Re: I stop breathing at night even with my cpap machine

[Guest guest]

Wow!  Glad they could help you.  I can imagine you are very tired today. 

 

Have a great weekend.  We are getting much needed rain...now we'll have to deal

with the mold, but since xolair that has not been a big problem for me! :-)

From: uca79iii <uca79iii@...>

Subject: [ ] I stop breathing at night even with my cpap machine

Date: Friday, September 11, 2009, 7:22 AM

 

A month ago I had a cervical epidural steroid injection. They put me under for

about 20 minutes to have those and I stopped breathing. My pulse ox went wayyyy

down. The doc shook me several times to get me to breathe again and put me on

oxygen. My PCP recommended that I have another sleep study.

I had it last night and the cpap didn't work. They started me on a bi-pap

machine. It was very strange because it forced air INTO My lungs and then I

breathed out normally. It worked!

Hmmmm, I wonder if I could have one 24/7 lOL!

The doctor who did the sleep study is a Pulmo. I told him I had been on xolair

for 6 years and was the first one in the state to get it. He was impressed.

I get my new machine in a few days. Gotta get used to one all over again

Doug (aka sleepy)

Group foundef

[Guest guest]

Doug-

I'm so glad they're paying attention to you.? Good luck with the new machinery.

-----Original Message-----

From: uca79iii <uca79iii@...>

Sent: Fri, Sep 11, 2009 5:22 am

Subject: [ ] I stop breathing at night even with my cpap machine

A month ago I had a cervical epidural steroid injection. They put me under for

about 20 minutes to have those and I stopped breathing. My pulse ox went wayyyy

down. The doc shook me several times to get me to breathe again and put me on

oxygen. My PCP recommended that I have another sleep study.

I had it last night and the cpap didn't work. They started me on a bi-pap

machine. It was very strange because it forced air INTO My lungs and then I

breathed out normally. It worked!

Hmmmm, I wonder if I could have one 24/7 lOL!

The doctor who did the sleep study is a Pulmo. I told him I had been on xolair

for 6 years and was the first one in the state to get it. He was impressed.

I get my new machine in a few days. Gotta get used to one all over again

Doug (aka sleepy)

Group foundef

[Guest guest]

>

>

> Doug-

>

> I'm so glad they're paying attention to you.? Good luck with the new

machinery.

>

>

>

>

>

>

>

>

Thanks

Doug

[Guest guest]

Good luck, Doug. I had a bipap set up for me about three or four years ago.

Didn't help a bit. In fact, it was a royal pain because I had to keep taking it

off and putting it back on when I had to cough up a hunk of my inexhaustible

supply of mucus. My problem is holding my breath - probably because of

childhood asthma back when there was no treatment for it, and I had to struggle

for each breath. I'd hold the precious breath as long as I could to put off

having to struggle mightily to inhale the next breath. By the way, back then

the doc came to our house to treat me, rather than my going to the hospital

where there was no one who had the foggiest knowledge of asthma. Y'all don't

realize how lucky you have it now with all the drugs and treatments for asthma.

Ohldepharte

----- Original Message -----

From: uca79iii

Sent: Friday, September 11, 2009 8:22 AM

Subject: [ ] I stop breathing at night even with my cpap machine

A month ago I had a cervical epidural steroid injection. They put me under

for about 20 minutes to have those and I stopped breathing. My pulse ox went

wayyyy down. The doc shook me several times to get me to breathe again and put

me on oxygen. My PCP recommended that I have another sleep study.

I had it last night and the cpap didn't work. They started me on a bi-pap

machine. It was very strange because it forced air INTO My lungs and then I

breathed out normally. It worked!

Hmmmm, I wonder if I could have one 24/7 lOL!

The doctor who did the sleep study is a Pulmo. I told him I had been on xolair

for 6 years and was the first one in the state to get it. He was impressed.

I get my new machine in a few days. Gotta get used to one all over again

Doug (aka sleepy)

Group foundef

[Guest guest]

I remember the doctor coming to our house to treat my sister who had asthma from

the time she was two months old.  And the puzzling thing to me is why my parents

never took my sister to the hospital.  I think the doctor thoought mother could

treat her just as well!  My sister would have been a great candidate for xolair,

but she died about 25 years too soon!  And I never asked my mother why they

never took my sister to the hospital.  My guess is that they didn't have

insurance and would have had to pay the cost for it out of my dad's salary. 

From: Terry <onabeach@...>

Subject: Re: [ ] I stop breathing at night even with my cpap machine

Date: Friday, September 11, 2009, 6:19 PM

 

Good luck, Doug. I had a bipap set up for me about three or four years ago.

Didn't help a bit. In fact, it was a royal pain because I had to keep taking it

off and putting it back on when I had to cough up a hunk of my inexhaustible

supply of mucus. My problem is holding my breath - probably because of childhood

asthma back when there was no treatment for it, and I had to struggle for each

breath. I'd hold the precious breath as long as I could to put off having to

struggle mightily to inhale the next breath. By the way, back then the doc came

to our house to treat me, rather than my going to the hospital where there was

no one who had the foggiest knowledge of asthma. Y'all don't realize how lucky

you have it now with all the drugs and treatments for asthma.

Ohldepharte

----- Original Message -----

From: uca79iii

Sent: Friday, September 11, 2009 8:22 AM

Subject: [ ] I stop breathing at night even with my cpap machine

A month ago I had a cervical epidural steroid injection. They put me under for

about 20 minutes to have those and I stopped breathing. My pulse ox went wayyyy

down. The doc shook me several times to get me to breathe again and put me on

oxygen. My PCP recommended that I have another sleep study.

I had it last night and the cpap didn't work. They started me on a bi-pap

machine. It was very strange because it forced air INTO My lungs and then I

breathed out normally. It worked!

Hmmmm, I wonder if I could have one 24/7 lOL!

The doctor who did the sleep study is a Pulmo. I told him I had been on xolair

for 6 years and was the first one in the state to get it. He was impressed.

I get my new machine in a few days. Gotta get used to one all over again

Doug (aka sleepy)

Group foundef

[Guest guest]

Oh my goodness Doug, how terrifying is that. Glad things worked out for you.

Hope the new machine works well for you. Let us know.

As for me well this computer had something wrong with it for 2 days and would

not let me connect to Internet Exp. well I finally saw an icon and clicked on it

and disabled add-ons (whatever they are) and it worked!!!!!! Yipee.

I still have not heard from my resp doc as to the xolair yet. I need to schedule

the shots around me trip down to Savannah next month.

I am kinda anxious to get started since you all are doing so well with it and I

want to feel good again. I went to a place today that had dogs in it, but they

weren't there, and after a while the allergies kicked in good. I came home to my

two dogs and was find.........go figure! Guess I built up a tolerance to them,

they are bichons and have hair, not fur so maybe that makes a difference. Oh who

knows.

Hope all of you have a nice Sunday. Jan

From: uca79iii@...

Date: Fri, 11 Sep 2009 12:22:08 +0000

Subject: [ ] I stop breathing at night even with my cpap machine

A month ago I had a cervical epidural steroid injection. They put me under for

about 20 minutes to have those and I stopped breathing. My pulse ox went wayyyy

down. The doc shook me several times to get me to breathe again and put me on

oxygen. My PCP recommended that I have another sleep study.

I had it last night and the cpap didn't work. They started me on a bi-pap

machine. It was very strange because it forced air INTO My lungs and then I

breathed out normally. It worked!

Hmmmm, I wonder if I could have one 24/7 lOL!

The doctor who did the sleep study is a Pulmo. I told him I had been on xolair

for 6 years and was the first one in the state to get it. He was impressed.

I get my new machine in a few days. Gotta get used to one all over again

Doug (aka sleepy)

Group foundef

[Guest guest]

Adah - being an oldfart, my asthma history goes way back to well before

insurance existed - like the early forties. I was in a small town - about

15,000 - and going to the hospital would have served no purpose because the doc

who came to the house was the only one in town who knew anything much about

allergies and asthma. This was the dark ages of treatment for those things.

The doc eventually got me on desensitivation shots which helped a lot, but at

the outset, it was a rough go. Besides, there was this pesky inconvenience

going on - World War II - that screwed up a lot of medical care and advancement.

Of course, if I knew then what I know now - that panic is a big part of an

asthma attack - I probably could have handled the attacks a lot better -

probably even gotten by without the doctor, but who knew? Younger people have

no idea what it was like to have asthma before there was anything to treat it.

Ohldepharte

----- Original Message -----

From: Adah Voigt

Sent: Friday, September 11, 2009 10:31 PM

Subject: Re: [ ] I stop breathing at night even with my cpap

machine

I remember the doctor coming to our house to treat my sister who had asthma

from the time she was two months old. And the puzzling thing to me is why my

parents never took my sister to the hospital. I think the doctor thoought

mother could treat her just as well! My sister would have been a great

candidate for xolair, but she died about 25 years too soon! And I never asked

my mother why they never took my sister to the hospital. My guess is that they

didn't have insurance and would have had to pay the cost for it out of my dad's

salary.

From: Terry <onabeach@...>

Subject: Re: [ ] I stop breathing at night even with my cpap

machine

Date: Friday, September 11, 2009, 6:19 PM

Good luck, Doug. I had a bipap set up for me about three or four years ago.

Didn't help a bit. In fact, it was a royal pain because I had to keep taking

it off and putting it back on when I had to cough up a hunk of my inexhaustible

supply of mucus. My problem is holding my breath - probably because of childhood

asthma back when there was no treatment for it, and I had to struggle for each

breath. I'd hold the precious breath as long as I could to put off having to

struggle mightily to inhale the next breath. By the way, back then the doc came

to our house to treat me, rather than my going to the hospital where there was

no one who had the foggiest knowledge of asthma. Y'all don't realize how lucky

you have it now with all the drugs and treatments for asthma.

Ohldepharte

----- Original Message -----

From: uca79iii

Sent: Friday, September 11, 2009 8:22 AM

Subject: [ ] I stop breathing at night even with my cpap machine

A month ago I had a cervical epidural steroid injection. They put me under for

about 20 minutes to have those and I stopped breathing. My pulse ox went wayyyy

down. The doc shook me several times to get me to breathe again and put me on

oxygen. My PCP recommended that I have another sleep study.

I had it last night and the cpap didn't work. They started me on a bi-pap

machine. It was very strange because it forced air INTO My lungs and then I

breathed out normally. It worked!

Hmmmm, I wonder if I could have one 24/7 lOL!

The doctor who did the sleep study is a Pulmo. I told him I had been on xolair

for 6 years and was the first one in the state to get it. He was impressed.

I get my new machine in a few days. Gotta get used to one all over again

Doug (aka sleepy)

Group foundef

[Guest guest]

>

> Adah - being an oldfart, my asthma history goes way back to well before

insurance existed - like the early forties. I was in a small town - about

15,000 - and going to the hospital would have served no purpose because the doc

who came to the house was the only one in town who knew anything much about

allergies and asthma. This was the dark ages of treatment for those things.

The doc eventually got me on desensitivation shots which helped a lot, but at

the outset, it was a rough go. Besides, there was this pesky inconvenience

going on - World War II - that screwed up a lot of medical care and advancement.

Of course, if I knew then what I know now - that panic is a big part of an

asthma attack - I probably could have handled the attacks a lot better -

probably even gotten by without the doctor, but who knew? Younger people have

no idea what it was like to have asthma before there was anything to treat it.

>

> Ohldepharte

>

Terry,

My dad was was born in 1917. Back in those days they had an asthma " powder " in a

can that you lit a and breathed in the smoke. Also, people smoked the mullen

plant.

I am glad I am living in this day and age

Doug

[Guest guest]

No, they don't.  My sister was born in 1940 was two years younger than I, so it

wasn't until I was about 6 or 7 that I began to understand how really sick my

sister was.  We had a good family doctor who was very interested in trying to

help my sister and did his own research on asthma.  He did discover she was

allergic to her own sputum and developed shots to give her to try to

" desensitize " her and they helped some until she would get a cold.  He did give

her the latest meds that were on the market at that time.  By the time our

family doctor retired, specialty doctors had become the " in " thing and she began

going to an allergist, but even then he could do just so much for her.  by that

time, too, prednisone began to be the " answer " to serious attacks.  But my

sister hated to take it!  She died in 1985 and apart from xolair, treatment

hasn't come too far since then.  My asthma hit with a vengeance in January 1986

when we had very cold damp

weather and extremely high mountain cedar counts (set some records if I

remember right).   I am sure there is research going on all the time on asthma,

I am just not in a position to hear about it, and haven't researched it on

Internet. 

 

You are right. Many of the young people who have asthma don't realize what the

treatment was like back then...usually, one suffered!   I am grateful for

xolair.  It has definitely helped my asthma!

 

Have a great day, Terry.

Adah

From: Terry <onabeachcharter (DOT) net>

Subject: Re: [ ] I stop breathing at night even with my cpap machine

Date: Friday, September 11, 2009, 6:19 PM

Good luck, Doug. I had a bipap set up for me about three or four years ago.

Didn't help a bit. In fact, it was a royal pain because I had to keep taking it

off and putting it back on when I had to cough up a hunk of my inexhaustible

supply of mucus. My problem is holding my breath - probably because of childhood

asthma back when there was no treatment for it, and I had to struggle for each

breath. I'd hold the precious breath as long as I could to put off having to

struggle mightily to inhale the next breath. By the way, back then the doc came

to our house to treat me, rather than my going to the hospital where there was

no one who had the foggiest knowledge of asthma. Y'all don't realize how lucky

you have it now with all the drugs and treatments for asthma.

Ohldepharte

----- Original Message -----

From: uca79iii

Sent: Friday, September 11, 2009 8:22 AM

Subject: [ ] I stop breathing at night even with my cpap machine

A month ago I had a cervical epidural steroid injection. They put me under for

about 20 minutes to have those and I stopped breathing. My pulse ox went wayyyy

down. The doc shook me several times to get me to breathe again and put me on

oxygen. My PCP recommended that I have another sleep study.

I had it last night and the cpap didn't work. They started me on a bi-pap

machine. It was very strange because it forced air INTO My lungs and then I

breathed out normally. It worked!

Hmmmm, I wonder if I could have one 24/7 lOL!

The doctor who did the sleep study is a Pulmo. I told him I had been on xolair

for 6 years and was the first one in the state to get it. He was impressed.

I get my new machine in a few days. Gotta get used to one all over again

Doug (aka sleepy)

Group foundef

[Guest guest]

I remember one of the " inhalers " my sister had was a pill that a little metal

ball crushed when you inhaled, thus allowing you to inhale the " powder. "   Don't

remember what it was.  The one that she used for years was asthmanefrin, a

liquid that became a " spray " in a " bulb " pumped, hand held nebulizer. 

Everything the medicine touched turned an ugly brown and even bleach or the sun

could not get it out!

 

I'm glad I live now!

 

Adah

From: uca79iii <uca79iii@...>

Subject: [ ] Re: I stop breathing at night even with my cpap machine

Date: Tuesday, September 15, 2009, 7:21 AM

 

>

> Adah - being an oldfart, my asthma history goes way back to well before

insurance existed - like the early forties. I was in a small town - about 15,000

- and going to the hospital would have served no purpose because the doc who

came to the house was the only one in town who knew anything much about

allergies and asthma. This was the dark ages of treatment for those things. The

doc eventually got me on desensitivation shots which helped a lot, but at the

outset, it was a rough go. Besides, there was this pesky inconvenience going on

- World War II - that screwed up a lot of medical care and advancement. Of

course, if I knew then what I know now - that panic is a big part of an asthma

attack - I probably could have handled the attacks a lot better - probably even

gotten by without the doctor, but who knew? Younger people have no idea what it

was like to have asthma before there was anything to treat it.

>

> Ohldepharte

>

Terry,

My dad was was born in 1917. Back in those days they had an asthma " powder " in a

can that you lit a and breathed in the smoke. Also, people smoked the mullen

plant.

I am glad I am living in this day and age

Doug

[Guest guest]

Terry, how frightening that is. I am glad they have changed the meds. I use to

have to take theophillin and it did not agree with me.

I only hope that taking the xolair will help me to feel better and less

symptomatic. Jan

From: uca79iii@...

Date: Tue, 15 Sep 2009 12:21:47 +0000

Subject: [ ] Re: I stop breathing at night even with my cpap machine

>

> Adah - being an oldfart, my asthma history goes way back to well before

insurance existed - like the early forties. I was in a small town - about 15,000

- and going to the hospital would have served no purpose because the doc who

came to the house was the only one in town who knew anything much about

allergies and asthma. This was the dark ages of treatment for those things. The

doc eventually got me on desensitivation shots which helped a lot, but at the

outset, it was a rough go. Besides, there was this pesky inconvenience going on

- World War II - that screwed up a lot of medical care and advancement. Of

course, if I knew then what I know now - that panic is a big part of an asthma

attack - I probably could have handled the attacks a lot better - probably even

gotten by without the doctor, but who knew? Younger people have no idea what it

was like to have asthma before there was anything to treat it.

>

> Ohldepharte

>

Terry,

My dad was was born in 1917. Back in those days they had an asthma " powder " in a

can that you lit a and breathed in the smoke. Also, people smoked the mullen

plant.

I am glad I am living in this day and age

Doug

[Guest guest]

>

> I remember one of the " inhalers " my sister had was a pill that a little metal

ball crushed when you inhaled, thus allowing you to inhale the " powder. "   Don't

remember what it was.  The one that she used for years was asthmanefrin, a

liquid that became a " spray " in a " bulb " pumped, hand held nebulizer. 

Everything the medicine touched turned an ugly brown and even bleach or the sun

could not get it out!

>  

> I'm glad I live now!

>  

> Adah

>

My dad had one of those Asthma Nefrin with the glass and sueeze bulb.

It was the forerunner of Primatine mist.

My doctor would not let me use it because I was under 12 but my parents let me

anyway. I had to breathe and nothing else worked.

I remember an " Isuprel " inhaler that was light green and you had to put it

together. Also meds like Tedral, Quadrinal and of course our favorites (yea

right) steroids.

Ahhh the covered wagon days of treatment.

Doug