Guest guest Posted August 28, 2009 Report Share Posted August 28, 2009 I will know more about prednisone induced Cushings as I see the PGA endocrinologist at Mayo this week. I have it full blown. Leigh From: ronaldcrpntr <cowtrail@...> Subject: [ ] CushingÕs Date: Thursday, August 27, 2009, 8:27 PM I've been reading some back posts and some of our members have been diagnosed with Prednisone induced CushingÕs. As I read the symptom's of CushingÕs I seem to have most of them. I see my Dr in a couple of months and will discuss it with him. An internet search says the treatment is stop Prednisone, OK, I can't. It also didn't have much on the affects other than pot belly, bruising, and can lead to high blood pressure and a heart attack. is anyone more informed on CushingÕs and can advise me if I should be concerned. Ron. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2009 Report Share Posted August 28, 2009 My endo told me that it is impossible to be on long-term high dose prednisone and not have cushings. I don't know a ton about it other than that it could possibly be contributing to my severe chronic idiopathic hypokalemia (severely low potassium for no reason). I like breathing though so unfortunately I'll stay the course with the pred. So far Xolair has had no efffect on my pred dose. From: ronaldcrpntr <cowtrail@...> Subject: [ ] CushingÕs Date: Thursday, August 27, 2009, 7:27 PM I've been reading some back posts and some of our members have been diagnosed with Prednisone induced CushingÕs. As I read the symptom's of CushingÕs I seem to have most of them. I see my Dr in a couple of months and will discuss it with him. An internet search says the treatment is stop Prednisone, OK, I can't. It also didn't have much on the affects other than pot belly, bruising, and can lead to high blood pressure and a heart attack. is anyone more informed on CushingÕs and can advise me if I should be concerned. Ron. Recent Activity 2 New MembersVisit Your Group Non Sibi Sed Patriae Support Navy Kids And Our Country Small Business Group Improve your business by community exchange Cat Groups on Share pictures & stories about cats. ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 I'm reminding y'all of a book previously mentioned in this group " Coping with Prednisone. " It was written by a long-term pred patient and her sister, who is a doctor. It talks alot about side effects and gives suggestions to mediate them. It's got recipes for snacks and stuff, etc. It's a great book. Addy Group co-owner > > > From: ronaldcrpntr <cowtrail@...> > Subject: [ ] CushingÕs > > Date: Thursday, August 27, 2009, 7:27 PM > > > > > > > I've been reading some back posts and some of our members have been diagnosed with Prednisone induced CushingÕs. As I read the symptom's of CushingÕs I seem to have most of them. I see my Dr in a couple of months and will discuss it with him. An internet search says the treatment is stop Prednisone, OK, I can't. It also didn't have much on the affects other than pot belly, bruising, and can lead to high blood pressure and a heart attack. > > is anyone more informed on CushingÕs and can advise me if I should be concerned. > > Ron. > > > > Recent Activity > > > 2 > New MembersVisit Your Group > > > > > Non Sibi > Sed Patriae > Support Navy Kids > And Our Country > > > Small Business Group > Improve your business > by community exchange > > Cat Groups > on > Share pictures & > stories about cats. > .. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2009 Report Share Posted August 29, 2009 Re the severely low potassium ... my husband suffered from this for years. It's very important to find out the underlying disease that causes it and in my husband's case it was Hyperaldosteronism. (Goes by other names too - different variations - think one is called " Conn's syndrome " ) I can't explain it (you can google it) but the adrenals on top of the kidneys have something to do with it. The end result is extremely low potassium despite a cartload of replacement. In his case it also included deadly high blood pressure that did not respond to regular blood pressure drugs. The treatment is a drug called Spironolactone (think that's generic). It's a rather rare disorders and most doctors wouldn't think of it or test for it or even know about it. For my hubby it included a catscan of his kidneys with iodine looking for any tumors (there were none) and a specialized blood test that involves taking a steroid pill the night before and after reclining for 30 minutes the next morning after which blood is drawn around 8:30 or 9:00 am. The blood work needs to be done by an endocrinologist - it's very specialized. It would be good to persue finding out the cause for the sake of your health. > > My endo told me that it is impossible to be on long-term high dose prednisone and not have cushings. I don't know a ton about it other than that it could possibly be contributing to my severe chronic idiopathic hypokalemia (severely low potassium for no reason). I like breathing though so unfortunately I'll stay the course with the pred. So far Xolair has had no efffect on my pred dose. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 Aldactone or spironolactone is a potassium-sparing diuretic. It blocks aldosterone. Works well for those people whose potassium is low due to too much prednisone and inhaled bronchodilators (those lower potassium too) and who may be hypertensive. My nephro put me on it immediately when I presented with both high aldo and lowish K+. I don't think its all that rare. ________________________________ From: instdesgn1 <instdesgn1@...> Sent: Saturday, August 29, 2009 3:07:24 PM Subject: [ ] Re: CushingÕs Re the severely low potassium ... my husband suffered from this for years. It's very important to find out the underlying disease that causes it and in my husband's case it was Hyperaldosteronism. (Goes by other names too - different variations - think one is called " Conn's syndrome " ) I can't explain it (you can google it) but the adrenals on top of the kidneys have something to do with it. The end result is extremely low potassium despite a cartload of replacement. In his case it also included deadly high blood pressure that did not respond to regular blood pressure drugs. The treatment is a drug called Spironolactone (think that's generic). It's a rather rare disorders and most doctors wouldn't think of it or test for it or even know about it. For my hubby it included a catscan of his kidneys with iodine looking for any tumors (there were none) and a specialized blood test that involves taking a steroid pill the night before and after reclining for 30 minutes the next morning after which blood is drawn around 8:30 or 9:00 am. The blood work needs to be done by an endocrinologist - it's very specialized. It would be good to persue finding out the cause for the sake of your health. > > My endo told me that it is impossible to be on long-term high dose prednisone and not have cushings. I don't know a ton about it other than that it could possibly be contributing to my severe chronic idiopathic hypokalemia (severely low potassium for no reason). I like breathing though so unfortunately I'll stay the course with the pred. So far Xolair has had no efffect on my pred dose. > __________________________________________________________________ Ask a question on any topic and get answers from real people. Go to Answers and share what you know at http://ca.answers. Quote Link to comment Share on other sites More sharing options...
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