hair loss

[Guest guest]

In a message dated 7/10/2006 4:10:57 PM Eastern Standard Time, GMCLADY98@... writes:

Does it come back after explant or stop falling out ?

I haven't been explanted yet, but hopefully I'll be able to report back on that someday! -Brigite

[Guest guest]

My hair loss was from low thyroid.

Lynda

At 01:48 PM 7/10/2006, you wrote:

>Yes, at least for me, hair loss has happened.

>

>There's about an inch missing across most of my front hairline (I

>try to maneuver a part in the middle of my hair so you can't see it

>-since bangs make my head hurt worse despite that I used to have

>them many years ago. LOL) On the sides of my hairline, it's further

>back, and in one spot it's further than an inch. Overall, I've had a

>lot of gradual thinning of my hair, but it was so thick to begin

>with no one acts alarmed about it -because they think I exaggerate.

>This took a few years to start happening, and has worsened the past

>couple -which could be related to rather or not I have true Lupus,

>and also the thyroid diseases.

>

>Doctors would rather tell you hair loss can be hereditary -despite

>that my dad is in his 60's with a full hairline, as is my mother.

>

>If you're losing your hair, you may want to go to a dermatologist or

>trichologist (if you are lucky enough to have one in your area) for

>an analysis before it gets REAL bad!!!

>Brigite

>

>In a message dated 7/10/2006 12:54:58 PM Eastern Standard Time,

>deniseplatte@... writes:

>My friend has hair loss from implants

>Anyone else have hair loss and did it come back?

>

>

>

[Guest guest]

4 weeks before explant is when my hair started falling out. I noticed more hair in my brushes and a lot of hair in my tub after showers. This stopped almost immediantly after explant. I am not sure it it grew back, because my hair is sooo thick. I never lost it in patches, so it is hard to tell if it is growing back or not. GMCLADY98@... wrote: Does it come back after explant or stop falling out ?

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[Guest guest]

...sounds like maybe stress. Lamse <wannabe_proverbs31@...> wrote: 4 weeks before explant is when my hair started falling out. I noticed more hair in my brushes and a lot of hair in my tub after showers. This stopped almost immediantly after explant. I am not sure it it grew back, because my hair is sooo thick. I never lost it in patches, so it is hard to tell if it is growing back or not. GMCLADY98@... wrote: Does it come back after explant or stop falling out ? Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Sandy,

Yes to the hair loss here. I've lost over an inch off my hairline in front, and about 1/3 total of my hair all over my scalp. I've been to doctors, I've used men's hair loss products, I've used the whole line of Nioxin, taken every vitamin I was told, and it's never improved or came back. Then again, Lupus has been discussed with me -so it could be that.

Hopefully it all get thick again after explant...

Have your friend see a dermatologist. Maybe she'll be lucky enough to live near a trichologist. (I think they treat hair issues, but we don't have any here.)

Brigite

In a message dated 8/11/2006 8:55:32 AM Eastern Standard Time, dusty.com@... writes:

has lost a lot of her hair on her scalp after implantation, is it possible her hair could ever grow back again ?

Has anyone ever lost hair after implantation and than your hair grew back again?

I do not think can afford removal of the scar tissue and capsules.

has not started detoxing at all yet

Sandy

[Guest guest]

Try Olus, Sandy.KissofSadness@... wrote: Sandy, Yes to the hair loss here. I've lost over an inch off my hairline in front, and about 1/3 total of my hair all over my scalp. I've been to doctors, I've used men's hair loss products, I've used the whole line of Nioxin, taken every vitamin I was told, and it's never improved or came back. Then again, Lupus has been

discussed with me -so it could be that. Hopefully it all get thick again after explant... Have your friend see a dermatologist. Maybe she'll be lucky enough to live near a trichologist. (I think they treat hair issues, but we don't have any here.) Brigite In a message dated 8/11/2006 8:55:32 AM Eastern Standard Time, dusty.comcomcast (DOT) net writes: has lost a lot of her hair on her scalp after implantation, is it possible her hair could ever grow back again ? Has anyone ever lost hair after implantation and than your hair grew back again? I do not think can afford removal of the scar tissue and capsules. has not started detoxing at all yet Sandy

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Sandy . . . You're a good friend to ! . . . Tell that some women have gotten hair back once they start healing . . . there's no guarantee though. . . Consider getting well a multi-phase program . .. 1) get the offending materials out - detox and explant 2) quit putting additional toxins in - food and environment 3) give the body what it needs to rebuild healthy tissues - nutrition and supplements. After recently spending time with a bunch of people who are completely dependent on their doctor (IMHO, for their every move), I realize what a huge leap of faith it is for sick women who come to the group to make . . . I saw some people with some serious health issues . . . but they believe their doctor knows "everything" about their speciality . . . When I mention nutrition, they're interested until I tell them about the changes it takes to eat

healthy in the world we live in . . . And they've never heard of detoxing! . . . That sounds GROSS! Which brings me around to . . . I wish she could read the group. It's not what any one of us say that will convince her that detoxing is necessary . . . It's the stories of the women who take responsibility for putting together their own plan and executing it . . . Then learn that life that life can be good again. None of us can take responsilibity for making someone else get well . . . We can try to help - offer suggestions and encouragement - but we can't get so wrapped up in someone else's issues that it pulls us down. If WANTS help, and to be helped, that's wonderful! . . . She's found a good friend in you! Hugs and prayers for both you and . Rogene

[Guest guest]

Thanks for this info , I need to get some rogaine. I've lost about half my

hair and have one noticeable bald spot on my hairline near my forehead and

another forming Not good for the most " vain person in the world " (kidding !

but it has been VERY tough for me to deal with) That's what my doc said too, get

the rogaine :/ Thanks again for the info!

Whit

<kyrik@...> wrote:

Not that anyone's mentioned this in awhile and it may

not have anything to do with MTX hair loss but I thought

this info might help someone...

I was losing hair by the handful even tho I'm only on

Enbrel, Arava (and 11 other meds, but that's neither here

nor there ) My hair had previously been very, very thick and

long and, even tho it's pretty salt and pepper by now, it was

my last vanity

My PCP happened to do some very complete blood work and found that

I had virtually no testosterone even though I'm not even pre

menopausal at 45.

She started me on a baby dose of testosterone (it's weird, it's a

gel you just put on your skin) and my hair loss stopped (not all,

but most) virtually overnight.

Then I tried Rogaine and it worked! Plus I think the testosterone

is making my hair grow, too.

So, maybe even despite this damnable disease (RA plus others) I

can at least keep my hair

Hope maybe others can benefit from this info, too...

Take care,

~*~Whitney~*~

Feminism is the radical notion that women are people.

---------------------------------

Have a burning question? Go to Answers and get answers from real people

who know.

[Guest guest]

I am also on MTX. I have been on for 6 months since being diagnosed

with RA. I have been losing hair daily since beginning the MTX.

Also, some days are worse than others. I have thin fine hair too, so

this doesn't help. 15 years ago, I had a thick full head of hair, but

went without proper diagnosis of a thyroid condition so long that the

bulk of my full head of hair I once had is a thing of the past. Now,

it continues since being on MTX. I take Vitamin B-6 and folic acid

which is supposed to help, but I don't notice any help at all.

Good luck.

>

>

> Mtx can cause hair loss as well. Another reason could be that you

> are low on B-vitatmins. It's best to talk with your doc about it.

>

>

>

> > >

> > >

> > > I've been having major hair loss over the past year. Trying to

> > > narrow down the causes. Has anyone had any hair loss and has it

> > been

> > > related to thier RA? I know my iron is low and that is a main

> > cause

> > > for women loosing thier hair at my age (34) but I've been taking

> a

> > > supplement for about 2 months now and I don't notice it

> stopping.

> > > Any help on this would be greatly appreciated. People/doctors

> are

> > > very insensitive to this is women and tend to minimize it.

>

[Guest guest]

Diane ~

Welcome to our group. With proper explantation, and detoxing, your hair should come back just fine. I am sorry you are freaking out and stressing so. Try your best to educate yourself all you can, and share the true medical facts of implant illness with your husband, but put your focus on the remady and healing and not on freaking out and negative energy. From what I hear, Dr Kolb has mentioned that she has seen hearts calm down immediately as she removes implants ! ! When you detox, alot of your other symptoms will go away. Why dont you have your hormones tested to see what phase you are in. I had that same problem and my hormone testing came out that I was not in menopause.

The FDA site has information on toxicology/immunology of implants, it is just under that and not devices. IMMUNOTOXICOLOGY/TOXICOLOGY this is very insightful, and at the upper left hand corner, it says : back to table of contents, it takes you back to the fda table of contents.....this is proof our fda knows...

Photos of moldy implants in our archives, Gals have copies of their pathology on implants and capsules showing grangrene, molds and fungus's, you name it, the proof is all there. It is all just covered up. A huge amount of the saline implants have faulty valves which are causing a bi-directional flow problems and have mold everywhere. One of the gals had saline implants removed. Lately she has had lymph node removal due to them becoming huge and inflammed. When she got the diagnosis back from the pathologist, there was silicone in them. Proving that the silicone shells that hold the saline do leach off into your system causing clogs in glands, and in organs. This is all real. Menopause does not cause systemic fungal infections, nor does it cause silicone to clog and infect lymph nodes. Please, read all you can here, take this time to educate yourself. Drink lots of water, stay as stress free as possible, there are tips on eating healthy for healing in our archives. Please, know that you can heal. It just takes time. Some women, when they have had their implants removed, also had fat transfers. That is something you can read about.

There is so much information in this group. We are here for you. Bless you, and yes, most cases hair comes back. Keep a journal of all your symptoms and things you try and all, it will help you in your journey. En bloc removal with drains is the only way to have them removed. I bet Dr Kolb in Atlanta would be happy to take care of you, and the fact your husband is a physician, that will be in your benefit. Also, after meeting Dr Kolb, your husband will have a new respect for what you are going through. Bless YOU ! !

Hugs ~ DedeSee what's free at AOL.com.

[Guest guest]

Ok, we have a list of plastic surgeons on our

site that do know how to do the proper removal.

However, if you are able to travel, we have a few

we highly recommend, in Cleveland, Denver and Atlanta.

Lynda

At 02:14 PM 5/26/2007, you wrote:

>I am in CT. HELP!

>

>

> >

> > >I am brand new to the support group and I am

> > >freaking out. I am 41, a mother of 3 and of

> > >course had saline implants after nursing my last

> > >child (5 years ago). Within 6 months I

> > >starting having the " usual " symptoms: muscle

> > >twitching, night sweats, heart palpitations,

> > >brain fog etc etc. I think I have talked myself

> > >into the fact that these symptoms are in my

> > >head but I got " used " to them. Now most

> > >noticable is my hair. It has been falling out at a

> > >rate so fast that I am afraid to brush my hair.

> > >I have been researching explantation thanks

> > >to this great support sight but am so afraid. My

> > >husband is not supportive (I did this to

> > >myself) and being a medical doctor himself does

> > >not believe saline implants can cause

> > >these symptoms. His explanation is menopause

> > >(which my mother went thru at 42). I

> > >know this is so sad, but I feel like I have to

> > >decide which is worse, being flat chested again

> > >or bald or possibly both. Somebody please tell

> > >me that her hair (if you were losing it) got

> > >better after explantation. I am definitely having an anxiety attack.

> > >

> > >thanks!!!!

> > >

> > >Diane

> > >

> > >

> >

>

>

[Guest guest]

Welcome Diane! It sounds like your second biggest problem is your husband! . . . A lot of our women have been through tough times with their spouses/partners. Most of them come through it with a better relationship. I'd suggest contacting Dr. Kolb and asking her to speak to your husband. She can talk his language and will help him understand what's going on with you. . . . Dr. Kolb is usually very prompt in answering personal emails. Does your husband believe implants are safe? . . . Or is he generally unsympathetic with patients? . . . If it's the former, you may have to take it on yourself to make the arrangements and do what you need to do, regardless of what he says. . . . A lot of our women have experienced hair loss . . . As traumatic as that may be, that's minor compared to other issues that may develop. . . Please don't wait and see. . . If you'll go the link for the group, then to "Files", you'll find a huge amount of information available. . . . A word of warning though . . . While we're not anti-conventional medicine, we are highly skeptical, and usually prefer holistic treatments because so many of our women have been poorly treated by their doctors and have found relief by holistic means. I'd suggest handling this issue with care. Hugs and prayers, Rogene

[Guest guest]

Diane,

I see you got a lot of feedback from some group members.

I am in Colorado, we are all over the country and in Canada, UK, and elsewhere.

If you are paying for removal out of your pocket,

it is helpful to know prices. Check with those

docs you think will do the removal properly. I

know it is very expensive in some places, like

NY, Boston, and I think Dr. Kolb runs $10,000 or

more. Dr. Feng of Cleveland is less than that,

and Dr. Huang of Denver is around $5000. This

gives you a starting point on prices.

For some, money is not a problem, it always was for me.

What other kind of information are you needing at

this point? We have women here who can answer questions on many topics.

Lynda

At 02:14 PM 5/26/2007, you wrote:

>I am in CT. HELP!

>

>

> >

> > >I am brand new to the support group and I am

> > >freaking out. I am 41, a mother of 3 and of

> > >course had saline implants after nursing my last

> > >child (5 years ago). Within 6 months I

> > >starting having the " usual " symptoms: muscle

> > >twitching, night sweats, heart palpitations,

> > >brain fog etc etc. I think I have talked myself

> > >into the fact that these symptoms are in my

> > >head but I got " used " to them. Now most

> > >noticable is my hair. It has been falling out at a

> > >rate so fast that I am afraid to brush my hair.

> > >I have been researching explantation thanks

> > >to this great support sight but am so afraid. My

> > >husband is not supportive (I did this to

> > >myself) and being a medical doctor himself does

> > >not believe saline implants can cause

> > >these symptoms. His explanation is menopause

> > >(which my mother went thru at 42). I

> > >know this is so sad, but I feel like I have to

> > >decide which is worse, being flat chested again

> > >or bald or possibly both. Somebody please tell

> > >me that her hair (if you were losing it) got

> > >better after explantation. I am definitely having an anxiety attack.

> > >

> > >thanks!!!!

> > >

> > >Diane

> > >

> > >

> >

>

>

[Guest guest]

Thank you everyone that has sent info to me today. I

have a lot of work ahead of me. In the meantime, you

mention holistic medicine...anything I can start to

do before explnatation?

Thanks,

Diane

--- Rogene S <saxony01@...> wrote:

> Welcome Diane!

>

> It sounds like your second biggest problem is your

> husband! . . . A lot of our women have been through

> tough times with their spouses/partners. Most of

> them come through it with a better relationship.

>

> I'd suggest contacting Dr. Kolb and asking her to

> speak to your husband. She can talk his language and

> will help him understand what's going on with you. .

> . . Dr. Kolb is usually very prompt in answering

> personal emails.

>

> Does your husband believe implants are safe? . . .

> Or is he generally unsympathetic with patients? . .

> . If it's the former, you may have to take it on

> yourself to make the arrangements and do what you

> need to do, regardless of what he says. . . .

>

> A lot of our women have experienced hair loss . .

> . As traumatic as that may be, that's minor compared

> to other issues that may develop. . .

>

> Please don't wait and see. . . If you'll go the

> link for the group, then to " Files " , you'll find a

> huge amount of information available.

>

> . . . A word of warning though . . . While we're

> not anti-conventional medicine, we are highly

> skeptical, and usually prefer holistic treatments

> because so many of our women have been poorly

> treated by their doctors and have found relief by

> holistic means. I'd suggest handling this issue with

> care.

>

> Hugs and prayers,

>

> Rogene

>

________________________________________________________________________________\

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Expecting? Get great news right away with email Auto-Check.

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[Guest guest]

My detox diet was mostly avoidance. I avoided

all white starches and sugars. All dairy. I ate

organic veggies and some fruits. Nuts, seeds,

etc. I ate free range chicken, deep ocean fish,

and very small amounts of free range beef, also turkey.

I drank lots of pure water.

There is a great detox method called the ionic

foot bath, some of the women can tell you the one they got.

Good, all natural vitamins are helpful.

Attitude is very important.

Lynda

At 08:05 PM 5/26/2007, you wrote:

>Thank you everyone that has sent info to me today. I

>have a lot of work ahead of me. In the meantime, you

>mention holistic medicine...anything I can start to

>do before explnatation?

>

>Thanks,

>

>Diane

>--- Rogene S <<mailto:saxony01%40>saxony01@...> wrote:

>

> > Welcome Diane!

> >

> > It sounds like your second biggest problem is your

> > husband! . . . A lot of our women have been through

> > tough times with their spouses/partners. Most of

> > them come through it with a better relationship.

> >

> > I'd suggest contacting Dr. Kolb and asking her to

> > speak to your husband. She can talk his language and

> > will help him understand what's going on with you. .

> > . . Dr. Kolb is usually very prompt in answering

> > personal emails.

> >

> > Does your husband believe implants are safe? . . .

> > Or is he generally unsympathetic with patients? . .

> > . If it's the former, you may have to take it on

> > yourself to make the arrangements and do what you

> > need to do, regardless of what he says. . . .

> >

> > A lot of our women have experienced hair loss . .

> > . As traumatic as that may be, that's minor compared

> > to other issues that may develop. . .

> >

> > Please don't wait and see. . . If you'll go the

> > link for the group, then to " Files " , you'll find a

> > huge amount of information available.

> >

> > . . . A word of warning though . . . While we're

> > not anti-conventional medicine, we are highly

> > skeptical, and usually prefer holistic treatments

> > because so many of our women have been poorly

> > treated by their doctors and have found relief by

> > holistic means. I'd suggest handling this issue with

> > care.

> >

> > Hugs and prayers,

> >

> > Rogene

> >

>

>__________________________________________________________

>Expecting? Get great news right away with email Auto-Check.

>Try the Beta.

><http://advision.webevents./mailbeta/newmail_tools.html>http://advisio\

n.webevents./mailbeta/newmail_tools.html

>

>

>

[Guest guest]

Diane:

At 32, maybe 33, my hair started falling in large amounts. I had only had my implants for probably 2-3 years. The first day I noticed it, the shower floor was covered in an amount that caught my attention quickly. I gathered it up and took it to my Dermatologist, who could not determine what the cause was... He said it looked healthy and would come back in, which it did. At 48, my implants were removed. Later I began to have more hair loss, but after menopause, I suppose this is not unusual.

I had (still have) these painful sores that come up in my hair follices, in addition to the loss of hair. I had my scalp biopsied by an MD, who researches hair loss, which was a waste. He claimed I had male pattern

baldness...I don't think so. Male pattern baldness does not show up in one place on the right side of the head as far as I know... My new Dermatologist feels that it is the effect of autoimmune problems, which so many of us have.

I hate to to tell women they need to get their implants out, since it is a personal decision. I have a 38 year old daughter, who after watching what I went through, opted to get hers removed though. She had had them only 4 years. She is working, doing well and has had a child since then. I have been unable to work now since 1993. The difference is, she got hers out when she first began to notice problems. After a nearly 17 year history of implants, I only wish I had recognized some of the problems, or had had a support group like this, so that I would have known to have them removed sooner.

My daughter's hair is thick and not falling. I attribute part of my problem to the fact that I had implants so long.

I am not flat-chested, although I don't look like I did with implants. If you get a plastic surgeon who is good at reconstruction, preferably someone recommended from this group, you may be small, but hopefully will look nice and at least have a chance to become healthy again...

Neither my daughter or I had reconstruction. I am overweight due to the sterods I take, but she is trim and looks great and had NO problem getting boyfriends.

One of the most helpful things was that both plastic surgeons had us wear a snug cotton sports bra for several months, day and night, removing it only to shower. This gives the tissues a chance to go back into place. The scars are reddish at first, but fade pretty quickly over a few months time.

It is also important that the implants be removed, "en bloc." This means the surgeon cuts around the scar capsule that forms around each implant and removes implant and capsule as one unit-much as a ball in a catcher's mitt...

Think about it. Good luck.

Cathie************************************** See what's free at http://www.aol.com.

[Guest guest]

In a message dated 5/26/07 3:18:04 PM, dmwd817@... writes:

I am in CT. HELP!

P.S. Try not to be afraid. There are many of us here who have been through this and will be supportive of you. Hopefully, if you do opt to have them removed, your health will improve.

Cathie************************************** See what's free at http://www.aol.com.

[Guest guest]

Diane, Most women have a systemic fungal problem. There is a self-test you can do http://www.victorie-inc.us/Threelac_Candida_Free_Test.htm I'd suggest reading "The Yeast Connection", or a similar book . . .and "The Maker's Diet" . . . A huge part of getting better is getting the fungal issues under control. . . It will be an uphill battle as long as you have implants though . . . They are usually found to be contaminated. The Maker's Diet is much more than a diet book . . .Rubin discusses the importance of building a healthy digestive system so our body can rebuild itself. . . Unfortuantely, most doctors aren't interested in diet - and poo-poo systemic fungal issues. Eating healthy, avoiding all the bad stuff, getting sufficient deep sleep, moderate exercise,

avoiding stress and anger and keeping a positive frame of mind are all very important. There are other detox methods . . . But I'd suggest starting here then gradually trying other things. Hugs, Rogene

[Guest guest]

Hi Diane,

I got implants at 45 and had them for six months and had them

removed because I got sick. One symptom I did not have was hair

loss, but I know others here did. However, I did have the muscle

twitching and brain fog, and along with that I had joint swelling,

anxiety attacks, numb fingers and toes, bone pain and migraines. I

also only slept for about 3 hours per night while I had implants,

and now I sleep through the night, and I sleep quite well.

I went through menopause at 40, and the symptoms I had from

menopause were night sweats, hot flashes and spotty periods or

missed periods.

My husband was not supportive of my having the implants removed,

either, but there came a time where I had to do what was right for

my body. No one lives inside my body but me, and therefore no one

should be given the right to decide what's right for me. When I

stood up to my husband and told him it was either surgery or

suicide, he listened (and I told him this as I was in my car,

driving to Ohio from New Jersey to meet with the surgeon). For

months I couldn't talk to my husband about explant, he would fly

into a rage, but finally I made my appointment and just did what I

had to do for my own sanity and peace of mind. I had a tough enough

time discussing this with my husband, I can't imagine how difficult

it is to discuss this with your husband when he's a doctor!!

Sis

--- In , " dmwd817 " <dmwd817@...>

wrote:

>

> I am brand new to the support group and I am freaking out. I am

41, a mother of 3 and of

> course had saline implants after nursing my last child (5 years

ago). Within 6 months I

> starting having the " usual " symptoms: muscle twitching, night

sweats, heart palpitations,

> brain fog etc etc. I think I have talked myself into the fact

that these symptoms are in my

> head but I got " used " to them. Now most noticable is my hair. It

has been falling out at a

> rate so fast that I am afraid to brush my hair. I have been

researching explantation thanks

> to this great support sight but am so afraid. My husband is not

supportive (I did this to

> myself) and being a medical doctor himself does not believe

saline implants can cause

> these symptoms. His explanation is menopause (which my mother

went thru at 42). I

> know this is so sad, but I feel like I have to decide which is

worse, being flat chested again

> or bald or possibly both. Somebody please tell me that her hair

(if you were losing it) got

> better after explantation. I am definitely having an anxiety

attack.

>

> thanks!!!!

>

> Diane

>

[Guest guest]

Hey there!

I was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in menopause.

Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.)

I was 100% healthy until implanting at age 22, and became disabled within 6 months. It took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1 of at my age then, and even now.

Perhaps since your hubby is a doctor he will be open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in my head because I had no clue implants could make you sick for years to come.)

Best wishes to you! I hope your husband will be supportive in what ever decisions you make.

Brigite

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[Guest guest]

Brigite, Wow, I thought I was young at 40 to be disabled. I have no motivation to do anything physical what so ever, I have to sike myself up just to walk down the hall to use the computer. It's the only form of exercise I get, walking down the hall. So, how hard was it to get on disability at you age? For myself, Florida went ahead and ruled me bipolar although I know I'm not. My attorney said this way my fight for SSI would be over. I was suffering from depression due to being so sick and I lost almost everything I had.I was on so many medications and had so many side effects from the meds I thought I was crazy. April of 2006 I went into the hospital again, I had been vomiting for 5 days straight and so weak I couldn't walk. I tried to tell the doctors I felt like someone had been poisoning me. I explained I had been sick for well over a year with numberous symtoms and all of my hair had fallen out. They did blood

work and an MRI, the results came back showing nothing. At that time I was so sick I told them if they sent me home I would not come back alive because no one should have to live with so much sickness and physical pain. They backer acted me. Yes, I went to the nuthouse. There, they treated me for the vomiting and more meds for the depression.They thought my fatige was depression and I insisted that I would not be depressed if I was not so sick. Within days the vomiting was gone and all I wanted was to go home. I stayed on all the meds until Oct.2006. It took 2 weeks to wean off all of them. I have been med free since then. I truely believe all of the meds the doctors put me on was making me sicker and crazy. Now I'm just waiting to have my explant done.My hair is growing back but its not healthy. Its dry and breaks no matter how well I condition it. It looks frizzy and burned.I hope after I get this poison out of me it will get

healthy again. KissofSadness@... wrote: Hey there! I was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in

menopause. Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.) I was 100% healthy until implanting at age 22, and became disabled within 6 months. It took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1 of at my age then, and even now. Perhaps since your hubby is a doctor he will be open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in

my head because I had no clue implants could make you sick for years to come.) Best wishes to you! I hope your husband will be supportive in what ever decisions you make. Brigite See what's free at AOL.com.

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[Guest guest]

Brigite, honey, we know that breast implants should be changed after 10 years. Doctors do not have time to do research, or at least my doctors have told me that they do not have time to read the articles that I give them. They do believe in me, and they trust me.

If I were married to a doctor, I would hope that he would care enough about me to get involved. My doctors know that I am sick from my breast implants, they have watched me go downhill, and they have seen my breasts.

We hope that you have your implants removed; however, this is your decision. I have lost all of the hair on my body, and my doctors have told me that it will never come back. The hair on my head is still okay, but it is very thin.

Take care...love you..........Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`

Re: hair loss

Hey there!

I was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in menopause.

Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.)

I was 100% healthy until implanting at age 22, and became disabled within 6 months. It took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1 of at my age then, and even now.

Perhaps since your hubby is a doctor he will be open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in my head because I had no clue implants could make you sick for years to come.)

Best wishes to you! I hope your husband will be supportive in what ever decisions you make.

Brigite

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[Guest guest]

, this is so heartbreaking to hear what you have been through. This is so sad, because the doctors know that these devices are deadly. How could they treat you so badly? I know that my family thought that I too was mad, but it made me stronger in a strange way. The anger took over, and that is when I started doing research. My daughter's mother-in-law had breast implants, but she would never tell anyone after she saw the way that I was being treated . She died of respiratory failure.

Honey, the doctors are crazy if they did this to you...our health care system is badly broken.

We all love you.........Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```````````

Re: Re: hair loss

Brigite,

Wow, I thought I was young at 40 to be disabled. I have no motivation to do anything physical what so ever, I have to sike myself up just to walk down the hall to use the computer. It's the only form of exercise I get, walking down the hall.

So, how hard was it to get on disability at you age? For myself, Florida went ahead and ruled me bipolar although I know I'm not. My attorney said this way my fight for SSI would be over. I was suffering from depression due to being so sick and I lost almost everything I had.I was on so many medications and had so many side effects from the meds I thought I was crazy. April of 2006 I went into the hospital again, I had been vomiting for 5 days straight and so weak I couldn't walk. I tried to tell the doctors I felt like someone had been poisoning me. I explained I had been sick for well over a year with numberous symtoms and all of my hair had fallen out. They did blood work and an MRI, the results came back showing nothing. At that time I was so sick I told them if they sent me home I would not come back alive because no one should have to live with so much sickness and physical pain. They backer acted me. Yes, I went to the nuthouse.

There, they treated me for the vomiting and more meds for the depression.They thought my fatige was depression and I insisted that I would not be depressed if I was not so sick. Within days the vomiting was gone and all I wanted was to go home. I stayed on all the meds until Oct.2006. It took 2 weeks to wean off all of them. I have been med free since then. I truely believe all of the meds the doctors put me on was making me sicker and crazy.

Now I'm just waiting to have my explant done.My hair is growing back but its not healthy. Its dry and breaks no matter how well I condition it. It looks frizzy and burned.I hope after I get this poison out of me it will get healthy again.

KissofSadnessaol wrote:

Hey there!

I was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in menopause.

Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.)

I was 100% healthy until implanting at age 22, and became disabled within 6 months. It took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1 of at my age then, and even now.

Perhaps since your hubby is a doctor he will be open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in my head because I had no clue implants could make you sick for years to come.)

Best wishes to you! I hope your husband will be supportive in what ever decisions you make.

Brigite

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[Guest guest]

. . . I'm so sorry to hear how you've been treated! . . . I hope you'll be able to backtrack to your doctors to tell them how far off base they were! . . . Blaming it on the woman seems to be their easiest out! Some of my family laughs at me because I'm always looking for a natural treatment, rather than trusting the doctors . . . If they only knew! But they don't want to know! Rogene

[Guest guest]

Lea, Out of anger and into action. I'm sick of being sick and now that I know what's wrong I can finally work towards something. It's made all the difference in the world finding the saline support group. I pray all of these other women with implants being given life threating medications finds what we have. I think about how many women have taken thier own lives due to being so sick and no one listening. How many of these women were said to be depressed and all along it was the implants. I just finished a letter to Dr. Kolb and sent it off, I'm hoping she will help me somehow. I'm not sure how but you never know. I have many questions and if she can answer just one that will do. Lea <devans@...> wrote: , this is so heartbreaking to hear what you have been through. This is so sad, because the doctors know that these devices are deadly. How could they treat you so badly? I know that my family thought that I too was mad, but it made me stronger in a strange way. The anger took over, and that is when I started doing research. My daughter's mother-in-law had breast implants, but she would never tell anyone after she saw the way that I was being treated . She died of respiratory failure. Honey, the doctors are crazy if they did this to you...our health care system is badly broken. We all love you.........Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``````````` Re: Re: hair loss Brigite, Wow, I thought I was young at 40 to be disabled. I have no motivation to do anything physical what so ever, I have to sike myself up just to walk down the hall to use the computer. It's the only form of exercise I get, walking down

the hall. So, how hard was it to get on disability at you age? For myself, Florida went ahead and ruled me bipolar although I know I'm not. My attorney said this way my fight for SSI would be over. I was suffering from depression due to being so sick and I lost almost everything I had.I was on so many medications and had so many side effects from the meds I thought I was crazy. April of 2006 I went into the hospital again, I had been vomiting for 5 days straight and so weak I couldn't walk. I tried to tell the doctors I felt like someone had been poisoning me. I explained I had been sick for well over a year with numberous symtoms and all of my hair had fallen out. They did blood work and an MRI, the results came back showing nothing. At that time I was so sick I told them if they sent me home I would not come back alive because no one should have to live with so much sickness and physical pain. They backer acted me. Yes, I

went to the nuthouse. There, they treated me for the vomiting and more meds for the depression.They thought my fatige was depression and I insisted that I would not be depressed if I was not so sick. Within days the vomiting was gone and all I wanted was to go home. I stayed on all the meds until Oct.2006. It took 2 weeks to wean off all of them. I have been med free since then. I truely believe all of the meds the doctors put me on was making me sicker and crazy. Now I'm just waiting to have my explant done.My hair is growing back but its not healthy. Its dry and breaks no matter how well I condition it. It looks frizzy and burned.I hope after I get this poison out of me it will get healthy again. KissofSadnessaol wrote: Hey there! I

was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in menopause. Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.) I was 100% healthy until implanting at age 22, and became disabled within 6 months. It

took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1 of at my age then, and even now. Perhaps since your hubby is a doctor he will be open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in my head because I had no clue implants could make you sick for years to come.) Best wishes to you! I hope your husband will be supportive in what ever decisions you make. Brigite See what's free at AOL.com. Get the toolbar and be alerted to new email wherever you're surfing.

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