Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 We went to see a geneticist too. This is still in progress but the initial visit they asked lots of questions and verified she had BPES by her traits and will get blood samples to see if her gene is broken or missing. If it is missing, it could mean other things are affected like her fertility later, etc. They measured her eyes, did extensive family tree questioning and looked her over. They said it is very hard to distinguish between Type 1 and 2 of BPES. We are the ones who have seen Dr. Cole and I will get my step daughter to recap the surgeries. I know one they took a skin graft from her thigh and used it for her bridge of her nose and between her eyes. when she was about 11. She has had about 5 or 6 surgeries i think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 Once again, we are so excited to hear about Dr. Cole. We are going to see him in November for . She is 6 months now and I¡Çm not sure when anything will be planned. Could you give me a quick overview of the surgeries your daughter had? I would love to go in prepared. We are also seeing Dr. Mark Codner today. I know all the information I get from this group will help in asking the right questions to the doctors. We are also ready for database information when needed. On another note, our pediatrician has referred us to a geneticist. Has anyone been to see one, and if so, what exactly will they be doing? is pretty small for her age, has a very small head circumference and my Dr. just wanted to check things out. I am only 4 foot 10 inches so I¡Çm not really expecting a giant. We have two other girls that are also very petite. THANKS! Re: blepharophimosis New Here I can definitely recommend Dr. Cole of Atlanta. He is the number one surgeon for BPES in the Southeast and did my daughter's surgeries. She is 15 almost 16 now and had her last surgery this past summer. She is gorgeous. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Hello, I have problems of infertility, but my gene FOXL2 is not missing. My gene is almost complete, but it is appearently not sufficient. Genetists don't know exactly how to determmine type 1 or 2. They only know that if a big part of FOXL2 is missing, women can't have a baby. But when a small part is missing, like in mine gene, they don't know. I want to telle you that not all people who have BPES have a mutation in gene FOXL2. But every people who have a mutation in this gene seem to have BPES. I hope your daughter will not have these problems. Good luck because the results are very long to have. > We went to see a geneticist too. This is still in progress but the initial > visit they asked lots of questions and verified she had BPES by her traits and > will get blood samples to see if her gene is broken or missing. If it is > missing, it could mean other things are affected like her fertility later, etc. > > They measured her eyes, did extensive family tree questioning and looked her > over. > > They said it is very hard to distinguish between Type 1 and 2 of BPES. > > We are the ones who have seen Dr. Cole and I will get my step daughter to > recap the surgeries. I know one they took a skin graft from her thigh and used it > for her bridge of her nose and between her eyes. when she was about 11. She > has had about 5 or 6 surgeries i think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Hi there...Do you have pix of your daughter? pre-op and post-op? Would love to see them if you do:)...Thanks leanne and family:) Re: blepharophimosis New Here I can definitely recommend Dr. Cole of Atlanta. He is the number one surgeon for BPES in the Southeast and did my daughter's surgeries. She is 15 almost 16 now and had her last surgery this past summer. She is gorgeous. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Welcome Beverly. I'm a from NJ, one of the moderators of the group. I've had arthroscopic surgery done to my knee many years ago when it first was developed. A few years ago, I had both knees replaced and they are now almost normal. Here is some info on arthroscopic surgery: From American Academy of Orthopaedic Surgeons: http://orthoinfo.aaos.org/brochure/thr_report.cfm?Thread_ID=33 & topcategory=A bout%20Orthopaedics & searentry=arthroscopy From Chester Knee Clinic: http://www.kneeclinic.info/problems_arthroscopic_surgery.php From the Arthritis Foundation: http://www.arthritis.org/conditions/surgerycenter/surgerycenterflash/arthros copy.html I hope after reading these articles, you'll have a better idea of what to expect. Feel free to ask questions. We have a group of very knowledgeable members that have had a lot of experience. a > > > Hello, > > I just joined the group and wanted to introduce myself. My name is Beverly > and I live in NC. I suffer with Osteoarthritis and maybe RA as well. When > I was a child I was diagnosed with Juvenile RA but my current Orthopedic > doctor is not sure. He did find come calcification on a ligament or tendon > in my right knee. I'm scheduled for an arthroscopy on 1/6/04. He will at > that time take a sample and send it to pathology. I'm not sure what to > expect after this procedure, since this is my first time. I also have OA in > the base of my thumbs on both hands. I have just recently developed pain in > my right arm. It feels like the whole bone is aching like a tooth aches... > kind of throbbing pain that is constant and severe....the same kind that I > feel in both legs. My right knee is so bad that I can hear it pop as well > as feel it. > Well, that is enough for now. Thanks for allowing me to join your group. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 Those animations from the Arthritis Foundation are really cool, a. Re: [ ] New Here > Welcome Beverly. I'm a from NJ, one of the moderators of the group. > I've had arthroscopic surgery done to my knee many years ago when it first > was developed. A few years ago, I had both knees replaced and they are now > almost normal. Here is some info on arthroscopic surgery: > > > From American Academy of Orthopaedic Surgeons: > http://orthoinfo.aaos.org/brochure/thr_report.cfm?Thread_ID=33 & topcategory=A > bout%20Orthopaedics & searentry=arthroscopy > > From Chester Knee Clinic: > http://www.kneeclinic.info/problems_arthroscopic_surgery.php > > From the Arthritis Foundation: > http://www.arthritis.org/conditions/surgerycenter/surgerycenterflash/arthros > copy.html > > I hope after reading these articles, you'll have a better idea of what to > expect. Feel free to ask questions. We have a group of very knowledgeable > members that have had a lot of experience. > a > > > > > > > > > > > > Hello, > > > > I just joined the group and wanted to introduce myself. My name is Beverly > > and I live in NC. I suffer with Osteoarthritis and maybe RA as well. When > > I was a child I was diagnosed with Juvenile RA but my current Orthopedic > > doctor is not sure. He did find come calcification on a ligament or tendon > > in my right knee. I'm scheduled for an arthroscopy on 1/6/04. He will at > > that time take a sample and send it to pathology. I'm not sure what to > > expect after this procedure, since this is my first time. I also have OA in > > the base of my thumbs on both hands. I have just recently developed pain in > > my right arm. It feels like the whole bone is aching like a tooth aches... > > kind of throbbing pain that is constant and severe....the same kind that I > > feel in both legs. My right knee is so bad that I can hear it pop as well > > as feel it. > > Well, that is enough for now. Thanks for allowing me to join your group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi a, Thanks for the welcome and also the info. May I ask what part of NJ you're in? I was born and raised in Newark, NJ and moved to NC about 7 years ago. Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 Hi Beverly, welcome to the group. I am new myself, and trying to get to know everyone. I live in Oklahoma, forty years old, and have RA, along with some other ailments. I am sorry to hear your having so much pain, I hope that everything goes well for you at the doctor, let us know. Sincerely, Tawny > > > Hello, > > I just joined the group and wanted to introduce myself. My name is Beverly > and I live in NC. I suffer with Osteoarthritis and maybe RA as well. When > I was a child I was diagnosed with Juvenile RA but my current Orthopedic > doctor is not sure. He did find come calcification on a ligament or tendon > in my right knee. I'm scheduled for an arthroscopy on 1/6/04. He will at > that time take a sample and send it to pathology. I'm not sure what to > expect after this procedure, since this is my first time. I also have OA in > the base of my thumbs on both hands. I have just recently developed pain in > my right arm. It feels like the whole bone is aching like a tooth aches... > kind of throbbing pain that is constant and severe....the same kind that I > feel in both legs. My right knee is so bad that I can hear it pop as well > as feel it. > Well, that is enough for now. Thanks for allowing me to join your group. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hi there, If you want to read stories about those who suffered from saline implants, you can go to our files section and read all of our stories there. There is probably at least 2 dozen of them. One thing you have to remember is that saline implants are made with silicone outer shells, so everything that you have heard about the silicone gel implants applies to saline ones as well. In addition, saline implants have an added problem, and that is the trouble with fungal and bacterial infections, which can allow mold and mycoplasma bacteria to grow inside the implant and around the valve. It is pretty nasty and can take your health down in no time flat. Here's the link to our stories: /files/Implant%20and%20Explant%20Stories/ As for all the hollywood actresses that seem okay, the truth may never be known about what they are or are not dealing with....most of them are not going to put their careers on the line by speaking out, and they have the money to get expensive alternative treatments to help them when their immune systems get whacked out. However, some of those actresses have spoken out. Mariel Hemingway, Blair, Sally Kirkland, Leigh Young are just some of them. Another actress, McDonough, formed a foundation to help spread the word to other Hollywood women. You can see it here: http://www.intheknow.org/ Sally Kirkland's can be seen here: http://www.sallykirkland.com/pages/institute.html Hope this helps. Don't be deceived...implants are not safe, and though some women seem to be able to have them without exhibiting autoimmune disease symptoms, I don't believe the human body can withstand that kind of assault from a foreign object for years without suffering in some way in the end. Patty ----- Original Message ----- From: silently06 Sent: Friday, February 13, 2004 9:30 AM Subject: New here Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am naturally small everywhere so having small boobs isnt really a problem, and my fiance likes them, (but would like me to get bigger ones) but before I had my child I was at least able to manipulate them into forming somewhat of a cleavage, and now I can't even do that...I don't want big boobs, I just want decent ones, I want to have saline implants, so I started researching yesterday and now I'm really scared about it...but then I realized I was reading the silicone implant stories, and I've only seen a couple anti-saline stories, I did read postitive stories to, but I'm still scared of getting sick after putting them in...what about all those celebrities who've had them, they seem healthy to me, and so...not everybody gets sick after these right?....What do ya'll think...Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Wow I definetly seem to be going more towards not getting them, maybe I'll wait and see if they ever come out with something better to improve your bustline and won't harm your body, even though I could be health for awhile after getting them, I don't want to be sick later, I hate being sick.....For now I think I'm just going to try hard and gain weight cause those will grow a little too --- In , " ~*Patty*~ " <redeemed7@c...> wrote: > Hi there, > If you want to read stories about those who suffered from saline implants, you can go to our files section and read all of our stories there. There is probably at least 2 dozen of them. One thing you have to remember is that saline implants are made with silicone outer shells, so everything that you have heard about the silicone gel implants applies to saline ones as well. In addition, saline implants have an added problem, and that is the trouble with fungal and bacterial infections, which can allow mold and mycoplasma bacteria to grow inside the implant and around the valve. It is pretty nasty and can take your health down in no time flat. > > Here's the link to our stories: > /files/Implant% 20and%20Explant%20Stories/ > > As for all the hollywood actresses that seem okay, the truth may never be known about what they are or are not dealing with....most of them are not going to put their careers on the line by speaking out, and they have the money to get expensive alternative treatments to help them when their immune systems get whacked out. However, some of those actresses have spoken out. Mariel Hemingway, Blair, Sally Kirkland, Leigh Young are just some of them. Another actress, McDonough, formed a foundation to help spread the word to other Hollywood women. You can see it here: > http://www.intheknow.org/ > > Sally Kirkland's can be seen here: > http://www.sallykirkland.com/pages/institute.html > > Hope this helps. Don't be deceived...implants are not safe, and though some women seem to be able to have them without exhibiting autoimmune disease symptoms, I don't believe the human body can withstand that kind of assault from a foreign object for years without suffering in some way in the end. > Patty > ----- Original Message ----- > From: silently06 > > Sent: Friday, February 13, 2004 9:30 AM > Subject: New here > > > Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am > naturally small everywhere so having small boobs isnt really a > problem, and my fiance likes them, (but would like me to get bigger > ones) but before I had my child I was at least able to manipulate > them into forming somewhat of a cleavage, and now I can't even do > that...I don't want big boobs, I just want decent ones, I want to > have saline implants, so I started researching yesterday and now I'm > really scared about it...but then I realized I was reading the > silicone implant stories, and I've only seen a couple anti-saline > stories, I did read postitive stories to, but I'm still scared of > getting sick after putting them in...what about all those celebrities > who've had them, they seem healthy to me, and so...not everybody gets > sick after these right?....What do ya'll think...Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 hi there - trust me, there are plenty of anti-saline people out there and I am one of the many. Sakine implants produce very similar health issus as the silicone stories you have been hearing about. no matter what the doc says, the fact is that the shell is STILL silicone. Your body will have the same adverse reaction to it as it is made of the same material as the silcone implants. The "saline water" has the potential to get really gross - if you look at a pkg of medical sterile saline the shelf life is months if kept around 75 degrees. Put it into a 98 degree body for 10 years and bad things happen. saline implants are actually worse than silicone as far as repeat surgeries go - leakage and capsular contracture. I had a total of 4 operations. I was implanted at 24 - I am 33 now and just had them removed last April. Please go to the files section and read our stories before you make a decision - most of us here are Saline victims. they have ruined my health - I was tiny like you before implant - 5'2", 105 lbs. I was a AA and wanted boobs for the same reason as you. I never liked them - being so small in the first place you could always feel the implants sloshing around and they were hard and uncomfortable. after implantation in 96 I was back in in 97 for another operation for capsular contracture then again in 99 for a complete deflation for no reason. I wish I had removed them then. You are so young and have your whole life ahead of you - please do the research before you make such a major decision. i thought that if I didn't like them or they made me sick I would just remove them and I would be ok. that was not the case. You end up with overwhelming doctor bills and you have insurance trouble. Some of the diseases you get from these are permanant! Lupas, Fibromyalgia - there are no cures. I am living a life in constant pain because I didn't know better - you have so much info available to you to make an informed decision. - dom't make one based on what your doctor says. All they want is your money. your best bet is to talk to as many women you can that have them - all the girls here will be very helpful to you. please read our stories and links as there is a lot of good info available. I will answer any questions you may have - just ask! good luck Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Sweetie, I'd give my right arm to be 21, 95 pounds and healthy. If I had it to do all over again I would definitely not get saline breast implants. Those " safe " saline implants stole my health and I'm just now in the process of taking it back. I started to notice I was getting sick 3 months after I was implanted and I progressively got worse. After 4 years and many doctors, I found this group and found the truth. I had my implants out in December. They were severely contaminated and were definitely the source of my illnesses. Be happy with what you have, your youth, your health, your beautiful body. I'm just imagining what you look like because at one time I was 5'4 " and 95 and also an A. All my life I was teased by boys, girls, adults, even family. I always got the stupid jokes like " When God said Breast you thought he said Rest and you took a nap " . Funny, huh? If they only knew how much stuff like that really hurt. I was so jealous and thought they must be happier because they have them. I might have enjoyed my big breasts for a few months. It was fun shopping in the " women's " bras instead of the girls! But when the pain, fatigue, brain fog, all set in, who cared? I had breasts but I was too sick to do anything enjoyable. I cringed when my husband would touch them because at first they had no feeling, then they had a heightened sensation to where a slight breeze across them would be painful, then when they settled down and I could stand them being touched, I was in so much pain in the rest of my body I still couldn't enjoy them. They literally have robbed me of 4 years of my life. Keep your youth and your beauty. Buy some cute push up bras and just smile at yourself everyday knowing that you're beautiful exactly the way God made you. If you're still not sure, make sure you go to the files section and read some of our implant/explant stories. Kacey and were very young when they got theirs. Kacey is only 21 now and fully disabled from her " safe " saline implants. She's recovering like the rest of us, but it takes time. 's doing awesome. I just had mine out 2 months ago and I know I'll be improving soon. If you want to read an old lady's story,(I'm 38) mine's there too under Pam's story. Good luck with your decision. Pam --- In , " silently06 " <silently06@y...> wrote: > Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am > naturally small everywhere so having small boobs isnt really a > problem, and my fiance likes them, (but would like me to get bigger > ones) but before I had my child I was at least able to manipulate > them into forming somewhat of a cleavage, and now I can't even do > that...I don't want big boobs, I just want decent ones, I want to > have saline implants, so I started researching yesterday and now I'm > really scared about it...but then I realized I was reading the > silicone implant stories, and I've only seen a couple anti-saline > stories, I did read postitive stories to, but I'm still scared of > getting sick after putting them in...what about all those celebrities > who've had them, they seem healthy to me, and so...not everybody gets > sick after these right?....What do ya'll think...Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Please read my story under 's letter to Oprah! I was 19/20 when I got them, researched them as best as I could, and got them! Smoothg saline "safe" implants. It was terrible from the get go. Although I looked decent, I couldnt sleep on my stomach, felt funny when I ran , worked out or was intimate (always knew they were there totally) But it wasnt until I got realy ill when it started bothering me,I was 26 -NEVER SICK IN My LIfe and diagnosed with HAshimots thyroid dsease, and Rheuamotisd Arthrits, and was also tested for thyroid cancer, and also multiple Sclerosis.None of this runs in my family..... Almost all symptoms that reaked havoc on me the last 2 years of the total time of having them for 9 years went away since explant. My old docs are shocked.... I also gained weight w/ them and let me tell you I was working out all the time. To get them out was hell. I had to travel all the way to Georgia from Illinois. And it took over 6 hours to get them out, scraping and pulling. And now I have scars. And to look decent, but had to travel to someone great who knows how mend things up. Please do not get them! Run, Run , Run. You will de disfigured without them, why do it. Please read my story. I am 28 and Im telling you, I was on my way to dying. Infections, stroke like conditions, joint pain, auto immune illness, even suspected cancer. look into it. Give yourself 3 months of researching, then decide. You are worth it...... >From: "~*Patty*~" >Reply- >>Subject: Re: New here >Date: Fri, 13 Feb 2004 10:56:03 -0800 > >Hi there, >If you want to read stories about those who suffered from saline implants, you can go to our files section and read all of our stories there. There is probably at least 2 dozen of them. One thing you have to remember is that saline implants are made with silicone outer shells, so everything that you have heard about the silicone gel implants applies to saline ones as well. In addition, saline implants have an added problem, and that is the trouble with fungal and bacterial infections, which can allow mold and mycoplasma bacteria to grow inside the implant and around the valve. It is pretty nasty and can take your health down in no time flat. > >Here's the link to our stories: > /files/Implant%20and%20Explant%20Stories/ > >As for all the hollywood actresses that seem okay, the truth may never be known about what they are or are not dealing with....most of them are not going to put their careers on the line by speaking out, and they have the money to get expensive alternative treatments to help them when their immune systems get whacked out. However, some of those actresses have spoken out. Mariel Hemingway, Blair, Sally Kirkland, Leigh Young are just some of them. Another actress, McDonough, formed a foundation to help spread the word to other Hollywood women. You can see it here: >http://www.intheknow.org/ > >Sally Kirkland's can be seen here: >http://www.sallykirkland.com/pages/institute.html > >Hope this helps. Don't be deceived...implants are not safe, and though some women seem to be able to have them without exhibiting autoimmune disease symptoms, I don't believe the human body can withstand that kind of assault from a foreign object for years without suffering in some way in the end. >Patty > ----- Original Message ----- > From: silently06 > > Sent: Friday, February 13, 2004 9:30 AM > Subject: New here > > > Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am > naturally small everywhere so having small boobs isnt really a > problem, and my fiance likes them, (but would like me to get bigger > ones) but before I had my child I was at least able to manipulate > them into forming somewhat of a cleavage, and now I can't even do > that...I don't want big boobs, I just want decent ones, I want to > have saline implants, so I started researching yesterday and now I'm > really scared about it...but then I realized I was reading the > silicone implant stories, and I've only seen a couple anti-saline > stories, I did read postitive stories to, but I'm still scared of > getting sick after putting them in...what about all those celebrities > who've had them, they seem healthy to me, and so...not everybody gets > sick after these right?....What do ya'll think...Thanks Let the advanced features services of MSN Internet Software maximize your online time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Welcome Silently, You'll find a lot of answers here. I would say implants are not safe for anyone. Are you willing to risk your entire livlihood: meaning ability to think, walk, work and be in constant out of your mind pain. No one would. Listen sweetie, and I'll write you again but I'm in a hurry now. Even the salines have a silicone outter lining, and the girls are reacting the same way as they would to silicone. A girl here just put them in Dec o3 and is so sick already. Look at 21 year old Karey. Keep writing, keep reading. But please don't do it. I have nothing to gain by telling you this, only the satisfaction of saving someone's life! Love . May God be your guide. Men are greedy and only want the money. we've ALL BEEN DOOPED (Fooled)silently06 <silently06@...> wrote: Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am naturally small everywhere so having small boobs isnt really a problem, and my fiance likes them, (but would like me to get bigger ones) but before I had my child I was at least able to manipulate them into forming somewhat of a cleavage, and now I can't even do that...I don't want big boobs, I just want decent ones, I want to have saline implants, so I started researching yesterday and now I'm really scared about it...but then I realized I was reading the silicone implant stories, and I've only seen a couple anti-saline stories, I did read postitive stories to, but I'm still scared of getting sick after putting them in...what about all those celebrities who've had them, they seem healthy to me, and so...not everybody gets sick after these right?....What do ya'll think...Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 To you ladies, thank you for having this site, where at least I get responses, I have already decided not to get implants, I think God gave me a sign yesterday when I started to do research on this, because it was after I submitted an application to have them financed through that breastaugu.com thing, and guess what, they just called me here at work, they told me I had been approved, but I couldnt really talk cause I don't want other people to hear me here at the office, but I'm going to call them back and tell them I'm not interested....I'm going to keep my body just the way it is, and I think this site just saved me!!...Hugs for everybody, another sucess story, lol.....I wish a speedy recovery for all of you suffering, you'll be in my prayers....Love Frances > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 I want you to know that I am so sick right now that I cannot live a normal life, let alone a life at all. I got my implants almost 3 years ago and right now am trying to find a way to get the money to have them removed. I have been ill for over a year now and I wish I never would have gotten them. My life right now is awful and I know that no one would want to feel this way. Please don't do it!! I know most people will tell you it's your choice but please make the right one. Billie-Jo > Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am > naturally small everywhere so having small boobs isnt really a > problem, and my fiance likes them, (but would like me to get bigger > ones) but before I had my child I was at least able to manipulate > them into forming somewhat of a cleavage, and now I can't even do > that...I don't want big boobs, I just want decent ones, I want to > have saline implants, so I started researching yesterday and now I'm > really scared about it...but then I realized I was reading the > silicone implant stories, and I've only seen a couple anti-saline > stories, I did read postitive stories to, but I'm still scared of > getting sick after putting them in...what about all those celebrities > who've had them, they seem healthy to me, and so...not everybody gets > sick after these right?....What do ya'll think...Thanks > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 .. If you want to read an > old lady's story,(I'm 38) mine's there too under Pam's story. Hey Pam, 38's NOT old !!!At least, not when you're 37 or older...) Fiona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 You made my whole week! Kudos to you! Love julie -- Original Message ----- From: silently06 Sent: Friday, February 13, 2004 1:38 PM Subject: Re: New here Wow I definetly seem to be going more towards not getting them, maybe I'll wait and see if they ever come out with something better to improve your bustline and won't harm your body, even though I could be health for awhile after getting them, I don't want to be sick later, I hate being sick.....For now I think I'm just going to try hard and gain weight cause those will grow a little too > Hi there,> If you want to read stories about those who suffered from saline implants, you can go to our files section and read all of our stories there. There is probably at least 2 dozen of them. One thing you have to remember is that saline implants are made with silicone outer shells, so everything that you have heard about the silicone gel implants applies to saline ones as well. In addition, saline implants have an added problem, and that is the trouble with fungal and bacterial infections, which can allow mold and mycoplasma bacteria to grow inside the implant and around the valve. It is pretty nasty and can take your health down in no time flat.> > Here's the link to our stories:> /files/Implant%20and%20Explant%20Stories/> > As for all the hollywood actresses that seem okay, the truth may never be known about what they are or are not dealing with....most of them are not going to put their careers on the line by speaking out, and they have the money to get expensive alternative treatments to help them when their immune systems get whacked out. However, some of those actresses have spoken out. Mariel Hemingway, Blair, Sally Kirkland, Leigh Young are just some of them. Another actress, McDonough, formed a foundation to help spread the word to other Hollywood women. You can see it here:> http://www.intheknow.org/> > Sally Kirkland's can be seen here:> http://www.sallykirkland.com/pages/institute.html> > Hope this helps. Don't be deceived...implants are not safe, and though some women seem to be able to have them without exhibiting autoimmune disease symptoms, I don't believe the human body can withstand that kind of assault from a foreign object for years without suffering in some way in the end.> Patty> ----- Original Message ----- > From: silently06 > > Sent: Friday, February 13, 2004 9:30 AM> Subject: New here> > > Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am > naturally small everywhere so having small boobs isnt really a > problem, and my fiance likes them, (but would like me to get bigger > ones) but before I had my child I was at least able to manipulate > them into forming somewhat of a cleavage, and now I can't even do > that...I don't want big boobs, I just want decent ones, I want to > have saline implants, so I started researching yesterday and now I'm > really scared about it...but then I realized I was reading the > silicone implant stories, and I've only seen a couple anti-saline > stories, I did read postitive stories to, but I'm still scared of > getting sick after putting them in...what about all those celebrities > who've had them, they seem healthy to me, and so...not everybody gets > sick after these right?....What do ya'll think...Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 -- HI. I just wanted to say that you have been led by God to find this site and He has blessed you with the wisdom to decide against implants! I am so thankful! I had saline implants for 11 years before getting explanted due to illness. I am doing much better now! But I will always wonder how well I could be now or would have been had I not ever gotten the implants in the first place! Like you, I was--and am again--a double A in a padded bra! I hate not having breasts, but it is so unimportant in the scheme of things to me now. It is amazing how losing your health redefines your priorities. Besides, you could fix your breasts and then have something else happen to you that you can't fix! I had c-section 14 years ago and Iabsolutely hate the long ugly scar I have. I also have several stretch marks from my first pregnancy. I realize that I really can't fix those and I will have to accept my limitations. My husband does. I am the one who has trouble accepting what I don't like about myself. I guess that is where most guys are different. They truly seem more oblivious to their physical faults. ANd studies have shown that men seem to think their wives are far sexier than the wives believe themselves to be. We think we are too fat and too flat and on and on. They just see this sexy woman. All I know is that I have had 2 wonderful husbands (my first husband died) and both of them thought I was just great looking. Unfortunately I never thought I measured up as a woman because of being so very flat and I jumped at the chance to change things. Even though it felt great to feel like other women, I always hated those blobs on my chest. They didn't feel real to me, and my sensation was forever altered. ANd I don't care what the doctors say, many, if not all breast implanted women look artificial. They are too round on the top. and the flatter you are, the more like a ball stuck on your chest is how the implant will look. I thought my implants looked ok from the front. But from the side, my breasts didn't slant like most breasts. Anyway, congratulations on a decision well made!! kathy - In , " silently06 " <silently06@y...> wrote: > Wow I definetly seem to be going more towards not getting them, maybe > I'll wait and see if they ever come out with something better to > improve your bustline and won't harm your body, even though I could > be health for awhile after getting them, I don't want to be sick > later, I hate being sick.....For now I think I'm just going to try > hard and gain weight cause those will grow a little too > > > > > > Hi there, > > If you want to read stories about those who suffered from saline > implants, you can go to our files section and read all of our stories > there. There is probably at least 2 dozen of them. One thing you > have to remember is that saline implants are made with silicone outer > shells, so everything that you have heard about the silicone gel > implants applies to saline ones as well. In addition, saline > implants have an added problem, and that is the trouble with fungal > and bacterial infections, which can allow mold and mycoplasma > bacteria to grow inside the implant and around the valve. It is > pretty nasty and can take your health down in no time flat. > > > > Here's the link to our stories: > > /files/Implant% > 20and%20Explant%20Stories/ > > > > As for all the hollywood actresses that seem okay, the truth may > never be known about what they are or are not dealing with....most of > them are not going to put their careers on the line by speaking out, > and they have the money to get expensive alternative treatments to > help them when their immune systems get whacked out. However, some > of those actresses have spoken out. Mariel Hemingway, Blair, > Sally Kirkland, Leigh Young are just some of them. Another > actress, McDonough, formed a foundation to help spread the word > to other Hollywood women. You can see it here: > > http://www.intheknow.org/ > > > > Sally Kirkland's can be seen here: > > http://www.sallykirkland.com/pages/institute.html > > > > Hope this helps. Don't be deceived...implants are not safe, and > though some women seem to be able to have them without exhibiting > autoimmune disease symptoms, I don't believe the human body can > withstand that kind of assault from a foreign object for years > without suffering in some way in the end. > > Patty > > ----- Original Message ----- > > From: silently06 > > > > Sent: Friday, February 13, 2004 9:30 AM > > Subject: New here > > > > > > Hi everybody, I am 21 yrs old, 5'1, 95lbs and a size A....I am > > naturally small everywhere so having small boobs isnt really a > > problem, and my fiance likes them, (but would like me to get > bigger > > ones) but before I had my child I was at least able to manipulate > > them into forming somewhat of a cleavage, and now I can't even do > > that...I don't want big boobs, I just want decent ones, I want to > > have saline implants, so I started researching yesterday and now > I'm > > really scared about it...but then I realized I was reading the > > silicone implant stories, and I've only seen a couple anti- saline > > stories, I did read postitive stories to, but I'm still scared of > > getting sick after putting them in...what about all those > celebrities > > who've had them, they seem healthy to me, and so...not everybody > gets > > sick after these right?....What do ya'll think...Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 Thanks Patty, I was about to ask about alternative methods, like blousannt or something, but you beat me to it, I'm going to go check it out.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Diane. Hello. My name is Stacey and I live in southwest Florida. I used to live in a five year old, upscale apartment complex. After three years of living in the apartment I had health problems mounting up beyond belief. My biggest issue was that I could not breathe. I literally felt like I was suffocating to death. I had headaches so bad I think a gunshot to the head would have been easier to deal with at the time along with many many other health complications...all at the ripe old age of 31 through 34. No doctor anywhere could tell me anything around here other than I probably was going through to much stress and experiencing anxiety which they said was the reason I could not breathe. Then my second garage used for storage filled up with mold 3 inches thick including the inside of my car. This was caused by a leak in the apartment above the garage. I hired inspectors for the garage and when they arrived, they asked me if I was experiencing any health problems. I asked them if they had a couple of weeks to listen and they asked me if I had ever had any leaks in my apartment. I told them about the mushrooms growing our from my carpet and wall and they said they better do the apartment too. To make a long story short, you can feel free to view the links below and also I am attaching my photo albums for your review. The news videos have a link to watch the actual clips from ABC Action News which tell the whole story. You will need to click on the little red " watch video " box below the picture in the upper right corner of each link. I am including the photoalbum links below my name. 1. 11/02/03 _Complex mum as mold drives tenants from apartments_ (http://www.wfts.com/stories/2003/11/031103mold.shtml) 2. 11/03/03 _Upscale complex ordered to clean mold out of apartments_ (http://www.wfts.com/stories/2003/11/031103mold2.shtml) 3. 11/04/03 _Whistleblower tenant being evicted from upscale apartments_ (http://www.wfts.com/stories/2003/11/031104mold.shtml) All in all, the owners refuse any responsibility whatsoever. I was forced into getting an attorney in Tampa to help me hopefully someday recover my losses (which includes a $8900.00 hotel bill from living out of a hotel for 4 months. I had to leave everything behind due to the enormous contamination issues. ServPro did a pack out to their warehouse and the stuff is still with them and the bill is $21,000. and still counting. I am treating with Dr. in Spring TX who can definitely help you with all your lung issues and the lump in your neck. If you are closer to land, Dr. RItchie Shoemaker is the BEST in this field also. Either way, you can't go wrong with either physician and I suggest you get an attorney immediately! Until there are laws and regulations regarding MOLD, we have no recourse other than to file suits to protect ourselves. My prayers and thorughts are with you. Take care. Feel free to email my anytime at: _staceylynn7777@..._ (mailto:staceylynn7777@...) Yours in Health, Stacey in Florida PHOTOALBUM LINKS - TOTAL 8: Photo Album: 1 – LV Property Shots, Remediation _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1032e467_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1032e467) Photo Album: 2 – Garage C, Bldg. 7 – Mold Damage _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cca401_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cca401) Photo Album: 3 – “The Hole†Culprit to inside BR wall _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cb2536_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cb2536) Photo Album: 4 – Pavey Mold Apt. 1218 & Misc. _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11c2a40f_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11c2a40f) Photo Album: 5 – Mold Apt. 212 _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11df2522_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11df2522) Photo Album: 6 – Inside Bedroom Wall, Apt. 1218 _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1038e46d_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1038e46d) Photo Album: 7 – Skin Fungus Problems, Stacey’s Back _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1039655c_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1039655c) Photo Album: 8 – Mold inside Wall Apt. 1218 – LV Cover Up/Hiding _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1020e475_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1020e475) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Diane. Hello. My name is Stacey and I live in southwest Florida. I used to live in a five year old, upscale apartment complex. After three years of living in the apartment I had health problems mounting up beyond belief. My biggest issue was that I could not breathe. I literally felt like I was suffocating to death. I had headaches so bad I think a gunshot to the head would have been easier to deal with at the time along with many many other health complications...all at the ripe old age of 31 through 34. No doctor anywhere could tell me anything around here other than I probably was going through to much stress and experiencing anxiety which they said was the reason I could not breathe. Then my second garage used for storage filled up with mold 3 inches thick including the inside of my car. This was caused by a leak in the apartment above the garage. I hired inspectors for the garage and when they arrived, they asked me if I was experiencing any health problems. I asked them if they had a couple of weeks to listen and they asked me if I had ever had any leaks in my apartment. I told them about the mushrooms growing our from my carpet and wall and they said they better do the apartment too. To make a long story short, you can feel free to view the links below and also I am attaching my photo albums for your review. The news videos have a link to watch the actual clips from ABC Action News which tell the whole story. You will need to click on the little red " watch video " box below the picture in the upper right corner of each link. I am including the photoalbum links below my name. 1. 11/02/03 _Complex mum as mold drives tenants from apartments_ (http://www.wfts.com/stories/2003/11/031103mold.shtml) 2. 11/03/03 _Upscale complex ordered to clean mold out of apartments_ (http://www.wfts.com/stories/2003/11/031103mold2.shtml) 3. 11/04/03 _Whistleblower tenant being evicted from upscale apartments_ (http://www.wfts.com/stories/2003/11/031104mold.shtml) All in all, the owners refuse any responsibility whatsoever. I was forced into getting an attorney in Tampa to help me hopefully someday recover my losses (which includes a $8900.00 hotel bill from living out of a hotel for 4 months. I had to leave everything behind due to the enormous contamination issues. ServPro did a pack out to their warehouse and the stuff is still with them and the bill is $21,000. and still counting. I am treating with Dr. in Spring TX who can definitely help you with all your lung issues and the lump in your neck. If you are closer to land, Dr. RItchie Shoemaker is the BEST in this field also. Either way, you can't go wrong with either physician and I suggest you get an attorney immediately! Until there are laws and regulations regarding MOLD, we have no recourse other than to file suits to protect ourselves. My prayers and thorughts are with you. Take care. Feel free to email my anytime at: _staceylynn7777@..._ (mailto:staceylynn7777@...) Yours in Health, Stacey in Florida PHOTOALBUM LINKS - TOTAL 8: Photo Album: 1 – LV Property Shots, Remediation _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1032e467_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1032e467) Photo Album: 2 – Garage C, Bldg. 7 – Mold Damage _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cca401_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cca401) Photo Album: 3 – “The Hole†Culprit to inside BR wall _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cb2536_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11cb2536) Photo Album: 4 – Pavey Mold Apt. 1218 & Misc. _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11c2a40f_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11c2a40f) Photo Album: 5 – Mold Apt. 212 _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11df2522_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e11df2522) Photo Album: 6 – Inside Bedroom Wall, Apt. 1218 _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1038e46d_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1038e46d) Photo Album: 7 – Skin Fungus Problems, Stacey’s Back _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1039655c_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1039655c) Photo Album: 8 – Mold inside Wall Apt. 1218 – LV Cover Up/Hiding _http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1020e475_ (http://www.shutterfly.com/osi.jsp?i=67b0de21b35e1020e475) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Stacey, I looked at some of your photos. Your skin fungus problem -- was that diagnosed as vitiligo? I recently was diagnosed with vitiligo, and it looks similar, but not on my back. Do you have it anywhere else? Mine doesn't itch or anything, it's just a loss of pigment. I can't help but think mine is caused by mold exposure, but there seems to be no way to prove it (at least that's what my doctor says). Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Stacey, I looked at some of your photos. Your skin fungus problem -- was that diagnosed as vitiligo? I recently was diagnosed with vitiligo, and it looks similar, but not on my back. Do you have it anywhere else? Mine doesn't itch or anything, it's just a loss of pigment. I can't help but think mine is caused by mold exposure, but there seems to be no way to prove it (at least that's what my doctor says). Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Hi Bonnie: The skin fungus I had was labeled as " tinea versicolor " by Dr. . After moving out of the apartment and 30 days on Sporanox, it all totally cleared up. I am estatic about that. Yes, it was slowly spreading to my legs and thighs before my diagnosis and treatment. Now it is all gone. I can't believe how much of a mess I was in that apartment. Now that I am out of there, things are much better, but my immune system is trashed and I live with the aftermath each day. He prescribed IVIG therapy for the neuropathy which also rebuilds the immune system, but I do not have insurance. Anyway, thanks for taking a look at the photos. Anything I can do to enlighten others an raise awareness to this devastasting epidemic of mold exposure, I am happy to do. Stacey Quote Link to comment Share on other sites More sharing options...
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