Re: New way to treat Sinusitis

[Guest guest]

Hi Meagain,

This sounds like my story only a different bug but my sinuses are giving off

some terrible green stuff--thick and coming out in handsful.

I had a failed PICC line attempt while in the hospital--always have a surgeon

insert yours using a flouroscope. And yes, be sure to have your kidney

functions monitored when on IV antibiotics. And like you, I am doing nasal nebs

although I use the PariSinustar system. I am looking into your inhalation

method.

Best to you,

LM

From: meagainbenny <bennetme@...>

Sent: Thursday, April 2, 2009 10:34:19 AM

Subject: [ ] New way to treat Sinusitis

Hi Everyone,

I know this isn't strictly about Xolair and I'm sorry, but many of us asthma

people also have sinus issues, so I thought this was worth sharing. Last fall I

had a sinus infection which would not go away, it turned out to be MRSA and

Pseudomonas, I ended up with a PICC line (an IV you can have at home that goes

directly to your heart) had some pretty weird and serious reactions to one of

the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of

this) recommended I see the head of ENT at Montefiore Medical Center in the

Bronx.

Well it took me a looooooong time to actually get an appointment with him, but I

had my appointment last week and he's actually got a new way to treat while

avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi

(tobramycin) , but that isn't the only drug, the doctor can choose from 12

different antibiotics, 3 anti-fungals, and 2 steroids. The website recommends it

for allergies, and all kinds of acute and chronic sinusitis. I'm on this for 3

weeks, and I hope it works, if it does it definitely beats treating a sinus

infection other ways! Just thought I'd share, hopefully treatments are getting

easier/more targeted!

Meagan

[Guest guest]

a few years ago, my dr was having me use nebbed antibiotics and nasal steroids

from a system called sinuneb. the company has apparently gone out of

business/been sold or something. its good to know of anohter company that does

it. i felt like the nebbed stuff wrked so much faster, but we'd only use it

after oral meds had failed.

thanks for sharing!

heather

>

> Hi Everyone,

>

> I know this isn't strictly about Xolair and I'm sorry, but many of us

asthma people also have sinus issues, so I thought this was worth sharing. Last

fall I had a sinus infection which would not go away, it turned out to be MRSA

and Pseudomonas, I ended up with a PICC line (an IV you can have at home that

goes directly to your heart) had some pretty weird and serious reactions to one

of the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of this) recommended I see the head of ENT at

Montefiore Medical Center in the Bronx.

>

> Well it took me a looooooong time to actually get an appointment with

him, but I had my appointment last week and he's actually got a new way to treat

while avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi (tobramycin), but that isn't the only drug,

the doctor can choose from 12 different antibiotics, 3 anti-fungals, and 2

steroids. The website recommends it for allergies, and all kinds of acute and

chronic sinusitis. I'm on this for 3 weeks, and I hope it works, if it does it

definitely beats treating a sinus infection other ways! Just thought I'd share,

hopefully treatments are getting easier/more targeted!

>

> Meagan

>

[Guest guest]

hi Meagan, thanks for sharing. I am going to ask my dd dr. about this. she

suffers from chronic rhinitis and also sinus infections. hope it works quickly

for you, jean

>

> Hi Everyone,

>

> I know this isn't strictly about Xolair and I'm sorry, but many of us

asthma people also have sinus issues, so I thought this was worth sharing. Last

fall I had a sinus infection which would not go away, it turned out to be MRSA

and Pseudomonas, I ended up with a PICC line (an IV you can have at home that

goes directly to your heart) had some pretty weird and serious reactions to one

of the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of this) recommended I see the head of ENT at

Montefiore Medical Center in the Bronx.

>

> Well it took me a looooooong time to actually get an appointment with

him, but I had my appointment last week and he's actually got a new way to treat

while avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi (tobramycin), but that isn't the only drug,

the doctor can choose from 12 different antibiotics, 3 anti-fungals, and 2

steroids. The website recommends it for allergies, and all kinds of acute and

chronic sinusitis. I'm on this for 3 weeks, and I hope it works, if it does it

definitely beats treating a sinus infection other ways! Just thought I'd share,

hopefully treatments are getting easier/more targeted!

>

> Meagan

>

[Guest guest]

I have been waiting for them to start treating sinusitis via nebulizer

forEVER!!! Because I have noticed that if I breathe in through my nose using my

nebulizer that my sinuses receiving a little benefit from whatever it is. I

don't have a mask, so obviously the delivery is not efficient, but for example,

this weekend when I was nebbing mucomyst to break up my chest congestent, I

tried breathing it in my nose as well and that started breaking up the gunk in

my sinuses.

Addy

Group co-owner

>

> Hi Meagain,

> This sounds like my story only a different bug but my sinuses are giving off

some terrible green stuff--thick and coming out in handsful.

> I had a failed PICC line attempt while in the hospital--always have a surgeon

insert yours using a flouroscope. And yes, be sure to have your kidney

functions monitored when on IV antibiotics. And like you, I am doing nasal nebs

although I use the PariSinustar system. I am looking into your inhalation

method.

> Best to you,

> LM

>

>

>

> From: meagainbenny <bennetme@...>

>

> Sent: Thursday, April 2, 2009 10:34:19 AM

> Subject: [ ] New way to treat Sinusitis

>

>

> Hi Everyone,

>

> I know this isn't strictly about Xolair and I'm sorry, but many of us asthma

people also have sinus issues, so I thought this was worth sharing. Last fall I

had a sinus infection which would not go away, it turned out to be MRSA and

Pseudomonas, I ended up with a PICC line (an IV you can have at home that goes

directly to your heart) had some pretty weird and serious reactions to one of

the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of

> this) recommended I see the head of ENT at Montefiore Medical Center in the

Bronx.

>

> Well it took me a looooooong time to actually get an appointment with him, but

I had my appointment last week and he's actually got a new way to treat while

avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi

> (tobramycin) , but that isn't the only drug, the doctor can choose from 12

different antibiotics, 3 anti-fungals, and 2 steroids. The website recommends it

for allergies, and all kinds of acute and chronic sinusitis. I'm on this for 3

weeks, and I hope it works, if it does it definitely beats treating a sinus

infection other ways! Just thought I'd share, hopefully treatments are getting

easier/more targeted!

>

> Meagan

>

>

>

>

>

>

>

>

[Guest guest]

Thank you for sharing the information.

 

I have also Sinusitis issue. My nasal polypis grows. Dr. Said not sure why its

growing, I had 3 times surgeries. when it grows i take Prednesone it melts and

back to normal.I take Steriod Dose every month bcoz Steriod works only 3 to 4

weeks. Not sure what to do.

 

Can any one helps me.

 

I have visited 3 ENT Dr.s they r saying not sure why polypis growing ,they said

temparary solution is Steriod or Surgery.

 

thx

 

From: heather <heaven1975@...>

Subject: [ ] Re: New way to treat Sinusitis

Date: Thursday, April 2, 2009, 10:21 PM

a few years ago, my dr was having me use nebbed antibiotics and nasal steroids

from a system called sinuneb. the company has apparently gone out of

business/been sold or something. its good to know of anohter company that does

it. i felt like the nebbed stuff wrked so much faster, but we'd only use it

after oral meds had failed.

thanks for sharing!

heather

>

> Hi Everyone,

>

> I know this isn't strictly about Xolair and I'm sorry, but many of us asthma

people also have sinus issues, so I thought this was worth sharing. Last fall I

had a sinus infection which would not go away, it turned out to be MRSA and

Pseudomonas, I ended up with a PICC line (an IV you can have at home that goes

directly to your heart) had some pretty weird and serious reactions to one of

the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of

this) recommended I see the head of ENT at Montefiore Medical Center in the

Bronx.

>

> Well it took me a looooooong time to actually get an appointment with him, but

I had my appointment last week and he's actually got a new way to treat while

avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi

(tobramycin) , but that isn't the only drug, the doctor can choose from 12

different antibiotics, 3 anti-fungals, and 2 steroids. The website recommends it

for allergies, and all kinds of acute and chronic sinusitis. I'm on this for 3

weeks, and I hope it works, if it does it definitely beats treating a sinus

infection other ways! Just thought I'd share, hopefully treatments are getting

easier/more targeted!

>

> Meagan

>

[Guest guest]

Pra,

Unfortunately nasal polyps will be around to stay, when allergies are bad they

will be worse however they can shrink, I have had two nasal surgeries and it is

only a temporary fix, make sure you use the steroidal nasal spray and stay away

from all of the sinus surgeries,oral steriods they only provide short and

temporary relief but carry a great risk. Consider nasal polyps a part of your

life. I have lost all smell for 12 years due to polyps, there is no cure.

Treat with nasal rinses and nasal steroid sprays.

________________________________

From: ramesh pra <p_ramesh101@...>

Sent: Friday, April 3, 2009 2:41:45 PM

Subject: Re: [ ] Re: New way to treat Sinusitis

Thank you for sharing the information.

 

I have also Sinusitis issue. My nasal polypis grows. Dr. Said not sure why its

growing, I had 3 times surgeries. when it grows i take Prednesone it melts and

back to normal.I take Steriod Dose every month bcoz Steriod works only 3 to 4

weeks. Not sure what to do.

 

Can any one helps me.

 

I have visited 3 ENT Dr.s they r saying not sure why polypis growing ,they said

temparary solution is Steriod or Surgery.

 

thx

 

From: heather <heaven1975 (DOT) com>

Subject: [ ] Re: New way to treat Sinusitis

Date: Thursday, April 2, 2009, 10:21 PM

a few years ago, my dr was having me use nebbed antibiotics and nasal steroids

from a system called sinuneb. the company has apparently gone out of

business/been sold or something. its good to know of anohter company that does

it. i felt like the nebbed stuff wrked so much faster, but we'd only use it

after oral meds had failed.

thanks for sharing!

heather

>

> Hi Everyone,

>

> I know this isn't strictly about Xolair and I'm sorry, but many of us asthma

people also have sinus issues, so I thought this was worth sharing. Last fall I

had a sinus infection which would not go away, it turned out to be MRSA and

Pseudomonas, I ended up with a PICC line (an IV you can have at home that goes

directly to your heart) had some pretty weird and serious reactions to one of

the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of

this) recommended I see the head of ENT at Montefiore Medical Center in the

Bronx.

>

> Well it took me a looooooong time to actually get an appointment with him, but

I had my appointment last week and he's actually got a new way to treat while

avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi

(tobramycin) , but that isn't the only drug, the doctor can choose from 12

different antibiotics, 3 anti-fungals, and 2 steroids. The website recommends it

for allergies, and all kinds of acute and chronic sinusitis. I'm on this for 3

weeks, and I hope it works, if it does it definitely beats treating a sinus

infection other ways! Just thought I'd share, hopefully treatments are getting

easier/more targeted!

>

> Meagan

>

[Guest guest]

Thank you very Sandy for reply. Yes Thats ture , I have lost smell past 8

years.I have Neti pot for Sinus Rinse.But I have all Nasal Sparys like

Nasonex,Fronase , nothing worked.May I know the name Steriod Nasal Spary u r

using please. I will ask my Dr. to prescribe.

 

Thank you

From: heather <heaven1975@ . com>

Subject: [ ] Re: New way to treat Sinusitis

Date: Thursday, April 2, 2009, 10:21 PM

a few years ago, my dr was having me use nebbed antibiotics and nasal steroids

from a system called sinuneb. the company has apparently gone out of

business/been sold or something. its good to know of anohter company that does

it. i felt like the nebbed stuff wrked so much faster, but we'd only use it

after oral meds had failed.

thanks for sharing!

heather

>

> Hi Everyone,

>

> I know this isn't strictly about Xolair and I'm sorry, but many of us asthma

people also have sinus issues, so I thought this was worth sharing. Last fall I

had a sinus infection which would not go away, it turned out to be MRSA and

Pseudomonas, I ended up with a PICC line (an IV you can have at home that goes

directly to your heart) had some pretty weird and serious reactions to one of

the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of

this) recommended I see the head of ENT at Montefiore Medical Center in the

Bronx.

>

> Well it took me a looooooong time to actually get an appointment with him, but

I had my appointment last week and he's actually got a new way to treat while

avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi

(tobramycin) , but that isn't the only drug, the doctor can choose from 12

different antibiotics, 3 anti-fungals, and 2 steroids. The website recommends it

for allergies, and all kinds of acute and chronic sinusitis. I'm on this for 3

weeks, and I hope it works, if it does it definitely beats treating a sinus

infection other ways! Just thought I'd share, hopefully treatments are getting

easier/more targeted!

>

> Meagan

>

[Guest guest]

I used to get sinusitis and especially laryngitis all the time before xolair. I

sing for a living and not having my voice was really tough.

Before xolair, I had my tonsils out at 42 and nasal septum straightened at 43.

Those helped a bit but when I started xolair in 2003 my sinuses stopped giving

me any problems.

I can't remember the last time I had any infcetions. My noes does stop up each

night due to a side effect from another unrelated medication, so the ENT has me

on a new drug called Patanase to keep me opened up so I can use a nasal CPAP!

Since most of you are NOT getting this kind of relief from xolair, I am assuming

that it does not work the same for everyone.

I have been on xolair for about 5.5 years now.

Hang in there,

Doug

Group founder

with the BEST

co owner and moderators

in all

[Guest guest]

Astelin and fluticasone, I think you may find these work well, but never any

complete relief, you are welcome and if I can think of anything else I will

post. Thx Sandy

________________________________

From: ramesh pra <p_ramesh101@...>

Sent: Saturday, April 4, 2009 12:19:40 AM

Subject: Re: [ ] Re: New way to treat Sinusitis

Thank you very Sandy for reply. Yes Thats ture , I have lost smell past 8

years.I have Neti pot for Sinus Rinse.But I have all Nasal Sparys like

Nasonex,Fronase , nothing worked.May I know the name Steriod Nasal Spary u r

using please. I will ask my Dr. to prescribe.

 

Thank you

From: heather <heaven1975@ . com>

Subject: [ ] Re: New way to treat Sinusitis

Date: Thursday, April 2, 2009, 10:21 PM

a few years ago, my dr was having me use nebbed antibiotics and nasal steroids

from a system called sinuneb. the company has apparently gone out of

business/been sold or something. its good to know of anohter company that does

it. i felt like the nebbed stuff wrked so much faster, but we'd only use it

after oral meds had failed.

thanks for sharing!

heather

>

> Hi Everyone,

>

> I know this isn't strictly about Xolair and I'm sorry, but many of us asthma

people also have sinus issues, so I thought this was worth sharing. Last fall I

had a sinus infection which would not go away, it turned out to be MRSA and

Pseudomonas, I ended up with a PICC line (an IV you can have at home that goes

directly to your heart) had some pretty weird and serious reactions to one of

the PICC drugs (kidney failure) and was taken off the PICC. I still had the

sinus infection, so I was put on an oral med and another PICC drug. Turns out I

happen to be in 1% of patients taking the oral med to develop pancreatitis from

it. Anyway, the infection was never completely treated but the ENT and the

Infectious Disease doctors I was seeing were both in agreement that it needed

treatment, but both were afraid (I don't really blame them) to treat me due to

my weird reactions. Finally towards the end of January, my PICC nurse (who has

now become a friend in all of

this) recommended I see the head of ENT at Montefiore Medical Center in the

Bronx.

>

> Well it took me a looooooong time to actually get an appointment with him, but

I had my appointment last week and he's actually got a new way to treat while

avoiding side-effects which is pretty cool. It's called SinusDynamics, it

involves inhaling antibiotics from a nasal nebulizer. I have done only 3

treatments so far so I'm not that fast at it yet, the instructions say a

treatment should last 3 minutes, mine are lasting about 20, but that will

hopefully change. The actual machine is really tiny, and completely silent. It

runs on a battery-pack so it's portable which is good because my primary wants

to see it so I'll bring it with me to my next Xolair. You are only supposed to

take short breaths through your nose and kind of 'snort' the medicine, it's very

strange because I'm so used to taking big breaths with my regular neb. I have to

really focus . I was prescribed the same antibiotic that my pulmo uses with

his Cystic Fibrosis patients, Tobi

(tobramycin) , but that isn't the only drug, the doctor can choose from 12

different antibiotics, 3 anti-fungals, and 2 steroids. The website recommends it

for allergies, and all kinds of acute and chronic sinusitis. I'm on this for 3

weeks, and I hope it works, if it does it definitely beats treating a sinus

infection other ways! Just thought I'd share, hopefully treatments are getting

easier/more targeted!

>

> Meagan

>

[Guest guest]

I like Doug have also been prescribed Patanase (nasal antihistamine) this past

year for my sinus problems. This winter I had sinus headaches and inflamation

but luckily no infections. I finally got out the humidifier and did sinus rinse

every day. Doc also prescibed Maxifed (decongestant) - that also had side

effects just as much as Sudafed. And used Veramist and Patanase. Things are

finally under control. I am one who is glad it's Spring!

[Guest guest]

>

>

> I like Doug have also been prescribed Patanase (nasal antihistamine) this past

year for my sinus problems. This winter I had sinus headaches and inflamation

but luckily no infections. I finally got out the humidifier and did sinus rinse

every day. Doc also prescibed Maxifed (decongestant) - that also had side

effects just as much as Sudafed. And used Veramist and Patanase. Things are

finally under control. I am one who is glad it's Spring!

>

It makes me very sleepy so I take it about 30 minutes before bed time and go

nitey nite It keeps my nose open for my nasal CPAP mask. The full size masks

are not comfortable for me.

Doug

[Guest guest]

> >

> >

> > I like Doug have also been prescribed Patanase (nasal antihistamine) this

past year for my sinus problems. This winter I had sinus headaches and

inflamation but luckily no infections. I finally got out the humidifier and did

sinus rinse every day. Doc also prescibed Maxifed (decongestant) - that also

had side effects just as much as Sudafed. And used Veramist and Patanase.

Things are finally under control. I am one who is glad it's Spring!

> >

>

>

> It makes me very sleepy so I take it about 30 minutes before bed time and go

nitey nite It keeps my nose open for my nasal CPAP mask. The full size masks

are not comfortable for me.

>

> Doug

>

[Guest guest]

Hi Doug:  I just finished 3 1/2 years on xolair and in January had the first

sinus/lung infection in three years.  I was already sick when we had to put my

Mom in the hospital.  She died two days later and I was the point person for all

of the arrangements and business that had to be taken care of.  I had help, but

the responsibility of all of it fell on me.  Needless to say I was under a lot

of stress.  I did sleep well at night without any help from drugs, but there was

no stopping during the days that began with her hospitalization and the two

weeks that followed.  By the time I finally took care of myself, the infection

was really bad.  In the middle I had used muscinex like the doctor told me, but

it really dried my mouth out so much that I carried a bottle of water with me

everywhere, so I stopped it for a few days.  About two weeks into the infection,

I finally went to the doctor, got a shot for the infection, was told to use my

nasal

sprays faithfully and stay on muscinex (and keep up my regular meds) until the

coughing stopped.  It worked--and even though I had the infection, I DID NOT

have to go on prednisone!  Praise God! 

 

I can sympathize with those on this site who have sinus problems because the

pain is so severe at times!

 

As a side issue, I have a friend who just had sinus surgery where the doctor

cleaned out all of her sinuses and put in stents for about two or three weeks to

keep the passages open until she began to heal.  I was told there were even

sinuses in the back of the head?  At any rate, after she had the first stent

removed she said she could breathe so well that she had forgotten what it was to

be able to breathe through her nose so well!  I know that some have had several

sinus surgeries and so had she, but this one was very extensive from what I

understand.  Just a comment.  The other interesting thing is she is also

asthmatic and when she mentioned xolair to her doc as a possibility, he told her

she would not be a candidate for it, even though she had been on prednisone

several times a year.

 

Have a wonderful weekend all...do what you have to to stay healthy.....

 

Adah

From: uca79iii <uca79iii@...>

Subject: [ ] Re: New way to treat Sinusitis

Date: Saturday, April 4, 2009, 8:02 AM

I used to get sinusitis and especially laryngitis all the time before xolair. I

sing for a living and not having my voice was really tough.

Before xolair, I had my tonsils out at 42 and nasal septum straightened at 43.

Those helped a bit but when I started xolair in 2003 my sinuses stopped giving

me any problems.

I can't remember the last time I had any infcetions. My noes does stop up each

night due to a side effect from another unrelated medication, so the ENT has me

on a new drug called Patanase to keep me opened up so I can use a nasal CPAP!

Since most of you are NOT getting this kind of relief from xolair, I am assuming

that it does not work the same for everyone.

I have been on xolair for about 5.5 years now.

Hang in there,

Doug

Group founder

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co owner and moderators

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[Guest guest]

As someone who has had sinus surgery and still has problems, I think the trick

is to find the right surgeon. I had my sinus surgery almost a decade ago and I

was okay until about a year and a half ago when I started to develop sinus

infection which were severe enough that they made my asthma very bad. I had to

go the emergency room once last year and only the precense of a nebulizer at my

house with both Pulmicort and Xopenex saved me from return trips. I went to a

ENT to ask about it and all he did was look at my nose with a camera and then

give me a prescription for a different antibiotic than had been prescribed by my

allergist. I went a second time and he gave me more of the same antibiotic and

said if it didn't improve he reccomended surgery.

I wasn't really happy with that explanation or beside manner so I made an

appointment with the sinus specialist who was part of the same faculty practice.

What a massive difference a doctor can make. The sinus specialist on my FIRST

visit used a camera (but a smaller one) to look into my nose. He showed me the

scar tissue in the nose and how one of my turbinates was abnormally enlarged.

Then after looking at my CT scan results he used a needle to deliver (but not

inject) both steroid and antibiotic to the infected sites. Then he instructed me

to irrigate my sinuses with the Neilmed sinus irrigator daily and add a vial of

Pulmicort to the solution for 30 days. I do one 8oz solution per nostril and

have NO symptoms since I started about two and a half weeks ago. In fact, I can

forget my Advair now and not even notice. I'm scheduled for revisionary surgery

with the sinus specialist this Friday and touch wood I'm over my recurring

sinusitis.

The line to my surgeon's CV is below so you can know what to look for (going to

MIT undergrad and then being class President at an Ivy Leageu medical school

really inspires confidence) . I would stronly advise you look for someone who's

CV looks like they specialize in sinus issues, as my experience leads me to

believe your outcome will be much better:

http://gwumc.photobooks.com/cv/cv_1763848.pdf