Re: thanks from Jean

[Guest guest]

Hi it is no problem. I want you to know that all of my asthma reactions

that happen have nothing to do with my xolair dosing. Overall the xolair has

made it better. I ain't cured. In fact, I had my shots this week Thursday and

then had a relatively huge asthma flare on the way home from work (maybe due to

a boring meeting, my body needed some excitement) the next day. Had to boost my

pred, take a pile of ventolin etc just to keep my sorry butt out of the ER. I'm

still not feeling amazing but this happens every May and the xolair is just a

coincidence....I bet your daughter's reaction was just a coincidence. She is

very lucky to have you too. How old is she, remind me?

C

________________________________

From: gigles_1955 <fgigles55@...>

Sent: Wednesday, May 13, 2009 9:24:18 PM

Subject: [ ] thanks from Jean

Hi .

First I am so sorry you had such a severe reaction, how scary for you.

I am thinking now that my dd's symptoms was a combination of things, and not a

reaction to the shots. She had bronchitis a month ago and seemed better but

obviously it was still in her system and there was a kid at the office that was

coughing so if her immune was already comprimised she could of picked up more

germs. And yes she has allergies, all year, indoor and out but it usually

effects her skin more than her asthma. I'm just hoping she is better before the

next shot which is next Monday.

Thank you for the kind words. It is hard to make decisions in health for

another person. Finding someone else to make these decisions for my daughter is

not an option even with her doctor. Over a year ago when I had ask about this

he said he didnt think it was for her but I have been pushing for this or

soemthing to help her and all of the sudden he thinks this is the way to go.

I'm really not sure if he change his mind because he thought about it or because

I was a pain in the butt. i think the allergist may have changed his mind

though because my daughter's derm. called him a couple of times to work on

something to help her allergic Eczema and becasue she also has allergic asthma

the derm. though xolair might help.

i just wished the dr. would be a little more involved though. I havent talked

to him since we decided on the xolair. He never did call me back(his nurse did

even though I requested he did). My dd does have an appt. coming up next month

and I will ask him questions I should have ask before we started.

Thanks again for taking the time to write to me , it really has helped me feel

better. Im still a little nervous about the next shots but not as much as

before.

I am sorry about your mother, that must be so hard on both of you. She is very

lucky to have you for a daughter. Take care. I'll post after my dd's next

appt, with good news of course :-)

> Hi Jean!

>

> Sorry it took so long for me to post a reply but I read your post with

interest. I personally think it is a bad conincidence. I have had my xolair and

then ended up in ER that NIGHT for an admission. I have been taken by my xolair

nurse from the clinic to ER with a flare. Your daughter could have been growing

a bug she wasnt telling you about if she didn't want to mess up getting her

first injection or she picked something up on site for the injection or she was

stressed about the whole thing. Its spring, does she normally flare in the

spring? The possibilities are endless. What MDs are really concerned about is

anaphylactic reactions, which is not what she had.

>

> Its really hard to be a family member and advocate for our loved ones (my mom

has cancer and I do this all the time) because if we advocate too hard for

treatment A and something bad happens we feel beyond horrible. It clouds our

judgment which is why as a nurse I am often told to be the daughter and let

others make the decisions. Hah, easier said that done. your daughter is so

lucky to have you. Do not feel that what happened was in any way your fault or

was due to the xolair. That is up to her responsible MDs to figure out.

>

>

>

> ps I dont know a single med you can't take while on xolair. I have been on

pred since 2003 and xolair since 2005 and the two go hand in hand very well. It

is such a specific molecule it is difficult for there to be an interaction.

>

>

>

> my daughter received her first shot(she gets maximum, 3 every two weeks) last

Monday. Her asthma started flaring a little that night and increasing symptoms,

but controlled with her nebulizer. Friday night her chest felt tight and Sat.

the nebi wasnt working that good. Took her to urgent care and dr. said she had

bronchitis.

>

> is this a possible reaction or just a coincendence?

> is it possible she doesnt have bronchitis but her asthma is worse because of

the xolair?

> she is really on the xolair more for skin(atopic derm) then asthma.

>

> also he put her on prednisone, tapered dose. I am guessing this is ok to be on

while on xolair because I have been on it.

>

> I will call her allergist/asthma dr. Monday but would like your opinion.

>

> I am on low dose xolair and have never had any problems.

> thanks. jean

>

>

>

> ____________ _________ _________ _________ _________ _________ _

> Looking for the perfect gift? Give the gift of Flickr!

>

> http://www.flickr. com/gift/

>

>

[Guest guest]

Hi. Sorry about the flare. I hope you are doing better. May is a tough

month for my dd as well.

My daughter turned 18 in March. I think it was a coincidence too and sure

hope so because she is going in for 2nd series of shots tomorrow. Im a bit

nervous but didnt say that to her(power of suggestion is a powerful thing).

I just hope she is over the bronchitis. Peak flows are good so I think she

is. I'll let you know how she does.

how is your mom doing? Jean

On Sun, May 17, 2009 at 9:15 PM, <carrie72583@...> wrote:

>

>

> Hi it is no problem. I want you to know that all of my asthma

> reactions that happen have nothing to do with my xolair dosing. Overall the

> xolair has made it better. I ain't cured. In fact, I had my shots this week

> Thursday and then had a relatively huge asthma flare on the way home from

> work (maybe due to a boring meeting, my body needed some excitement) the

> next day. Had to boost my pred, take a pile of ventolin etc just to keep my

> sorry butt out of the ER. I'm still not feeling amazing but this happens

> every May and the xolair is just a coincidence....I bet your daughter's

> reaction was just a coincidence. She is very lucky to have you too. How old

> is she, remind me?

>

> C

>

> ________________________________

> From: gigles_1955 <fgigles55@... <fgigles55%40gmail.com>>

> < %40>

> Sent: Wednesday, May 13, 2009 9:24:18 PM

> Subject: [ ] thanks from Jean

>

>

> Hi .

> First I am so sorry you had such a severe reaction, how scary for you.

>

> I am thinking now that my dd's symptoms was a combination of things, and

> not a reaction to the shots. She had bronchitis a month ago and seemed

> better but obviously it was still in her system and there was a kid at the

> office that was coughing so if her immune was already comprimised she could

> of picked up more germs. And yes she has allergies, all year, indoor and out

> but it usually effects her skin more than her asthma. I'm just hoping she is

> better before the next shot which is next Monday.

>

> Thank you for the kind words. It is hard to make decisions in health for

> another person. Finding someone else to make these decisions for my daughter

> is not an option even with her doctor. Over a year ago when I had ask about

> this he said he didnt think it was for her but I have been pushing for this

> or soemthing to help her and all of the sudden he thinks this is the way to

> go. I'm really not sure if he change his mind because he thought about it or

> because I was a pain in the butt. i think the allergist may have changed his

> mind though because my daughter's derm. called him a couple of times to work

> on something to help her allergic Eczema and becasue she also has allergic

> asthma the derm. though xolair might help.

> i just wished the dr. would be a little more involved though. I havent

> talked to him since we decided on the xolair. He never did call me back(his

> nurse did even though I requested he did). My dd does have an appt. coming

> up next month and I will ask him questions I should have ask before we

> started.

>

> Thanks again for taking the time to write to me , it really has helped me

> feel better. Im still a little nervous about the next shots but not as much

> as before.

>

> I am sorry about your mother, that must be so hard on both of you. She is

> very lucky to have you for a daughter. Take care. I'll post after my dd's

> next appt, with good news of course :-)

>

> > Hi Jean!

> >

> > Sorry it took so long for me to post a reply but I read your post with

> interest. I personally think it is a bad conincidence. I have had my xolair

> and then ended up in ER that NIGHT for an admission. I have been taken by my

> xolair nurse from the clinic to ER with a flare. Your daughter could have

> been growing a bug she wasnt telling you about if she didn't want to mess up

> getting her first injection or she picked something up on site for the

> injection or she was stressed about the whole thing. Its spring, does she

> normally flare in the spring? The possibilities are endless. What MDs are

> really concerned about is anaphylactic reactions, which is not what she had.

> >

> > Its really hard to be a family member and advocate for our loved ones (my

> mom has cancer and I do this all the time) because if we advocate too hard

> for treatment A and something bad happens we feel beyond horrible. It clouds

> our judgment which is why as a nurse I am often told to be the daughter and

> let others make the decisions. Hah, easier said that done. your

> daughter is so lucky to have you. Do not feel that what happened was in any

> way your fault or was due to the xolair. That is up to her responsible MDs

> to figure out.

> >

> >

> >

> > ps I dont know a single med you can't take while on xolair. I have been

> on pred since 2003 and xolair since 2005 and the two go hand in hand very

> well. It is such a specific molecule it is difficult for there to be an

> interaction.

> >

> >

> >

> > my daughter received her first shot(she gets maximum, 3 every two weeks)

> last Monday. Her asthma started flaring a little that night and increasing

> symptoms, but controlled with her nebulizer. Friday night her chest felt

> tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> dr. said she had bronchitis.

> >

> > is this a possible reaction or just a coincendence?

> > is it possible she doesnt have bronchitis but her asthma is worse because

> of the xolair?

> > she is really on the xolair more for skin(atopic derm) then asthma.

> >

> > also he put her on prednisone, tapered dose. I am guessing this is ok to

> be on while on xolair because I have been on it.

> >

> > I will call her allergist/asthma dr. Monday but would like your opinion.

> >

> > I am on low dose xolair and have never had any problems.

> > thanks. jean

> >

> >

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Looking for the perfect gift? Give the gift of Flickr!

> >

> > http://www.flickr. com/gift/

> >

> >