xolair study and off label use

[Guest guest]

Hi everyone.

I know this recent report has some of us scared and I understand why most of

you are continuing on with xolair because it has given you your life back and

their isn't an alternative. Reading these post I can see where it has helped so

many here.

My concern is my 18 yr old daughter is on it off label for atopic dermatitis

and hives that cause her skin to be broke out daily and extremely itchy 24/7.

This disease has robbed her of a normal life. Other treatments have not helped

her and why she is trying xolair. She has been receiving 3 shots every two

weeks and it will be just 3 months this Friday. There has been no change at all

in her skin, in fact it is worse, but I don't think this is because of xolair,

and also there is no change in her moderate asthma(even though she has moderate

asthma she was put on xolair mainly for her skin) I know it takes time to work

but I don't know based on this study, if it is worth it to cont. for an off

label use That has no facts to back it up.

I know this has to be my daughter and my decision but I am asking your opinion

especially those who have mentioned that while on xolair an added benefit was it

helped you skin as well. Do you think based on this latest study that it is

wise to continue doing xolair shots for off label reasons. Thanks for

listening. Jean