Re: Strokes while on Xolair

[Guest guest]

Hmmm I wonder how many of us have high blood pressure which can be a precursor

to a stroke?

Ashleigh

________________________________

From: Derybj <arbarj2@...>

Sent: Thu, November 19, 2009 11:31:46 AM

Subject: [ ] Strokes while on Xolair

Hi:

As you can see from my post in January, 2009........ I too questioned Novartis

and GenTech regarding stroke possibilities. They said they had no record.

Please contact them and let them know about your stroke. If more people are

telling them that there might be a possibility that Xolair is causing strokes,

maybe they might investigate further.

Please let me know how you make out.

I posted a group repy as well.

There is another person that posted in January 2009. Ask our group

leader Doug to find all postings on neurologic problems or stroke problems and

he will send you the postings.

Barbara Dery

This is the post from January 2009 that I did:

On Fri, Jan 30, 2009 at 4:45 PM, arbarj2 <arbarj2 (DOT) com> wrote:

On 9/17/07 I had a stroke that affected only my eyesight. I am

somewhat recovered from the stroke with some residual side effects.

I still am missing some of the vision in both eyes. I was put on

coumadin (blood thinners) after this stroke and continue the

medication still today.

During a routine eye exam with a visual field test in December, 2008,

I was informed that I had another stroke. To confirm the stoke, I

had additional visual field tests with a neuro-optomalogist.

The doctors are not sure why I had an additional stroke, but I am

starting to investigate any and all medications that I am taking for

other side effects maybe not published, but incidences are happening.

I would appreciate hearing from others regarding stroke victims who

use Xolair.

Thanks

[Guest guest]

Derby,

I have to wonder if migraine sufferers are more likely to suffer a stroke while

on Xolair, etc. as I have read that in general that migraine sufferers do have

more strokes. I am very sorry you are going through all of this. You have had

a great response to xolair--wish I could say the same.

Ashleigh

________________________________

From: Derybj <arbarj2@...>

Sent: Thu, November 19, 2009 11:14:11 AM

Subject: [ ] Strokes while on Xolair

I had a stoke on Sept. 17, 2007 while taking Xolair. The stroke affected my

eyesight. I could not read and that continued for 2-3 mos. I had an

appointment with a neuro-optomolgist and was told that it would get better, but

they had no reason as to why I had the stroke.

I have had a history of migraine headaches and I thought it was just a migraine

but when it wouldn't go away and I woke up that morning not being able to read

the paper, I called my doctor and tests were run immediately which resulted in

the diagnosis of the stroke.

No one could put their finger on the reason. I even question my allergist as

well as the Xolair team if Xolair could cause strokes. They said that they had

no report of strokes.

Then in 2008, I had another silent stroke that I did not know about because of

no symptoms.... ......it was discovered during a routine visual field test at my

optomologists office. My visual fields were impacted again and now I have a

permanent visual problem with the right side of both eyes.

I again asked the question, has any one else experienced strokes while taking

Xolair. I posted on line to this website and no one as of 2007 reported

strokes, nor as of 2008.

So I continued with the Xolair because I have never felt this good in 25 years.

I have not had an emergency room visit since starting Xolair. I have not be

hospitalized for my asthma in 5 years, nor have I had to use prednisone (which

was an ongoing medication for 15 years just to keep the asthma at bay) for the

last 5 years. Am I symptom free, NO. I have cut my medication down to one

medication 2 x day, plus the Xolair every other week.

I am 59 yrs. old......... .stroke at 57 and 58. Is it Xolair related, I don't

know........ ...no one seems to be able to answer the question.

Any one else have comments?

BJ Dery

[Guest guest]

I had a TIA in 98, but that was way before I started on xolair, so even if I had

or have another stroke, the last place I would think of as a reason would be

xolair......

Adah

On 9/17/07 I had a stroke that affected only my eyesight. I am

somewhat recovered from the stroke with some residual side effects.

I still am missing some of the vision in both eyes. I was put on

coumadin (blood thinners) after this stroke and continue the

medication still today.

During a routine eye exam with a visual field test in December, 2008,

I was informed that I had another stroke. To confirm the stoke, I

had additional visual field tests with a neuro-optomalogist.

The doctors are not sure why I had an additional stroke, but I am

starting to investigate any and all medications that I am taking for

other side effects maybe not published, but incidences are happening.

I would appreciate hearing from others regarding stroke victims who

use Xolair.

Thanks

 

[Guest guest]

I have been out of towbn and now have 113 messages to catch up on.  I saw

my pulmonologist in Anchorage today while there to get my Xolair.  He told me

these reports about stroke and heart disease may

(underline....itallics....quotes...) be over emphasized.  many of us with

asthma severe enough to warrent Xolair  may also be experiencing side effects

of the asthma....like higher blood pressure and heart disease as well as side

effects of all the steroids we've been on.  He feels that these have not been

statistically eleminated as a source of the heart attack and stroke issues.

Any one else hear anything similar?

 Mike McBride

O God do not leave me. I have done nothing good in your sight, but according to

your goodness, let me now make a beginning of good. - Abba Arsenius

________________________________

From: Leigh McCall-Alton <mccallalton@...>

Sent: Thu, November 19, 2009 8:57:55 AM

Subject: Re: [ ] Strokes while on Xolair

 

Hmmm I wonder how many of us have high blood pressure which can be a precursor

to a stroke?

Ashleigh

____________ _________ _________ __

From: Derybj <arbarj2 (DOT) com>

Sent: Thu, November 19, 2009 11:31:46 AM

Subject: [ ] Strokes while on Xolair

Hi:

As you can see from my post in January, 2009........ I too questioned Novartis

and GenTech regarding stroke possibilities. They said they had no record. Please

contact them and let them know about your stroke. If more people are telling

them that there might be a possibility that Xolair is causing strokes, maybe

they might investigate further.

Please let me know how you make out.

I posted a group repy as well.

There is another person that posted in January 2009. Ask our group

leader Doug to find all postings on neurologic problems or stroke problems and

he will send you the postings.

Barbara Dery

This is the post from January 2009 that I did:

On Fri, Jan 30, 2009 at 4:45 PM, arbarj2 <arbarj2 (DOT) com> wrote:

On 9/17/07 I had a stroke that affected only my eyesight. I am

somewhat recovered from the stroke with some residual side effects.

I still am missing some of the vision in both eyes. I was put on

coumadin (blood thinners) after this stroke and continue the

medication still today.

During a routine eye exam with a visual field test in December, 2008,

I was informed that I had another stroke. To confirm the stoke, I

had additional visual field tests with a neuro-optomalogist.

The doctors are not sure why I had an additional stroke, but I am

starting to investigate any and all medications that I am taking for

other side effects maybe not published, but incidences are happening.

I would appreciate hearing from others regarding stroke victims who

use Xolair.

Thanks