Re: IgE levels while Xolair are essentially irrelevant

[Guest guest]

........ Honestly, I would love to come off of Xolair....which might

> surprise some people. It is an amazingly incovenient drug. A.) it

> will become expensive for me at some point in time. I am lucky now

> that it part of my co-pay, but the insurance companies are looking

> for ways not to pay for this drug. B.) I feel like I am anchored to

> my home. I still travel overseas a lot, and on Xolair, it is

> virtually impossible to find any doctor that will let you travel

> with it....but, if I want to mountainclimb again, forget it. Can't

> refrigerate the stuff when you are in the Himalaya.

>

While I am thankful for the change Xolair has made in my life, I do find being

tethered to it

is inconvenient. I would love to get on a boat with my family and cruise around

the San

islands for a few months. But I can't get too far from my doctors office.

I know some have self injected and I don't understand why we can't all do that.

You hear

about diabetics having problems from getting their insulin wrong, but no one is

suggesting that they shouldn't be allowed to self inject.

Sometimes just working Xolair appointments around my husbands schedule can be a

huge

problem. I don't drive and can't do public transport, so if he's my only ride.

Normally this

works fine, but he's had a lot of traveling lately and it's been tough.

[Guest guest]

I'm on 450mg every two weeks. A problem with a different medicine caused me to

be

almost a week late once and I could definitely feel it. I do have to wonder if

I'd need much

asthma treatment at sea. I always get better when we go someplace beachy. The

air

coming off the water is so clean. With my luck, I'd get stuck at sea in a boat

with mildew

problems!

>

> Sorry...I hit a wrong button and it sent my message before I was through

>  

> My doctor changed my xolair to once every six weeks (from once every four

weeks) 

>  

> Have you gone without xolair for any length of time?  Have you noticed that

xolair helps

you considerably?

>  

> Has your doctor mentioned reducing your dosage to maybe once every three

weeks?  Or

maybe keeping the same dosage but once every three to four weeks?  Just curious.

>  

> It is hard when one has to depend on someone else for transportation. 

>  

> I have noticed that I am having reactions to allergens that I did not have for

three years,

but now have again and I am wondering if it is because there is a longer wait

time now

between shots.

>  

> These are just some questions and observations.  I know it's hard not to be

able to do

some of the things you really enjoy, but I probably wouldn't be able to enjoy

them anyway

if I was having asthma symptoms.  The hospital would be no fun!  We have only

traveled

more than two weeks once in our married life.  Most of our trips are short or

10-12 days

at the most, so I am fortunate in being able to travel in between shots.  I did

go an extra

week one time in between shots and I did notice a decline in the ease of

breathing that

time.

>  

>  

> Have a great day......

>  

>  

>  

> Adah

>

>