Morquio Syndrome, cochlear implants and migraines

[Guest guest]

Hello:

I am new to this board, my name is Meredith, I am 29 years old, and

have Morquio Syndrome.

My question is this, has anyone had a cochlear implant (CI) done? I

am curious to find out how it went medically. I am profoundly deaf in

my left ear and borderline severe/profound in my right ear. I was born

with some degree of hearing loss (sensorineural) and until about 2

years ago the loss wasn't as significant as it is now.

My ENT said that I would be a candidate for a CI in the near future

when my speech discrimination gets worse. I am mainly asking due to

the anesthesia risks associated with ANY surgery. I do know Ian

had a CI done but do not know how to get in touch with

him or his family.

Also does anyone have headaches so severe that they cause you to

lose movement on one side of the body? I was told I have hemiplegic

migraines by a neurologist, matter of fact I've been in rehab

recovering from it two different times. I get a bad headache on the

right side of my brain and about 1/2 hour later my left side goes

completely numb (arm and leg), this lasts for about 3-4 hours,

afterwards I am very weak and exhausted. I didn't know if anyone knew

if this is common in dwarfism or not. I've had CT and MRI studies done

and nothing has turned up. I'm on medication to control the migraines

and it has helped some.

I had a spinal fusion done in 2001 by Dr. Kopits, so I'm guessing

it's not the C-spine as no doctor has told me otherwise.

Any help on either question is appreciated.

Meredith

- Delaware