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FYI...excess cortisol causes the retention of sodium, potassium loss and is

associated with deficits in learning, speech and attention in children of

offspring who are taking it during pregnancy.

C

________________________________

From: <carrie72583@...>

Sent: Friday, August 28, 2009 4:28:53 PM

Subject: Re: [ ] curshings

Lol. I mean Cushings!

____________ _________ _________ __

From: <carrie72583@ .ca>

Xolair < >

Sent: Friday, August 28, 2009 4:28:02 PM

Subject: [ ] curshings

Ron et al., it is called iatrogenic or secondary Cushings. Primary cushings is

when your body produces too much cortisol via the adrenals. We take

extra cortisol in the form of pred (aka evil candy) and hence develop

secondary or treatment-induced cushings.

Cushings is bad.

Hypertension, osteoporosis, skin breakdown, muscle wasting, various

immune deficiencies, diabetes, glaucoma, cataracts, central obesity

leading to cardiac disease, depression, memory loss d/t hippocampal

cell death to name a few are the effects of Cushings on the body.

Should you be concerned? Absolutely. Your physician and you need to

work to find the lowest possible dose of pred for you to function on.

As my MD said, " Pred is eating you from the inside and taking years off

your life " . MDs can spot us a mile away from the unique form the body

takes on (big belly, skinny arms and legs and horrific stretch marks

EVERYWHERE).

It

requires you to have special monitoring (bone density tests for

osteoporosis even if you are male and have no risk factors) and you

need to take a calcium and vit D supplement every day etc.....your eyes

absolutely need to be checked annually and your bloods for elevated

lipids, liver function, glucose etc....done regularly.

But, can you function without pred? Maybe, maybe not. But it does have a huge

cost.

still fighting to get off (6 years and counting.... )

____________ _________ _________ _________ _________ _________ _

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Wow!  No wonder my allergist was so concerned during the years i was on

prednisone. 

 

After being on and off and on and off of pred for five years, the doctor finally

took me completely off when he gave me a steroid inhaler.  Since that time I

took prednisone about three or four times a year until I started xolair.  I have

not had prednisone for three and a half years! 

 

My heart goes out to those of you who still have to take prednisone.

 

Adah

 

 

From: <carrie72583@...>

Subject: [ ] Furthermore,

Date: Friday, August 28, 2009, 3:31 PM

 

FYI...excess cortisol causes the retention of sodium, potassium loss and is

associated with deficits in learning, speech and attention in children of

offspring who are taking it during pregnancy.

C

____________ _________ _________ __

From: <carrie72583@ .ca>

Sent: Friday, August 28, 2009 4:28:53 PM

Subject: Re: [ ] curshings

Lol. I mean Cushings!

____________ _________ _________ __

From: <carrie72583@ .ca>

Xolair < >

Sent: Friday, August 28, 2009 4:28:02 PM

Subject: [ ] curshings

Ron et al., it is called iatrogenic or secondary Cushings. Primary cushings is

when your body produces too much cortisol via the adrenals. We take

extra cortisol in the form of pred (aka evil candy) and hence develop

secondary or treatment-induced cushings.

Cushings is bad.

Hypertension, osteoporosis, skin breakdown, muscle wasting, various

immune deficiencies, diabetes, glaucoma, cataracts, central obesity

leading to cardiac disease, depression, memory loss d/t hippocampal

cell death to name a few are the effects of Cushings on the body.

Should you be concerned? Absolutely. Your physician and you need to

work to find the lowest possible dose of pred for you to function on.

As my MD said, " Pred is eating you from the inside and taking years off

your life " . MDs can spot us a mile away from the unique form the body

takes on (big belly, skinny arms and legs and horrific stretch marks

EVERYWHERE).

It

requires you to have special monitoring (bone density tests for

osteoporosis even if you are male and have no risk factors) and you

need to take a calcium and vit D supplement every day etc.....your eyes

absolutely need to be checked annually and your bloods for elevated

lipids, liver function, glucose etc....done regularly.

But, can you function without pred? Maybe, maybe not. But it does have a huge

cost.

still fighting to get off (6 years and counting.... )

____________ _________ _________ _________ _________ _________ _

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new . Click on Options in Mail and switch to New Mail

today or register for free at http://mail. .ca

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Share on other sites

Isn't the problem with prednisone, that it's a steroid? Is it worse than the

others, a matter of dosage, or what? Don't all the steroids cause the same

problems eventually? Sorry if I'm just being dumb.

>

> Wow!  No wonder my allergist was so concerned during the years i was on

prednisone. 

>  

> After being on and off and on and off of pred for five years, the doctor

finally took me completely off when he gave me a steroid inhaler.  Since that

time I took prednisone about three or four times a year until I started xolair. 

I have not had prednisone for three and a half years! 

>  

> My heart goes out to those of you who still have to take prednisone.

>  

> Adah

>  

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It was my understanding at the time that a steroid inhaler was not quite as bad

as oral steroids because the steroid went right to the lungs instead of in the

blood stream, although I also understand that some of the inhaled can also get

into the bloodstream....Not exactly sure about how all of that works.  But I

have not had the same side effects with the inhaled as I did with the oral, like

the puffy face, huge appetite, water gain, etc.  I am sure others in the group

can speak to this more intelligently than I.

From: cleptisvirgo <cleptisvirgo@...>

Subject: [ ] Re: Furthermore,

Date: Thursday, September 3, 2009, 1:13 PM

 

Isn't the problem with prednisone, that it's a steroid? Is it worse than the

others, a matter of dosage, or what? Don't all the steroids cause the same

problems eventually? Sorry if I'm just being dumb.

>

> Wow!  No wonder my allergist was so concerned during the years i was on

prednisone. 

>  

> After being on and off and on and off of pred for five years, the doctor

finally took me completely off when he gave me a steroid inhaler.  Since that

time I took prednisone about three or four times a year until I started xolair. 

I have not had prednisone for three and a half years! 

>  

> My heart goes out to those of you who still have to take prednisone.

>  

> Adah

>  

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A good analogy for inhaled vs. oral steroids is this: it's like the difference

between topical neosporin and a low dose oral antibiotic.

There are a few folks who are VERY sensitive to steroids and have significant

response to inhaled steroids but for most people they are much safer and much

more well tolerated than oral steroids.

Addy

Group co-owner

> >

> > Wow!  No wonder my allergist was so concerned during the years i was on

prednisone. 

> >  

> > After being on and off and on and off of pred for five years, the doctor

finally took me completely off when he gave me a steroid inhaler.  Since that

time I took prednisone about three or four times a year until I started xolair. 

I have not had prednisone for three and a half years! 

> >  

> > My heart goes out to those of you who still have to take prednisone.

> >  

> > Adah

> >  

>

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Thanks, Addy.  You explained it very well.....

From: pyle456 <jamcculloch2@...>

Subject: [ ] Re: Furthermore,

Date: Thursday, September 3, 2009, 7:37 PM

 

A good analogy for inhaled vs. oral steroids is this: it's like the difference

between topical neosporin and a low dose oral antibiotic.

There are a few folks who are VERY sensitive to steroids and have significant

response to inhaled steroids but for most people they are much safer and much

more well tolerated than oral steroids.

Addy

Group co-owner

> >

> > Wow!  No wonder my allergist was so concerned during the years i was on

prednisone. 

> >  

> > After being on and off and on and off of pred for five years, the doctor

finally took me completely off when he gave me a steroid inhaler.  Since that

time I took prednisone about three or four times a year until I started xolair. 

I have not had prednisone for three and a half years! 

> >  

> > My heart goes out to those of you who still have to take prednisone.

> >  

> > Adah

> >  

>

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Heartily agree!

From: uca79iii <uca79iii@...>

Subject: [ ] Re: Furthermore,

Date: Friday, September 4, 2009, 7:21 AM

 

>

> Thanks, Addy.  You explained it very well.....

>

She always does : I believe this group has the BEST co owner ever :)))

Doug

Group founder

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Addy and Adah,

You both explained it very well. As one of the hyper-sensitive few, I get tense

at the mere mention of ANY kind of steroid. I worry about those of you who still

take them, whatever the form.

Mostly lurking group member

-- In , " pyle456 " <jamcculloch2@...> wrote:

>

> A good analogy for inhaled vs. oral steroids is this: it's like the difference

between topical neosporin and a low dose oral antibiotic.

>

> There are a few folks who are VERY sensitive to steroids and have significant

response to inhaled steroids but for most people they are much safer and much

more well tolerated than oral steroids.

>

> Addy

> Group co-owner

>

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