New here

March 14, 2008

im going to a dan doctor today. Ill keep in mind parasite testing.

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

March 17, 2008

Ok help i went to a dan doctor but i didnt fell comforable so we

walked out any suguestion ...... i got the paper work for dr G. but

it is so much and i dont have all of her medical records it going to

take me forever to fill out the papers or get the medical records

because we have been to so many doctors... what should i do? what

can i do for now with her bad gut ?

>

> im going to a dan doctor today. Ill keep in mind parasite testing.

>

> **************It's Tax Time! Get tips, forms, and advice on AOL

Money &

> Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

>

March 17, 2008

I know it seems overwhelming right now. My son has seen so many doctors (he has

autism, seizure disorder, cyclical vomiting syndrome, food allergies, etc.) and

I thought I'd never get it all done. Let me tell you that it does get better.

Filling out the form takes time, but it is well worth the effort. Dr. G reads

every single word and views every single lab test and doctor's note. My son's

records were over 200 pages long. Here's how I did it--first check with her

primary care doc. See what specialist documentation is missing. Contact the docs

for the missing paperwork (you may be surprised--most specialists send copies to

your primary care doc, so they may have more records than you think). Have all

records sent to your primary care doc and then have your primary care doc send

copies to Dr. G. That way everything Dr. G needs is in one mailing.

Regarding what you can do now, go to www.neuroimmunedr.com and check out the

section on what tests to order. Your primary care doc may order some or all of

them for you.

The only thing supplement wise you could probably use now for gut issues would

be probiotics.

Good luck and keep posting. The people on this list are very knowledgeable.

Robyn

" sonia.martinez29 " <blozzom1@...> wrote:

Ok help i went to a dan doctor but i didnt fell comforable so we

walked out any suguestion ...... i got the paper work for dr G. but

it is so much and i dont have all of her medical records it going to

take me forever to fill out the papers or get the medical records

because we have been to so many doctors... what should i do? what

can i do for now with her bad gut ?

>

> im going to a dan doctor today. Ill keep in mind parasite testing.

>

> **************It's Tax Time! Get tips, forms, and advice on AOL

Money &

> Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

>

March 17, 2008

It does take time to get all the medical records and the paperwork

does also take a long time to fill out but rest assured, Dr. G reads

it *all*.

Right now, for her gut, I would give probios and start with the

diet. I don't have a gut kid so I can't really say what Dr. G does

for the gut, if anything but I can definitely tell you that you

should get on the diet now.

You can also download the list of tests he will do at the initial

appointment and you can get them done so you will have it ready for

him when you see him.

The wait list is probably about 2 months from when you get all the

paperwork in but I'm not certain. That's what it was a few months ago.

cheryl

On Mar 17, 2008, at 7:16 AM, sonia.martinez29 wrote:

> Ok help i went to a dan doctor but i didnt fell comforable so we

> walked out any suguestion ...... i got the paper work for dr G. but

> it is so much and i dont have all of her medical records it going to

> take me forever to fill out the papers or get the medical records

> because we have been to so many doctors... what should i do? what

> can i do for now with her bad gut ?

>

> >

> > im going to a dan doctor today. Ill keep in mind parasite testing.

> >

> > **************It's Tax Time! Get tips, forms, and advice on AOL

> Money &

> > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

> >

March 19, 2008

I'm a little late on this thread....we treated for parasites with homeopathy

(from any good health food store). Cina was the remedy. Very, very

effective.

Tests were done, and redone, and redone on my child with no parasites found.

*However* you have to know that there are tests for ~50 parasites and over

1000 parasites are out there. At any given time, 1 in 5 kids (and probably

adults) has them; it depends on the state of their immune system whether

they are affected or not. Cina is very easy to give (5 tasty pellets

disolved under the tongue a few times a day for a week). This is what worked

for us...I'm sure there are lots of other treatments out there.

Kristy

Re: new here

The fact that she's losing weight and constipated would *really* lead

me to believe parasites. What kind of doctor are you seeing? Are

you seeing a DAN? Mainstream doctor?

Cheryl

On Mar 12, 2008, at 7:27 AM, blozzom1@... wrote:

> THANK YOU FOR YOUR RESPONSE. NO DOCTOR RECOMMENDED PARASITE

> TESTING. IS

> THERE ANYTHING ELES YOU WOULD RECOMMEND?

>

> **************It's Tax Time! Get tips, forms, and advice on AOL

> Money &

> Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

>

March 24, 2008

Cheryl-- were there any side effects from CINA?

Kristy Nardini <krnardini@...> wrote: I'm a little late on this

thread....we treated for parasites with homeopathy

(from any good health food store). Cina was the remedy. Very, very

effective.

Tests were done, and redone, and redone on my child with no parasites found.

*However* you have to know that there are tests for ~50 parasites and over

1000 parasites are out there. At any given time, 1 in 5 kids (and probably

adults) has them; it depends on the state of their immune system whether

they are affected or not. Cina is very easy to give (5 tasty pellets

disolved under the tongue a few times a day for a week). This is what worked

for us...I'm sure there are lots of other treatments out there.

Kristy

Re: new here

The fact that she's losing weight and constipated would *really* lead

me to believe parasites. What kind of doctor are you seeing? Are

you seeing a DAN? Mainstream doctor?

Cheryl

On Mar 12, 2008, at 7:27 AM, blozzom1@... wrote:

> THANK YOU FOR YOUR RESPONSE. NO DOCTOR RECOMMENDED PARASITE

> TESTING. IS

> THERE ANYTHING ELES YOU WOULD RECOMMEND?

>

> **************It's Tax Time! Get tips, forms, and advice on AOL

> Money &

> Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

>

March 30, 2008

That was Kristy that used the Cina.

cheryl

On Mar 24, 2008, at 4:17 PM, ann andress wrote:

> Cheryl-- were there any side effects from CINA?

>

> Kristy Nardini <krnardini@...> wrote: I'm a little late on this

> thread....we treated for parasites with homeopathy

> (from any good health food store). Cina was the remedy. Very, very

> effective.

>

> Tests were done, and redone, and redone on my child with no

> parasites found.

> *However* you have to know that there are tests for ~50 parasites

> and over

> 1000 parasites are out there. At any given time, 1 in 5 kids (and

> probably

> adults) has them; it depends on the state of their immune system

> whether

> they are affected or not. Cina is very easy to give (5 tasty pellets

> disolved under the tongue a few times a day for a week). This is

> what worked

> for us...I'm sure there are lots of other treatments out there.

>

> Kristy

>

> Re: new here

>

> The fact that she's losing weight and constipated would *really* lead

> me to believe parasites. What kind of doctor are you seeing? Are

> you seeing a DAN? Mainstream doctor?

>

> Cheryl

>

> On Mar 12, 2008, at 7:27 AM, blozzom1@... wrote:

>

> > THANK YOU FOR YOUR RESPONSE. NO DOCTOR RECOMMENDED PARASITE

> > TESTING. IS

> > THERE ANYTHING ELES YOU WOULD RECOMMEND?

> >

> > **************It's Tax Time! Get tips, forms, and advice on AOL

> > Money &

> > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

> >

March 30, 2008

No side effects at all.

The 'gist' of my message should have been that if parasites are suspected,

don't rely on testing to determine if they are there. Find a treatment to

get rid of them, if they are causing a problem. My son was deathly ill from

diarrhea when he was affected.

Kristy

Re: new here

>

> The fact that she's losing weight and constipated would *really* lead

> me to believe parasites. What kind of doctor are you seeing? Are

> you seeing a DAN? Mainstream doctor?

>

> Cheryl

>

> On Mar 12, 2008, at 7:27 AM, blozzom1@... wrote:

>

> > THANK YOU FOR YOUR RESPONSE. NO DOCTOR RECOMMENDED PARASITE

> > TESTING. IS

> > THERE ANYTHING ELES YOU WOULD RECOMMEND?

> >

> > **************It's Tax Time! Get tips, forms, and advice on AOL

> > Money &

> > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

> >

March 25, 2009

Hi ,

Welcome to the group. I'm relatively new here too. I was dx'd with CMT1A about

15 years ago. I've struggled with symptoms for as long as I can remember. At

least now I know I wasn't just a klutz when I was a little girl...there was a

reason. I too have problems with my hands, especially my right one....which is

my dominant hand.

My fingers tingle...burn....and around my wrist and the palm of my hand it burns

and hurts like crazy. I have lidocaine pain patches I cut in half and put on

it...they help some. I also put ice on it at times, just to numb it. I've been

tested with an EMG there....just to make sure it's not carpal tunnel syndrome

too.

The dr. who did the EMG said it was CMT related, but yet my neuromuscular dr.

has told me it's probably carpal tunnel...so who knows. My legs haven't been

hurting too terribly lately, but that's probably because I'm not walking as much

as I used to.

I sincerely hope that you are able to find some relief from your

pains hon. I commend you on breastfeeding your daughter.....that's

wonderful! Good luck to you and feel free to write me.

Hugs,

Sherry

March 26, 2009

Hi Gretchen!

I've only met two others with our name! Your welcome here and I hope you'll get

alot out of the network. As for talking in his sleep - I did that as a kid, and

lol, am told I still do it! Sounds like your little boy may benefit from DAFOs

http://www.cascadedafo.com/ (they come in different colors and details.

Blood testing for CMT is done through http://www.athenadiagnostics.com There are

many different (genetic) DNA tests, so your neurologist will determine which

one/s to order if necessary.

I was about 7 when the first CMT symptoms appeared in me - falling on the

playground frequently, falling in the creeks on hikes too, but getting wet was

fun!

Gretchen

May 29, 2009

Welcome to the group!... You'll find tons of info in the message archives and in the files.

Sounds like you're quite busy! Glad to have you aboard.

Suzi

List Owner

health/

http://360./suziesgoats

What is a weed? A plant whose virtues have not yet been discovered.

Hello Everyone,

I am and I live in south South Jersey on the west coast. I have gone through all of Mays posts and found some very interesting things, helpful. My favorite was the soda, somewhat related in technique to the K Tea I make here at home and love. I will definitely have to try my hand at that. Has anyone tried it yet?

I work in the oil industry and yes I know I know itâ€™s not the greatest place to be right now but we do sell bio fuels and try everyday to get it out to new customers commercially. I try very hard to overcome my career choice by being on top of things going on in government and our earth thatâ€™s related sustainability and wear the sandwich board very proudly; when the opportunity arises.

I indulge in essentials oils, use them everyday and enjoy them very much. I practice the laying on of hands, Reiki, and have just begun my Reiki Masters course.

I hope in time to come I will be able to share what I know with all of you and look forward to all your posts

Sincerely, Medford

May 29, 2009

Welcome

Gayla

Bob and Gayla Always Enough RanchAcampo, CA

New here

Hello Everyone,

I am and I live in south South Jersey on the west coast. I have gone through all of Mays posts and found some very interesting things, helpful. My favorite was the soda, somewhat related in technique to the K Tea I make here at home and love. I will definitely have to try my hand at that. Has anyone tried it yet?

I work in the oil industry and yes I know I know it’s not the greatest place to be right now but we do sell bio fuels and try everyday to get it out to new customers commercially. I try very hard to overcome my career choice by being on top of things going on in government and our earth that’s related sustainability and wear the sandwich board very proudly; when the opportunity arises.

I indulge in essentials oils, use them everyday and enjoy them very much. I practice the laying on of hands, Reiki, and have just begun my Reiki Masters course.

I hope in time to come I will be able to share what I know with all of you and look forward to all your posts

Sincerely, Medford

May 29, 2009

Hi ,

I'm , a co moderator of the list. I've been a member since just about the beginning.

First off, WELCOME!!! Don't know how you found us, but I am glad you did. We are a diverse bunch, and have been through a lot together. We are more than a discussion group, we are more than friends. We are family. And just like family, we have our share of "granola". Fruits, flakes, and nuts. And also just like family, we don't always see eye to eye. But we love each other, respect each other, and are here for each other.

I personally am a vegetarian, and a "hedge witch" (an old term meaning one who uses nature and natural methods for health rather than chemicals and invasive procedures). My personal take on health is joy. They say laughter is the best medicine, and I subscribe to that motto whole heartedly. You will likely see me, or my alter ego Guido cracking wise with little or no prompting at all.

So, jump on in, the water's fine. No sharks here, just the occasional playful dolphin.

Again, welcome!

Peace, love, laughter

â€œIf taking vitamins doesn't keep you healthy enough, try more laughter: The most wasted of all days is that on which one has not laughed.â€Hello Everyone, I am and I live in south South Jersey on the west coast. I have gone through all of Mays posts and found some very interesting things, helpful. My favorite was the soda, somewhat related in technique to the K Tea I make here at home and love. I will definitely have to try my hand at that. Has anyone tried it yet? I work in the oil industry and yes I know I know itâ€™s not the greatest place to be right now but we do sell bio fuels and try everyday to get it out to new customers commercially. I try very hard to overcome my career choice by being on

top of things going on in government and our earth thatâ€™s related sustainability and wear the sandwich board very proudly; when the opportunity arises. I indulge in essentials oils, use them everyday and enjoy them very much. I practice the laying on of hands, Reiki, and have just begun my Reiki Masters course. I hope in time to come I will be able to share what I know with all of you and look forward to all your posts Sincerely, Medford

August 20, 2009

Focalin did not work for our 8 year old son - ?I think you will know fairly

quickly if it is a good fit - (ca. 2 weeks). ?We had much better luck with Tenex

(guanfacine).

CR

New Here

Hi! I am a new member here. My son is diagnosed with aspergers or ADD. he was

just put on medication, the medication is called FocalinXR. I would like to hear

from people who have used this medication. My son is going to be 8 years in

august

Thank You,

Rivky, Mom to 5

February 24, 2010

>

> Well I don't know where to start. My name is Tricia, I am 34 years old and was

diagnosed with asthma in Sept 2006. At that time I am been treated with

bronchitis with my family doctor for several days, been getting IV steroids in

his office daily. Then one night I couldn't breath, my sister took me to ER and

my pulse ox was 76%. So after several days in the hospital and a million tests,

they said I had asthma. I have been hospitalized 4 more times and am on ADVAIR

500/50, zyflo CR, zyrtec, flonase, 20mg steroids daily(with many bursts),

nexium. I am still at least once a month have to go up on my steroids. My PFT's

are in the 60's and I now sleep with 2L oxygen and use it as needed for low

pulse ox. I found out yesterday that I was approved to start xolair, now I am

waiting to find out what my copay is going to be. I would love to hear everyones

story. I am very nervous!!

>

> Tricia

>

Tricia,

Welcome to the group. Nervous? Don't be!

I have been on Xolair since 2003 and was the first asthmatic in the state of

Arkansas to get it.

Today, I am doing GREAT!

Doug

Group founder

February 24, 2010

Hey Tricia, hello. I am Jan and been on zolair for about 2 1/2 months. I am not

using the inhalers much and that is good. Am hoping it will help with the

allergies too. I am so new to this myself I can't really give advice. Just good

luck to you. Jan

May today be twice as good as yesterday and half as good as tomorrow. Jan

From: mom2alexnabbie@...

Date: Wed, 24 Feb 2010 18:10:32 +0000

Subject: [ ] new here

Well I don't know where to start. My name is Tricia, I am 34 years old and was