Re: Loss of Xolair benefits

[Guest guest]

After about 14 months on Xolair I noticed the benefit I had gained in terms of

controlling asthma definitely dropped. Maybe it was a temporary set back or

something else was going on. I'll never know. On the other hand, it took 8

months for Xolair to help my sinuses but when it did it was a big relief as I

too have chronic and often severe sinus headaches, pressure, infection. Xolair

was still working on the sinuses at 16 months when I quite Xolair due to the

absurd demand that I go to an infusion center. I had 1-1/2 years of happy home

injecting without a problem so it had nothing to do with Xolair - just a med

school doctor that had a too close tie with Genentech.

>

> Greetings, all. I've been on Xolair for 1 year and had very quick and

> almost miraculous results, both in terms of asthma and what had been almost

> crippling sinus problems. A year later, I continue to get great benefits

> from an asthma point of view--great peak flows, very clear lungs, no need

> for pred for 10 months --all in all an amazing result given my history.

>

> But about 4 months ago, my sinuses started getting worse (I had a sense of

> smell for almost 8 months--the first time this had happened for decades)

> and I am now back to my pre-xolair misery. Has anyone else experienced

> this split in xolair's effects between lungs and sinuses? I'm on the verge

> of needing a course of evil candy.

>

>

>

>

>

[Guest guest]

Hi there, Smillen - I'm approaching your question from a different perspective.

I had chronic sinusitus for years before I started taking Xolair for my asthma.

The Xolair has done nothing for the sinusitus - I still get infections and have

to be surgically cleaned out occasionally - but Xolair did a good job on the

asthma. As far as I'm concerned, they're not really connected.

Ohldepharte

----- Original Message -----

From: smiller@...

Sent: Monday, May 04, 2009 2:00 PM

Subject: [ ] Loss of Xolair benefits

Greetings, all. I've been on Xolair for 1 year and had very quick and

almost miraculous results, both in terms of asthma and what had been almost

crippling sinus problems. A year later, I continue to get great benefits

from an asthma point of view--great peak flows, very clear lungs, no need

for pred for 10 months --all in all an amazing result given my history.

But about 4 months ago, my sinuses started getting worse (I had a sense of

smell for almost 8 months--the first time this had happened for decades)

and I am now back to my pre-xolair misery. Has anyone else experienced

this split in xolair's effects between lungs and sinuses? I'm on the verge

of needing a course of evil candy.