Re: Re: Xolair at age 5?

[Guest guest]

Wow. That's a challenge that I can't even imagine. We carry ie's

travel neb with us whenever we will be more than 10 or 15 minutes from home.

There are some days that he walks into school finishing up a neb treatment

so that he can at least be in the nurse's office before the bell. I suppose

that your mother managed the same way that I do with ie's elemental diet

and airborne food restrictions. She did it because she had to! Still, you

have given me a new perspective -- one that will help me through the next

night that is spent propping and nebbing the boys. (My other son is also

asthmatic.) Thank you!

On Wed, Oct 13, 2010 at 8:54 AM, DougB <uca79iii@...> wrote:

> Bless your heart! I was a terrible asthmatic as a child in the 50's and

> 60's. I wish xolair was available for children then. I saw the pain and

> anguish my mother and dad went through. My mom would take me into the

> bathroom and turn the steam on from the tub to help me.

>

> She would hold me in her arms and rock me to calm me down when the the

> doctor gave me tedral and valium. Back then there were no inhalers for us.

> We took pills.

>

> I know what you are going through and my prayers are for and with you.

>

> Rev. Doug Beasley

> Group founder

>

>

[Guest guest]

Thanks, Pat and ! I have successfully fought insurance companies in

the past, getting coverage for ie's elemental formula in 2008 despite a

clear exclusion in the policy. If nothing else, I know how to create a

paper trail and work my way up the chain of command! The formula fight was

a full-time, year-long battle that took me to the insurance company's

President for initial approval and a VP several times thereafter. The

experience taught me that anything is possible if you stick with it and

learn from previous experience. I just hate to go at it blindly!

To be honest, I think that I've pretty much made my decision. Assuming that

the allergist we see next week agrees with the recommendation, we will begin

the process to request prior authorization. I just don't see what it will

hurt (aside from the insurance company's bottom line) to attempt the

treatment. Even with a lower efficacy than with adults, I still think it's

worth a try. The insurance company assigned us a Personal Assistant in 2009

after a chain of improperly handled requests for information that led us to

select treatments that turned out to be non-covered services. She has

already looked up their policy and it sounds like the only sticking point

will be age.

On Wed, Oct 13, 2010 at 5:04 PM, MommaA <mommaa@...> wrote:

> Kendra,I used to be the head nurse for Xolair at one of the specialty

> pharmacies. 7 years ago I had 18 children I followed. They all were much

> better after about 6 months. One mother had several children. Her

> medication regimen every morning noon & night took up 5-6 hours. She

> personally wrote a note to me thanking me for pushing the MD's and Insurance

> companies to put her children on Xolair. She had her life back & even was

> able to work outside the home for extra money for her family. I can't say

> anything bad about their experiences, I followed them all every month and

> would have known about problems. Ins. Companies did rescind their approvals

> from time to time, but we fought them the best we could. Sounds like your

> little one would greatly benefit. Just my opinion. I'd speak to your

> physicians about any reservations you have and make your own decision.Pat