Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 > > I've taken xolair 6 months now but feeling worse, my asthma and allergies have increased, I'm down to eating only a few foods and have been unable to go outside (cold air) for more than minutes. Exercise it hurts to breath and have hives that keep me awake at night. I feel like I'm falling apart since starting xolair. I've never been this sick, ever. > > Has anyone felt worse but got better over time taking xolair ? > I am so sorry you are worse. Most of us have seen a great improvement but it took some us a little over a year to see any results. Personally, I didn't see any for 12 months. Hang in there. Trust your doctor's judgment. We all are pulling for you here. Doug Group founder On xolair for 5+ years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 It isn't the Xolair, so you should take comfort in that. I can speak from personal experience that Xolair began to work for me almost immediately. However, the more insidious parts of my atopy (my skin and sinuses) took about 9-12 months to start to taper down. While the IgE begins to get bound almost immediately, it does take time to reverse what is for most of us, years of inflammation. And, everyone is different as to how atopy effects them (I have EE, skin atopy, sinusitis and asthma), but unlike many people, as an adult my asthma was a smaller component of my atopic disorder. It might be for you that you have gone through more allergen exposure at a time when you began Xolair, so the drug is not as effective for you at this moment. Be patient and vigilant....don't accept that the atopy begins and ends with Xolair. > > I've taken xolair 6 months now but feeling worse, my asthma and allergies have increased, I'm down to eating only a few foods and have been unable to go outside (cold air) for more than minutes. Exercise it hurts to breath and have hives that keep me awake at night. I feel like I'm falling apart since starting xolair. I've never been this sick, ever. > > Has anyone felt worse but got better over time taking xolair ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2009 Report Share Posted March 9, 2009 Definitely tell your doctor what's happening. You might have another disease process going on in addition to the asthma. Most of us have (or at least I do) multiple diagnoses. How do you do for the first few hours after the Xolair shots? Although it's extremely rare, there are some people who react to Xolair. I had several incidences of upper respiratory infections (cold/flu) while on Xolair which my pulmo told me could be s side effect. On the other hand, w/o Xolair I had had lengthy stretches of cold/flu also. I tended to feel tired and achy all over but with the flu I couldn't do water exercise so that might have had something to do with it. It took several months (6 ?) of the highest dose before I noticed any asthma improvement. It took 8 months before I finally noticed I didn't have to take pseudoephedrine hardly at all (sinusitis). So, it might just take more time. Even so, if you're getting worse you need some medical intervention. This has been a really tough winter for the flu in some parts of the country - I had it for 3 months. Be sure to take care of yourself. > > I've taken xolair 6 months now but feeling worse, my asthma and allergies have increased, I'm down to eating only a few foods and have been unable to go outside (cold air) for more than minutes. Exercise it hurts to breath and have hives that keep me awake at night. I feel like I'm falling apart since starting xolair. I've never been this sick, ever. > > Has anyone felt worse but got better over time taking xolair ? > Quote Link to comment Share on other sites More sharing options...
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