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Hi Jean!

 

Sorry it took so long for me to post a reply but I read your post with interest.

I personally think it is a bad conincidence. I have had my xolair and then ended

up in ER that NIGHT for an admission. I have been taken by my xolair nurse from

the clinic to ER with a flare. Your daughter could have been growing a bug she

wasnt telling you about if she didn't want to mess up getting her first

injection or she picked something up on site for the injection or she was

stressed about the whole thing. Its spring, does she normally flare in the

spring? The possibilities are endless. What MDs are really concerned about is

anaphylactic reactions, which is not what she had.

 

Its really hard to be a family member and advocate for our loved ones (my mom

has cancer and I do this all the time) because if we advocate too hard for

treatment A and something bad happens we feel beyond horrible. It clouds our

judgment which is why as a nurse I am often told to be the daughter and let

others make the decisions. Hah, easier said that done. your daughter is so

lucky to have you. Do not feel that what happened was in any way your fault or

was due to the xolair. That is up to her responsible MDs to figure out.

 

 

ps I dont know a single med you can't take while on xolair. I have been on pred

since 2003 and xolair since 2005 and the two go hand in hand very well. It is

such a specific molecule it is difficult for there to be an interaction.

 

 

 

my daughter received her first shot(she gets maximum, 3 every two weeks) last

Monday. Her asthma started flaring a little that night and increasing symptoms,

but controlled with her nebulizer. Friday night her chest felt tight and Sat.

the nebi wasnt working that good. Took her to urgent care and dr. said she had

bronchitis.

is this a possible reaction or just a coincendence?

is it possible she doesnt have bronchitis but her asthma is worse because of the

xolair?

she is really on the xolair more for skin(atopic derm) then asthma.

also he put her on prednisone, tapered dose. I am guessing this is ok to be on

while on xolair because I have been on it.

I will call her allergist/asthma dr. Monday but would like your opinion.

I am on low dose xolair and have never had any problems.

thanks. jean

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