Re: Please give a your feedback on Xolair

January 19, 2009

I decided to try conventional allergy shots first. They helped me a lot

when I was a kid. I am also concerned about the xolair cancer issue and

would like to wait until there is more definitive research on this subject.

My allergist says that at least 1 major study is underway to examine this

connection and see if it is real. However, I am not as disabled by my

asthma as some others. If I were I might have chosen to start xolair shots

immediately .

On Sun, Jan 18, 2009 at 5:12 PM, joeterry48 <joeterry48@...> wrote:

> Hi did anyone use Xolair. What was your IGE level? When did you start

> your treatment? Are you still using Xolair? How many shots are you

> taking. Do you come off it when your IGE level drops normal? how long

> after using it will your IGE level come to normal again? Did you have

> any side affects? The one thing i concern is you might get cancer. My

> IGE level is 2000. I'm wondering if i should use Xolair. I never went

> to the hospital for asthma. i used to be active when i was a teenager.

> Now i'm in my early twentys. i feel tired always when i start my

> chores. when i cleaning and if there is alot of dust, i would sneeze,

> cough,my chest would tight a little. so far this only happens when

> there is dust . I have allergy to dustmits , cockroaches, pollen,

> grass,ragweed,6 kinds of tress. I'm not active no more. I lost my job

> due to allergies and i taking allergy shot now. I just wondering if

> the allergy shots are good enough , even though my IGE level is high,

> But i never went to the hospital. Do i still have to go on Xolair,wont

> the allergy shots help. Please tell me your Xolair experience. please

> share your Xolair life how it helped you or even if it didn't so that

> if someone was reading this could get their life straight.

> Thank you for all answering to this thread . I hope we all can up date

> each other on each time you get Xolair shots. Thank you

>

January 20, 2009

I'll answer as many of your questions as I can. Started Xolair in

2005 and take 2 shots every 2 weeks. The only side effects I can

attribute to Xolair alone is better breathing and less allergic

reactions (both in number and severity of reaction). I had a headache

the first two months on Xolair which may or may not have been because

of it, but it went away with time. I personally am no more concerned

about cancer with Xolair than I am with living in general. I've been

in a clinical trial for a medication before and anything someone has

during the trial is listed as a potential side effect...for example, I

had two migraines while trying the medication so headaches were listed

as a possible side effect. I, however, have migraines approximately

once a month sometimes more with or without that medication. I would

be more concerned if the trials had shown a particular type of cancer

showing up more frequently, but as I understood it, it was all types

of cancer. Who's to say that the people in the trial didn't already

have undiagnosed cancer or their genetics had them predisposed to

cancer or even that people with autoimmune disorders are more likely

to have cancer than the general population?

You don't have to go on Xolair, I chose to and I'm very glad I did. I

had only been to the hospital one time for my asthma but then again my

docs gave me all the tools they could to keep me out of the ER. Short

of someone to put me on a ventilator and epinephrine for my

nebulizer, I had everything I was given at the ER for a severe attack

and used it when needed.

Hope this helps you some, but be sure to read previous posts. These

questions are asked frequently by people considering Xolair and have

been answered multiple times over the years that I've been a member of

this group. It is a great place for information for others in a

similar situation.