Re: Give Xolair 18 months

[Guest guest]

>

> I started Xolair injections in July of 2007. I had my 18th injection

> last month. For those of you willing to do a year just to see, please

> give it at least 18 months. Prior to July of 2007 I could not get below

> 20 mgs. of prednisone (I had started taking it in 1977 and had a

> continuous 30 year habit). I looked awful, my moon face and weight

> gain was at an all time high. Friends told me I my skin looked grey. I

> felt awful, always short of breath and wheezing. I have very few

> actual allergies, my asthma is considered intrinsic - environmental

> factors you can not be desensitized against.

>

> after a year I ceased the steroids, then a personal stress situation

> put me right back on them. Stopped taking them the end of October, and

> am doing surprisingly well. I noticed an improvement at the 15 month

> point. I have lost 26 pounds and once again have cheekbones.

GREAT POST! It took me about 12 months to get relief. Prednisone?

Don't need that nasty stuff anymore. I have lost from 220 to 170

since I became pred free due to xolair

Doug

Group Founder

>

> so, if you are starting Xolair - resign yourself that you are going to

> give it at least 18 months before will have noticeable improvement. If

> I had given up at a year, I would probably be back on the evil candy

> merry go round and heading back down that slippery slope.

>

[Guest guest]

I'm in my 14th month(started in nov 07) and I'm just starting to get good

results. At times I can breath comfortable, other times not. It's still a lot

better than it was before Xolair. Having one or two dangerous attacks a week

wasn't a lot of fun.

-----Original Message-----

From: JoyCarol and <jclutterbuster@...>

Sent: Sat, 17 Jan 2009 11:43 am

Subject: [ ] Give Xolair 18 months

I started Xolair injections in July of 2007. I had my 18th injection

last month. For those of you willing to do a year just to see, please

give it at least 18 months. Prior to July of 2007 I could not get below

20 mgs. of prednisone (I had started taking it in 1977 and had a

continuous 30 year habit). I looked awful, my moon face and weight

gain was at an all time high. Friends told me I my skin looked grey. I

felt awful, always short of breath and wheezing. I have very few

actual allergies, my asthma is considered intrinsic - environmental

factors you can not be desensitized against.

after a year I ceased the steroids, then a personal stress situation

put me right back on them. Stopped taking them the end of October, and

am doing surprisingly well. I noticed an improvement at the 15 month

point. I have lost 26 pounds and once again have cheekbones.

so, if you are starting Xolair - resign yourself that you are going to

give it at least 18 months before will have noticeable improvement. If

I had given up at a year, I would probably be back on the evil candy

merry go round and heading back down that slippery slope.

[Guest guest]

people do a double take when they see my non-moon face, something I've had since

I started on evil candy since 1977. I have had gradual improvement after one

year, really started to be noticeable after 15th injection and since then I have

lost a total of 26 pounds. I get my 19th injection today. I can not say it

enough, give Xolair 18 months, giving up any sooner will be a waste of your

time, money, and quality of life.

[Guest guest]

I am so new to Xolair that my input may not be useful.  That has never stopped

me from giving some, so here goes:  My IgE was at 32, barely over the minimum. 

I started the injections (2 per month, given at the same time) on 1/5/09.  I

have noticed a decrease in coughing and an increase in my peak flows.  How much

of this is the Xolair versus the prednisone I just finished is anyone's guess. 

I am hopeful, though that i can avoid further problems.

 Mike McBride

Don't cry because it's over, laugh because it happened. Dr. Seuss