Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 My Pulmo says that Xolair may be in my near future. I took the IgE (?) blood test yesterday and am being sent for lung x-rays and liver tests. My Advair isn't quite doing the trick anymore and I have been on Prednisone more than not over the last 2 years. Dealt with Cushing effects and then Secondary Adrenal Insuff. issues and was finally able to wean off with help of an Endo...only to find myself back on repeatedly. I'm sure you are aware of that cycle. Just looking to educate myself about Xolair. Would be happy to share any of my experiences along the way if I am indeed put on the treatment. I'm very excited about the possibility. And very thankful to have found such an informative page. Karin Green Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 Welcome to the group. I have found this group to be congenial, helpful, caring and knowledgeable. It is a group composed of people who are willing to share their experiences and their ups and downs. Xolair is not a cure....we all wish it was! But it is a drug therapy that has helped many people for as many years as it has been on the market. You will find Doug, Addy and extremely knowledgeable and helpful with questions. Do trust you will be able to begin xolair soon. It has helped me tremendously. I have not had to take prednisone in over three years and this January had an upper respiratory infection for the first time in three years, but I did not have to have prednisone! I do still have asthma that the xolair does not treat, but it is very well controlled with meds. Good luck and God bless. Adah From: andyandkarink <andyandkarink@...> Subject: [ ] New to Xolair Date: Saturday, May 2, 2009, 11:17 AM My Pulmo says that Xolair may be in my near future. I took the IgE (?) blood test yesterday and am being sent for lung x-rays and liver tests. My Advair isn't quite doing the trick anymore and I have been on Prednisone more than not over the last 2 years. Dealt with Cushing effects and then Secondary Adrenal Insuff. issues and was finally able to wean off with help of an Endo...only to find myself back on repeatedly. I'm sure you are aware of that cycle. Just looking to educate myself about Xolair. Would be happy to share any of my experiences along the way if I am indeed put on the treatment. I'm very excited about the possibility. And very thankful to have found such an informative page. Karin Green Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Yep, I'm on yet another burst of that evil candy right now. With 40 mgs in my system I have cleaned my entire house today...my hubby's favorite side effect Just want to thank everyone for the warm welcome. Have a feeling I'm gonna feel right at home here. Karin > > Welcome. > Re: Prednisone > They call Prednisone " evil candy " for a reason. " I have Cushings and 0 cortisol when tested. It is a nightmare. > LMA > > > > > ________________________________ > From: andyandkarink <andyandkarink@...> > > Sent: Saturday, May 2, 2009 12:17:18 PM > Subject: [ ] New to Xolair > > > > > > My Pulmo says that Xolair may be in my near future. I took the IgE (?) > blood test yesterday and am being sent for lung x-rays and liver tests. My Advair isn't quite doing the trick anymore and I have been on Prednisone more than not over the last 2 years. Dealt with Cushing effects and then Secondary Adrenal Insuff. issues and was finally able to wean off with help of an Endo...only to find myself back on repeatedly. I'm sure you are aware of that cycle. > > Just looking to educate myself about Xolair. Would be happy to share any of my experiences along the way if I am indeed put on the treatment. I'm very excited about the possibility. And very thankful to have found such an informative page. Karin Green > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Just don't stay on the evil candy too long or else if you are on it for 3 years as I have been, it will bite you on both cheeks. I have cushings and diabetes from it and neither one is fun at all. Keep that house super clean, wear a mask when you are in doctor's offices or crowded places (who cares what people think--let them stare and show their ignorance and rudeness) and if you have a pet, get tested for it. Best, LMA ________________________________ From: andyandkarink <andyandkarink@...> Sent: Saturday, May 2, 2009 10:58:35 PM Subject: [ ] Re: New to Xolair Yep, I'm on yet another burst of that evil candy right now. With 40 mgs in my system I have cleaned my entire house today...my hubby's favorite side effect Just want to thank everyone for the warm welcome. Have a feeling I'm gonna feel right at home here. Karin --- In , Leigh McCall-Alton <mccallalton@ ...> wrote: > > Welcome. > Re: Prednisone > They call Prednisone " evil candy " for a reason. " I have Cushings and 0 cortisol when tested. It is a nightmare. > LMA > > > > > ____________ _________ _________ __ > From: andyandkarink <andyandkarink@ ...> > > Sent: Saturday, May 2, 2009 12:17:18 PM > Subject: [ ] New to Xolair > > > > > > My Pulmo says that Xolair may be in my near future. I took the IgE (?) > blood test yesterday and am being sent for lung x-rays and liver tests. My Advair isn't quite doing the trick anymore and I have been on Prednisone more than not over the last 2 years. Dealt with Cushing effects and then Secondary Adrenal Insuff. issues and was finally able to wean off with help of an Endo...only to find myself back on repeatedly. I'm sure you are aware of that cycle. > > Just looking to educate myself about Xolair. Would be happy to share any of my experiences along the way if I am indeed put on the treatment. I'm very excited about the possibility. And very thankful to have found such an informative page. Karin Green > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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