Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 Hi Patti! welcome! Your description of your son's praying refers to scrupilosity. This is a form of ocd, so you can add it after BDD!!! It means a hyper sense of morality and can be seen in a variety of forms. Most common is with praying. Before I make any suggestions, is your son connected to a cognitive behavioural therapist? The therapist should be looking into how many times a day does your son pray, what triggers the need to pray, what length of time does he devote to his prayers.... I would guess that this compulsion is interfering with his ability to enjoy life.... I have a 17yo son, 14 and 11yo daughters - all with ocd/depression. among other things! Maybe you can tell us more about yourself, where you live, if your son has a therapist, etc.... most importantly, dont forget to take care of yourself!! wendy in canada wb4@... =========================================== >From: " " <ldkpac@...> >Hi. My name is Patti and my son is 17 and has OCD and BDD. He is >currently on 40mg Paxil and 5 mg. of Zyprexia. He has tried some of >the other drugs and nothing seems to work. His compulsions are >praying, he prays constantly all day. I have a hard time dealing >with him , homework, chores or just trying to organize his time. Can >anyone help me with ideas on how to handle a child with OCD >God Bless >Patti >LdkPac@... _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 HI Patti: Thanks for introducing yourself to the list and telling us about your son. IT sounds like he suffers from scrupulosity symptoms. Does he have a therapist working with him on cognitive behavior therapy? Parenting children with neurobiolgical disorders like OCD and BDD is not easy and we all learn from each other on this list. How long have you known about his disorders? Have you tried any treatments other than medication? Sometimes working with a religious counselor and a CBT therapist helps a lot with scrupulosity. Does your son suffer from any depression or is this under control with the Paxil? I read in Dr. Penzel's book that there is a center in Rhode Island that specializes in treating BDD. Are you living anywhere near there? Their website is www.butler.org/bdd.htm I have a son, Steve, now 13 who has OCD, MDD (major depressive disorder) and PTSD (Post Traumatic Stress Disorder). The best things we have found to help us raising him were proper treatment for his disorders (exposure and response prevention therapy, a form of CBT for OCD, and medication for his MDD), changing our parenting to ensure consistent limit setting, the teaching of varied coping skills to counter his chronic inflexibility, social skills deficits, and irritability. It has been very helpful to learn as much as we can about OCD, its treatment, symptoms, becoming co-therapists for our son, and the importance of keeping hopeful yet realistic in ever-changing circumstances. When Steve was very sick we had to reduce our expectations markedly, develop extreme patience and understanding, provide unconditional love and support, remove him from stressors, e.g. school, and extra-curricular activities. As he got better we learned how to reintroduce these gradually to ensure he has a stimulating yet not exhausting environment. When OCD was ruling his day, he could not do chores or organize himself, getting him better able to handle OCD himself has been the key to dealing with him. If your son is suffering from scrupulosity and involved in praying rituals all day you will want to find an experienced OCD therapist to treat him so he does not have to suffer this way. Good luck, take care, aloha, Kathy (H) kathyh@... At 03:13 AM 08/31/2000 -0000, you wrote: > >Hi. My name is Patti and my son is 17 and has OCD and BDD. He is >currently on 40mg Paxil and 5 mg. of Zyprexia. He has tried some of >the other drugs and nothing seems to work. His compulsions are >praying, he prays constantly all day. I have a hard time dealing >with him , homework, chores or just trying to organize his time. Can >anyone help me with ideas on how to handle a child with OCD > > > > >God Bless >Patti >LdkPac@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 I should also say that my children aquired the whooping cough from a 10 year old boy who had been vaccinated in the past. This is my suspiscion at least. Rgds > Hi all, > > I am new to this group and wow what a big group it is . > > I am a mother of two girls both now 9 and 6 and unvaccinated . > > I am also a naturopath and nurse here in Australia, I am a memeber of > several other lists mostly homeopahtic ones. I practise partime. > > I have joined the group to find out others experiences with non > vaccinated children . Even though my children are older the issue has > not gone away. > > I have treated my children almost exclusively with homeoapthic > remedies through there childhood. The oldest child had antibiotics > when she was two that was the first and last time. The youngest child > has never had antibiotics. > > I'm not say they never will but touch wood ! they have not needed > them yet . I have kept them in reserve and should they ever need the > use of them hopefully they will respond well. > > They both also had whooping cough, the full version, treated with > homeopathy. This was very difficult and scarey time as real whooping > cough is horrible and shocking to watch. But can be overcome. > > Rgds christine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Dear Christy, I am constantly getting rashs. Right now my face has been covered with a rash for months now. It looks much like rosachia (excuse my spelling). I am constantly itching and constantly getting rashes all over my body. I feel for you greatly. I have tried many things to help with the rash. Personally I haven't been able to find anything that has helped mine so far. I think the antibiotics is the only way I may even get rid of it. I am always breaking out with many different chemicals such as lotion, tapes, latex and so forth. I will probably see if I can get what you have for your rashes and see if it can help with mine too. Welcome to the group. Cyntha Landon Lititz, PA [ ] Hi, new to group Hello everyone nice to meet you. My name is Christy and I've dealt with Lyme disease symptoms for technically 3 years, but I believe I've had it much longer. The worst part is I'm always getting rashes and I hate it. I also get joint pain and fatigue. It all comes and goes. I have been taking Pycnogenol which is supposed to be a natural antihistamine and kill the free radicles in my cells. I've also just started taking Turmeric for my rashes which works wonderfully. I had taken antibiotics in the past. I always break out in rashes when I take them. Also, I'm allergic to prednisone so thats also out of the question. I was wondering what other people are taking and if they get rashes? I get so depressed sometimes. Its a beautiful day outside and I'm sitting in the house with a wet compress on my chin and neck with a rash. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Hi, Looks like I've come to the right place. How many years I've been getting rashes I can't count. Its been like this since I was a kid. My mother tells me to see an allergist. Maybe I'll give it a try. I think I broke out from taking too much Turmeric (for another rash). My face swelled up like crazy. So, I'm taking prednosone again which I know I'll probably get another rash from taking prednisone. Its like trading a rash on my face for a rash on my body. But, I'd rather have a rash on my body any day than on my face. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2005 Report Share Posted January 14, 2005 > Noelle has had problems since birth and as of right now we have the > following diagnoses: Failure to Thrive, Pancreatic Insufficiency due > to a Trypsin deficiency(may be resolved but still has some trouble), > severe milk protein allergy, soy allergy, sensory integration > disorder, feeding disorder(fear of solids due to constant projectile > vomiting for first 18 mos), 99% gtube fed (mic key button), other > possible food allergies(unable to get exact test results), possible > cyclic vomiting syndrome(not sure yet more testing scheduled), and > the newest one of PDD. All of these problems can indicate heavy metal toxicity. Consider having her tested for metals http://www.danasview.net/chelate.htm Enzymes can help with most of those issues. > so we stopped the Viokase, I swear she hasn't been the same since we > stopped the enzymes. I am going to ask the gi dr at the next appt if > we can restart them. I would definitely consider starting that enzyme again, maybe adding others also. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2005 Report Share Posted May 21, 2005 Welcome aboard, ! You'll find this to be a very informative place to come with your questions and concerns, and also a very supportive group when things seem not to be going well. Glad to hear you have had such success with your boy and Dr. G. Donna > I am new to this group but, not to Dr. Goldberg. My husband and I have > been driving from Arizona to California for the past 4 1/2 years for > our son to be treated by Dr. Goldberg. We are getting results that we > are happy with. Our son is 8 years old and still mostly non-verbal. > He has progressed emotionally, cognitivly and socially. We tell him > how proud we are of him everyday for working so hard to learn new > things. > > Anyway, I am looking forward to being a part of this group. > > Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 , sorry to hear you had a perforation. The surgery is probally the best option for long term management of our disease. There are some that even after surgery they still are having trouble. I had two surgeries and I am doing great after the second one. I do not have a wrap so have to take Prilosec once a day but other than that I had had little to no trouble. If you have any other questions please feel free to ask and I would also be willing to talk over the phone if you want. I hope you are helped out by this site. There are many wonderful people that are members. in Georgia <hurit_aponi@...> wrote: Hi Everyone,My name is and like most of you have had this for sometime and noone knew what it was. or thought it was something else.I now (3yrs later) have had 3 dilations, one of witch caused aperforation, and that cause the thoricatamoy, and now they want to do aheller myotomy that may or may not cause an open. can any one tell mewhat to expect?thank for any helpp.s I hope to get to know some of you better<FONT face="comic sans ms" color=#ff0000 size=5> in Georgia </FONT><IMG src=" "> 8:00? 8:25? 8:40? Find a flick in no time with the Search movie showtime shortcut. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 HI and Welcome> My son had to have the open procedure done just 2 1/2 months ago.Hes 13 and he is doing great and handle all of it fine.I will be out of town next few days for a check up on him in Ohio but I will be able to talk with you about it over the weekend if you would like . Tonia > > Hi Everyone, > > My name is and like most of you have had this for sometime and no > one knew what it was. or thought it was something else. > > I now (3yrs later) have had 3 dilations, one of witch caused a > perforation, and that cause the thoricatamoy, and now they want to do a > heller myotomy that may or may not cause an open. can any one tell me > what to expect? > > thank for any help > > > > p.s I hope to get to know some of you better > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Gosh, , I'm sorry to hear about the perforation. I hope you get some good medical help and soon. It's a shame it has to be such a hard road some of the time. All I can say about it, on the bright side, that while I have gone back, now and then, to the soft food diet, ice cream has remained a cheerful friend for me, that, and applesauce. Old movies help, too. Achalasia is depressing. At least I think so. I still get spasms and I have a lot of saliva pooling in my mouth. But the regurgitation does not happen, nor the foam at night. Things can and will get better, . I'm sorry you have had setbacks but you'll get better. wishing you all the best, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2007 Report Share Posted February 17, 2007 Hi, Sorry you've been feeling so bad... I am on tx for geno 3 and I also have cryo. It is only bothersome in my hands and feet, but my bloodwork was all out of whack and I also see a hemotologist. My doctor says that once my HCV is gone, the cryo should be taken care of, too. Apparently mine has caused nerve damage because I still have the symptoms and I've been on tx for 16 weeks and am " undetectable " . I too, felt flu-like all the time, chills, fever aches... that is why I wanted to treat. Talk to your doctor and the people in this group... I'm sure you'll find all the answers you need to make an informed decision. debileni27 <debileni27@...> wrote: hi everyone, I am a newcomer and i have learned that i am in my 111 stage of geno 1a type....anyone with any info about going on meds or not at this stage would be appreciative. I've been having extra blood work done and now my white blood cells are low.. so i'm going on my 3rd retest to see exactly what is going on cuz, I do have a rare blood disorder called cryofibrinogemia... along with the hep c... great huh? really...and AFP(TUMOR MARKER) test which is 6.4 high.... anyone got any info on all this crap that is going on in my precious life... please,please....let me know .... I'm always ,always not feeling good.. fluish type feeling. like everyday.... ridiculous......i need a desparately speedy recovery... if possible... thanks and do enjoy today... --------------------------------- It's here! Your new message! Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 my husband has had asthma/allergies since childhood. has been on methylpred and iv solumedrol off and on for over 1 year. now also diagnosed with PLS in the family of ALS, severe chronic pain, fatigue/exhaustion, atrial fibrillation. have been told that the PLS can affect his breathing, causing shortness of breath due to stiff chest muscles. that on top of the asthma/allergy symptoms has been very bad. will start xolair shots today. am praying for good results! Quote Link to comment Share on other sites More sharing options...
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