Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 WOW. I am so sorry to hear you have a new health issue. I cannot remember anyone posting having a new heart issue since starting Xolair. I would have your specialist call Genentech and inquire if they have any information and/or a reporting system you can enroll in. That said, it's probably not the Xolair that caused the PE. I would encourage your cardio to call your asthma doc and/or anyone else he wants to consult with about this (National Jewish Research Center comes to mind - they do a lot of consulting like this and they were involved in the xolair clinical trials. Good luck, and please do let us know what your cardiologist says. Addy Group co-owner > > Hi everyone, > > First of all, thanks to all of the posters on this board. When my dr. > first suggested Xolair I was thrilled to find someplace that answered > my questions in language I understood. You all were a godsend to me > then, so I'm looking to you again for some input. > > I was told today that I have a small pericardial effusion and I have an > appt. with the cardiologist in 2 weeks. Has anyone else experienced > heart issues after starting Xolair? I don't think it's related, but > that is the newest drug I'm on & I'm just trying to rule out anything I > can. (Trust me, there are many other drugs & health issues that may be > to blame.) > > Here's my background... > > I was diagnosed with asthma in April 2006 after a bout of pneumonia > (and a lifetime of severe allergies). I started Xolair injections in > July 2008 after 2 years of semi-relief from the " normal " drugs and am > fortunate enough to be one of those people who saw relief rather > quickly. Xolair not only helped my asthma, but has also had a > tremendous effect on my allergies. My dr. has already cut my Advair > back to 250 from 500 & taken me off one of my antihistimines. My hives > are gone. My inhaler is lonely, and until this heart thing, I was back > to my pre-asthma self. > > Any thoughts or information would be greatly appreciated. > > Thanks, > > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Hi Kathy, my first thought is " churg-strauss syndrome " , was this tested for or suspected ? It can present as adult-onset asthma w/ history of allergies, pneumonia, and progress to pericardial effusion. In my case its suspected as I have high levels of eosinophils in blood tests along with adult onset asthma and other signs. Keli http://www.cssassociation.org/about_the_syndrome.asp#2 > > Hi everyone, > > First of all, thanks to all of the posters on this board. When my dr. > first suggested Xolair I was thrilled to find someplace that answered > my questions in language I understood. You all were a godsend to me > then, so I'm looking to you again for some input. > > I was told today that I have a small pericardial effusion and I have an > appt. with the cardiologist in 2 weeks. Has anyone else experienced > heart issues after starting Xolair? I don't think it's related, but > that is the newest drug I'm on & I'm just trying to rule out anything I > can. (Trust me, there are many other drugs & health issues that may be > to blame.) > > Here's my background... > > I was diagnosed with asthma in April 2006 after a bout of pneumonia > (and a lifetime of severe allergies). I started Xolair injections in > July 2008 after 2 years of semi-relief from the " normal " drugs and am > fortunate enough to be one of those people who saw relief rather > quickly. Xolair not only helped my asthma, but has also had a > tremendous effect on my allergies. My dr. has already cut my Advair > back to 250 from 500 & taken me off one of my antihistimines. My hives > are gone. My inhaler is lonely, and until this heart thing, I was back > to my pre-asthma self. > > Any thoughts or information would be greatly appreciated. > > Thanks, > > Kathy > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.