Guest guest Posted August 28, 2009 Report Share Posted August 28, 2009 It seems I have most of the symptoms you delineated which will be a major topic with my Dr. at my next visit. Xolair has helped but I cannot get below 20 mg a day of Prednisone. Even 15 mg and I have difficulty breathing and end up taking Prednisone packs to get back to 20 mg. If it wasn't for Xolair my dose would be much higher. I'm on about 16 different Meds. > " Pred is eating you from the inside and taking years off your life " . > Its unfortunate but I've come to terms with this and realize it is a reality, but I will still do what is necessary to slow the process. Thank you Ron On Aug 28, 2009, at 3:28 PM, wrote: > Ron et al., it is called iatrogenic or secondary Cushings. Primary > cushings is > when your body produces too much cortisol via the adrenals. We take > extra cortisol in the form of pred (aka evil candy) and hence develop > secondary or treatment-induced cushings. > > Cushings is bad. > Hypertension, osteoporosis, skin breakdown, muscle wasting, various > immune deficiencies, diabetes, glaucoma, cataracts, central obesity > leading to cardiac disease, depression, memory loss d/t hippocampal > cell death to name a few are the effects of Cushings on the body. > Should you be concerned? Absolutely. Your physician and you need to > work to find the lowest possible dose of pred for you to function on. > As my MD said, " Pred is eating you from the inside and taking years > off > your life " . MDs can spot us a mile away from the unique form the body > takes on (big belly, skinny arms and legs and horrific stretch marks > EVERYWHERE). > > It > requires you to have special monitoring (bone density tests for > osteoporosis even if you are male and have no risk factors) and you > need to take a calcium and vit D supplement every day etc.....your > eyes > absolutely need to be checked annually and your bloods for elevated > lipids, liver function, glucose etc....done regularly. > > But, can you function without pred? Maybe, maybe not. But it does > have a huge cost. > > > still fighting to get off (6 years and counting....) > > __________________________________________________________ > Be smarter than spam. See how smart SpamGuard is at giving junk > email the boot with the All-new . Click on Options in > Mail and switch to New Mail today or register for free at http://mail..ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2009 Report Share Posted August 28, 2009 Dear Ron, I have the very same issues with Prednisone and was just told today to try to get off of it. I have full blown cushings, etc. I am to come off of it very slowly... Leigh > Ron et al., it is called iatrogenic or secondary Cushings. Primary > cushings is > when your body produces too much cortisol via the adrenals. We take > extra cortisol in the form of pred (aka evil candy) and hence develop > secondary or treatment-induced cushings. > > Cushings is bad. > Hypertension, osteoporosis, skin breakdown, muscle wasting, various > immune deficiencies, diabetes, glaucoma, cataracts, central obesity > leading to cardiac disease, depression, memory loss d/t hippocampal > cell death to name a few are the effects of Cushings on the body. > Should you be concerned? Absolutely. Your physician and you need to > work to find the lowest possible dose of pred for you to function on. > As my MD said, " Pred is eating you from the inside and taking years > off > your life " . MDs can spot us a mile away from the unique form the body > takes on (big belly, skinny arms and legs and horrific stretch marks > EVERYWHERE). > > It > requires you to have special monitoring (bone density tests for > osteoporosis even if you are male and have no risk factors) and you > need to take a calcium and vit D supplement every day etc.....your > eyes > absolutely need to be checked annually and your bloods for elevated > lipids, liver function, glucose etc....done regularly. > > But, can you function without pred? Maybe, maybe not. But it does > have a huge cost. > > > still fighting to get off (6 years and counting.... ) > > ____________ _________ _________ _________ _________ _________ _ > Be smarter than spam. See how smart SpamGuard is at giving junk > email the boot with the All-new . Click on Options in > Mail and switch to New Mail today or register for free at http://mail. .ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Hi , This probably isn't the cause if you've had so many professionals working on your case but, when I was on a PICC for the sinus infection from HE** this past Fall, my Potassium went way low and it was eventually determined that the Normal Saline or whatever the antibiotics I was on were diluted in, was causing my Potassium to fall. I needed Potassium supplementation IV while I was on the antibiotics but once the antibiotics were done, I didn't need the K anymore. I just thought I'd throw that out there, again it's probably not the case with you but, it's an idea. Meagan > > > > > > > > Re the severely low potassium ... my husband suffered from this for years. It's very important to find out the underlying disease that causes it and in my husband's case it was Hyperaldosteronism. > > > > Recent Activity > > > 2 > New MembersVisit Your Group > > > > Give Back > for Good > Get inspired > by a good cause. > > Y! Toolbar > Get it Free! > easy 1-click access > to your groups. > > > Start a group > in 3 easy steps. > Connect with others. > .. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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