Oxygen at night

[Guest guest]

I would like to know who else sleeps under oxygen at night. I have to connect

every night. I have sleep apnea but I cannot use a cpap machine.

Gwendolyn Rafter,MAOM,MBA/HRM

From: pyle456 <jamcculloch2@...>

Subject: [ ] Re: FDA - Xolair Safety Review

Date: Friday, July 17, 2009, 7:34 PM

 

I would like to second what Doug said, and add the following:

The single worst thing that asthmatics can do is not keep their asthma under

control. Long-term lack of oxygen and acute episodes of lack of oxygen can cause

extreme distress and damage to organs and critical bodily symptoms. It's not

simply a matter of feeling like crap and having poor qualityh of life. If your

asthma is poorly controlled, it is in your best interest to do everything you

can to control it. Oxygenation is one of the central components of the bodily

system, along with fluids and electrolytes, metabolism, and acid-base balance.

I'd like to know what comorbid conditions folks in this study have. I have a

number of other questions as well. These would have to be answered before I

would willingly give up my Xolair.

Addy

Group co-owner, who even has bone loss in her TEETH due to Xolair

>

> Thank you to everyone who has posted on this new topic

>

> I am glad the FDA is out there protecting our interests and have published

this finding for us to contemplate.

>

> I have been on xolair since September 2003. Since then, I have had no problems

whatsoever with my heart or anything else. In fact, since Xolair has taken my

need for Prednisone away, I have become much more healthy.

>

> Prednisone was slowly killing me. My C-spine was deteriorating, I developed

Type II Diabetes and my A1C was 9.5. My blood pressure was getting to the point

of needing medication. I was becoming grossly overweight and having medical

problems from that too. Thanks to Prednisone, these are proven heart attack

risks.

>

> Now, that I am on Xolair and completely OFF Prednsione, my A1C is 5.9, I have

lost 30 pounds my c-spine (after 2 fusion surgeries) shows no more sign of

deterioration. I am no longer on my doctor's list to put me on bp medicine and I

really feel GREAT!

>

> For me, this new report gives me a new " risk vs. benefit " to personally look

at like I did the " black box " report a few years ago.

>

> I have come to the conclusion that the benefits do outweigh the risks in my

own personal case and I will continue to take Xolair.

>

> Your personal situation might be completely different. If you are extremely

concerned about all the side effects and FDA reports, you need to share this

with your doctor. You still have the right to refuse Xolair if you wish.

>

> I always have something positive to say about Xolair and have had some group

members ask if I worked for Novartis. The answer is NO LOL!

> I wish they WOULD put me on the payroll LOL! I sure could use a few more

buckaroos LOL

>

> I am just one of many people who has had great success with this medication.

>

>

> Happy Breathing

> Doug

> Group founder

>