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Xolair thoughts

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After many noticeable abuses of my xolair at doctor's office--ie it is stored in

a mini fridge which is constantly opened, not mixed by a nurse who is trained on

xolair, not sure if the xolair is even placed immediately in the fridge when

they receive it, I took matters in my own hands this time and had xolair

delivered to me and paid a nurse to inject me at home.  Guess what?  It worked

better than ever. 

LMc

________________________________

From: Carpenter <cowtrail@...>

Sent: Friday, April 10, 2009 3:32:11 PM

Subject: Re: [ ] Re: not working

My Pulmo prescribes 1 Prevacid, 30 mg, daily as a " preventative " . It

seems to work very well for me over the last 4 years, YMMV. I also

have Reglan 5 mg if I have an " episode " of GERD which occurs maybe

once every two months, 1 Reglan and it goes away. I am aware of a FDA

black box on Reglan, but for my occasional use I am not concerned.

My GERD symptoms seemed to have diminished greatly since I started

Xolair over 3 years ago and although I still take a lot of meds, My

quality of life has improved to the point I would not want to stop the

Xolair, everything is relative.

Ron

On Apr 10, 2009, at 1:45 PM, heather wrote:

>

>

> i'm wondering if nexium/aciphex only helps asthma if you actually

> have GERD...but not as a preventitive thing. i have gerd (plus a

> " farm of ulcers " as my GI put it) confirmed by endoscopy. i know for

> a fact when my gerd acts up, i have trouble breathing, and feel like

> i'm breathing " wet " if that makes sense.

>

>

> > > >

> > > > Somehow my question got entagled with someone else's- I have

> severe allergic asthma and have not responded at all to the Xolair

> after 13 months. I am on the correct dose for my IGE and weight. Can

> anyone out there respond to me without giving details about their

> own asthma that are not relevant to my question, and that is

> actually helpful?

> > > >

> > >

> > > It took me a few days over a year and I hear that it does take

> some people longer. Sorry I wasn't much help.

> > > What does your doctor say? Mine told me to stay the course and I

> did.

> > >

> > > Doug

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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