Re: not able to get into a routine

[Guest guest]

I got my xolair when I had my last respiratory infection...bad cough, nasal

drainage, the works.  Even when I have had some sob, I have still gotten my

shot.  Maybe your doctor is just being very cautious.  It could be that my

symptoms are not severe.  Ask your doctor.....

From: <pirates_ej@...>

Subject: [ ] not able to get into a routine

Date: Monday, June 8, 2009, 9:04 AM

I am really getting frustrated with Xolair. I have been taking it for over a

year but have been extrememly inconsistent. My allergist's office won't let me

get my shot if I am having any asthma symptoms. Well, I am always symptomatic

hence the need for Xolair! Has anyone else been in that situation? How can I

convince them to give me the shots irregardless of my symptoms in order to start

to see some results???

[Guest guest]

Oh my goodness, that is the reason for taking xolair, I am always having asthma

symptoms when I have my shot, it appears they are not very educated in the

usage/indications for xolair, maybe one of the reps needs to call them! 

________________________________

From: <pirates_ej@...>

Sent: Monday, June 8, 2009 9:04:23 AM

Subject: [ ] not able to get into a routine

I am really getting frustrated with Xolair. I have been taking it for over a

year but have been extrememly inconsistent. My allergist's office won't let me

get my shot if I am having any asthma symptoms. Well, I am always symptomatic

hence the need for Xolair! Has anyone else been in that situation? How can I

convince them to give me the shots irregardless of my symptoms in order to start

to see some results???

[Guest guest]

my dr is super-cautious (although i guess not as much as i thought). the only

reason i cannot get my xolair is if i have a temp or am getting another shot on

the same day (i.e. flu shot). a cold/infection is still ok for me to get my

xolair.

i hope things improve - thats gotta be frustrating - you need the xolair to help

relieve some asthma symptoms, and you can't get it while having asthma symptoms.

grrrr

heather

>

> Oh my goodness, that is the reason for taking xolair, I am always having

asthma symptoms when I have my shot, it appears they are not very educated in

the usage/indications for xolair, maybe one of the reps needs to call them! 

>

>

>

>

> ________________________________

> From: <pirates_ej@...>

>

> Sent: Monday, June 8, 2009 9:04:23 AM

> Subject: [ ] not able to get into a routine

>

>

>

>

>

> I am really getting frustrated with Xolair. I have been taking it for over a

year but have been extrememly inconsistent. My allergist's office won't let me

get my shot if I am having any asthma symptoms. Well, I am always symptomatic

hence the need for Xolair! Has anyone else been in that situation? How can I

convince them to give me the shots irregardless of my symptoms in order to start

to see some results???

>

>

>

>

>

>

>

>

[Guest guest]

hi. my dd allergist wont give her shots if she is in the red zone on her

peak flow or has a fever. Jean

On Mon, Jun 8, 2009 at 3:14 PM, Adah Voigt <asthmatic50@...> wrote:

>

>

> I got my xolair when I had my last respiratory infection...bad cough, nasal

> drainage, the works. Even when I have had some sob, I have still gotten my

> shot. Maybe your doctor is just being very cautious. It could be that my

> symptoms are not severe. Ask your doctor.....

>

>

>

> From: <pirates_ej@... <pirates_ej%40>>

> Subject: [ ] not able to get into a routine

> < %40>

> Date: Monday, June 8, 2009, 9:04 AM

>

> I am really getting frustrated with Xolair. I have been taking it for over

> a year but have been extrememly inconsistent. My allergist's office won't

> let me get my shot if I am having any asthma symptoms. Well, I am always

> symptomatic hence the need for Xolair! Has anyone else been in that

> situation? How can I convince them to give me the shots irregardless of my

> symptoms in order to start to see some results???

>

>

[Guest guest]

What has your allergist said are his/her reasons from withholding the

medication? You can ask him/her to talk to a Xolair rep, and also to consult

with a doctor from one of the clinical trial sites, like National Jewish.

I agree with previous posts - Xolair is for folks who have mega symptoms that

are not controlled under other meds and immunotherapy. Unless you have a fever

or some other type of infection, you should be getting your xolair.

Addy

Group Co-owner

>

> I am really getting frustrated with Xolair. I have been taking it for over a

year but have been extrememly inconsistent. My allergist's office won't let me

get my shot if I am having any asthma symptoms. Well, I am always symptomatic

hence the need for Xolair! Has anyone else been in that situation? How can I

convince them to give me the shots irregardless of my symptoms in order to start

to see some results???

>

[Guest guest]

>

> What has your allergist said are his/her reasons from withholding the

medication? You can ask him/her to talk to a Xolair rep, and also to consult

with a doctor from one of the clinical trial sites, like National Jewish.

>

> I agree with previous posts - Xolair is for folks who have mega symptoms that

are not controlled under other meds and immunotherapy. Unless you have a fever

or some other type of infection, you should be getting your xolair.

>

> Addy

> Group Co-owner

There have been a few times when I am not breathing well when I get to the Dr's

office for my shots. He tells the nurse to give me a neb after the shots. If I

am having any problems breathing when I go for my REGULAR allergy shots, he

won't let me have them till AFTER my neb.

Doug

Group founder

[Guest guest]

nj is not hyo clinic was uge on xolair because half of their pts who were on it

are now no longer on it.

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Tuesday, June 9, 2009 7:36:12 AM

Subject: [ ] Re: not able to get into a routine

What has your allergist said are his/her reasons from withholding the

medication? You can ask him/her to talk to a Xolair rep, and also to consult

with a doctor from one of the clinical trial sites, like National Jewish.

I agree with previous posts - Xolair is for folks who have mega symptoms that

are not controlled under other meds and immunotherapy. Unless you have a fever

or some other type of infection, you should be getting your xolair.

Addy

Group Co-owner

>

> I am really getting frustrated with Xolair. I have been taking it for over a

year but have been extrememly inconsistent. My allergist's office won't let me

get my shot if I am having any asthma symptoms. Well, I am always symptomatic

hence the need for Xolair! Has anyone else been in that situation? How can I

convince them to give me the shots irregardless of my symptoms in order to start

to see some results???

>

[Guest guest]

They've just said protocol is to not give Xolair to anyone showing asthma

symptoms at the time of the shot. It's so frustrating! I get my Xolair at my

allergist's office. I see my pulmonologist this week and will talk to him about

it. I go to the infusion center at our local hospital at least once a week and

maybe I can work it out so that the nurses there give me the shots instead.

From: pyle456 <jamcculloch2@...>

Subject: [ ] Re: not able to get into a routine

Date: Tuesday, June 9, 2009, 5:36 AM

What has your allergist said are his/her reasons from withholding the

medication?

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[Guest guest]

Those sound like good ideas.

You are your own best advocate. Hang in there and keep fighting.

Addy

>

>

> From: pyle456 <jamcculloch2@...>

> Subject: [ ] Re: not able to get into a routine

>

> Date: Tuesday, June 9, 2009, 5:36 AM

>

>

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>

>

> What has your allergist said are his/her reasons from withholding the

medication?

>

>

>

> Recent Activity

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[Guest guest]

I can't find anything in the Xolair RX info that says that is the protocol.

Maybe I missed it, but....

Addy

>

>

> From: pyle456 <jamcculloch2@...>

> Subject: [ ] Re: not able to get into a routine

>

> Date: Tuesday, June 9, 2009, 5:36 AM

>

>

>

>

>

>

>

>

> What has your allergist said are his/her reasons from withholding the

medication?

>

>

>

> Recent Activity

> Visit Your Group

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> Start a group

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> ..

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>

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>

[Guest guest]

Regarding symptoms - I never have a problem even if I have symptoms.  I only

receive one shot per month and the last few days prior to receiving the

injection I sometimes do since Xolair is wearing off.  I am so thankful.  The

nurse always asks how I am doing and if I have any.  I always say I will be fine

once I get my shot and will call if I need anything else - sure enough the next

day - I feel great and do not need to call.

The doctor's office I go to is rather lax concerning peak flows where my

previous doc - had me meet 15 minutes with the nurse practioner, take peak flows

and vitals.   I really like the nurse practioner care management model though I

do not think the insurance companies do.  Dr. Silvers office in Denver, Colorado

uses this approach.  I did have a virus once with a fever and I did receive a

shot that day.  I didn't know I had a fever and complained of coughing which

I thought was triggered by asthma.  I think they were under the assumption

that Xolair would boost my immune system.  It would help rather than hurt and my

peak flows were normal.

Maybe National Jewish or the Xolair Docs have come up with best practices or

guidelines.

 

Webber

303.513.5653

melwebber22@...

 

 

________________________________

From: Jeannie Sheehan <fgigles55@...>

Sent: Monday, June 8, 2009 9:30:37 PM

Subject: Re: [ ] not able to get into a routine

hi. my dd allergist wont give her shots if she is in the red zone on her

peak flow or has a fever. Jean

On Mon, Jun 8, 2009 at 3:14 PM, Adah Voigt <asthmatic50> wrote:

>

>

> I got my xolair when I had my last respiratory infection... bad cough, nasal

> drainage, the works. Even when I have had some sob, I have still gotten my

> shot. Maybe your doctor is just being very cautious. It could be that my

> symptoms are not severe. Ask your doctor.....

>

>

>

> From: <pirates_ej (DOT) com <pirates_ej% 40> >

> Subject: [ ] not able to get into a routine

> < % 40groups. com>

> Date: Monday, June 8, 2009, 9:04 AM

>

> I am really getting frustrated with Xolair. I have been taking it for over

> a year but have been extrememly inconsistent. My allergist's office won't

> let me get my shot if I am having any asthma symptoms. Well, I am always

> symptomatic hence the need for Xolair! Has anyone else been in that

> situation? How can I convince them to give me the shots irregardless of my

> symptoms in order to start to see some results???

>

>