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Dear Group,

 

I have seen many references lately regarding the onset of diabetes in this

group.  This worried me.  I work at a top ranked hospital in the US and have had

the opportunity to discuss this with several pulmonary and adrenal docs. Time

and again I have been told that, yes, prednisone can create the onset of

diabetes.  However, they all said that the diabetes is a temporary manifistation

that will disappear once the patient is off the steroids.  I have also looked

online to see what is written by other sources and they are all consistent. 

Hopefully this gives some education that you can discuss with your pulomary

specialists.  Now, if you are somewhat inactive and have weight issues, the type

2 diabetes cannot be blamed on the prednisone. I know steroids can cause

excessive weight and it may be a vicious circle for some.  Hopefully, though,

there is an end to the prednisone with the success of our Xolair injections.

 The brutal fact is

that weight issues are the cause of type 2 diabetes and not the prednisone. 

Sorry for the blunt comment.  I have been on Xolair for about 6 months now and

my improved breathing and health have enabled me to exercise and become more

active. Im 54 and can play tennis, golf and get on the treadmill several times a

week. I feel so much better with the increased activity, greater stamina and

resulting weight loss.  Isnt this what we are trying to accomplish...better

health and better life?  Take advantage of the newfound breathing improvements

and get moving!!  It will make you feel so much better.

 

Mark

From: Ol Wheezy <uca79iii@...>

Subject: [ ] Re: What a week

Date: Monday, May 31, 2010, 5:24 PM

>

> Thanks Ashleigh,

>

> I have a long family history of diabetes but i had nver been diagnosed with

it.  It was expected but I did not know it had arrived.  I am on 20mg Pred for 2

more days and then 10 mg for 4 days.  We'll see how long I can go without it. 

Usually about 6weeks.

>

> I measure my sugar no less than 5x per day.  i am currently on a sliding scale

dose of short acting insulin and 30u of a long lasting.  I actually feel better

than I have in a very long time.  My pulmonologist and internist have worked

togther in the past and should play nice with each other this time as well. 

There is not an endrocrinologist in the area where I live.  I will need to look

in Anchorage.  Thanks!

>  Mike McBride

>

Mike,

Many years on evil candy were responsible for my diabetes. No one in my family

has ever been diabetic that I know of.  My dad must have had a cast iron

pancreas because he was addicted to sugar. It was his staple food and he never

was diabetic. No one in my family ever had to take as much steroids as I have.

Now, 5 years since Xolair took away my need for evil candy, I am STILL

diabetic. I have it under control with diet and pill. I WAS walking 30 minutes

every day till I developed Diabetic Neuropathy in my feet EVEN with a 6.4 A1C. 

grrrrr!

I asked my doctor why I had foot pain even though my Diabetes was under control.

She said:  " Yes your sugars are good however, you are STILL a diabetic. "    I am

taking 150 mg of Lyrica and Metanx twice daily. It helps, but not as good as I

would like.

Not only was evil candy responsible for giving me diabetes, I had pre mature

cataracts,  (My eye adventure stories are long and this is not an eye support

group) and spinal stenosis in my neck so bad that I have had 2 fusion surgeries,

one with a metal plate.

Yes, I am off steroids thanks to Xolair but irreversible damage has been done.

Thanks for letting me vent

Doug

Group founder

------------------------------------

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Hi Mark. Several things can cause diabetes...hereditary, poor eating

haibts, weight esp. around the middle and Im sure there are more. Prednisone

can spike your blood sugar levels and if you dont have diabetes after you go

off your level returns to normal..and yes I have heard that being over weigh

can cause type two diabetes but it is not always the cause....I was diag. in

Oct with type 2 and I am not over weight....it does run in my family and my

poor eating habits prob. rushed it along but it was not becasue of my

weight.

I am on xolair also but do not blame this or prednisone for the cause but

you cant blame being overweight for the reason either..not in all cases. I

have been xolair has helped my asthma also and I am very grateful for

this. jean

On Tue, Jun 1, 2010 at 12:40 PM, mark flash <flash_m@...> wrote:

>

>

> Dear Group,

>

> I have seen many references lately regarding the onset of diabetes in this

> group. This worried me. I work at a top ranked hospital in the US and have

> had the opportunity to discuss this with several pulmonary and adrenal docs.

> Time and again I have been told that, yes, prednisone can create the onset

> of diabetes. However, they all said that the diabetes is a temporary

> manifistation that will disappear once the patient is off the steroids. I

> have also looked online to see what is written by other sources and they are

> all consistent. Hopefully this gives some education that you can discuss

> with your pulomary specialists. Now, if you are somewhat inactive and have

> weight issues, the type 2 diabetes cannot be blamed on the prednisone. I

> know steroids can cause excessive weight and it may be a vicious circle for

> some. Hopefully, though, there is an end to the prednisone with the success

> of our Xolair injections. The brutal fact is

> that weight issues are the cause of type 2 diabetes and not the

> prednisone. Sorry for the blunt comment. I have been on Xolair for about 6

> months now and my improved breathing and health have enabled me to exercise

> and become more active. Im 54 and can play tennis, golf and get on the

> treadmill several times a week. I feel so much better with the increased

> activity, greater stamina and resulting weight loss. Isnt this what we are

> trying to accomplish...better health and better life? Take advantage of the

> newfound breathing improvements and get moving!! It will make you feel so

> much better.

>

> Mark

>

>

>

> From: Ol Wheezy <uca79iii@... <uca79iii%40>>

> Subject: [ ] Re: What a week

> < %40>

> Date: Monday, May 31, 2010, 5:24 PM

>

>

> >

> > Thanks Ashleigh,

> >

> > I have a long family history of diabetes but i had nver been diagnosed

> with it. It was expected but I did not know it had arrived. I am on 20mg

> Pred for 2 more days and then 10 mg for 4 days. We'll see how long I can go

> without it. Usually about 6weeks.

> >

> > I measure my sugar no less than 5x per day. i am currently on a sliding

> scale dose of short acting insulin and 30u of a long lasting. I actually

> feel better than I have in a very long time. My pulmonologist and internist

> have worked togther in the past and should play nice with each other this

> time as well. There is not an endrocrinologist in the area where I live. I

> will need to look in Anchorage. Thanks!

> > Mike McBride

> >

>

> Mike,

>

> Many years on evil candy were responsible for my diabetes. No one in my

> family has ever been diabetic that I know of. My dad must have had a cast

> iron pancreas because he was addicted to sugar. It was his staple food and

> he never was diabetic. No one in my family ever had to take as much steroids

> as I have.

>

> Now, 5 years since Xolair took away my need for evil candy, I am STILL

> diabetic. I have it under control with diet and pill. I WAS walking 30

> minutes every day till I developed Diabetic Neuropathy in my feet EVEN with

> a 6.4 A1C. grrrrr!

>

> I asked my doctor why I had foot pain even though my Diabetes was under

> control. She said: " Yes your sugars are good however, you are STILL a

> diabetic. " I am taking 150 mg of Lyrica and Metanx twice daily. It helps,

> but not as good as I would like.

>

> Not only was evil candy responsible for giving me diabetes, I had pre

> mature cataracts, (My eye adventure stories are long and this is not an eye

> support group) and spinal stenosis in my neck so bad that I have had 2

> fusion surgeries, one with a metal plate.

>

> Yes, I am off steroids thanks to Xolair but irreversible damage has been

> done.

>

> Thanks for letting me vent

>

> Doug

> Group founder

>

> ------------------------------------

>

>

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Guest guest

I have read in several sources that steroid induced diabetes will USUALLY

resolve when the patient stops taking steroids, but NOT ALWAYS, particularly if

the patient has been on steroids for a long time. Unfortunately there are a

number of us in this group who've required steroids for many years. I wonder if

there is sufficient research on the subject as relates to asthmatics in

particular, and not, for instance, patients with cancer who require steroids.

Fortunately I have not had any diabetic symptoms, but I was diagnosed with

osteoporosis and hypertension before my 40th birthday. I have one doctor who

says that my hypertension is not a result of years of steroid use and another

doctor who says that it is. Go figure. But that does make me wonder if doctors

in general know enough about this very helpful, sometimes life-saving,

high-side-effect-profile medication. Between my doctors and Dr.

Ingelfinger, who admits in the book " Coping with Prednisone " that she prescribed

it for years without really understanding the side effects until her sister was

forced to take pred at very high doses for a long period of time, I suspect

there is a lot we- and our doctors- still don't know about prednisone.

I also hope that Xolair will greatly lower all of our dependencies on prednisone

and enable us all to get more exercise. But I know there are many of us in this

group who still need prednisone during bad flares, and a few members who are

still steroid dependent, despite taking Xolair.

Addy

Group co-owner

> >

> > Thanks Ashleigh,

> >

> > I have a long family history of diabetes but i had nver been diagnosed with

it.  It was expected but I did not know it had arrived.  I am on 20mg Pred for 2

more days and then 10 mg for 4 days.  We'll see how long I can go without it. 

Usually about 6weeks.

> >

> > I measure my sugar no less than 5x per day.  i am currently on a sliding

scale dose of short acting insulin and 30u of a long lasting.  I actually feel

better than I have in a very long time.  My pulmonologist and internist have

worked togther in the past and should play nice with each other this time as

well.  There is not an endrocrinologist in the area where I live.  I will need

to look in Anchorage.  Thanks!

> >  Mike McBride

> >

>

>

> Mike,

>

> Many years on evil candy were responsible for my diabetes. No one in my family

has ever been diabetic that I know of.  My dad must have had a cast iron

pancreas because he was addicted to sugar. It was his staple food and he never

was diabetic. No one in my family ever had to take as much steroids as I have.

>

> Now, 5 years since Xolair took away my need for evil candy, I am STILL

> diabetic. I have it under control with diet and pill. I WAS walking 30 minutes

every day till I developed Diabetic Neuropathy in my feet EVEN with a 6.4 A1C. 

grrrrr!

>

> I asked my doctor why I had foot pain even though my Diabetes was under

control. She said:  " Yes your sugars are good however, you are STILL a

diabetic. "    I am taking 150 mg of Lyrica and Metanx twice daily. It helps, but

not as good as I would like.

>

> Not only was evil candy responsible for giving me diabetes, I had pre mature

cataracts,  (My eye adventure stories are long and this is not an eye support

group) and spinal stenosis in my neck so bad that I have had 2 fusion surgeries,

one with a metal plate.

>

> Yes, I am off steroids thanks to Xolair but irreversible damage has been done.

>

> Thanks for letting me vent

>

> Doug

> Group founder

>

>

>

> ------------------------------------

>

>

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Guest guest

This is the sort of thing that worries ME! You may have spoken to doctors, but

you haven't seen every case that comes by. My doctors have told directly that

without the prednisone, I would not be in the shape I am today and I would not

have diabetes. It's darned insulting for you to come in and essentially call me

uneducated because I gained weight on a medication that CAUSES weight gain!

There are many of us here that have far more severe asthma than yours. We have

been on Prednisone for YEARS, not weeks or months. Long-term use of

glucocorticoids changes your fat and cholesterol metabolism. It changes your

sugar metabolism. Gone untreated, as it was in my case, type II diabetes can

become permanent.

It's very nice that you can play tennis now. Let me tell you what my life is

like. I am in constant pain from severe osteoarthritis in my right knee caused

in part by prednisone. I used to be a dancer, but I can't do that anymore. I

walk with a cane, and will do until I can get a knee replacement. As I mentioned

before, I have dynamic airway collapse, which means that the prednisone has

softened my cartilage in my esophagus. If I have an asthma attack, it can close.

If I cough, it can collapse. I have exertion asthma, so I have to be very

careful.

Oh, yes, I'd love to lose weight, and I am, but not being able to exercise as

you would makes it very difficult. So it's not just a matter of getting off my

duff and playing tennis! I hope you go out and enjoy your games and think about

the fact that we're not all as privileged as you are.

Try not to be as judgmental about other people.

--Kitty

> >

> > Thanks Ashleigh,

> >

> > I have a long family history of diabetes but i had nver been diagnosed with

it.  It was expected but I did not know it had arrived.  I am on 20mg Pred for 2

more days and then 10 mg for 4 days.  We'll see how long I can go without it. 

Usually about 6weeks.

> >

> > I measure my sugar no less than 5x per day.  i am currently on a sliding

scale dose of short acting insulin and 30u of a long lasting.  I actually feel

better than I have in a very long time.  My pulmonologist and internist have

worked togther in the past and should play nice with each other this time as

well.  There is not an endrocrinologist in the area where I live.  I will need

to look in Anchorage.  Thanks!

> >  Mike McBride

> >

>

>

> Mike,

>

> Many years on evil candy were responsible for my diabetes. No one in my family

has ever been diabetic that I know of.  My dad must have had a cast iron

pancreas because he was addicted to sugar. It was his staple food and he never

was diabetic. No one in my family ever had to take as much steroids as I have.

>

> Now, 5 years since Xolair took away my need for evil candy, I am STILL

> diabetic. I have it under control with diet and pill. I WAS walking 30 minutes

every day till I developed Diabetic Neuropathy in my feet EVEN with a 6.4 A1C. 

grrrrr!

>

> I asked my doctor why I had foot pain even though my Diabetes was under

control. She said:  " Yes your sugars are good however, you are STILL a

diabetic. "    I am taking 150 mg of Lyrica and Metanx twice daily. It helps, but

not as good as I would like.

>

> Not only was evil candy responsible for giving me diabetes, I had pre mature

cataracts,  (My eye adventure stories are long and this is not an eye support

group) and spinal stenosis in my neck so bad that I have had 2 fusion surgeries,

one with a metal plate.

>

> Yes, I am off steroids thanks to Xolair but irreversible damage has been done.

>

> Thanks for letting me vent

>

> Doug

> Group founder

>

>

>

> ------------------------------------

>

>

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Kitty,

So sorry you reacted that way. Iw as just trying to be informative. I was just

relaying some medical connections between the use of prednisone and the

resultant onset of diabetes...nothing more. This is an informative group and I

was just offering somwe info I received. As to my own asthma, you seemed to jump

to some incredible conclusions based on my " current " level of activity. I have

had asthma most of my life. Both my mother and brother died from asthma. I have

been hospitalized " before " Xolair twice a year. I have had two hip replacemnts

from the affects of steroids. I can relate to a lot of what we all go thru. I've

been blessed with having a good reaction top the 6 months of Xolaire

shots...every 2 weeks of 300mg. Sorry I hit a nerve...just noticed a lot of

comments about theonset of diabetes and researched a bit. I'll try to be a

little more sensitive in the future.

Mark

On Wed Jun 2nd, 2010 11:27 AM EDT Kitty wrote:

>This is the sort of thing that worries ME! You may have spoken to doctors, but

you haven't seen every case that comes by. My doctors have told directly that

without the prednisone, I would not be in the shape I am today and I would not

have diabetes. It's darned insulting for you to come in and essentially call me

uneducated because I gained weight on a medication that CAUSES weight gain!

>

>There are many of us here that have far more severe asthma than yours. We have

been on Prednisone for YEARS, not weeks or months. Long-term use of

glucocorticoids changes your fat and cholesterol metabolism. It changes your

sugar metabolism. Gone untreated, as it was in my case, type II diabetes can

become permanent.

>

>It's very nice that you can play tennis now. Let me tell you what my life is

like. I am in constant pain from severe osteoarthritis in my right knee caused

in part by prednisone. I used to be a dancer, but I can't do that anymore. I

walk with a cane, and will do until I can get a knee replacement. As I mentioned

before, I have dynamic airway collapse, which means that the prednisone has

softened my cartilage in my esophagus. If I have an asthma attack, it can close.

If I cough, it can collapse. I have exertion asthma, so I have to be very

careful.

>

>Oh, yes, I'd love to lose weight, and I am, but not being able to exercise as

you would makes it very difficult. So it's not just a matter of getting off my

duff and playing tennis! I hope you go out and enjoy your games and think about

the fact that we're not all as privileged as you are.

>

>Try not to be as judgmental about other people.

>

>--Kitty

>

>

>> >

>> > Thanks Ashleigh,

>> >

>> > I have a long family history of diabetes but i had nver been diagnosed with

it.  It was expected but I did not know it had arrived.  I am on 20mg Pred for 2

more days and then 10 mg for 4 days.  We'll see how long I can go without it. 

Usually about 6weeks.

>> >

>> > I measure my sugar no less than 5x per day.  i am currently on a sliding

scale dose of short acting insulin and 30u of a long lasting.  I actually feel

better than I have in a very long time.  My pulmonologist and internist have

worked togther in the past and should play nice with each other this time as

well.  There is not an endrocrinologist in the area where I live.  I will need

to look in Anchorage.  Thanks!

>> >  Mike McBride

>> >

>>

>>

>> Mike,

>>

>> Many years on evil candy were responsible for my diabetes. No one in my

family has ever been diabetic that I know of.  My dad must have had a cast iron

pancreas because he was addicted to sugar. It was his staple food and he never

was diabetic. No one in my family ever had to take as much steroids as I have.

>>

>> Now, 5 years since Xolair took away my need for evil candy, I am STILL

>> diabetic. I have it under control with diet and pill. I WAS walking 30

minutes every day till I developed Diabetic Neuropathy in my feet EVEN with a

6.4 A1C.  grrrrr!

>>

>> I asked my doctor why I had foot pain even though my Diabetes was under

control. She said:  " Yes your sugars are good however, you are STILL a

diabetic. "    I am taking 150 mg of Lyrica and Metanx twice daily. It helps, but

not as good as I would like.

>>

>> Not only was evil candy responsible for giving me diabetes, I had pre mature

cataracts,  (My eye adventure stories are long and this is not an eye support

group) and spinal stenosis in my neck so bad that I have had 2 fusion surgeries,

one with a metal plate.

>>

>> Yes, I am off steroids thanks to Xolair but irreversible damage has been

done.

>>

>> Thanks for letting me vent

>>

>> Doug

>> Group founder

>>

>>

>>

>> ------------------------------------

>>

>>

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Kitty,

You obviously did not read my entire comments. I did recognize that steroids can

cause weight gain and can be a vicious circle for some. And, I did not call

anyone uneducated...I was just offering some feedback from the doctors that

treat us. Lastly, I would not be alive if not for the steroids....that's why I

refuse to call it evil candy.

On Wed Jun 2nd, 2010 11:27 AM EDT Kitty wrote:

>This is the sort of thing that worries ME! You may have spoken to doctors, but

you haven't seen every case that comes by. My doctors have told directly that

without the prednisone, I would not be in the shape I am today and I would not

have diabetes. It's darned insulting for you to come in and essentially call me

uneducated because I gained weight on a medication that CAUSES weight gain!

>

>There are many of us here that have far more severe asthma than yours. We have

been on Prednisone for YEARS, not weeks or months. Long-term use of

glucocorticoids changes your fat and cholesterol metabolism. It changes your

sugar metabolism. Gone untreated, as it was in my case, type II diabetes can

become permanent.

>

>It's very nice that you can play tennis now. Let me tell you what my life is

like. I am in constant pain from severe osteoarthritis in my right knee caused

in part by prednisone. I used to be a dancer, but I can't do that anymore. I

walk with a cane, and will do until I can get a knee replacement. As I mentioned

before, I have dynamic airway collapse, which means that the prednisone has

softened my cartilage in my esophagus. If I have an asthma attack, it can close.

If I cough, it can collapse. I have exertion asthma, so I have to be very

careful.

>

>Oh, yes, I'd love to lose weight, and I am, but not being able to exercise as

you would makes it very difficult. So it's not just a matter of getting off my

duff and playing tennis! I hope you go out and enjoy your games and think about

the fact that we're not all as privileged as you are.

>

>Try not to be as judgmental about other people.

>

>--Kitty

>

>

>> >

>> > Thanks Ashleigh,

>> >

>> > I have a long family history of diabetes but i had nver been diagnosed with

it.  It was expected but I did not know it had arrived.  I am on 20mg Pred for 2

more days and then 10 mg for 4 days.  We'll see how long I can go without it. 

Usually about 6weeks.

>> >

>> > I measure my sugar no less than 5x per day.  i am currently on a sliding

scale dose of short acting insulin and 30u of a long lasting.  I actually feel

better than I have in a very long time.  My pulmonologist and internist have

worked togther in the past and should play nice with each other this time as

well.  There is not an endrocrinologist in the area where I live.  I will need

to look in Anchorage.  Thanks!

>> >  Mike McBride

>> >

>>

>>

>> Mike,

>>

>> Many years on evil candy were responsible for my diabetes. No one in my

family has ever been diabetic that I know of.  My dad must have had a cast iron

pancreas because he was addicted to sugar. It was his staple food and he never

was diabetic. No one in my family ever had to take as much steroids as I have.

>>

>> Now, 5 years since Xolair took away my need for evil candy, I am STILL

>> diabetic. I have it under control with diet and pill. I WAS walking 30

minutes every day till I developed Diabetic Neuropathy in my feet EVEN with a

6.4 A1C.  grrrrr!

>>

>> I asked my doctor why I had foot pain even though my Diabetes was under

control. She said:  " Yes your sugars are good however, you are STILL a

diabetic. "    I am taking 150 mg of Lyrica and Metanx twice daily. It helps, but

not as good as I would like.

>>

>> Not only was evil candy responsible for giving me diabetes, I had pre mature

cataracts,  (My eye adventure stories are long and this is not an eye support

group) and spinal stenosis in my neck so bad that I have had 2 fusion surgeries,

one with a metal plate.

>>

>> Yes, I am off steroids thanks to Xolair but irreversible damage has been

done.

>>

>> Thanks for letting me vent

>>

>> Doug

>> Group founder

>>

>>

>>

>> ------------------------------------

>>

>>

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Guest guest

Mark,

The moderators let your original post through because we recognized your attempt

to share information you'd gotten from doctors with whom you've spoken.

That said, a couple of us were very frustrated by a couple of things that you

said or implied in your post, perhaps inadvertently. I appreciate it greatly

that you've recognized a need to be more sensitive in the future.

I think this situation is a good reminder to all of us that it is all too easy

to misinterpret intent in this particular medium. It is also all too easy to

write a message that one assumes will only be taken one way, but which might

easily be taken in a different way.

Addy

Group Co-owner

> >> >

> >> > Saturday night one week ago I went to the ER as my nebs were not cutting

into an attack.  Early Sunday the doc told me he recommended inpatient...my

first admit for asthma.  As they were doing some blood work the doc came in and

asked how long I'd been diabetic.  SURPRISE!  Between the untreatted disease and

the steroids my sugars peaked at 550.  Now down to the mid/upper 100's.  At a

follow up with my doc on Friday he asked if the pulmo who gives me the Xolair

has any other tricks up his sleeve.  He questions the efficacy of the Xolair at

this point.  I went more than 6 months almost symptom free.  Now i am back in

the ER about every 3 months or so with symptoms increasing.

> >> >

> >> > 2 questions:

> >> >

> >> > 1.  Can/Does Xolair stop being as effective and need an increase in the

amount needed?  I am wondering if I can develop a tolerance to the med.

> >> >

> >> > 2.  OT: Any other diabetics here?  How do you balance Prednisone and what

it does to blood sugars?

> >> >

> >> > Thanks in advance.

> >> >

> >> > Mike

> >> >

> >>

> >>

> >>    

> >>

> >> --- In , McBride <mike.dmcbride@>

wrote:

> >> >

> >> > Thanks Ashleigh,

> >> >

> >> > I have a long family history of diabetes but i had nver been diagnosed

with it.  It was expected but I did not know it had arrived.  I am on 20mg Pred

for 2 more days and then 10 mg for 4 days.  We'll see how long I can go without

it.  Usually about 6weeks.

> >> >

> >> > I measure my sugar no less than 5x per day.  i am currently on a sliding

scale dose of short acting insulin and 30u of a long lasting.  I actually feel

better than I have in a very long time.  My pulmonologist and internist have

worked togther in the past and should play nice with each other this time as

well.  There is not an endrocrinologist in the area where I live.  I will need

to look in Anchorage.  Thanks!

> >> >  Mike McBride

> >> >

> >>

> >>

> >> Mike,

> >>

> >> Many years on evil candy were responsible for my diabetes. No one in my

family has ever been diabetic that I know of.  My dad must have had a cast iron

pancreas because he was addicted to sugar. It was his staple food and he never

was diabetic. No one in my family ever had to take as much steroids as I have.

> >>

> >> Now, 5 years since Xolair took away my need for evil candy, I am STILL

> >> diabetic. I have it under control with diet and pill. I WAS walking 30

minutes every day till I developed Diabetic Neuropathy in my feet EVEN with a

6.4 A1C.  grrrrr!

> >>

> >> I asked my doctor why I had foot pain even though my Diabetes was under

control. She said:  " Yes your sugars are good however, you are STILL a

diabetic. "    I am taking 150 mg of Lyrica and Metanx twice daily. It helps, but

not as good as I would like.

> >>

> >> Not only was evil candy responsible for giving me diabetes, I had pre

mature cataracts,  (My eye adventure stories are long and this is not an eye

support group) and spinal stenosis in my neck so bad that I have had 2 fusion

surgeries, one with a metal plate.

> >>

> >> Yes, I am off steroids thanks to Xolair but irreversible damage has been

done.

> >>

> >> Thanks for letting me vent

> >>

> >> Doug

> >> Group founder

> >>

> >>

> >>

> >> ------------------------------------

> >>

> >>

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I re- read Marks comments and saw it as an inspiration - we all know what

prednisone can do to our bodies and we all know it is a necessary evil - but to

hear that someone has success with Xolair and has gotten off of prednisone and

can play tennis and run on a treadmill is inspirational to me - I don't think

his intent was to infer that anyone was lazy - he was just saying that he has

been through the hell of steroids and he's back to tell a great story - being

that I am new and won't have my first shot until June 17th  his post was

exactly what I needed - I don't now enough about prednisone and diabetes - all

I know is when I was on the evil candy I never had sugar or salt and drank my

weight in ounces lemon water everyday - this stopped the weight gain and kept

my sugar levels under control - and trust me I have been on doses of  240 mg -

it took me 8 months to taper down from that.  

 

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Wed, June 2, 2010 3:13:19 PM

Subject: [ ] Re:Increased Diabetes references by group.

 

Mark,

The moderators let your original post through because we recognized your attempt

to share information you'd gotten from doctors with whom you've spoken.

That said, a couple of us were very frustrated by a couple of things that you

said or implied in your post, perhaps inadvertently. I appreciate it greatly

that you've recognized a need to be more sensitive in the future.

I think this situation is a good reminder to all of us that it is all too easy

to misinterpret intent in this particular medium. It is also all too easy to

write a message that one assumes will only be taken one way, but which might

easily be taken in a different way.

Addy

Group Co-owner

> >> >

> >> > Saturday night one week ago I went to the ER as my nebs were not cutting

into an attack.  Early Sunday the doc told me he recommended inpatient...my

first admit for asthma.  As they were doing some blood work the doc came in and

asked how long I'd been diabetic.  SURPRISE!  Between the untreatted disease

and the steroids my sugars peaked at 550.  Now down to the mid/upper 100's. 

At a follow up with my doc on Friday he asked if the pulmo who gives me the

Xolair has any other tricks up his sleeve.  He questions the efficacy of the

Xolair at this point.  I went more than 6 months almost symptom free.  Now i

am back in the ER about every 3 months or so with symptoms increasing.

> >> >

> >> > 2 questions:

> >> >

> >> > 1.  Can/Does Xolair stop being as effective and need an increase in the

amount needed?  I am wondering if I can develop a tolerance to the med.

> >> >

> >> > 2.  OT: Any other diabetics here?  How do you balance Prednisone and

what it does to blood sugars?

> >> >

> >> > Thanks in advance.

> >> >

> >> > Mike

> >> >

> >>

> >>

> >>    

> >>

> >> --- In , McBride <mike.dmcbride@>

wrote:

> >> >

> >> > Thanks Ashleigh,

> >> >

> >> > I have a long family history of diabetes but i had nver been diagnosed

with it.  It was expected but I did not know it had arrived.  I am on 20mg

Pred for 2 more days and then 10 mg for 4 days.  We'll see how long I can go

without it.  Usually about 6weeks.

> >> >

> >> > I measure my sugar no less than 5x per day.  i am currently on a sliding

scale dose of short acting insulin and 30u of a long lasting.  I actually feel

better than I have in a very long time.  My pulmonologist and internist have

worked togther in the past and should play nice with each other this time as

well.  There is not an endrocrinologist in the area where I live.  I will need

to look in Anchorage.  Thanks!

> >> >  Mike McBride

> >> >

> >>

> >>

> >> Mike,

> >>

> >> Many years on evil candy were responsible for my diabetes. No one in my

family has ever been diabetic that I know of.  My dad must have had a cast iron

pancreas because he was addicted to sugar. It was his staple food and he never

was diabetic. No one in my family ever had to take as much steroids as I have.

> >>

> >> Now, 5 years since Xolair took away my need for evil candy, I am STILL

> >> diabetic. I have it under control with diet and pill. I WAS walking 30

minutes every day till I developed Diabetic Neuropathy in my feet EVEN with a

6.4 A1C.  grrrrr!

> >>

> >> I asked my doctor why I had foot pain even though my Diabetes was under

control. She said:  " Yes your sugars are good however, you are STILL a

diabetic. "    I am taking 150 mg of Lyrica and Metanx twice daily. It helps,

but not as good as I would like.

> >>

> >> Not only was evil candy responsible for giving me diabetes, I had pre

mature cataracts,  (My eye adventure stories are long and this is not an eye

support group) and spinal stenosis in my neck so bad that I have had 2 fusion

surgeries, one with a metal plate.

> >>

> >> Yes, I am off steroids thanks to Xolair but irreversible damage has been

done.

> >>

> >> Thanks for letting me vent

> >>

> >> Doug

> >> Group founder

> >>

> >>

> >>

> >> ------------------------------------

> >>

> >>

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