Guest guest Posted July 24, 2009 Report Share Posted July 24, 2009 That is a good idea, although I am pretty sure either my xolair doctor or one of his nurses has seen it and will make sure he sees it. As of right now I don't have heart problems either, but both my parents had heart problems, but both died of old age....their bodies wore out...my dad at 97, and 8 years later, my mom died at 94! Oh...and my dad's dad lived to be almost 100...two weeks shy of his birthday! He had heart problems in his 70's. So I'm not too concerned about the study, but I do think it is something to keep in mind and make sure our doctors have seen it. From: uca79iii <uca79iii@...> Subject: [ ] Re: Safty Study Date: Friday, July 24, 2009, 11:22 AM > > I just received a letter from my pulmonologist informing me about the EXCELS study linking Xolair with heart ailments. He hits the high points and offers me the choice to stay on Xolair or discontinue it. Should I discontinue, he offers to help monitor for a return of asthma symptoms and to treat as needed. For me, even though I have heart problems that predate my Xolair, I am going to stay on it. Should the pulmonologist or the cardiologist recommend a change, I'll consider it. I just don't want to return to my old condition. > > Mike McBrice > I am going to print a copy of that study and let my cardiologist see it my next visit. I have NEVER had any heart disease but see him as a preventative. My dad, grandfather, uncle, aunt and others in my family have died from heart probs. At 54 my heart and arteries are healthy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2009 Report Share Posted July 24, 2009 Hi Jeanne, The short version of a long tale: I have lived in Alaska almost exclusively sine 1992. I had chronic sinus issues so the ENT told me to get out of the cold/dry air and move to a warm/moist area. I moved to South Carolina. After arriving in July '06, my very mild asthma began to escalate. In October 2006 there was concern that I had a mild heart attack. I had a cath and it showed no damage, no blockage, no reason for chest pain. I was told it was muscular and to basically ignore it. By Feb of 2008 I was going to the ER monthly, and sometimes every other week, for a breathing treatment. My pulmonologist there suggested a return to AK in the hopes that my lungs would be happier here. We came home May of 2008. My heart still causes some pain but no one can seem to find the cause. The doctors now believe it may be hypertrophic cardiomyopathy which is difficult to diagnose. It is sometimes mistaken for asthma. I am having a cardiac MRI on 8/4 and hope to clear up the diagnosis at that point. In the mean time, I stay tired and have angina daily. On the bright side, after starting 2 heart meds, my breathing jumped from peak flows of 500 +/- to 850! I am thrilled with that! Thanks for asking. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2009 Report Share Posted July 26, 2009 I was having some heart problems for about 1 year before I started Xolair. I don't think there is a causal relationship, but i do worry about becoming worse. We'll see. Mike McBride " Blessed is he who, with a hunger that is never satisfied, day and night throughout this present life makes prayer and the psalms his food and drink, and strengthens himself by reading of God's glory in Scripture. Such communion will lead the soul to ever-increasing joy in the age to come. " St. of Karpathos. ________________________________ From: JEANNE <bits122000@...> Sent: Saturday, July 25, 2009 1:38:33 PM Subject: [ ] Re: Safty Study --- In , McBride <mike.dmcbride@ ...> wrote: > > Hi Jeanne, > > The short version of a long tale: I have lived in Alaska almost exclusively sine 1992. I had chronic sinus issues so the ENT told me to get out of the cold/dry air and move to a warm/moist area. I moved to South Carolina. After arriving in July '06, my very mild asthma began to escalate. In October 2006 there was concern that I had a mild heart attack. I had a cath and it showed no damage, no blockage, no reason for chest pain. I was told it was muscular and to basically ignore it. By Feb of 2008 I was going to the ER monthly, and sometimes every other week, for a breathing treatment. My pulmonologist there suggested a return to AK in the hopes that my lungs would be happier here. We came home May of 2008. My heart still causes some pain but no one can seem to find the cause. The doctors now believe it may be hypertrophic cardiomyopathy which is difficult to diagnose. It is sometimes mistaken for asthma. I am having a cardiac > MRI on 8/4 and hope to clear up the diagnosis at that point. In the mean time, I stay tired and have angina daily. On the bright side, after starting 2 heart meds, my breathing jumped from peak flows of 500 +/- to 850! I am thrilled with that! Thanks for asking. > > Mike > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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