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Subj: Re: Off topic messages

Date: 10/28/2000 4:54:56 PM Eastern Daylight Time

From: StarDantzer@...

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I agree... I was thrilled to read the post. Thank you Sandy. a

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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Date: Sat, 28 Oct 2000 15:39:25 EDT

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Subject: Re: Off topic messages

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Joyce,

My reprimand, if your referring to my reprimand, was about a posting that

discussed only envelope stuffing as a way to make money. It was not from

Sandy. There was nothing in it relating to CFS at all. Just my 2 cents.

Steve B.

What exactly " loose your stance " means?

> >

> > All right I am doing the brain check. However what is

> > meant by loose your stance?

> >

> > Does it mean lose your step, so that you have to move your feet?

> >

> > Are you allowed to move your arms to try to equilibriate.

> >

> > So if I move my arms or wobble but not move my feet, I do not

> > pass it?

> >

> > Do I have to keep both arms at 180 angle but am allowed to

> > wobble?

> >

> > Need some specific failure/pass criteria here. :-)

> >

> >

> >

> >

> >

> > ________________________________________________________________________

> > ________________________________________________________________________

> >

> >

> >

> >

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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a,

You were thrilled to read the post from " Ms. Myalgia " about the income

potential of envelope stuffing? Steve B.

Re: Off topic messages

> I agree... I was thrilled to read the post. Thank you Sandy. a

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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> It is my understanding that we have a list owner - Christie, and

Ken,

> who is her assistant. I think it is their responsibility to

reprimand.

>

> As far as Sandy's post, I appreciate it. My insurance is $650 a

> month and does not include prescription costs which are out of

sight.

> I would like to try some of the medications suggested on this list

but

> have not been able to afford the cost. Just my two cents

(literally).

> Thanks again Sandy!!

> Joyce

Actually, I thought it was a good message. The problem is that is

was not a message that fits with the purpose of *this* list, i.e.,

experimental CFS/FM treatments. Christie has stated that she is

not actively monitoring messages, and that is why I made some

comments re moderators. In the past, it has been acceptable to

make an off topic post that is related to CFS/FM as long as it

doesn't lead to a lenghty thread. However, with the list growing

as fast as it is, there should be a set policy re these kind of

messages so everyone will know what is acceptable.

Mike

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> a,

>

> You were thrilled to read the post from " Ms. Myalgia " about the

income

> potential of envelope stuffing? Steve B.

See, six off topic messages now (if you include this one). The point

isn't whether someone 'likes' a message or not, the point is if

it fits with the purpose of the list. The list rules could always

be changed, but we have talked about that before and there are

many other support lists. THis one, IMO, should be about medical

txs.

Mike

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Hi Steve!

Actually, I also appreciated the note from " Ms. Myalgia, " regarding

the income potential of envelope stuffing.

It is unfortunate that there have been complaints about the " chatty "

style of some posts. I suspect that we are missing out on some good

information, because of these complaints. I have found that good

information is included in these type of posts and will often

stimulate the thoughts and experiences of others within the group. I

have even appreciated the recent posts where people were venting, as

it does not make me feel not so isolated with this illness knowing

that others are not getting the help that they need to deal with this

illness. It is a sad but true saying, " Misery loves company. " ;-) LOL

For those people who are having trouble with the number of posts from

this list, they may find it helpful to be on the digest mode where

they can just scan the messages and read the ones that are of interest

to them.

Kind regards,

Trudy

Message: 25

Date: Sat, 28 Oct 2000 11:46:35 -0700

From: " R. Bullock " <bullocks@...>

Subject: Re: Off topic messages

a,

You were thrilled to read the post from " Ms. Myalgia " about the income

potential of envelope stuffing? Steve B.

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  • 3 years later...

I apologize about the confusion!

I did not mean to imply that this message was off topic. This message IS ON

topic as far as I'm concerned.

Glen mentions below that he has ideas and sources that are off topic.

I simply wanted to remind everyone that there is an off topic list if you want

to have off topic discussions with your Lyme Aid friends. This would be a

perfect place for Glen to share his off topic ideas and sources with others if

he wants to.

It's also a great place for everyone to get the chance to discuss topics that do

not concern Lyme disease. Politics, religion, jokes and any other topic that

doesn't belong on Lyme Aid are welcome on Lyme Aid Off Topic. Please check it

out if you're interested.

=)

Robynn

Re: [ ] Re: The Wounded Healer

:

WOW - you sound like a really interesting person!! I have read

both of these books and I agree that they are very helpful. I have a

masters in the arts (Musicology) and in Theology (M. Div.). I will tell

you that I have received immense help from the writings of G. I. Gurdjieff

and pupils (Ouspenski, etc.) and especially Maurice Nicoll who in turn

helped me to understand the writings of Swedenborg. I mention all of this

because through these influences I eventually discovered Eastern Orthodox

Christianity which now is my main Spiritual nourishment. (There are also

many more related ideas and sources that I won't bother with in this post

as it is too far off topic!) Thank you for the information on Nouwen and

Sandford!

Glen Wolfsen

burg, NJ.

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OK, I hear you more clearly this morning! LOL.

Blessings,

> I apologize about the confusion!

>

> I did not mean to imply that this message was off topic. This

message IS ON topic as far as I'm concerned.

>

> Glen mentions below that he has ideas and sources that are off topic.

>

> I simply wanted to remind everyone that there is an off topic list

if you want to have off topic discussions with your Lyme Aid friends.

This would be a perfect place for Glen to share his off topic ideas

and sources with others if he wants to.

>

> It's also a great place for everyone to get the chance to discuss

topics that do not concern Lyme disease. Politics, religion, jokes

and any other topic that doesn't belong on Lyme Aid are welcome on

Lyme Aid Off Topic. Please check it out if you're interested.

>

> =)

> Robynn

>

>

> Re: [ ] Re: The Wounded Healer

>

>

> :

>

> WOW - you sound like a really interesting person!! I

have read

> both of these books and I agree that they are very helpful. I have a

> masters in the arts (Musicology) and in Theology (M. Div.). I

will tell

> you that I have received immense help from the writings of G. I.

Gurdjieff

> and pupils (Ouspenski, etc.) and especially Maurice Nicoll who in

turn

> helped me to understand the writings of Swedenborg. I mention all

of this

> because through these influences I eventually discovered Eastern

Orthodox

> Christianity which now is my main Spiritual nourishment. (There

are also

> many more related ideas and sources that I won't bother with in

this post

> as it is too far off topic!) Thank you for the information on

Nouwen and

> Sandford!

>

> Glen Wolfsen

> burg, NJ.

>

>

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  • 5 years later...

Good morning,

I'm so glad that everyone on this board is having a number

of pleasant, helpful interchanges. That's GREAT!

I would like you all to remember that this board is for

discussions about Xolair, primarily, although we normally

allow discussions about other topics directly related to

allergies or asthma.

If you want to send a message to a member about a topic

that is not related to Xolair, allergies, or asthma,

please send your message to that member directly via email.

Thank you,

Addy

Group Co-owner

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