hair loss

[Guest guest]

Rogene, I think I'd like to go back and let them all know how wrong they were but, for now I'm to full of resentment. I don't think I would be very nice about it. I have time to calm down, pray,and meditate. I wish I could go on a news show and tell our women what these implants have done to us. If I could change the mind of just one young lady wanting implants, my expereince would be worth it.My friends and family always knew me as the energetic and adventureous one.I was always up for anything. When I became sick they had no doubt something was seriuosly wrong. Rogene S <saxony01@...> wrote: . . . I'm so sorry to hear how you've been treated! . . . I hope you'll be able to backtrack to your doctors to tell them how far

off base they were! . . . Blaming it on the woman seems to be their easiest out! Some of my family laughs at me because I'm always looking for a natural treatment, rather than trusting the doctors . . . If they only knew! But they don't want to know! Rogene

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

[Guest guest]

I am new to this also, and I have had ALOT of hair loss since being

implanted with saline implants 5 years ago, I have a consultation for

explant in 2 weeks...I thought I was just worrying too much but after

finding out sooo many other women have the same problem, I know these

things are the cause of my many problems since I got them.

[Guest guest]

a,

I hope your consultation is with one of the docs

on our list that we know remove implants and scar tissue.

Lynda

:50 AM 5/29/2007, you wrote:

>I am new to this also, and I have had ALOT of hair loss since being

>implanted with saline implants 5 years ago, I have a consultation for

>explant in 2 weeks...I thought I was just worrying too much but after

>finding out sooo many other women have the same problem, I know these

>things are the cause of my many problems since I got them.

>

>

[Guest guest]

a, Welcome! Before you go for your consult, be sure to learn why having your implants removed properly is very important . . . "en bloc" is the best way - complete capsulectomy at the minimum. You'll find Dr. Blais' paper interesting. . . Click on the link to this group, then go to "Files". You will also want a surgeon who will use drains until there is no significant drainage. They're not always necessary - but you'll never know until after surgery. Better safe than sorry. Hugs, Rogene

[Guest guest]

Yesterday, I had an appointment with a new Rheumatologist. One of the first questions she queried me on after pain, was my hair loss and how/when it began.

While I would not go so far asto say everyone who suffers from hair loss is experiencing autoimmune problems, this is indeed a symptom of various autoimmune disorders, but it is just ONE symptom. If you have not already started keeping one, it might be helpful if you were to keep a diary dating your symptoms.

Cathie

************************************** See what's free at http://www.aol.com.

[Guest guest]

Oh, , please tell your story to everyone who will listen. That is what I did, and I will continue to tell my story forever. People do listen, and learn from our pain and suffering. Many thought that I was a nut case, but that did not bother me.

Honey, the only way to stop this madness is to be stable, and do research. Then find a good lawyer, who will help you to be vindicated.

Love you......Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~````````````````

Re: Re: hair loss

Brigite,

Wow, I thought I was young at 40 to be disabled. I have no motivation to do anything physical what so ever, I have to sike myself up just to walk down the hall to use the computer. It's the only form of exercise I get, walking down the hall.

So, how hard was it to get on disability at you age? For myself, Florida went ahead and ruled me bipolar although I know I'm not. My attorney said this way my fight for SSI would be over. I was suffering from depression due to being so sick and I lost almost everything I had.I was on so many medications and had so many side effects from the meds I thought I was crazy. April of 2006 I went into the hospital again, I had been vomiting for 5 days straight and so weak I couldn't walk. I tried to tell the doctors I felt like someone had been poisoning me. I explained I had been sick for well over a year with numberous symtoms and all of my hair had fallen out. They did blood work and an MRI, the results came back showing nothing. At that time I was so sick I told them if they sent me home I would not come back alive because no one should have to live with so much sickness and physical pain. They backer acted me. Yes, I went to the nuthouse.

There, they treated me for the vomiting and more meds for the depression.They thought my fatige was depression and I insisted that I would not be depressed if I was not so sick. Within days the vomiting was gone and all I wanted was to go home. I stayed on all the meds until Oct.2006. It took 2 weeks to wean off all of them. I have been med free since then. I truely believe all of the meds the doctors put me on was making me sicker and crazy.

Now I'm just waiting to have my explant done.My hair is growing back but its not healthy. Its dry and breaks no matter how well I condition it. It looks frizzy and burned.I hope after I get this poison out of me it will get healthy again.

KissofSadnessaol wrote:

Hey there!

I was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in menopause.

Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.)

I was 100% healthy until implanting at age 22, and became disabled within 6 months. It took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1 of at my age then, and even now.

Perhaps since your hubby is a doctor he will be open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in my head because I had no clue implants could make you sick for years to come.)

Best wishes to you! I hope your husband will be supportive in what ever decisions you make.

Brigite

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[Guest guest]

Cathie, honey, I am glad that your rheumatologist is asking questions. This is all about the quality of your life, and if she/he is not interested, then find someone good. My pulmonary specialist found my rheumatologist, and he is wonderful. Keeping a diary is so very important because it helps as you heal.

Thank you for helping the women with your experience. We need all of the help that we can find, because many of us just cannot keep up with all of the new women. I have one lady here who has had her silicone implants for 25 years, and they must come out. Another young woman here, needs to find a good plastic surgeon soon. She has a young child, and I hope that she has not nursed.

Take care and stay close...love you....Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~`````

Re: Re: hair loss

Yesterday, I had an appointment with a new Rheumatologist. One of the first questions she queried me on after pain, was my hair loss and how/when it began.While I would not go so far asto say everyone who suffers from hair loss is experiencing autoimmune problems, this is indeed a symptom of various autoimmune disorders, but it is just ONE symptom. If you have not already started keeping one, it might be helpful if you were to keep a diary dating your symptoms.Cathie**************************************See what's free at http://www.aol.com.

[Guest guest]

~

Since the new hype about the safety of implants, it has everyone in a spin and no one wants to bat against the FDA/DRUG companies/medical field. They have too much money and fight power. They also have all the proof of how dangerous they are, it is just more financial benefit for them to approve and sell and implant them.

I think there is fixin to be an explosion with it all, and I also think you have a case........ Bless you ~ DedeSee what's free at AOL.com.

[Guest guest]

Lea, Do I have a case? I've spoken to 25 different attorneys in the past couple of weeks and they all say, I have no case or It would be to hard to prove it's the implants that have made me sick. Lea <devans@...> wrote: Oh, , please tell your story to everyone who will listen. That is what I did, and I will continue to tell my story forever. People do listen, and learn from our pain and suffering. Many thought that I was a nut case, but that did not bother me. Honey, the only way to stop this madness is to be stable, and do research. Then find a good lawyer, who will help you to be vindicated. Love

you......Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```````````````` Re: Re: hair loss Brigite, Wow, I thought I was young at 40 to be disabled. I have no motivation to do anything physical what so ever, I have to sike myself up just to walk down the hall to use the computer. It's the only form of exercise I get, walking down the hall. So, how hard was it to get on disability at you age? For myself, Florida went ahead and ruled me bipolar although I know I'm not. My attorney said this way my fight for SSI would be over. I was suffering from depression due to being so

sick and I lost almost everything I had.I was on so many medications and had so many side effects from the meds I thought I was crazy. April of 2006 I went into the hospital again, I had been vomiting for 5 days straight and so weak I couldn't walk. I tried to tell the doctors I felt like someone had been poisoning me. I explained I had been sick for well over a year with numberous symtoms and all of my hair had fallen out. They did blood work and an MRI, the results came back showing nothing. At that time I was so sick I told them if they sent me home I would not come back alive because no one should have to live with so much sickness and physical pain. They backer acted me. Yes, I went to the nuthouse. There, they treated me for the vomiting and more meds for the depression.They thought my fatige was depression and I insisted that I would not be depressed if I was not so sick. Within days the vomiting was gone and all I wanted was to go home.

I stayed on all the meds until Oct.2006. It took 2 weeks to wean off all of them. I have been med free since then. I truely believe all of the meds the doctors put me on was making me sicker and crazy. Now I'm just waiting to have my explant done.My hair is growing back but its not healthy. Its dry and breaks no matter how well I condition it. It looks frizzy and burned.I hope after I get this poison out of me it will get healthy again. KissofSadnessaol wrote: Hey there! I was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is

virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in menopause. Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.) I was 100% healthy until implanting at age 22, and became disabled within 6 months. It took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1 of at my age then, and even now. Perhaps since your hubby is a doctor he will be

open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in my head because I had no clue implants could make you sick for years to come.) Best wishes to you! I hope your husband will be supportive in what ever decisions you make. Brigite See what's free at AOL.com. Get the

toolbar and be alerted to new email wherever you're surfing. Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

Pinpoint customers who are looking for what you sell.

[Guest guest]

, There are some cases that are quietly going on . . . You'd have to find the right attorney . . . and even then, odds aren't good. Most women signed away their rights when they signed the "informed consent' before getting implants. Many law firms don't want to get involved. Some agreed not to take on any more cases in return for settling the cases they already had. Laws have been rewritten to make it much more difficult to win these suits. Let's pray a new administration will be more public-friendly. Rogene cynthia pyne <pynerone@...> wrote: Lea, Do I have a case? I've spoken to 25 different attorneys in the past couple of weeks and they all say, I have no case or It would be to hard to prove it's the implants that have made me sick. Lea <devanscompusmart (DOT) ab.ca> wrote: Oh, , please tell your story to everyone who will listen. That is what I did, and I will continue to tell my story forever. People do listen, and learn from our pain and suffering. Many thought that I was a nut case, but that did not bother me. Honey, the only way to stop this madness is to be stable, and do research. Then find a good lawyer, who will help you to be vindicated. Love you......Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~```````````````` Re: Re: hair loss Brigite, Wow, I thought I was young at 40 to be disabled. I have no motivation to do anything physical what so ever, I have to sike myself up just to walk down the hall to use the computer. It's the only form of exercise I get, walking down the hall. So, how hard was it to get on disability at you age? For myself, Florida went ahead and ruled me bipolar although I know I'm

not. My attorney said this way my fight for SSI would be over. I was suffering from depression due to being so sick and I lost almost everything I had.I was on so many medications and had so many side effects from the meds I thought I was crazy. April of 2006 I went into the hospital again, I had been vomiting for 5 days straight and so weak I couldn't walk. I tried to tell the doctors I felt like someone had been poisoning me. I explained I had been sick for well over a year with numberous symtoms and all of my hair had fallen out. They did blood work and an MRI, the results came back showing nothing. At that time I was so sick I told them if they sent me home I would not come back alive because no one should have to live with so much sickness and physical pain. They backer acted me. Yes, I went to the nuthouse. There, they treated me for the vomiting and more meds for the depression.They thought my fatige was depression and I insisted that I

would not be depressed if I was not so sick. Within days the vomiting was gone and all I wanted was to go home. I stayed on all the meds until Oct.2006. It took 2 weeks to wean off all of them. I have been med free since then. I truely believe all of the meds the doctors put me on was making me sicker and crazy. Now I'm just waiting to have my explant done.My hair is growing back but its not healthy. Its dry and breaks no matter how well I condition it. It looks frizzy and burned.I hope after I get this poison out of me it will get healthy again. KissofSadnessaol wrote: Hey there! I was implanted at 22, am turning 32 now, and have had hairloss the past 10 years since implanting. I've lost an inch on my forehead, and it's getting worse on the

right side of my forehead. I've also lost thickness in general, and have occasional small patches. My hair is virgin hair -never colored, and I don't brush it or blow dry it -so it's not from something I'm doing to it. Both my parents are 63 and have all their hair. Dad has almost a full hairline, and had no loss until his 50's. Mom has enough hair for 3 people -so it's not genetic. (Also, my siblings don't have this problem.) And I'm definitely not in menopause. Personally, I'm still implanted (hoping to explant someday), so I can't chime in on the returning hair after explanting issue, but everyone says it improves! (Along with many other symptoms.) I was 100% healthy until implanting at age 22, and became disabled within 6 months. It took years before I even heard implants could make a woman sick --- and by then, I was already diagnosed with all the varying diseases that would be rare for me to have 1

of at my age then, and even now. Perhaps since your hubby is a doctor he will be open minded to the fact that everyone isn't a text book case, and know how medicine evolves. Most of our doctors have also told us it's impossible to get sick from implants, but for the majority --- there's no other explanation. Especially since many of us can pinpoint when we got sick. (Mine's to the month ---and again, it's not in my head because I had no clue implants could make you sick for years to come.) Best wishes to you! I hope your husband will be supportive in what ever decisions you make. Brigite See what's free at AOL.com. Get the toolbar and be alerted to new email wherever you're surfing. Take the Internet to Go: Go puts the Internet in your pocket: mail,

news, photos more. Pinpoint customers who are looking for what you sell.

[Guest guest]

Janis,

If you have joined you should just be able to ask a question and

women will respong.

Lynda

At 04:17 PM 6/11/2007, you wrote:

>I am new here, not sure how to start a thread..help!

>

> > > >

> > > > >I am brand new to the support group and I am

> > > > >freaking out. I am 41, a mother of 3 and of

> > > > >course had saline implants after nursing my last

> > > > >child (5 years ago). Within 6 months I

> > > > >starting having the " usual " symptoms: muscle

> > > > >twitching, night sweats, heart palpitations,

> > > > >brain fog etc etc. I think I have talked myself

> > > > >into the fact that these symptoms are in my

> > > > >head but I got " used " to them. Now most

> > > > >noticable is my hair. It has been falling out at a

> > > > >rate so fast that I am afraid to brush my hair.

> > > > >I have been researching explantation thanks

> > > > >to this great support sight but am so afraid. My

> > > > >husband is not supportive (I did this to

> > > > >myself) and being a medical doctor himself does

> > > > >not believe saline implants can cause

> > > > >these symptoms. His explanation is menopause

> > > > >(which my mother went thru at 42). I

> > > > >know this is so sad, but I feel like I have to

> > > > >decide which is worse, being flat chested again

> > > > >or bald or possibly both. Somebody please tell

> > > > >me that her hair (if you were losing it) got

> > > > >better after explantation. I am definitely having an anxiety

>attack.

> > > > >

> > > > >thanks!!!!

> > > > >

> > > > >Diane

> > > > >

> > > > >

> > > >

> > >

> > >

> >

[Guest guest]

HI Janis, You can just send a letter to the group at . It will go out to all the members and show up on the website. You'll get replies from those who desire to respond. Hope to see you there! PattyJanis <cakittypower@...> wrote: I am new here, not sure how to start a thread..help!> > >> > > >I am brand new to the support

group and I am> > > >freaking out. I am 41, a mother of 3 and of> > > >course had saline implants after nursing my last> > > >child (5 years ago). Within 6 months I> > > >starting having the "usual" symptoms: muscle> > > >twitching, night sweats, heart palpitations,> > > >brain fog etc etc. I think I have talked myself> > > >into the fact that these symptoms are in my> > > >head but I got "used" to them. Now most> > > >noticable is my hair. It has been falling out at a> > > >rate so fast that I am afraid to brush my hair.> > > >I have been researching explantation thanks> > > >to this great support sight but am so afraid. My> > > >husband is not supportive (I did this to> > > >myself) and being a medical doctor himself does> > > >not

believe saline implants can cause> > > >these symptoms. His explanation is menopause> > > >(which my mother went thru at 42). I> > > >know this is so sad, but I feel like I have to> > > >decide which is worse, being flat chested again> > > >or bald or possibly both. Somebody please tell> > > >me that her hair (if you were losing it) got> > > >better after explantation. I am definitely having an anxietyattack.> > > >> > > >thanks!!!!> > > >> > > >Diane> > > >> > > >> > >> >> >>

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[Guest guest]

MARINA, I am really sorry that your losing your hair I went through a similar

thing myself the doctor keep saying it wasn't the medicine he said it was my

nerves but after all it was the meds and still today my hair is very thin. I

understand how uopsetting this is so stay positive and things will get better.

hugs go out to you.

marina_troi <marina_troi@...> wrote: Hey everyone!!! I've gotta

problem going on here. When I was on the

methotrexate pills, I noticed that there were a few more hairs in the

brush. Ok, I know that is normal. When I went on the injectable

MTX, there were even more hairs in my brush. Ok, not unexpected. I

know that the Enbrel, Plaquinal, Remicaid, and Prednisone can also do

this. Thing is, I haven't had ANY of these meds for a little over a

year and a half. Now, last year I was on so many different

antibiotics because of my chronic recurring pyleonephritis. I even

had a weird episode of renal failure (I'll ost that weird story

another time). So, as of November of 2006 the only meds I take are

pain meds, multivitamine, and Estrovent (herbal alternative to

hormone replacement). The other things is that my hair is not just

thinning more, I actually have patchy areas where there is no hair.

Thankfully, my hair is long enough to cover these areas. There is

hair growth occurring in those naked areas, but could it be that the

meds from over a year and a half ago (and that's when I stopped them

after having restarting them about 4 weeks prior). I had been on

those meds for nearly 5 years. I have been to all the allopecia

websites but there really isn't any answer there. I'd say that I'm

pulling my hair out over this, but it's falling out so fast that I

really can't use that saying!! When ever I want to talk to my doctor

about things, he is really great about listening. When I want to

talk about treatment down the road, he says " we will cross that

bridge when we get to it " . I always tell him that in my life there

are no bridges, there is only rapid slowing shark infest water that

we have to swim across!! I haven't talked to him about this because

it has only happened in the last week. I don't know what is

happening. Thanks for listening. I appreciate being able to talk

things out. Hugs.....Marina

---------------------------------

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[Guest guest]

Hi,

My name is and i'm having the same problem. I've been on so

many different meds. it's hard to remember them all. I'm 40 yrs. old

and already having fine, thin hair i am losing it daily.I have to

keep it cut cause the longer it is the more you can see my scalp.

I've checked into those hair pieces that is made by the texture and

color of your own hair. this appears to be the most realistic thing

i've looked into, although it is a little expensive. i'm to young to

be bald. it's worth the expense to me. good luck with yours.

--- In , " marina_troi " <marina_troi@...>

wrote:

>

> Hey everyone!!! I've gotta problem going on here. When I was on

the

> methotrexate pills, I noticed that there were a few more hairs in

the

> brush. Ok, I know that is normal. When I went on the injectable

> MTX, there were even more hairs in my brush. Ok, not unexpected.

I

> know that the Enbrel, Plaquinal, Remicaid, and Prednisone can also

do

> this. Thing is, I haven't had ANY of these meds for a little over

a

> year and a half. Now, last year I was on so many different

> antibiotics because of my chronic recurring pyleonephritis. I even

> had a weird episode of renal failure (I'll ost that weird story

> another time). So, as of November of 2006 the only meds I take are

> pain meds, multivitamine, and Estrovent (herbal alternative to

> hormone replacement). The other things is that my hair is not just

> thinning more, I actually have patchy areas where there is no

hair.

> Thankfully, my hair is long enough to cover these areas. There is

> hair growth occurring in those naked areas, but could it be that

the

> meds from over a year and a half ago (and that's when I stopped

them

> after having restarting them about 4 weeks prior). I had been on

> those meds for nearly 5 years. I have been to all the allopecia

> websites but there really isn't any answer there. I'd say that I'm

> pulling my hair out over this, but it's falling out so fast that I

> really can't use that saying!! When ever I want to talk to my

doctor

> about things, he is really great about listening. When I want to

> talk about treatment down the road, he says " we will cross that

> bridge when we get to it " . I always tell him that in my life there

> are no bridges, there is only rapid slowing shark infest water that

> we have to swim across!! I haven't talked to him about this

because

> it has only happened in the last week. I don't know what is

> happening. Thanks for listening. I appreciate being able to talk

> things out. Hugs.....Marina

>

[Guest guest]

Marina, you mentioned that you are on hormone replacement therapy and

that could be a big part of the hair issue. All of the past and

present drugs can also play a part. If you've had surgery in the

last couple of years as well. Basically when your body is going

through trauma (surgery, drug therapy, hormonal changes) hair growth

becomes last priority and usually it will start growing again once

healing from the trauma has begun. If you say there is re-growth in

the patchy areas then I think that's probably what has happened.

There are a few things to make the re-growth better and stronger

though.

- drink 2-3 litres of water/non-caffeinated liquids per day

- take a good multivitamin

- eat plenty of lean protein (even skim milk has lots of protein)

- take Biotin (a B vitamin)and it will help your nails as well

- use Nexium shampoo, I'm not sure if it's prescription in the USA or

if you can get it at a salon. Ask your hairdresser.

Good luck!!

;o) Shari

--- In , " marina_troi " <marina_troi@...>

wrote:

>

> Hey everyone!!! I've gotta problem going on here. ........ Thanks

for listening. I appreciate being able to talk

> things out. Hugs.....Marina

>

[Guest guest]

Hi Marina!

I have this problem too. I wondered if it could be my

Plaquenil or Prenisone, I've not yet started the

Methotrexate, I started an increase of Sulfasalazine

to see if that helps a little more. My doctor tells

me that there are thousands of reasons why we can lose

hair..and the number one reason is stress, so

sometimes they blame my nerves. I'm only 35. My

hairdresser recommended Nioxin hair and scalp

treatment..its a shampoo and conditioner and it did

seem to help with the really fine areas and it was a

product i could just get from her so that was really

helpful. Gentle Hugs to you!

--- <jultep@...> wrote:

> MARINA, I am really sorry that your losing your hair

> I went through a similar thing myself the doctor

> keep saying it wasn't the medicine he said it was my

> nerves but after all it was the meds and still today

> my hair is very thin. I understand how uopsetting

> this is so stay positive and things will get better.

> hugs go out to you.

>

> marina_troi <marina_troi@...> wrote:

> Hey everyone!!! I've gotta problem going on here.

> When I was on the

> methotrexate pills, I noticed that there were a few

> more hairs in the

> brush. Ok, I know that is normal. When I went on the

> injectable

> MTX, there were even more hairs in my brush. Ok, not

> unexpected. I

> know that the Enbrel, Plaquinal, Remicaid, and

> Prednisone can also do

> this. Thing is, I haven't had ANY of these meds for

> a little over a

> year and a half. Now, last year I was on so many

> different

> antibiotics because of my chronic recurring

> pyleonephritis. I even

> had a weird episode of renal failure (I'll ost that

> weird story

> another time). So, as of November of 2006 the only

> meds I take are

> pain meds, multivitamine, and Estrovent (herbal

> alternative to

> hormone replacement). The other things is that my

> hair is not just

> thinning more, I actually have patchy areas where

> there is no hair.

> Thankfully, my hair is long enough to cover these

> areas. There is

> hair growth occurring in those naked areas, but

> could it be that the

> meds from over a year and a half ago (and that's

> when I stopped them

> after having restarting them about 4 weeks prior). I

> had been on

> those meds for nearly 5 years. I have been to all

> the allopecia

> websites but there really isn't any answer there.

> I'd say that I'm

> pulling my hair out over this, but it's falling out

> so fast that I

> really can't use that saying!! When ever I want to

> talk to my doctor

> about things, he is really great about listening.

> When I want to

> talk about treatment down the road, he says " we will

> cross that

> bridge when we get to it " . I always tell him that in

> my life there

> are no bridges, there is only rapid slowing shark

> infest water that

> we have to swim across!! I haven't talked to him

> about this because

> it has only happened in the last week. I don't know

> what is

> happening. Thanks for listening. I appreciate being

> able to talk

> things out. Hugs.....Marina

>

>

>

>

>

>

> ---------------------------------

> Tonight's top picks. What will you watch tonight?

> Preview the hottest shows on TV.

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Check out the hottest 2008 models today at Autos.

http://autos./new_cars.html

[Guest guest]

> > Hey everyone!!! I've gotta problem going on here.

> > When I was on the

> > methotrexate pills, I noticed that there were a few

> > more hairs in the

> > brush. Ok, I know that is normal. When I went on the

> > injectable

> > MTX, there were even more hairs in my brush. Ok, not

> > unexpected. I

> > know that the Enbrel, Plaquinal, Remicaid, and

> > Prednisone can also do

> > this. Thing is, I haven't had ANY of these meds for

> > a little over a

> > year and a half. Now, last year I was on so many

> > different

> > antibiotics because of my chronic recurring

> > pyleonephritis. I even

> > had a weird episode of renal failure (I'll ost that

> > weird story

> > another time). So, as of November of 2006 the only

> > meds I take are

> > pain meds, multivitamine, and Estrovent (herbal

> > alternative to

> > hormone replacement). The other things is that my

> > hair is not just

> > thinning more, I actually have patchy areas where

> > there is no hair.

> > Thankfully, my hair is long enough to cover these

> > areas. There is

> > hair growth occurring in those naked areas, but

> > could it be that the

> > meds from over a year and a half ago (and that's

> > when I stopped them

> > after having restarting them about 4 weeks prior). I

> > had been on

> > those meds for nearly 5 years. I have been to all

> > the allopecia

> > websites but there really isn't any answer there.

> > I'd say that I'm

> > pulling my hair out over this, but it's falling out

> > so fast that I

> > really can't use that saying!! When ever I want to

> > talk to my doctor

> > about things, he is really great about listening.

> > When I want to

> > talk about treatment down the road, he says " we will

> > cross that

> > bridge when we get to it " . I always tell him that in

> > my life there

> > are no bridges, there is only rapid slowing shark

> > infest water that

> > we have to swim across!! I haven't talked to him

> > about this because

> > it has only happened in the last week. I don't know

> > what is

> > happening. Thanks for listening. I appreciate being

> > able to talk

> > things out. Hugs.....Marina

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Tonight's top picks. What will you watch tonight?

> > Preview the hottest shows on TV.

> >

> > ---------------------------------

> > Got a little couch potato?

> > Check out fun summer activities for kids.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

________________________________________________________________________________\

____

> Check out the hottest 2008 models today at Autos.

> http://autos./new_cars.html

>

[Guest guest]

, I'm sorry you are going through this. I'm 37, so we are

right there together. I've never had this done, but they make hair

extensions that clip in instead of being sewn, glued, or melted. A

friend of mine bought them and she says they are real easy to put in

and take out plus they don't damage the hair you have. They are a

bit expensive, though I don't know exactly how much. It's a better

look if you go with real human hair rather than synthetic. It's

funny. Several years ago when my friend was diagnosed with liver

cancer and I told her that if the chemo makes her hair fall out or

thin. We had the same color and texture of hair. So, I told her

that should it come to that, let me know and I would get my hair cut

and have made into a wig for her. My hair, at the time, was nearly

down to my waist. Now it is I who needs the hair!!...Marina

>

> Hi,

> My name is and i'm having the same problem. I've been on

so

> many different meds. it's hard to remember them all. I'm 40 yrs.

old

> and already having fine, thin hair i am losing it daily.I have to

> keep it cut cause the longer it is the more you can see my scalp.

> I've checked into those hair pieces that is made by the texture and

> color of your own hair. this appears to be the most realistic thing

> i've looked into, although it is a little expensive. i'm to young

to

> be bald. it's worth the expense to me. good luck with yours.

>

[Guest guest]

Thank you for the reply, . I know stress can do this and I'm sure

everyone here is stressed just from the RA and all the happy happy joy

joy that goes with it. I'm trying to stay positive....Marina

>

> MARINA, I am really sorry that your losing your hair I went through a

similar thing myself the doctor keep saying it wasn't the medicine he

said it was my nerves but after all it was the meds and still today my

hair is very thin. I understand how uopsetting this is so stay positive

and things will get better. hugs go out to you.

>

[Guest guest]

Thank you, Shari. I've actually started doing all of those things

except using the Nexxium shampoo. It can be purchased in salons.

One thing, though. I'm not on hormone replacement therapy. I didn't

tolerate it. I actually had all the menopause symptoms while trying

the various drugs. The hot flashes was something I was looking

forward to. I thought that I would finally be warm!!LOL So, instead

of the hormones, I started taking an herbal supllement called

Estroven. Soy isoflavens helps your body increase its estrogen. My

doc said I didn't have the menopause symptoms because my primary

source of protein comes from soybean (I'm vegetarian). I told my doc

I was really looking forward to the hot flashes!! Thank you for your

reply. I really do appreciate everyone's support....Marina

--- In , " peribrown636 " <peribrown636@...>

wrote:

>

> Marina, you mentioned that you are on hormone replacement therapy

and

> that could be a big part of the hair issue. All of the past and

> present drugs can also play a part. If you've had surgery in the

> last couple of years as well. Basically when your body is going

> through trauma (surgery, drug therapy, hormonal changes) hair

growth

> becomes last priority and usually it will start growing again once

> healing from the trauma has begun. If you say there is re-growth

in

> the patchy areas then I think that's probably what has happened.

> There are a few things to make the re-growth better and stronger

> though.

> - drink 2-3 litres of water/non-caffeinated liquids per day

> - take a good multivitamin

> - eat plenty of lean protein (even skim milk has lots of protein)

> - take Biotin (a B vitamin)and it will help your nails as well

> - use Nexium shampoo, I'm not sure if it's prescription in the USA

or

> if you can get it at a salon. Ask your hairdresser.

>

> Good luck!!

>

> ;o) Shari

>

>

[Guest guest]

Thank you, . I think I remember seeing that shampoo when I

was looking at the rogain. Does the shampoo do the same thing Rogain

does when you stop using it?? With Rogain, you stop using it and the

new hair growth will fall out!! Just what we needed, huh? Another

thing they say can help, but here are the big bad side effects!!

Thanks for the reply...Hugs, Marina

>

> Hi Marina!

> I have this problem too. I wondered if it could be my

> Plaquenil or Prenisone, I've not yet started the

> Methotrexate, I started an increase of Sulfasalazine

> to see if that helps a little more. My doctor tells

> me that there are thousands of reasons why we can lose

> hair..and the number one reason is stress, so

> sometimes they blame my nerves. I'm only 35. My

> hairdresser recommended Nioxin hair and scalp

> treatment..its a shampoo and conditioner and it did

> seem to help with the really fine areas and it was a

> product i could just get from her so that was really

> helpful. Gentle Hugs to you!

[Guest guest]

90%?!?! Oh, Tammy. I'm not sure I could handle that!! The nice

thing about my hair is that it's long dark and curly. During one of

my admissions last year, I had gone five days without washing my

hair. I was that sick, couldn't even get out of bed. Then one day

(5 days later)my sister came in and I asked her if she could help me

wash my hair. I told her it hasn't been washed in 5 days and she

just looked at me and said, " Geesh, I wish my hair would look like

yours does now ONE day later! " . Anyway, I just wish that if my hair

has to fall out, then why can't it fall out more on my legs?!?!

Thanks for the reply, Tammy. And thank you for sharing your

story...Marina

>> >Marina, Im sorry to hear about your hair loss. Nov. of 05 my

doctor

> started me on Paquenil, Prenisone and Methotrexate, gave my all the

> good, bad, and ugley of taking the drugs and so-on. One of whitch

was

> hair loss never thought no more about this until about a month

later

> started lossing some of my hair then more and more I had large

areas

> of bald spots Talk to doctors and between the drugs and stress I

lost

> 90% of my hair got two wigs lots and lots of hats scarves i got

tired

> of cleaning hair up everyday and hated having to go into the

kitchen

> due to lossing hair so one day I shaved the rest off. Now almost

two

> years later my hair has all came back more than I ever had and so

> cruley it had all ways been straight. After the shock of lossing my

> hair ended it was kinda ok not to spend the time getting ready to

go

> out pull a wig on your ready, put a hat on your ready.

>

[Guest guest]

Marina, even though you aren't on Rx hormone replacement there is

obviously an issue in that area. Herbals are a form of self-

medication so the hormonal imbalance could still play a part in the

hair loss.

;o) Shari

--- In , " marina_troi " <marina_troi@...>

wrote:

>

> Thank you, Shari. I've actually started doing all of those things

> except using the Nexxium shampoo. It can be purchased in salons.

> One thing, though. I'm not on hormone replacement therapy. I

didn't

> tolerate it. I actually had all the menopause symptoms while

trying

> the various drugs. The hot flashes was something I was looking

> forward to. I thought that I would finally be warm!!LOL So,

instead

> of the hormones, I started taking an herbal supllement called

> Estroven. Soy isoflavens helps your body increase its estrogen.

My

> doc said I didn't have the menopause symptoms because my primary

> source of protein comes from soybean (I'm vegetarian). I told my

doc

> I was really looking forward to the hot flashes!! Thank you for

your

> reply. I really do appreciate everyone's support....Marina

[Guest guest]

I know that could be a possibility, though these are the herbs my

ob/gyn suggested when I had the surgery 5 years ago. But, I'm still

going to bring it up with my PCP. Thanks, Marina

> >

> > Thank you, Shari. I've actually started doing all of those

things

> > except using the Nexxium shampoo. It can be purchased in

salons.

> > One thing, though. I'm not on hormone replacement therapy. I

> didn't

> > tolerate it. I actually had all the menopause symptoms while

> trying

> > the various drugs. The hot flashes was something I was looking

> > forward to. I thought that I would finally be warm!!LOL So,

> instead

> > of the hormones, I started taking an herbal supllement called

> > Estroven. Soy isoflavens helps your body increase its estrogen.

> My

> > doc said I didn't have the menopause symptoms because my primary

> > source of protein comes from soybean (I'm vegetarian). I told my

> doc

> > I was really looking forward to the hot flashes!! Thank you for

> your

> > reply. I really do appreciate everyone's support....Marina

>

[Guest guest]

So sorry that you've lost so much hair, Marina. I wish I had some practical

advice to give you.

Do let us know what your physician says.

Not an MD

[ ] Hair Loss

> Hey everyone!!! I've gotta problem going on here. When I was on the

> methotrexate pills, I noticed that there were a few more hairs in the

> brush. Ok, I know that is normal. When I went on the injectable

> MTX, there were even more hairs in my brush. Ok, not unexpected. I

> know that the Enbrel, Plaquinal, Remicaid, and Prednisone can also do

> this. Thing is, I haven't had ANY of these meds for a little over a

> year and a half. Now, last year I was on so many different

> antibiotics because of my chronic recurring pyleonephritis. I even

> had a weird episode of renal failure (I'll ost that weird story

> another time). So, as of November of 2006 the only meds I take are

> pain meds, multivitamine, and Estrovent (herbal alternative to

> hormone replacement). The other things is that my hair is not just

> thinning more, I actually have patchy areas where there is no hair.

> Thankfully, my hair is long enough to cover these areas. There is

> hair growth occurring in those naked areas, but could it be that the

> meds from over a year and a half ago (and that's when I stopped them

> after having restarting them about 4 weeks prior). I had been on

> those meds for nearly 5 years. I have been to all the allopecia

> websites but there really isn't any answer there. I'd say that I'm

> pulling my hair out over this, but it's falling out so fast that I

> really can't use that saying!! When ever I want to talk to my doctor

> about things, he is really great about listening. When I want to

> talk about treatment down the road, he says " we will cross that

> bridge when we get to it " . I always tell him that in my life there

> are no bridges, there is only rapid slowing shark infest water that

> we have to swim across!! I haven't talked to him about this because

> it has only happened in the last week. I don't know what is

> happening. Thanks for listening. I appreciate being able to talk

> things out. Hugs.....Marina