Re: reaction ? follow up daughters shot

[Guest guest]

Hi, thank you for giving us an update.

It sounds like you've done everything you can do. I'll be interested to see if

your daughter's doctor calls back....

Addy

Group co-owner

>

> I called my daughter's dr. to let them know she has bronchitis and how her

asthma flared the day(s) following her first shot(3). Of course the dr. wasnt

there so his nurse called me back. She said the flares were prob. because the

pollen was so high. I asked her about dosing and ask her about options like was

mentioned here(lower dose, alternate high dose/low dose every two weeks instead

of max. each time, etc). The nurse said it wouldn't make a difference as far as

having a reaction and because my dd's IgE is so high and she has so many

allergies that anything lower might not help her. I ask her if she though the

shot had anything to do with my daughter getting bronchitis and she said no but

I thought that upper resp. infections was a side effect. I also ask her about

what if's..like when would they not give the shot(S)for ex. fever, sick, etc.

and she said they go by her peak flow..if it is 20% under her norm. they wont

give the shot. I also ask her to have the dr. give me a call when he is there. I

was waiting for her to ask me why but she didnt.

> I had my xolair shot today and ask the nurse the same questions about

dosage (I trust her more) and she said the same thing about a lower dose prob.

wouldnt be effective given her severe allergies so I feel a little better. So I

guess I'll keep her at the higher dose and see what happens after the next shot

in a week.

> I'll let you know how things are going. If you thiink of any questions I

should ask her dr. other than what was mention above pls. let me know. Thank

you.

>

> jean

>

[Guest guest]

You are 100 per cent correct that xolair can increase the incidence of upper

respiratory infections. I know that before I took xolair, my sinus ct scans

used to show normal results but now they do not and I seem to always be sick.

Did xolair do this? Who knows?

Have you tried the following things which might help your daughter:

Is her bedroom carpet free and is the entire room clear of dust collectors?

Do you wash her bedding frequently in hot water with a fragrance free detergent

and please tell me that you do not use dryer sheets.

Do you have a hepa filter in her bedroom?

Have you had her food allergies checked? Milk, wheat, peanuts, etc. are

biggies.

This is basic stuff but important.

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Monday, May 11, 2009 2:14:15 PM

Subject: [ ] Re: reaction ? follow up daughters shot

Hi, thank you for giving us an update.

It sounds like you've done everything you can do. I'll be interested to see if

your daughter's doctor calls back....

Addy

Group co-owner

>

> I called my daughter's dr. to let them know she has bronchitis and how her

asthma flared the day(s) following her first shot(3). Of course the dr. wasnt

there so his nurse called me back. She said the flares were prob. because the

pollen was so high. I asked her about dosing and ask her about options like was

mentioned here(lower dose, alternate high dose/low dose every two weeks instead

of max. each time, etc). The nurse said it wouldn't make a difference as far as

having a reaction and because my dd's IgE is so high and she has so many

allergies that anything lower might not help her. I ask her if she though the

shot had anything to do with my daughter getting bronchitis and she said no but

I thought that upper resp. infections was a side effect. I also ask her about

what if's..like when would they not give the shot(S)for ex. fever, sick, etc.

and she said they go by her peak flow..if it is 20% under her norm. they wont

give the shot. I also ask

her to have the dr. give me a call when he is there. I was waiting for her to

ask me why but she didnt.

> I had my xolair shot today and ask the nurse the same questions about

dosage (I trust her more) and she said the same thing about a lower dose prob.

wouldnt be effective given her severe allergies so I feel a little better. So I

guess I'll keep her at the higher dose and see what happens after the next shot

in a week.

> I'll let you know how things are going. If you thiink of any questions I

should ask her dr. other than what was mention above pls. let me know. Thank

you.

>

> jean

>

[Guest guest]

Thank you i was beginning to doubt my self.

Everything you mentioned has been done as far as environmental controls

including more.

she was tested for food as a child at 3 yrs old. She did test to peanuts(high)

and the rest low(1 or lower). She was recently tested for nuts again and is

allergic to all nuts and tree nuts. She has never eaten nuts and I ck. labels

very carefully. She is allergic to environmental(dust, mold, trees, pollen,

grasses, etc) I have requested in the past for her to be tested for food

allergies again but was told at her age she probably isnt allergic(um,

probably..so this means dont even bother) I recently took her to a naturopathic

dr. because I wanted to try supplements and wanted to make sure I was giving her

the right ones and dosage. I ask him about food allergies and He had suggested

doing a blood test(ALCAT) for food sensitivities and after great consideration I

said to go ahead. We had to postpone her appt(tomorrow) though because she is on

pred. He took her off dairy for a month suspecting a sensativity to and it

seems to help a little bit with her rash, not much but a little and she is also

a lot less bloated.

I also ask him about her vit D level because of her being on pred. so much

along with immunesuppresants drugs. He is the only one that has listen to me

and had her Vit d level tested. Good thing too, it was really low, 12.3(the

range being 32 -100) I really like this guy. He is the only one that is open

to my opinions and willing to run test based on what I think. I ask him about

xolair expecting him to say not to do it but he said he though we should go

ahead because of her severe allergies.

well I guess I am getting off the subject a little bit so I will stop. thank you

for your suggestions. I appreciate all the help this group has been. jean

>

> You are 100 per cent correct that xolair can increase the incidence of upper

respiratory infections. I know that before I took xolair, my sinus ct scans

used to show normal results but now they do not and I seem to always be sick.

Did xolair do this? Who knows?

> Have you tried the following things which might help your daughter:

> Is her bedroom carpet free and is the entire room clear of dust collectors?

> Do you wash her bedding frequently in hot water with a fragrance free

detergent and please tell me that you do not use dryer sheets.

> Do you have a hepa filter in her bedroom?

> Have you had her food allergies checked? Milk, wheat, peanuts, etc. are

biggies.

> This is basic stuff but important.

>

>

>

>

> ________________________________

> From: pyle456 <jamcculloch2@...>

>

> Sent: Monday, May 11, 2009 2:14:15 PM

> Subject: [ ] Re: reaction ? follow up daughters shot

>

>

>

>

>

> Hi, thank you for giving us an update.

>

> It sounds like you've done everything you can do. I'll be interested to see

if your daughter's doctor calls back....

>

> Addy

> Group co-owner

>

>

> >

> > I called my daughter's dr. to let them know she has bronchitis and how her

asthma flared the day(s) following her first shot(3). Of course the dr. wasnt

there so his nurse called me back. She said the flares were prob. because the

pollen was so high. I asked her about dosing and ask her about options like was

mentioned here(lower dose, alternate high dose/low dose every two weeks instead

of max. each time, etc). The nurse said it wouldn't make a difference as far as

having a reaction and because my dd's IgE is so high and she has so many

allergies that anything lower might not help her. I ask her if she though the

shot had anything to do with my daughter getting bronchitis and she said no but

I thought that upper resp. infections was a side effect. I also ask her about

what if's..like when would they not give the shot(S)for ex. fever, sick, etc.

and she said they go by her peak flow..if it is 20% under her norm. they wont

give the shot. I also ask

> her to have the dr. give me a call when he is there. I was waiting for her to

ask me why but she didnt.

> > I had my xolair shot today and ask the nurse the same questions about

dosage (I trust her more) and she said the same thing about a lower dose prob.

wouldnt be effective given her severe allergies so I feel a little better. So I

guess I'll keep her at the higher dose and see what happens after the next shot

in a week.

> > I'll let you know how things are going. If you thiink of any questions I

should ask her dr. other than what was mention above pls. let me know. Thank

you.

> >

> > jean

> >

>

>

>

>

>

>

>

>

[Guest guest]

Thanks. me too. She has an appt with him but not for a few weeks.

I'll keep you posted. Take care. jean

>

> Hi, thank you for giving us an update.

>

> It sounds like you've done everything you can do. I'll be interested to see

if your daughter's doctor calls back....

>

> Addy

> Group co-owner

>

>

> >

> > I called my daughter's dr. to let them know she has bronchitis and how her

asthma flared the day(s) following her first shot(3). Of course the dr. wasnt

there so his nurse called me back. She said the flares were prob. because the

pollen was so high. I asked her about dosing and ask her about options like was

mentioned here(lower dose, alternate high dose/low dose every two weeks instead

of max. each time, etc). The nurse said it wouldn't make a difference as far as

having a reaction and because my dd's IgE is so high and she has so many

allergies that anything lower might not help her. I ask her if she though the

shot had anything to do with my daughter getting bronchitis and she said no but

I thought that upper resp. infections was a side effect. I also ask her about

what if's..like when would they not give the shot(S)for ex. fever, sick, etc.

and she said they go by her peak flow..if it is 20% under her norm. they wont

give the shot. I also ask her to have the dr. give me a call when he is there. I

was waiting for her to ask me why but she didnt.

> > I had my xolair shot today and ask the nurse the same questions about

dosage (I trust her more) and she said the same thing about a lower dose prob.

wouldnt be effective given her severe allergies so I feel a little better. So I

guess I'll keep her at the higher dose and see what happens after the next shot

in a week.

> > I'll let you know how things are going. If you thiink of any questions I

should ask her dr. other than what was mention above pls. let me know. Thank

you.

> >

> > jean

> >

>