do another skin test in Dec again as well bc of the insurance

company. They are also not happy bc I have been unable to do the spirometry test

bc between the gallbladder surgery and the hysterectomy, I can't blow into the

device bc the muscles are still sore.

>

> Sept I got for another CT of my lungs. I am hoping for negative results or

else they are doing a biopsy. When is enough? I am about to say enough and let

nature takes it course. This is too much for one person and I am alone here. I

have friends but friends are not family and my family lacks in the support dept.

>

> (sorry, had to vent)

>

> Ciao

>