Re: did anyone start on Xolair for reasons other than just asthma?

[Guest guest]

I have aspergillosis, or ABPA.? The asthma was never that horrible, but GERD

and hiatal hernia when not controlled made me cough which put me in a spiral of

coughting from acid, then wheezing from coughing.? Then, about 3 years ago, I

started coughing really hard for maybe three weeks, I'd produce a little brown

stick-like plug (icky poo) , then I'd be fine for a few weeks.? Then it would

start again.? My xrays looked to most people who read them as pneumonia.? I

finally asked to see a pulmonologist.? He sent me for several tests and came up

with ABPA.? I've been on Xolair since April.? Not as thorough as prednisone, but

I will still have my bones and liver at the end of the game.

-----Original Message-----

From: Janet Boss <janet@...>

Sent: Thu, Aug 27, 2009 10:33 am

Subject: [ ] did anyone start on Xolair for reasons other than " just "

asthma?

My allergist recommended it because my IgE level qualified but my

asthma was well managed. My hives OTOH, were not.

I had been asthmatic all of my life, but during my teens and twenties,

it was barely there. A few months shy of 30, WHAM! I have been

having increasing bouts of bronchitis and had pneumonia and my asthma

came back with a vengeance. I also got hives for the first time in my

life and they were massive, unrelenting and it took many months on

pred and a lot of other drugs to get rid of them. When I finally did,

I was still never able to stop hydroxyzine (which I've taken daily for

the last 21 years+ now), but I had recurring bouts of hives and the

episodes were getting closer together and taking longer to treat and

wean from prednisone.

I have been using Xolair (among other meds) for almost 4 years now,

and had one tiny little hive outbreak in all that time, and it didn't

require pred.

A few days without hyrdoxyzine and I'd be ripping my skin off from

itchiness (I have excema, well controlled).

Janet Boss

Best Friends Dog Obedience

Baltimore/Ellicott City/Frederick MD

Trainer/Instructor/Consultant

Member; IACP #2574

Visit our website! www.bestfriendsdogobedience.com

Contact me: janet@...

[Guest guest]

75% of the time, my asthma is triggered by what I call " severe

persistent allergic sinus disease. "

Xolair has improved my allergic sinus issues by about 85% in a dry year, and

about 65-70% in a damp year; if the molds are really high, it's just not enough

to catch all my IgE before the moldies do.

Addy

Group co-owner

PS - I had severe hives as a child. Frightful things. I'm glad you've had

improvement with X.

>

> My allergist recommended it because my IgE level qualified but my

> asthma was well managed. My hives OTOH, were not.

>

> I had been asthmatic all of my life, but during my teens and twenties,

> it was barely there. A few months shy of 30, WHAM! I have been

> having increasing bouts of bronchitis and had pneumonia and my asthma

> came back with a vengeance. I also got hives for the first time in my

> life and they were massive, unrelenting and it took many months on

> pred and a lot of other drugs to get rid of them. When I finally did,

> I was still never able to stop hydroxyzine (which I've taken daily for

> the last 21 years+ now), but I had recurring bouts of hives and the

> episodes were getting closer together and taking longer to treat and

> wean from prednisone.

>

> I have been using Xolair (among other meds) for almost 4 years now,

> and had one tiny little hive outbreak in all that time, and it didn't

> require pred.

>

> A few days without hyrdoxyzine and I'd be ripping my skin off from

> itchiness (I have excema, well controlled).

>

>

> Janet Boss

>

> Best Friends Dog Obedience

> Baltimore/Ellicott City/Frederick MD

> Trainer/Instructor/Consultant

> Member; IACP #2574

>

> Visit our website! www.bestfriendsdogobedience.com

>

> Contact me: janet@...

>

[Guest guest]

>

>

> I have aspergillosis, or ABPA.? The asthma was never that horrible, but GERD

and hiatal hernia when not controlled made me cough which put me in a spiral of

coughting from acid, then wheezing from coughing.? Then, about 3 years ago, I

started coughing really hard for maybe three weeks, I'd produce a little brown

stick-like plug (icky poo) , then I'd be fine for a few weeks.? Then it would

start again.? My xrays looked to most people who read them as pneumonia.? I

finally asked to see a pulmonologist.? He sent me for several tests and came up

with ABPA.? I've been on Xolair since April.? Not as thorough as prednisone, but

I will still have my bones and liver at the end of the game.

>

>

>

I took 40 mg a day of Pred for years. Now, thanks to Xolair, I have been

completely off for 5 years but the damage had been done.

I was up to 210 pounds, had cataracts, became type II diabetic and the disks in

my neck were herniated due to spinal bones becoming weak.

Since Xolair, I have lost down to 170 pounds, had cataract surgery, 2 neck

fusion surgeries (C-4 to 7 with metal plate) and my Diabetic A1C score went from

8.0 to 6.3.

Thankfully, my liver functions have always come back normal.

Xolair has given me a new lease on life

Doug

Group founder

[Guest guest]

Hi Janet.

Although my daughter has mild to moderate asthma she was put on xoliar for her

severe atopic dermatitis and dermagraphisim. She has been on since May

5th..dont see any change yet...hoping to see it soon. She was just put back on

pred. because her AD was so bad..the pred. is helping but she is going to the

low dose now(weaning) we are on vac. so it has helped her be comfortable.

I hope it helps you soon. jean

>

> My allergist recommended it because my IgE level qualified but my

> asthma was well managed. My hives OTOH, were not.

>

> I had been asthmatic all of my life, but during my teens and twenties,

> it was barely there. A few months shy of 30, WHAM! I have been

> having increasing bouts of bronchitis and had pneumonia and my asthma

> came back with a vengeance. I also got hives for the first time in my

> life and they were massive, unrelenting and it took many months on

> pred and a lot of other drugs to get rid of them. When I finally did,

> I was still never able to stop hydroxyzine (which I've taken daily for

> the last 21 years+ now), but I had recurring bouts of hives and the

> episodes were getting closer together and taking longer to treat and

> wean from prednisone.

>

> I have been using Xolair (among other meds) for almost 4 years now,

> and had one tiny little hive outbreak in all that time, and it didn't

> require pred.

>

> A few days without hyrdoxyzine and I'd be ripping my skin off from

> itchiness (I have excema, well controlled).

>

>

> Janet Boss

>

> Best Friends Dog Obedience

> Baltimore/Ellicott City/Frederick MD

> Trainer/Instructor/Consultant

> Member; IACP #2574

>

> Visit our website! www.bestfriendsdogobedience.com

>

> Contact me: janet@...

>