Re: Re: !!!!HELLLLLLLLLLLLLLLLLP

[Guest guest]

Hi Addy

No, I haven't told Dr. Hill about the dryness... I will call him today.

I'm so afraid he won't give me the Xolair anymore and I'm hoping it's just a

combination of adipex, correctol and bad sinuses. I've read every article

I can get my hands on and see no side effects of dry mouth/throat from

xolair.

I'll keep you all updated on what they find along with how I'm feeling at

the end of the day with no adipex in me. Adipex works wonders in helping

to lose weight... even while on steriods, I've lost over 10 pounds... but

it's not worth the dry mouth/trouble swallowing discomfort!!!! Maybe there is

a reaction between xolair and adipex that isn't yet reported...

If I see improvement after stopping the adipex and feel normal again by

tomorrow, I'll definitely report this to Genetech and Xpansions! They call

me 1X a week to see how I'm progressing!

Thanks so much for your concern... You are all such a blessing to such a

undeserving soul!

Many blessings to all,

In a message dated 3/23/2011 6:30:50 A.M. Eastern Daylight Time,

jamcculloch2@... writes:

, have you reported this to the doc who prescribed your Xolair? I

definitely would. While it's certainly possible that the dry mouth/throat

issue developed due to other medications and only recently appeared, the

swallowing issues you're having are a red flag for me. Talk about this with

your prescribing physician and ask him to make some calls and see if other

physicians have reported this....

Addy

Group co-owner

>

> Alright all...

>

> I have a question for all of you on Xolair. This is the only new

> medication I am on. I've had 2 months worth of injections. The only

other change

> in my medications is that the Coumadin was stopped as of last

monday!.....

> I'm having a major problem right now.

>

> I have no saliva. I am having a VERY difficult time swallowing anything

> at all... even water! When I DO get to eat something... like today for

> example, I ate 1/2 of a piece of fish and it took 3 glasses of water to

get it

> all down. I had to drink with every single bite. This has been going on

> for about 3 months but has recently gotten so bad that I'm eating a bag

of

> halls cough drops every day just to keep my mouth and throat moist.

>

> I don't consider this anaphylaxis as I have no trouble breathing. I do

> feel tightness in my throat but no trouble breathing, no break out in

hives

> or angioedema... just this HORRIBLE dryness in my mouth and throat and

not

> being able to swallow!!!

>

> I went to my GI doctor today and he has scheduled my annual colonoscopy

and

> is going to do an endoscopy at the same time. He tested me today for

> sjogren's syndrome!!! We should have results back by the end of the

week!

> I'm scared to death this won't go away and its making me

> MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

>

> Has anyone else ever had this reaction???? Anyone had this at all???????

> I need some advise as I'm a tad bit overwhelmed, as you can all tell

>

> Much love to all!

>

>

>

>

> In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

> heartabrasions@... writes:

>

>

>

>

> I've only had Xolair for almost a month now but no side effects other

than

> feeling drowsy a little after the 1st injection! Doug, the founder of

this

> group, has been on Xolair for many years. He would be more informative

to

> answering that question. Of course,it raises concerns for me as well as

> I've just started xolair! However, I received 3 weeks of relief so far,

so

> I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

> right now... I can't wait to for Monday to get here!

>

> Did you take Xolair for asthma or for Urticaria? If you took it for

> Urticaria, did you come out of remission? (did you start to break out

> again) and

> if so, what are your treatments now that Xolair has been discontinued?

>

> Wishing you the best,

>

>

>

>

> In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

> _surfingshell@..._ (mailto:surfingshell@...) writes:

>

> CPK levels

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

> [Non-text portions of this message have been removed]

>