RE: New to Group/New Xolair Patient

[Guest guest]

I am still on Advair. I take prednisone when I need to. I also use my rescue

inhaler if I need to.

Gwendolyn Rafter,MAOM,MBA/HRM

From: flash_m@... <flash_m@...>

Subject: [ ] New to Group/New Xolair Patient

Date: Monday, November 23, 2009, 10:26 AM

 

I have been hospitalized 3 times in the last year for my asthma. Also, I hav

been trying to get approved for Xolair and just received approval this past

week. I am hoping to start injections this week. I have many questions and

concerns with this med. Both my mother and brother died from anaphalatic (sp?)

reactions to asthma meds...scary. Needles to say I am worried about those first

few shots. Also, I am on so many meds right now that I feel bloated and

terrible. Can any group members give me some insight on what happens with

current meds when I start the injections. Will I stop the Advair, Singulair,

Serevent, etc? The current regiment of meds really make me feel lousy....but I

am breathing. Any insight on what to expect is very much appreciated. ..Mark

[Guest guest]

Hi Mark, I have only had 2 shots myself. I didn't notice anything different. I

was told to keep taking the same meds as I was. They told me that some people

feel different at about shot 3 or 4 and some not til 6months into the program.

It took me quite a while to get started on the med. Ins. companies, gotta love

em. Good luck. Jan

May today be twice as good as yesterday and half as good as tomorrow. Jan

From: flash_m@...

Date: Mon, 23 Nov 2009 15:26:41 +0000

Subject: [ ] New to Group/New Xolair Patient

I have been hospitalized 3 times in the last year for my asthma. Also, I hav

been trying to get approved for Xolair and just received approval this past

week. I am hoping to start injections this week. I have many questions and

concerns with this med. Both my mother and brother died from anaphalatic (sp?)

reactions to asthma meds...scary. Needles to say I am worried about those first

few shots. Also, I am on so many meds right now that I feel bloated and

terrible. Can any group members give me some insight on what happens with

current meds when I start the injections. Will I stop the Advair, Singulair,

Serevent, etc? The current regiment of meds really make me feel lousy....but I

am breathing. Any insight on what to expect is very much appreciated...Mark

[Guest guest]

As far as anaphylaxis, the Dr's office will have you sit in the waiting area to

see if you have a reaction. I never owned an epi pen until I started Xolair.

They will prescribe one for you that you need to bring with you on the day of

your shots.

A nurse calls me periodically and asks how I'm doing. She answers a lot of my

questions. She's paid by the Xolair people and it's called the Expansions

program. Not sure if everyone who gets Xolair shots gets a call or just people

who go snoop around on the Xolair website. Hope it's everyone.

Good luck- the general consensus seems to be that Xolair helps lots of us.

-----Original Message-----

From: flash_m@... <flash_m@...>

Sent: Mon, Nov 23, 2009 7:26 am

Subject: [ ] New to Group/New Xolair Patient

I have been hospitalized 3 times in the last year for my asthma. Also, I hav

been trying to get approved for Xolair and just received approval this past

week. I am hoping to start injections this week. I have many questions and

concerns with this med. Both my mother and brother died from anaphalatic (sp?)

reactions to asthma meds...scary. Needles to say I am worried about those first

few shots. Also, I am on so many meds right now that I feel bloated and

terrible. Can any group members give me some insight on what happens with

current meds when I start the injections. Will I stop the Advair, Singulair,

Serevent, etc? The current regiment of meds really make me feel lousy....but I

am breathing. Any insight on what to expect is very much appreciated...Mark

[Guest guest]

Hi Mark,

I was on a daily regimen of 9 meds year round before Xolair. Now I take sudafed

on occasion for sniffles, the rare claritin, and albuterol during colds and

ragweed season for the rare attack. Before Xolair I wasn't able to go outside

for more than about 5 minutes for 5 months of the year before my asthma would

flair up due to severe allergies (food, pollen, trees, etc.)

I started to notice improvement about 6 weeks after I began treatment. I'm on

two vials twice a month. The difference has been phenomenal. Like you, I was

also concerned about an anaphylactic reaction. I had tried allergy shots twice

and in both instances while I was in the process of working up to a maintenance

dosage I had anaphylactic reactions. My doctors office took the precaution of

prescribing two epi pens for me to bring to every appointment, and for the first

couple of shots I had to wait 30 minutes after the shots before I could leave,

but so far I haven't had any reaction other than a little dull ache at the

injection site on occasion when I get the injection. The stuff is so thick it

takes pressure to get it in there.

It's truly a life-altering medication and I hope you have the same results I've

had.

>

> I have been hospitalized 3 times in the last year for my asthma. Also, I hav

been trying to get approved for Xolair and just received approval this past

week. I am hoping to start injections this week. I have many questions and

concerns with this med. Both my mother and brother died from anaphalatic (sp?)

reactions to asthma meds...scary. Needles to say I am worried about those first

few shots. Also, I am on so many meds right now that I feel bloated and

terrible. Can any group members give me some insight on what happens with

current meds when I start the injections. Will I stop the Advair, Singulair,

Serevent, etc? The current regiment of meds really make me feel lousy....but I

am breathing. Any insight on what to expect is very much appreciated...Mark

>

[Guest guest]

I have never received a call from anyone.

________________________________

From: " pianocat88@... " <pianocat88@...>

Sent: Mon, November 23, 2009 2:06:04 PM

Subject: Re: [ ] New to Group/New Xolair Patient

 

As far as anaphylaxis, the Dr's office will have you sit in the waiting area to

see if you have a reaction. I never owned an epi pen until I started Xolair.

They will prescribe one for you that you need to bring with you on the day of

your shots.

A nurse calls me periodically and asks how I'm doing. She answers a lot of my

questions. She's paid by the Xolair people and it's called the Expansions

program. Not sure if everyone who gets Xolair shots gets a call or just people

who go snoop around on the Xolair website. Hope it's everyone.

Good luck- the general consensus seems to be that Xolair helps lots of us.

-----Original Message-----

From: flash_msbcglobal (DOT) net <flash_msbcglobal (DOT) net>

Sent: Mon, Nov 23, 2009 7:26 am

Subject: [ ] New to Group/New Xolair Patient

I have been hospitalized 3 times in the last year for my asthma. Also, I hav

been trying to get approved for Xolair and just received approval this past

week. I am hoping to start injections this week. I have many questions and

concerns with this med. Both my mother and brother died from anaphalatic (sp?)

reactions to asthma meds...scary. Needles to say I am worried about those first

few shots. Also, I am on so many meds right now that I feel bloated and

terrible. Can any group members give me some insight on what happens with

current meds when I start the injections. Will I stop the Advair, Singulair,

Serevent, etc? The current regiment of meds really make me feel lousy....but I

am breathing. Any insight on what to expect is very much appreciated. ..Mark