Re: Digest Number 61

[Guest guest]

I have a friend whose family had fibromyanglia (sp?) and crohns

disease. It seems like I saw something the the hyperbaric oxygen

treatments helped these illnesses. I don't remember just where I saw it

but maybe someone could repeat the information. I will print it out and

send it to them. Thanks

[Guest guest]

Greetings, It was me, susan shall I send it?

sincerely

susan

Rapid recovery Hyperbarics

909-889-7626

hyperbaric1@...

[Guest guest]

Dear PJE here is my web site and home number 909-989-3378

http://www.js-net.com/ahw/HBOCTR.htm

[Guest guest]

Marcus wrote:

>

> From: Marcus <csharp@...>

>

> On 12/24/98 5:40 AM, hyperbaric1@... said:

>

> >From: PAT AND SUSAN RODRIGUEZ <hyperbaric1@...>

> >

> >Greetings, It was me, susan shall I send it?

> >sincerely

> >susan

> >Rapid recovery Hyperbarics

> >909-889-7626

> >hyperbaric1@...

>

> To all on this list..many of you have the bad habit of not

> quoting the pertinent portion of the text you are repling to.

> This obviously makes it difficult if not impossible to keep

> up with anything. PLEASE make an effort to learn how to do

> this.

>

> Thanks

>

> Marcus

>

> ------------------------------------------------------------------------

>

[Guest guest]

On 12/25/98 5:21 AM, hyperbaric1@... said:

>sorry in the begining they told me to delete the other messages Now I am

>to leave them?? I will do what ever you ask

This is what I am talking about . Your mail program

should give you the option of quoting the ENTIRE message

you are replying to (BAD option), or just the portion

of the message you have highlighted when you hit the

reply button (BEST option). The way you did it just now

is even worse than not quoting anything.

I appreciate your willingness, but you might need to

read the help files or manual that came with your mail

program to figure this out. It really will make your life

easier.

Marcus

[Guest guest]

Marcus wrote:

>

> From: Marcus <csharp@...>

>

> On 12/25/98 5:21 AM, hyperbaric1@... said:

>

> >sorry in the begining they told me to delete the other messages Now I am

> >to leave them?? I will do what ever you ask

>

> This is what I am talking about . Your mail program

> should give you the option of quoting the ENTIRE message

> you are replying to (BAD option), or just the portion

> of the message you have highlighted when you hit the

> reply button (BEST option). The way you did it just now

> is even worse than not quoting anything.

> Marcus wrote:

>

> From: Marcus <csharp@...>

>

> On 12/25/98 5:21 AM, hyperbaric1@... said:

>

> >sorry in the begining they told me to delete the other messages Now I am

> >to leave them?? I will do what ever you ask

>

> This is what I am talking about . Your mail program

> should give you the option of quoting the ENTIRE message

> you are replying to (BAD option), or just the portion

> of the message you have highlighted when you hit the

> reply button (BEST option). The way you did it just now

> is even worse than not quoting anything.

>

> I appreciate your willingness, but you might need to

> read the help files or manual that came with your mail

> program to figure this out. It really will make your life

> easier.

>

> Marcus

>

> ------------------------------------------------------------------------

>

[Guest guest]

In a message dated 1/31/99 2:56:38 AM Central Standard Time,

onelist writes:

<< Some days I feel OK, other days terrible...its the depression that's

just as bad as the tendinitis. >>

I've had this problem, too. About four years ago, my " other " doctor--an

internal medicine specialist--started me on Prozac. Since then I've

discovered from my Rheumy that quite a few arthritis patients are on

antidepressants.

Counseling helps, too--but for me, at least, Prozac and counseling work a lot

better.

[Guest guest]

In a message dated 4/4/99 11:59:21 PM Pacific Daylight Time,

onelist writes:

<< GPesses@... wrote:

>>

Dear Gail, Children never cease to amaze me. What " bugs " one child may not

bother the other (sorry about the pun). However, what I have noticed is that

if parents panic or make a big to do about a problem, the child will " catch "

the parent's anxiety, and run with it--especially children with OCD. If you

can take a nonchalant attitude toward the lice--which is easier said than

done obviously, I think that both your family and your child will benefit. I

can remember when we had lice in our home. What a chore. Try keeping an ADHD

child still long enough to get those little critters out of the hair. It was

a real challenge. I still itch when I think about it. Try to take things

with a grain of salt, and an " isn't this interesting " approach. It helps to

put perspective on even the most difficult of problems. Good luck and keep

me posted. Sincerely, Dr. Barbara

[Guest guest]

Is anyone using Glucosamine/Condroitin? I use it myself and am thinking it

might work for my son, . I'm hesitant to try anything not through

doctors orders, but quite frankly they haven't been able to help and

sometimes we have to take matters into our own hands. I will not rest until

feels " like a regular kid " as he says.

----------

> From: onelist

> onelist

> Subject: [ ] Digest Number 61

> Date: Wednesday, April 07, 1999 3:33 AM

>

>

> You can now easily share photos and documents with your fellow list

members

> http://www.ONElist.com

> Check out our homepage for details on how to use our new shared files

feature!

>

> There are 5 messages in this issue.

>

> Topics in today's digest:

>

> 1. Families & Patients

> From: Georgina <gmckin@...>

> 2. Re: Birthday List

> From: " Tigger " <oskudder@...>

> 3. Hi!

> From: billing c renay <rbilling1@...>

> 4. Re: healing

> From: SUZIEJONES@...

> 5. Re: Hi!

> From: SUZIEJONES@...

>

>

>

____________________________________________________________________________

___

>

____________________________________________________________________________

___

>

> Message: 1

> Date: Tue, 06 Apr 1999 08:45:50 -1000

> From: Georgina <gmckin@...>

> Subject: Families & Patients

>

> Hi everyone,

>

> I just re-visited a web site about arthritis in children which is

> managed by a pediatric rheumatologist, a doctor Lehman in New

> York. He's the Chief of the Division of pediatric rheumatology at the

> Hospital for Special Surgery. Some of the material was interesting. Some

> of it was surprising. This is a site that 's doctor had mentioned

> to me, when we first went online. I'm not sure if they know each other

> but they seem to have a lot of ideas in common. Same opinion, at least,

> on kids with arthritis not needing wheelchairs! If you have a chance,

> take a look at the site. I'm including the URL and hopefully, as long as

> you're not subscribed through the digest version, you'll be able to see

> one page of the site automatically. For those on the digest form, I

> don't think the page comes up with the message.

> (Let me know about this, if you can) I'd be curious to see what others

> opinions are about the material and information he presents on the

> website. Any comments?

>

> Take care,

> Georgina

>

> http://www.goldscout.com/page4.html

>

>

>

>

____________________________________________________________________________

___

>

____________________________________________________________________________

___

>

> Message: 2

> Date: Tue, 6 Apr 1999 22:07:13 +0100

> From: " Tigger " <oskudder@...>

> Subject: Re: Birthday List

>

> ,

>

> Sorry, but I had to unsubscribe for a while and move my subscription

from

> my work email to my personal one.

> add Damien's birthday - Oct 4th to your list and wish Josh a belated 10th

> birthday greeting from us in London, England!

>

> Best wishes to all!

>

> [ ] Birthday List

>

>

> >From: Georgina <gmckin@...>

> >

> >Hi Everyone,

> >

> >Helge had a nice idea, about the birthday list. Here are the names and

> >dates that I have received so far. If anyone else would like to be

> >included on this list, please send in the dates! Also, if you notice any

> >errors please let me know so I can correct them :-)

> >

> >Take Care,

> >Georgina

> >

> >PS....Yes, my son Josh is TEN years old, today!!!! I can't believe that

> >he's into the double digits, already! Thank you, to all of you who have

> >sent email greetings cards. And drawings and pictures! I'll make sure he

> >sees them tonight :-)

> >

> >

> >María (Diego's Mom) January 16

> >n (Holly's Mom) March 16

> >Helge ('s Dad) March 28

> > April 5, 1989

> > April 6, 1990

> > N. (Grace's Mom) April 24

> >Georgina (Josh's Mom) July 26

> >Diego August 9, 1993

> >Grace August 10, 1994

> >Alecia October 20, 1991

> > (Alecia's Mom) November 18

> >Holly December 22, 1993

> >

> >

> >

> >

> >

> >

> >

> >

> >------------------------------------------------------------------------

> >

[Guest guest]

Suzie,

Thanks for your encouragement...yes I did see the post about the website

- what a coincidence! He sets aside about an hour for each patient, and

does everything himself, as opposed to having a " subordinate " doctor do

preliminaries or exams and then present to him. We haven't been able to

see the chief of ped rheumatology where we are now, but rather an

" underling " . Not to say that she isn't a very good doctor, but I don't

think she has the experience...and, as I'm sure you'd agree, we only want

the very best for our children! My pediatrician says that the parents

just love to talk with Dr. Lehman, he's extremely understanding,

knowledgeable and supportive.>

9 days in the hospital - that must have been so hard! Was that to arrive

at the diagnosis? How old is your son?

Renay

> Date: Wed, 7 Apr 1999 02:09:47 EDT

> From: SUZIEJONES@...

>Subject: Re: Hi!

>

>Renay,

>Did you see the post about Dr. Lehman's website? We mentioned it to

>our Ped.

>Rheum. Dr. Sanborg at Stanford and she said she went school with

>him... small

>world! I think that you are fortunate to be able to see him! I have

>heard

>that Lyme Disease is often mis diagnosed as JRA. That's actually how

>it was

>discovered; by a Mom who was suspicious of the many children diagnosed

>with

>JRA in her town: Lyme, Conn. (Hope all of my facts are straight!)

>Anyway,

>she researched for about 6 years and finally proved to the Docs that

>there

>was something besides JRA causing these symptoms in the children. We

>have

>never had our son tested for Lyme's but it is a nagging question for

>us; I

>guess it's a matter of denial or hope... there are a few circumstances

>that

>even cause more of a question but we don't want to draw more blood

>than we

>have to; so we'll do a test when we do more bloodwork - that's the

>worst!

>Especially when they're so young!

>

>Well, I hope for your sake and 's that you get some answers and

>a sure

>diagnosis. That can be so frustrating! Our experience was about 1-2

>months

>w/out a diagnosis and 9 days in the hospital! It seems like forever

>ago and

>it was just Nov. '98....

>

>-Suzie

>

>

>________________________________________________________________________

_______

>________________________________________________________________________

_______

>

>

[Guest guest]

Hi ,

Have the doctors you've seen given your son a diagnosis of still's disease

(systemic jra) or one of the other sub types of juvenile arthritis? When you

mentioned that sometimes gets hives accompanying his arthritis symptoms,

I'm wondering if maybe that is the classic still's rash? If he has systemic jra

I'm wondering why he is being treated only with prednisone? What dose does he

take and how often?

There is a wide array of commonly prescribed medications used to treat and

control the symptoms of childhood arthritis, often with great success. Some of

these FDA approved medications have been proven to halt the disabling disease

process in many patients. There are medical research studies with reliable data

which backs up the claims. If I were you I'd see a more qualified team of

doctors. First, to make sure that you have the right diagnosis. Then, I'd begin

a more effective and medically approved treatment plan. Prednisone by itself is

not the answer. Either is 'taking the matter into your own hands'.

This is a long term, chronic and potentially disabling illness. It is a systemic

disease and a small percentage (I've read reliable reports of 4-6%) of children

actually die from complications of this illness. The prescription medications

and their side effects may very well scare you but the effects of the illness

itself is what is most frightening. This needs to be treated correctly. A

dietary supplement may or may not help your son but in order for him to lead a

normal life and 'feel like a regular kid' he needs proper medical attention!

Please have him seen by a knowledgable pediatric rheumatologist! And let us know

how the appointment goes, okay?

Take care,

Georgina

> From: " LVA - Schoharie County, Inc. " <lvascho@...>

>

> Is anyone using Glucosamine/Condroitin? I use it myself and am thinking it

> might work for my son, . I'm hesitant to try anything not through

> doctors orders, but quite frankly they haven't been able to help and

> sometimes we have to take matters into our own hands. I will not rest until

> feels " like a regular kid " as he says.

>

[Guest guest]

Renay,

We rec'd our diagnosis on the second stay - 3 days. The 1st 6 days were at a

different hospital and they did awful tests trying to find an " infectious

disease " That's when they sent us to Lucile Packard's at Stanford. There

they watched him 3 days and told us it was JRA. We see the Chief Ped. Rheum.

there but I don't feel we've connected like I've read and heard that others

have w/ their docs. You are very fortunate to see Dr. Lehman. And a book I

read by a Ped. Rheum. and the mom of a patient in Texas sounded like they had

a very good relationship as well. But maybe this comes from frequent visits

and so far, thank God we haven't had to make many trips to the Doctors - just

every 4-6 weeks...

TTYS,

Suzie

[Guest guest]

> Message: 2

> Date: Wed, 28 Apr 1999 22:02:58 +1000

> From: " Mortisha " <lilywhite@...>

> Subject: Re: phenergan

> > I belive Phenergan is a sinus medication that they

> pass out for nausea as

> > well. Ask your doctor first, then ask another

> doctor. Mine didn't tell me

> > about any danger to my liver.

> >

> > Gerri B.

> > Tucson,AZ

My gastro gave this med to me, and it really helped the nausea that

results from my combo therapy. When I see my new gastro, i plan to ask

him to re-prescribe it. Didn't have any problems with the phnergan!

Gerri--I'm in Glendale!

Kathi

===

Visit my webpage for parents of troubled teens at:

http://members.tripod.com/~rdhd45vlcek/index.html

and my support group for those parents at:

http://clubs./clubs/parentingtroubledteens

ICQ 22539187

_________________________________________________________

[Guest guest]

Thanks for the info. I'm more comfortable keeping it around for when I need

it now. I grew up in Los Angeles. We were almost neighbors once!!

Gerri

Tucson, AZ

Re: phenergan

> > I belive Phenergan is a sinus medication that they

> pass out for nausea as

> > well. Ask your doctor first, then ask another

> doctor. Mine didn't tell me

> > about any danger to my liver.

> >

> > Gerri B.

> > Tucson,AZ

My gastro gave this med to me, and it really helped the nausea that

results from my combo therapy. When I see my new gastro, i plan to ask

him to re-prescribe it. Didn't have any problems with the phnergan!

Gerri--I'm in Glendale!

Kathi

===

Visit my webpage for parents of troubled teens at:

http://members.tripod.com/~rdhd45vlcek/index.html

and my support group for those parents at:

http://clubs./clubs/parentingtroubledteens

ICQ 22539187

_________________________________________________________

[Guest guest]

This is for Mandy and her mom, I wish you guy's such happier year's to

come. Your daughter is so special, and so are you for standing by her

with all your support and love!! As much as we all know that's exspected

of us as parent's not everyone look's after their children as much. So

it's a special day for you as well because you had the biggest part in

bringing her in this world and raising her to the terriffic person she

is today. So i congradulate you as well as Mandy. Hope you had a great

birthday!!!! Kate.S (julia's mom)

[Guest guest]

I'm Rochelle and I'm an O+. I have been taking synthroid for years and

recently had to have the dosage increased. I think I am starting to see

differences in the way I feel. I've had more energy the past couple of days

than I have in some time. Of course I'm getting really acquainted to the

health food store. The label reading part isn't a problem. I've been reading

labels for years!

[Guest guest]

Dear :

If your provider gave you " pre-meds " you probably may feel wiped

out, but, possibly OK. If they did not, make sure you get them before

your first shot. No one can tell you exactly what you may experience,

but the usual first shot to first couple of weeks range from mild

" flu-like symptoms " , (tired, achiness, no appetite, possible low grade

temperature, possible nausea, vomiting or diarrhea, headache, etc.).

These vary from person to person.

Without the pre-meds, which I usually prescribe 2 ibuprophen pills

about 1-2 hours after getting the shot, and, possibly repeating about

4-6 hours later. Usually a suppository for nausea, benadryl for any

other reaction, and possibly a sleeping pill. Just have some gatoraid or

poweraid in the house if you need it. Not too cold because it can cause

cramps.

Some people, especially those sensitive to the meds, feel like they

were hit by a freight train, truck, and tornado, all at once. But, some

just feel mild fatigue, and some muscle aches.

Good luck, and let us know how you are doing. Marty

[Guest guest]

Sara:

LOL.....DH gets gold shots for his rheumatoid arthritis and also takes

Celebrex, and various other meds for Cholestrol, etc. My brother, who is a

doctor in Fla., asked me to ask my husband if he knew the effects the gold

shots can cause!! Also, lots of meds cause liver damage if taken over a long

period of time....really, ANY med, OTC or prescribed has side

effects.....it's just that I'm sorry I told him about the tremors with

Risperdal......even my brother's opinion that it was safer that a lot of the

drugs they used years ago, and the positive results he sees in his OWN

patients isn't enough to convince him!

And yet, the Clonidine is ok because it's ONLY a blood pressure med and one

that doesn't mess you up neurologically......I think DH has a stigma for

mental illnesses (I have OCD, clinical depression, and panic disorder) and he

doesn't understand that when you have diabetes, you take insulin...that's

ok......but a mental or neurological prob??? That's in a different

category.......

BTW, is monitored closely for his BP every checkup (done monthly) while

he is on the Clondine....believe me, his doc wouldn't have recommended it if

he thought wouldn't benefit from it! That's why I'm so frustrated with

the Risperdal.....if doc says it's ok, who are we to doubt?

[Guest guest]

Well put, Margaret......Kudos!!!

[Guest guest]

,

I'm glad did so well with his surgery and that it's over with. Give him

a hug for me!

Maureen

[Guest guest]

In a message dated 5/22/2004 2:42:48 PM Eastern Daylight Time, health writes:

Date: Fri, 21 May 2004 18:15:25 -0700 (PDT) From: Suzanne <suziesgoats@...>Subject: Grandson, hoof & mouth, coxsackievirusOk gang.... my grandson has hoof and mouth or coxsackievirus. From what I read, antibiotics do not work, so that leaves out echinacea, etc... basically clear liquids.... but the little guy has a 102 temp.... I've told her to start the garlic oil I made her on the soles of his feet... (She won't do the garlic supository) and to do fresh juices... any other ideas? He is one year oldSuzi

..

..

Essential oil to Oreganum vulgare diluted to 5% in olive oil and applies to the soles of the feet twice a day. Also virgin coconut oil and maybe off. tincture made from FRESH lemon balm.

Antibiotics only work on SOME bacteria. and nothing else.

mjhhttp://foxhillfarm.us/FireBasil/