Re: update on daughter

[Guest guest]

Pete & other helpful folks:

First I want to thank everyone who responded to my post a few weeks re: my 8

y/o daughter, adopted from China, who I am treating w/NF for many issues.

I am eternallly grateful to those who have shared information so freely.

When making the decision to pursue NF, as a person in need, rather than a

practitioner, there are so many unknowns, it is a scary decision. This is

compounded by the limited info avail to consumers, and so few therapists who

even understand RAD/PTSD, (everyone pushes you towards medication and special

ed). So this list has been eye-opening and re-assuring.

While I had a Q done, and consulted w/Larry Von Bloem, and did some in-office

sessions w/someone here in NYC, AND continue to receive weekly guidance from

a wonderful attachment therapist nearby who also uses NF (got all that?) -- I

just want to say that having tapped into those resources has served me well,

but what I've learned on this list goes beyond. It has given me perspective

and confidence in what I'm doing. So THANK YOU THANK YOU everyone for

sharing.

Now for an update/advice/opinions --

We have done about 15 sessions with T3/T4 9-12 Hz. My daughter seems

'brighter' than when we were doing C4, and she reports that she likes doing

it, it makes her feel good. Her body seems less tense, she is softer when we

hug, and is able to handle group situations better. She recently was able to

set up her wooden train tracks up herself in an organized manner -- pieces

connected to each other, and trains moving on the tracks. Usually she'd have

the tracks haphazardly arranged, many not connected, and she'd fling the

trains across the wooden floor. That was impressive -- she also did it all

without asking for help.

However, she still gets easily frustrated and then bursts forth with anger.

Doesn't like making mistakes or answering a question if she's not 100%

certain she's correct. Anger is still an issue, although it is shorter

lived. The outbursts are remain frequent. She still has trouble switching

her train of thought -- if she's listening to a story I'm reading and I ask

her a question about it, she gets highly annoyed and has trouble answering,

but if I wait until after we're done reading, she can answer and discuss the

topic with great comprehension. She also gets really annoyed if she's

concentrating on something and she's interrupted. She then has trouble

getting back on track.

Distractability is still a major issue in peer/group situations.

Any suggestions? Should we continue with T3/T4?

Also, there has been some talk here about high beta, which I don't fully

understand. But I notice Ariela's high-beta (the yellow) is extremely

active. I check to make sure she's not clenching her jaw, or gripping her

toes/arms. I would love to understand more about that, what it means, where

it comes from, etc.

Thanks again,

D, mom to Ariela, age 8, from China Dx'd with RAD/PTSD, Auditory

processing, visual/perceptual, sensory integration, learning disabilities,

neglect/abuse, etc. (who is emerging as a lovely, wonderful child as a result

of major interventions).

[Guest guest]

Dear ,

What (other than the neurofeedback) are you doing to address all these

issues? OT, PT, SI and how often?: " Auditory

processing, visual/perceptual, sensory integration, learning disabilities, "

I am asking because there are many neurodevelopmental activities/techniques

that address the processing/sensory integration problems you can implement

at home that will compliment the neurofeedback.

Marty

From: nldglf@...

Reply-

Date: Thu, 7 Nov 2002 23:33:13 EST

Subject: Re: update on daughter

Pete & other helpful folks:

First I want to thank everyone who responded to my post a few weeks re: my 8

y/o daughter, adopted from China, who I am treating w/NF for many issues.

I am eternallly grateful to those who have shared information so freely.

When making the decision to pursue NF, as a person in need, rather than a

practitioner, there are so many unknowns, it is a scary decision. This is

compounded by the limited info avail to consumers, and so few therapists who

even understand RAD/PTSD, (everyone pushes you towards medication and

special

ed). So this list has been eye-opening and re-assuring.

While I had a Q done, and consulted w/Larry Von Bloem, and did some

in-office

sessions w/someone here in NYC, AND continue to receive weekly guidance from

a wonderful attachment therapist nearby who also uses NF (got all that?) --

I

just want to say that having tapped into those resources has served me well,

but what I've learned on this list goes beyond. It has given me perspective

and confidence in what I'm doing. So THANK YOU THANK YOU everyone for

sharing.

Now for an update/advice/opinions --

We have done about 15 sessions with T3/T4 9-12 Hz. My daughter seems

'brighter' than when we were doing C4, and she reports that she likes doing

it, it makes her feel good. Her body seems less tense, she is softer when

we

hug, and is able to handle group situations better. She recently was able

to

set up her wooden train tracks up herself in an organized manner -- pieces

connected to each other, and trains moving on the tracks. Usually she'd

have

the tracks haphazardly arranged, many not connected, and she'd fling the

trains across the wooden floor. That was impressive -- she also did it all

without asking for help.

However, she still gets easily frustrated and then bursts forth with anger.

Doesn't like making mistakes or answering a question if she's not 100%

certain she's correct. Anger is still an issue, although it is shorter

lived. The outbursts are remain frequent. She still has trouble switching

her train of thought -- if she's listening to a story I'm reading and I ask

her a question about it, she gets highly annoyed and has trouble answering,

but if I wait until after we're done reading, she can answer and discuss the

topic with great comprehension. She also gets really annoyed if she's

concentrating on something and she's interrupted. She then has trouble

getting back on track.

Distractability is still a major issue in peer/group situations.

Any suggestions? Should we continue with T3/T4?

Also, there has been some talk here about high beta, which I don't fully

understand. But I notice Ariela's high-beta (the yellow) is extremely

active. I check to make sure she's not clenching her jaw, or gripping her

toes/arms. I would love to understand more about that, what it means, where

it comes from, etc.

Thanks again,

D, mom to Ariela, age 8, from China Dx'd with RAD/PTSD, Auditory

processing, visual/perceptual, sensory integration, learning disabilities,

neglect/abuse, etc. (who is emerging as a lovely, wonderful child as a

result

of major interventions).

[Guest guest]

Marty:

For vision -- we did eye patching for about 6 months followed by a few years

of vision therapy. Very helpful, very expensive. We did Sensory Int.

therapy for several years in a nice gym to help many issues, including

crossing the midline (fine and gross motor). We did alot of OT for help with

visual perceptual stuff -- and handwriting but stopped when I was unable to

find a therapist nearby that was registered with the board of ed. For the

past six years to the present we do " holding. " Right now we're just doing

holding and neuro. I've looked into Fast Forward for auditory processing but

decided to try NF first.

Any other suggestions are welcome.

Thanks,

D

> Message: 1

> Date: Fri, 08 Nov 2002 07:50:39 -0500

> From: " A. Wuttke " <ifw@...>

> Subject: Re: update on daughter

>

> Dear ,

>

> What (other than the neurofeedback) are you doing to address all these

> issues? OT, PT, SI and how often?: " Auditory

> processing, visual/perceptual, sensory integration, learning disabilities, "

>

> I am asking because there are many neurodevelopmental activities/techniques

> that address the processing/sensory integration problems you can implement

> at home that will compliment the neurofeedback.

>

> Marty

>

> From: nldglf@...

> Reply-

> Date: Thu, 7 Nov 2002 23:33:13 EST

>

> Subject: Re: update on daughter

>

>

> Pete & other helpful folks:

> First I want to thank everyone who responded to my post a few weeks re: my

> 8

> y/o daughter, adopted from China, who I am treating w/NF for many issues.

>

> I am eternallly grateful to those who have shared information so freely.

> When making the decision to pursue NF, as a person in need, rather than a

> practitioner, there are so many unknowns, it is a scary decision. This is

> compounded by the limited info avail to consumers, and so few therapists

> who

> even understand RAD/PTSD, (everyone pushes you towards medication and

> special

> ed). So this list has been eye-opening and re-assuring.

>

> While I had a Q done, and consulted w/Larry Von Bloem, and did some

> in-office

> sessions w/someone here in NYC, AND continue to receive weekly guidance

> from

> a wonderful attachment therapist nearby who also uses NF (got all that?) --

> I

> just want to say that having tapped into those resources has served me

> well,

> but what I've learned on this list goes beyond. It has given me

> perspective

> and confidence in what I'm doing. So THANK YOU THANK YOU everyone for

> sharing.

>

> Now for an update/advice/opinions --

>

> We have done about 15 sessions with T3/T4 9-12 Hz. My daughter seems

> 'brighter' than when we were doing C4, and she reports that she likes doing

> it, it makes her feel good. Her body seems less tense, she is softer when

> we

> hug, and is able to handle group situations better. She recently was able

> to

> set up her wooden train tracks up herself in an organized manner -- pieces

> connected to each other, and trains moving on the tracks. Usually she'd

> have

> the tracks haphazardly arranged, many not connected, and she'd fling the

> trains across the wooden floor. That was impressive -- she also did it all

> without asking for help.

>

> However, she still gets easily frustrated and then bursts forth with anger.

> Doesn't like making mistakes or answering a question if she's not 100%

> certain she's correct. Anger is still an issue, although it is shorter

> lived. The outbursts are remain frequent. She still has trouble switching

> her train of thought -- if she's listening to a story I'm reading and I ask

> her a question about it, she gets highly annoyed and has trouble answering,

> but if I wait until after we're done reading, she can answer and discuss

> the

> topic with great comprehension. She also gets really annoyed if she's

> concentrating on something and she's interrupted. She then has trouble

> getting back on track.

>

> Distractability is still a major issue in peer/group situations.

>

> Any suggestions? Should we continue with T3/T4?

>

> Also, there has been some talk here about high beta, which I don't fully

> understand. But I notice Ariela's high-beta (the yellow) is extremely

> active. I check to make sure she's not clenching her jaw, or gripping her

> toes/arms. I would love to understand more about that, what it means,

> where

> it comes from, etc.

>

> Thanks again,

> D, mom to Ariela, age 8

[Guest guest]

,

It's exciting to hear how your daughter is improving. The areas you are seeing

as continued problem areas, even as they show some growth, are among the later

responding. Change happens from the inside out, and it is at the interface with

the environment (unfortunately the place which is often most vocal in demanding

change) that these things may be seen later.

The high-beta you are seeing is to be expected in this kind of situation and is

likely strongly related to the problems of anger and quick frustration. It is

there for a reason (brains don't generally burn THAT much energy just for the

fun of it), but the training you are doing should help to release the cause (the

locked-up emotional material) and allow the brain to quiet down. I would set an

inhibit (stop) on the high beta range, but leave it fairly loose. Otherwise it

will be a frustration for her and it will go up. It should block her maybe

10-15% of the time.

You might try a session or two of T4/Fp1, using about the same reward frequency

you have found that works at T3/T4, and see how she likes this. It may help

reduce the explosiveness. C4 SMR can also do the same thing. Since you are

doing the work at home, you can try brief sessions of various options and watch

to see what happens. If you find a couple you like, you can combine them

(either two-channel or two segments of 1-channel) in a single session.

Glad to hear you and she are finding this process useful, and I look forward to

hearing more great news from you.

Pete

Re: update on daughter

Pete & other helpful folks:

First I want to thank everyone who responded to my post a few weeks re: my 8

y/o daughter, adopted from China, who I am treating w/NF for many issues.

I am eternallly grateful to those who have shared information so freely.

When making the decision to pursue NF, as a person in need, rather than a

practitioner, there are so many unknowns, it is a scary decision. This is

compounded by the limited info avail to consumers, and so few therapists who

even understand RAD/PTSD, (everyone pushes you towards medication and special

ed). So this list has been eye-opening and re-assuring.

While I had a Q done, and consulted w/Larry Von Bloem, and did some in-office

sessions w/someone here in NYC, AND continue to receive weekly guidance from

a wonderful attachment therapist nearby who also uses NF (got all that?) -- I

just want to say that having tapped into those resources has served me well,

but what I've learned on this list goes beyond. It has given me perspective

and confidence in what I'm doing. So THANK YOU THANK YOU everyone for

sharing.

Now for an update/advice/opinions --

We have done about 15 sessions with T3/T4 9-12 Hz. My daughter seems

'brighter' than when we were doing C4, and she reports that she likes doing

it, it makes her feel good. Her body seems less tense, she is softer when we

hug, and is able to handle group situations better. She recently was able to

set up her wooden train tracks up herself in an organized manner -- pieces

connected to each other, and trains moving on the tracks. Usually she'd have

the tracks haphazardly arranged, many not connected, and she'd fling the

trains across the wooden floor. That was impressive -- she also did it all

without asking for help.

However, she still gets easily frustrated and then bursts forth with anger.

Doesn't like making mistakes or answering a question if she's not 100%

certain she's correct. Anger is still an issue, although it is shorter

lived. The outbursts are remain frequent. She still has trouble switching

her train of thought -- if she's listening to a story I'm reading and I ask

her a question about it, she gets highly annoyed and has trouble answering,

but if I wait until after we're done reading, she can answer and discuss the

topic with great comprehension. She also gets really annoyed if she's

concentrating on something and she's interrupted. She then has trouble

getting back on track.

Distractability is still a major issue in peer/group situations.

Any suggestions? Should we continue with T3/T4?

Also, there has been some talk here about high beta, which I don't fully

understand. But I notice Ariela's high-beta (the yellow) is extremely

active. I check to make sure she's not clenching her jaw, or gripping her

toes/arms. I would love to understand more about that, what it means, where

it comes from, etc.

Thanks again,

D, mom to Ariela, age 8, from China Dx'd with RAD/PTSD, Auditory

processing, visual/perceptual, sensory integration, learning disabilities,

neglect/abuse, etc. (who is emerging as a lovely, wonderful child as a result

of major interventions).

[Guest guest]

Hi ,

Sounds like you've done a lot! - As you've discovered, one of the drawbacks

with all these therapies is the constant traveling around from session to

session as well as trying to find therapists! Eight years ago I went through

similar challenges with my son and found that we could implement all

the therapies at home by getting the appropriate training. So if you have

the time (along with the NFB) check out www.nacd.org - This is where we got

our training. Bob Doman (founder) travels around US, does evaluations on

kids and has someone teach you how to do interventions at home. My x-wife

and I also founded a center after our training - www.jacobsladdercenter.com

- very successful and she (Amy) also does the evaluations and home training.

Fast Forward is great for some but others need more foundation beforehand

like 'Samonas' or 'Listening Program' types of sound therapy.

Let me know if you have any questions - www.neurotherapy.us is my website.

Marty

From: nldglf@...

Reply-

Date: Sat, 9 Nov 2002 19:06:15 EST

Subject: Re: update on daughter

Marty:

For vision -- we did eye patching for about 6 months followed by a few years

of vision therapy. Very helpful, very expensive. We did Sensory Int.

therapy for several years in a nice gym to help many issues, including

crossing the midline (fine and gross motor). We did alot of OT for help

with

visual perceptual stuff -- and handwriting but stopped when I was unable to

find a therapist nearby that was registered with the board of ed. For the

past six years to the present we do " holding. " Right now we're just doing

holding and neuro. I've looked into Fast Forward for auditory processing

but

decided to try NF first.

Any other suggestions are welcome.

Thanks,

D

> Message: 1

> Date: Fri, 08 Nov 2002 07:50:39 -0500

> From: " A. Wuttke " <ifw@...>

> Subject: Re: update on daughter

>

> Dear ,

>

> What (other than the neurofeedback) are you doing to address all these

> issues? OT, PT, SI and how often?: " Auditory

> processing, visual/perceptual, sensory integration, learning disabilities, "

>

> I am asking because there are many neurodevelopmental activities/techniques

> that address the processing/sensory integration problems you can implement

> at home that will compliment the neurofeedback.

>

> Marty

>

> From: nldglf@...

> Reply-

> Date: Thu, 7 Nov 2002 23:33:13 EST

>

> Subject: Re: update on daughter

>

>

> Pete & other helpful folks:

> First I want to thank everyone who responded to my post a few weeks re: my

> 8

> y/o daughter, adopted from China, who I am treating w/NF for many issues.

>

> I am eternallly grateful to those who have shared information so freely.

> When making the decision to pursue NF, as a person in need, rather than a

> practitioner, there are so many unknowns, it is a scary decision. This is

> compounded by the limited info avail to consumers, and so few therapists

> who

> even understand RAD/PTSD, (everyone pushes you towards medication and

> special

> ed). So this list has been eye-opening and re-assuring.

>

> While I had a Q done, and consulted w/Larry Von Bloem, and did some

> in-office

> sessions w/someone here in NYC, AND continue to receive weekly guidance

> from

> a wonderful attachment therapist nearby who also uses NF (got all that?) --

> I

> just want to say that having tapped into those resources has served me

> well,

> but what I've learned on this list goes beyond. It has given me

> perspective

> and confidence in what I'm doing. So THANK YOU THANK YOU everyone for

> sharing.

>

> Now for an update/advice/opinions --

>

> We have done about 15 sessions with T3/T4 9-12 Hz. My daughter seems

> 'brighter' than when we were doing C4, and she reports that she likes doing

> it, it makes her feel good. Her body seems less tense, she is softer when

> we

> hug, and is able to handle group situations better. She recently was able

> to

> set up her wooden train tracks up herself in an organized manner -- pieces

> connected to each other, and trains moving on the tracks. Usually she'd

> have

> the tracks haphazardly arranged, many not connected, and she'd fling the

> trains across the wooden floor. That was impressive -- she also did it all

> without asking for help.

>

> However, she still gets easily frustrated and then bursts forth with anger.

> Doesn't like making mistakes or answering a question if she's not 100%

> certain she's correct. Anger is still an issue, although it is shorter

> lived. The outbursts are remain frequent. She still has trouble switching

> her train of thought -- if she's listening to a story I'm reading and I ask

> her a question about it, she gets highly annoyed and has trouble answering,

> but if I wait until after we're done reading, she can answer and discuss

> the

> topic with great comprehension. She also gets really annoyed if she's

> concentrating on something and she's interrupted. She then has trouble

> getting back on track.

>

> Distractability is still a major issue in peer/group situations.

>

> Any suggestions? Should we continue with T3/T4?

>

> Also, there has been some talk here about high beta, which I don't fully

> understand. But I notice Ariela's high-beta (the yellow) is extremely

> active. I check to make sure she's not clenching her jaw, or gripping her

> toes/arms. I would love to understand more about that, what it means,

> where

> it comes from, etc.

>

> Thanks again,

> D, mom to Ariela, age 8

[Guest guest]

Tina,

my only worry is that when you get her adrenals tested, they may be normal

b/c you're giving her that support before the testing. I would want to make

SURE that this is her problem before starting her on the supplements. Just

my 2 cents.....

----Original Message Follows----

From: " tina83862 " <tina83862@...>

Reply-hypothyroidism

hypothyroidism

Subject: update on daughter

Date: Sat, 06 Sep 2003 19:52:12 -0000

_________________________________________________________________

Send and receive larger attachments with Hotmail Extra Storage.

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[Guest guest]

-I am sure her adrenals would test out fine, unless you have

's regular doctors really don't know or don't do other testing

for adrenals. So it would be a total waste of my time to do so. But I

could retest for all her female hormones and see if they have

improved numbers from last time I would know that the adrenal

supplements I am giving her are working.

With what little medical background I do have I have figured out the

majority of her problem. But the big question is am too late, damage

has been done. Sometimes I wonder if I should just treat her for hypo-

thyroid and be done with all of this.

I really do need to find a doctor that understands all of this one

she can go to down in LA. I think it's kind of hard to listen to your

mom about this. She is taking all the pills I give her. But by next

week she will be back at school. We are going to make up a chart when

to take what pills ect.

She takes a multiple without iron (can't handle the iron),1 selenium

200mcg, dhea 25mcg, 2 grams of ester c--- 1 Super B's-- 4-adreanl

support vitamins and adrenal glanduars 2-3 times a day.

the super B's and multiple do have a little bit more C-as well as

other vitamins.

I need to test all her hormones, thyroid panel again, iron content--

total blood count--that should give me a better idea what is going on

now.

I really don't know if I fix her adrenals will I fix her thyroid

problem. I am trying to fix it because so far from what we know she

does not have Hashimoto's. But I don't know if her adrenals have a

autoimmune illness?? And that could be? Until I do a complete blood

anaylsis I really don't know if she has something else hiding.

But the hair loss and period loss are really two things I just have

to find a solution too. Tomorrow she turns 20!

karen thanks so much for writing and if you figure anything else out

that I need to know please let me know!!!!!! I will look into

anything!!! tina

-- In hypothyroidism , " K a r e n P " <karlynn17@h...>

wrote:

> Tina,

> my only worry is that when you get her adrenals tested, they may be

normal

> b/c you're giving her that support before the testing. I would

want to make

> SURE that this is her problem before starting her on the

supplements. Just

> my 2 cents.....

>

>

>

>

> ----Original Message Follows----

> From: " tina83862 " <tina83862@y...>

> Reply-hypothyroidism

> hypothyroidism

> Subject: update on daughter

> Date: Sat, 06 Sep 2003 19:52:12 -0000

>

> _________________________________________________________________

> Send and receive larger attachments with Hotmail Extra Storage.

> http://join.msn.com/?PAGE=features/es

[Guest guest]

I've been thinking about it Tina, Thanx for the info tho. I think we're gonna

have the Holistic doc I work for check her out cuz her regular MD doesn't know

much about thyroid. maybe he can prescribe cytomel for her until I figure out

the sound frequencies to give.

Thanx,

update on daughter

I have to say I am pretty happy with how my daughter seems to be. Her

hair is still very thin and no periods but her mental state (she was

depressed) is fantastic, her skin is not as severely dry as it was

before. She didn't gain too much weight, probably around 135 now, but

she is 5'1. The T3 really did something, she took it for 3 weeks. Her

face is not as round. So she must of had some dramatic improvement on

the cytomel.

Right now we are doing the adrenals--with vitamins, and isocort. She

is taking extra C--dhea--all the adrenals supplements. I really like

the Adrenal Fatigue book that I got. It explains a lot and I do think

it's a great idea to look into this condition for thyroid problems as

well.

We will do this for a month, go for more testing and probably do

another round of T3.

I am not sure that she needs armour, her numbers were fine for t4. I

am sure it would help though because she has all the hypo symptoms.

Josh if your wife is so against armour maybe you should try to

suppplement with t3 and adrenals??? You are in the business you would

know how to give it. It's very unstable cytomel and you have to be

extremely careful with the dosing!!!! Something to think about.

It worked wonders for my daughter, she is not depressed, many of her

symptoms that really bothered her are gone. I am really thinking

about trying another round of t3---but I really want to address the

adrenals first.

tina

[Guest guest]

Only look into this drug if she is having T3 problems, it's a very

difficult form of medication---have you tried adrenals supplements

yet or any adrenal testing----it's right on that adrenal fatigue

website, easy test to see --I would treat the adrenals first!--

http://www.adrenalfatigue.org/

- In hypothyroidism , " Doeleman "

<soundhlr@h...> wrote:

> I've been thinking about it Tina, Thanx for the info tho. I think

we're gonna have the Holistic doc I work for check her out cuz her

regular MD doesn't know much about thyroid. maybe he can prescribe

cytomel for her until I figure out the sound frequencies to give.

>

> Thanx,

> update on daughter

>

>

> I have to say I am pretty happy with how my daughter seems to be.

Her

> hair is still very thin and no periods but her mental state (she

was

> depressed) is fantastic, her skin is not as severely dry as it

was

> before. She didn't gain too much weight, probably around 135 now,

but

> she is 5'1. The T3 really did something, she took it for 3 weeks.

Her

> face is not as round. So she must of had some dramatic

improvement on

> the cytomel.

>

> Right now we are doing the adrenals--with vitamins, and isocort.

She

> is taking extra C--dhea--all the adrenals supplements. I really

like

> the Adrenal Fatigue book that I got. It explains a lot and I do

think

> it's a great idea to look into this condition for thyroid

problems as

> well.

>

> We will do this for a month, go for more testing and probably do

> another round of T3.

>

> I am not sure that she needs armour, her numbers were fine for

t4. I

> am sure it would help though because she has all the hypo

symptoms.

>

> Josh if your wife is so against armour maybe you should try to

> suppplement with t3 and adrenals??? You are in the business you

would

> know how to give it. It's very unstable cytomel and you have to

be

> extremely careful with the dosing!!!! Something to think about.

>

> It worked wonders for my daughter, she is not depressed, many of

her

> symptoms that really bothered her are gone. I am really thinking

> about trying another round of t3---but I really want to address

the

> adrenals first.

>

> tina

>

>

>

>

>

[Guest guest]

Hi Amy,

I'm sorry, I don't know much about your daughter, as my time is

limited on this list. But my daughter has " bad thought " ocd. We just

went through a medication change. But, my daughter WAS on prozac,

5mg., seroquel 25 mg. 3 X day, and buspar twice a day. When she was

on this combination, her ocd was bascially gone. But she did have a

good temper and very quick to anger.

We have since switched her to abilify. Now, the anger is totally

under control, but the ocd is coming back.

I totally understand what you are saying about how do you tell which

is just normal negativeness and which is the ocd. How old is your

daughter, mine is 10, and I have a very hard time getting her to relay

feelings to me, especially since she's at school half of the day. She

did tell me today, that her teacher told her to stay awake in class.

So, I do know she is tired, which we've been dealing with. But, I

honestly thing alot of the anger that my daughter had before was from

the seroquel, I used to think it was the prozac, but by process of

elimination, I can only think it was the seroquel, or the imbalance, I

guess. I'm sorry if I sound confused, but I guess I am. I've been

confused since this whole thing started.

Hang in there, when my daughter got to the 75 mg. of seroquel, she

swore to me her ocd was gone. Now, I don't know what I would rather

have...the anger or the ocd. I believe we are going to try to up her

prozac and see if that helps her ocd symptoms. It was so nice having

them gone though.

Peace to you

Kathy

In , " Amy Kosinski " <akosinski1@t...>

wrote:

> Hello all,

>

> My daughter had her 6 week check up with the psychiatrist today. My

> daughter expressed feelings of anger that increase during the day,

mostly

> while at school. She is very limited in what she expresses verbally

and we

> as adults have to look at symptoms and reactions to evaluate the

effects of

> medication and the illness. Since we are not sure if this is her way of

> expressing some bad thoughts or an adverse reaction to the increase of

> Prozac aprox. 10 weeks ago he suggested increasing the Seroquel and

offer

> half of the 25mg tablet after school and a full tablet which she has

been

> getting at night (dose of 25mg).

>

> For those of you that have children with bad thought OCD, how do you

know if

> they are expressing OCD bad thoughts or it is an adverse reaction to

> medication? I am very confused and due to her limited expression of

> emotions verbally we are all guessing. Due to her past experiences I can

> understand why her doctor does not want to increase the Prozac and

decided

> to try increasing the Seroquel. He also said we could use up to 3

pills of

> seroquel per day if needed (total 75mg). I was comfortable with the

25mg

> given at night but I am a bit saddened and concerned when increasing an

> anti-psychotic medication. I find myself going through some mixed

emotions

> and looking for advice/comfort from others that may be using higher

doses of

> Seroquel and if it is used during the day how it effects their children.

>

> Amy

[Guest guest]

Hi Amy,

I don't know if the medicine is causing Bre's bad thoughts to be any

worse. She had them before the medicine. I do know she is able to cope

better now that she is on medicine and learning exposure therapy and

CBT skills. It is very frustating for me trying to figure it all out.

She has periods when she is almost symptom free and times when she is

worse. I know what you are going through as we try to help our girls.

I was thinking today it would be wonderful if Bre could have one day

with no anxiety. It is hard to know she struggles everyday with some

thought that holds her captive. I am able to cope better now and maybe

that will spill over and help her! Take care. Sandy

[Guest guest]

It's always wonderful to hear when one of us is on an upswing. I so happy

for you and your daughter, thank you for sharing the positive!

_____

From:

[mailto: ] On Behalf Of mnmomof1@...

Sent: Thursday, January 11, 2007 6:31 PM

Subject: Update on daughter

My daughter started on 120 mg of Geodon on Monday for what appears to be

bipolar disorder. I am excited to report that there is already a difference

in how

she feels. She is finally able to sleep again and is currently not having

mood swings. She still has some other symptoms but I am so excited to

finally see

progress. I just want to share as it has been a very tough few months.

Thanks

so much for the support. Kim

[Guest guest]

Oh, Kim, that is so wonderful! Congratulations on the big step forward and

savor this moment! I am just thrilled for you and your family.

Kind Regards,

mnmomof1@... wrote:

My daughter started on 120 mg of Geodon on Monday for what appears to

be

bipolar disorder. I am excited to report that there is already a difference in

how

she feels. She is finally able to sleep again and is currently not having

mood swings. She still has some other symptoms but I am so excited to finally

see

progress. I just want to share as it has been a very tough few months. Thanks

so much for the support. Kim

[Guest guest]

Yay, Kim! And such a fast effect! Sure there's more good to keep

coming each day, each week!

>

> My daughter started on 120 mg of Geodon on Monday for what appears

to be

> bipolar disorder. I am excited to report that there is already a

difference in how

> she feels. She is finally able to sleep again and is currently not

having

[Guest guest]

Usually when I get the Xolair shots, I get bruises the size of Texas.

I gave up explaining at my job. One lady is convinced I am in a domestic

violence reltionship. Little does she know, if a guy lays a hand on me, if they

do, it would be the first and last time it wouldh happen.

 

I have noticed though when the nurses administer the shot, I get bruises. I have

tried making a muscle, relaxing, sitting, standing, it does not matter, I get a

bruise. When the dr gives the shot...no bruise. Hmmmmm

 

I feel your pain (literally....as many others in this group do as well)

 

Good luck

From: gigles_1955 <fgigles55@...>

Subject: [ ] update on daughter

Date: Friday, June 12, 2009, 9:31 PM

Hi everyone.

My daughter had her zolair shots today, done by a different nurse, and they

didnt hurt(yea). Big difference from the first two times. I ask the nurse if we

could ask for her and told her why, She unfortunatly isnt there often(they have

several offices and she floats) and she said she's sorry but all the nurses do

their best not to hurt. I guess I may have insulted her. But I watched her and

she did inject slower than the other nurses, Now how do I politely ask next time

that they inject slower?

jean

[Guest guest]

I just very politely say " You will inject slowly, won't you?  The second time I

had a shot, the nurse injected too quickly and my arm hurt for a week and I had

a big bruise, which I shouldn't have had. "   I am as nice and polite as I can

be.  Fortunately I have the same nurse just about everytime I go.  She is rarely

off from work and like to visit with me while she is injecting slowly.  I also

said something very kindly and nicely to the doctor the next time I saw him, and

he made sure I never got that nurse again.  I am sure the nurse never intended

to make it hurt, but I didn't want to take that chance again. 

 

Hope she gets the same nurse each time!  Or at least one that is sensitive and

kind.

From: gigles_1955 <fgigles55@...>

Subject: [ ] update on daughter

Date: Friday, June 12, 2009, 8:31 PM

Hi everyone.

My daughter had her zolair shots today, done by a different nurse, and they

didnt hurt(yea). Big difference from the first two times. I ask the nurse if we

could ask for her and told her why, She unfortunatly isnt there often(they have

several offices and she floats) and she said she's sorry but all the nurses do

their best not to hurt. I guess I may have insulted her. But I watched her and

she did inject slower than the other nurses, Now how do I politely ask next time

that they inject slower?

jean

[Guest guest]

Hi,

 

I would just ask the nurse or have your daughter say please go slow.  My doctor

does mine and sometimes it hurts and others times it doesn't.

 

Sr. Volz, C.R.

From: gigles_1955 <fgigles55@...>

Subject: [ ] update on daughter

Date: Friday, June 12, 2009, 8:31 PM

Hi everyone.

My daughter had her zolair shots today, done by a different nurse, and they

didnt hurt(yea). Big difference from the first two times. I ask the nurse if we

could ask for her and told her why, She unfortunatly isnt there often(they have

several offices and she floats) and she said she's sorry but all the nurses do

their best not to hurt. I guess I may have insulted her. But I watched her and

she did inject slower than the other nurses, Now how do I politely ask next time

that they inject slower?

jean

[Guest guest]

It has been my experience with xolair injections that because the inherent

nature of the viscosity of the xolair, that the injection has to go in very

slowly.  Yesterday, my nurse had to use both hands for each injection.

________________________________

From: Adah Voigt <asthmatic50@...>

Sent: Saturday, June 13, 2009 12:12:13 AM

Subject: Re: [ ] update on daughter

I just very politely say " You will inject slowly, won't you?  The second time I

had a shot, the nurse injected too quickly and my arm hurt for a week and I had

a big bruise, which I shouldn't have had. "   I am as nice and polite as I can

be.  Fortunately I have the same nurse just about everytime I go.  She is rarely

off from work and like to visit with me while she is injecting slowly.  I also

said something very kindly and nicely to the doctor the next time I saw him, and

he made sure I never got that nurse again.  I am sure the nurse never intended

to make it hurt, but I didn't want to take that chance again. 

 

Hope she gets the same nurse each time!  Or at least one that is sensitive and

kind.

From: gigles_1955 <fgigles55gmail (DOT) com>

Subject: [ ] update on daughter

Date: Friday, June 12, 2009, 8:31 PM

Hi everyone.

My daughter had her zolair shots today, done by a different nurse, and they

didnt hurt(yea). Big difference from the first two times. I ask the nurse if we

could ask for her and told her why, She unfortunatly isnt there often(they have

several offices and she floats) and she said she's sorry but all the nurses do

their best not to hurt. I guess I may have insulted her. But I watched her and

she did inject slower than the other nurses, Now how do I politely ask next time

that they inject slower?

jean

[Guest guest]

In addition to the injecting be done slowly, I have found that if I get the

injections further back on my arm, they definitely hurt less. There are multiple

nurses that inject at my allergist's office. I just ask each time that they

inject slowly & near the back of my arm and explain that it hurts less that way.

I've found that they are usually happy to comply.

Kathy

[Guest guest]

When a new MD is giving me my Xolair (I've never had anyone but MD's or

nurse practioners) or someone who hasn't done it on me before I say right before

they do it " Just remember, my arm tends to give it all back if you don't go real

slow... " that way it seems to them like I am prepping them, I've never had

anyone say anything other than " OK. " So it works! Now despite that warning I

have had one MD in particular who shot it in like he was in a race, so I made

sure never to have an appointment with that MD again, but whatever - live and

learn.

Meagan

>

>

>

> In addition to the injecting be done slowly, I have found that if I get the

injections further back on my arm, they definitely hurt less. There are multiple

nurses that inject at my allergist's office. I just ask each time that they

inject slowly & near the back of my arm and explain that it hurts less that way.

I've found that they are usually happy to comply.

>

> Kathy

>

[Guest guest]

Thanks. She hasn't had the bruises. Anyway you can get the dr. to give you

all your shots(yea like in a perfect world, lol).

hopfully we'll get the sam nurse,

I do have a question on side effects though. Is out of the ordinary fatigue

a side effect that any of you have had? My dd has been so tired since this

last shot. I cant say I noticed this with the other shots though. Could be

a

On Fri, Jun 12, 2009 at 11:23 PM, B G <meencantador@...> wrote:

>

>

> Usually when I get the Xolair shots, I get bruises the size of Texas.

> I gave up explaining at my job. One lady is convinced I am in a domestic

> violence reltionship. Little does she know, if a guy lays a hand on me, if

> they do, it would be the first and last time it wouldh happen.

>

> I have noticed though when the nurses administer the shot, I get bruises. I

> have tried making a muscle, relaxing, sitting, standing, it does not matter,

> I get a bruise. When the dr gives the shot...no bruise. Hmmmmm

>

> I feel your pain (literally....as many others in this group do as well)

>

> Good luck

>

>

>

> From: gigles_1955 <fgigles55@... <fgigles55%40gmail.com>>

> Subject: [ ] update on daughter

> < %40>

> Date: Friday, June 12, 2009, 9:31 PM

>

> Hi everyone.

> My daughter had her zolair shots today, done by a different nurse, and they

> didnt hurt(yea). Big difference from the first two times. I ask the nurse if

> we could ask for her and told her why, She unfortunatly isnt there

> often(they have several offices and she floats) and she said she's sorry but

> all the nurses do their best not to hurt. I guess I may have insulted her.

> But I watched her and she did inject slower than the other nurses, Now how

> do I politely ask next time that they inject slower?

>

> jean

>

>

[Guest guest]

We have had several members post that they have had extraordinary fatigue

following the first few injections which dissipates over time (like after the

3rd or 4th set of injections).

Extraordinary fatigue may also be experienced when tapering off prednisone, and

can be a symptom of adrenal fatigue, a side effect of prednisone use.

Fatigue is my first level allergic symptom, which has actually improved with

Xolair, with the exception of rainy days, like today.

Addy

Group co-owner who's gonna go take a nap now.

> >

> > From: gigles_1955 <fgigles55@... <fgigles55%40gmail.com>>

> > Subject: [ ] update on daughter

> > < %40>

> > Date: Friday, June 12, 2009, 9:31 PM

> >

> > Hi everyone.

> > My daughter had her zolair shots today, done by a different nurse, and they

> > didnt hurt(yea). Big difference from the first two times. I ask the nurse if

> > we could ask for her and told her why, She unfortunatly isnt there

> > often(they have several offices and she floats) and she said she's sorry but

> > all the nurses do their best not to hurt. I guess I may have insulted her.

> > But I watched her and she did inject slower than the other nurses, Now how

> > do I politely ask next time that they inject slower?

> >

> > jean

> >

> >