Re: !!!!HELLLLLLLLLLLLLLLLLP

[Guest guest]

Alright all...

I have a question for all of you on Xolair. This is the only new

medication I am on. I've had 2 months worth of injections. The only other

change

in my medications is that the Coumadin was stopped as of last monday!.....

I'm having a major problem right now.

I have no saliva. I am having a VERY difficult time swallowing anything

at all... even water! When I DO get to eat something... like today for

example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get it

all down. I had to drink with every single bite. This has been going on

for about 3 months but has recently gotten so bad that I'm eating a bag of

halls cough drops every day just to keep my mouth and throat moist.

I don't consider this anaphylaxis as I have no trouble breathing. I do

feel tightness in my throat but no trouble breathing, no break out in hives

or angioedema... just this HORRIBLE dryness in my mouth and throat and not

being able to swallow!!!

I went to my GI doctor today and he has scheduled my annual colonoscopy and

is going to do an endoscopy at the same time. He tested me today for

sjogren's syndrome!!! We should have results back by the end of the week!

I'm scared to death this won't go away and its making me

MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

Has anyone else ever had this reaction???? Anyone had this at all???????

I need some advise as I'm a tad bit overwhelmed, as you can all tell

Much love to all!

In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

heartabrasions@... writes:

I've only had Xolair for almost a month now but no side effects other than

feeling drowsy a little after the 1st injection! Doug, the founder of this

group, has been on Xolair for many years. He would be more informative to

answering that question. Of course,it raises concerns for me as well as

I've just started xolair! However, I received 3 weeks of relief so far, so

I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

right now... I can't wait to for Monday to get here!

Did you take Xolair for asthma or for Urticaria? If you took it for

Urticaria, did you come out of remission? (did you start to break out

again) and

if so, what are your treatments now that Xolair has been discontinued?

Wishing you the best,

In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

_surfingshell@..._ (mailto:surfingshell@...) writes:

CPK levels

[Non-text portions of this message have been removed]

[Guest guest]

Hi !!!

Thanks much for your reply!!! I'll try to get some OTC stuff tomorrow. I

have lived with an anxiety disorder since this whole mess started 3 years

ago and I do take Xanax regularly! I thought it might be due to anxiety...

but even after I take my xanax, the dryness and trouble swallowing

continues. I can't even swallow food without taking a gazillion drinks of

water!

It was so bad Sunday that I couldn't even swallow the little bit of saliva

I had!

I'm researching right now and it seems as though the Adipex might be the

culprit... I'm only taking 1/2 of a adipex per day to try to get rid of this

prednisone weight... and a major side effect of it is dry mouth. I'm not

going to take one tomorrow and see what happens.....If I see improvement,

I'll stop the darn drug and stay fat... Steriods are awful... and

being overweight due to them is all new to me... but I'll stay this way if the

adipex is what is causing this... it's MISERABLE!!!!

I'm just praying it isn't sjogren's syndrome...

One step at a time... I'm just grateful I don't have hives on top of this

miserable feeling!!!

Thank you so very much!!!

Many blessings,

In a message dated 3/22/2011 8:45:35 P.M. Eastern Daylight Time,

carrie72583@... writes:

, there are some OTC mouthwashes that are good to stimulate saliva

production. They are in the mouthwash aisle. A compounding pharmacy might

be

able to make you losenges you can suck on other than Halls.

Anxiety does make dry mouth worse but if its getting this bad, it is a

good

thing you are being worked up by your GI.

________________________________

From: " _heartabrasions@..._ (mailto:heartabrasions@...) "

<_heartabrasions@..._ (mailto:heartabrasions@...) >

_ _ (mailto: )

Sent: Tue, March 22, 2011 7:04:39 PM

Subject: Re: [ ] !!!!HELLLLLLLLLLLLLLLLLP

Alright all...

I have a question for all of you on Xolair. This is the only new

medication I am on. I've had 2 months worth of injections. The only other

change

in my medications is that the Coumadin was stopped as of last monday!.....

I'm having a major problem right now.

I have no saliva. I am having a VERY difficult time swallowing anything

at all... even water! When I DO get to eat something... like today for

example, I ate 1/2 of a piece of fish and it took 3 glasses of water to

get it

all down. I had to drink with every single bite. This has been going on

for about 3 months but has recently gotten so bad that I'm eating a bag of

halls cough drops every day just to keep my mouth and throat moist.

I don't consider this anaphylaxis as I have no trouble breathing. I do

feel tightness in my throat but no trouble breathing, no break out in

hives

or angioedema... just this HORRIBLE dryness in my mouth and throat and not

being able to swallow!!!

I went to my GI doctor today and he has scheduled my annual colonoscopy

and

is going to do an endoscopy at the same time. He tested me today for

sjogren's syndrome!!! We should have results back by the end of the week!

I'm scared to death this won't go away and its making me

MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

Has anyone else ever had this reaction???? Anyone had this at all???????

I need some advise as I'm a tad bit overwhelmed, as you can all tell

Much love to all!

In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

_heartabrasions@..._ (mailto:heartabrasions@...) writes:

I've only had Xolair for almost a month now but no side effects other than

feeling drowsy a little after the 1st injection! Doug, the founder of this

group, has been on Xolair for many years. He would be more informative to

answering that question. Of course,it raises concerns for me as well as

I've just started xolair! However, I received 3 weeks of relief so far, so

I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

right now... I can't wait to for Monday to get here!

Did you take Xolair for asthma or for Urticaria? If you took it for

Urticaria, did you come out of remission? (did you start to break out

again) and

if so, what are your treatments now that Xolair has been discontinued?

Wishing you the best,

In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

__surfingshell@..._ (mailto:_surfingshell@...) _

(mailto:_surfingshell@..._ (mailto:surfingshell@...) ) writes:

CPK levels

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Thank you, Mark!!!!! I'm hoping it's the adipex.. I've been researching

and see this kind of reaction is a side effect of adipex. I'm stopping it

tomorrow to see if that helps!

Many blessing to you and THANK you for your concern and support!

xo,

In a message dated 3/22/2011 8:47:07 P.M. Eastern Daylight Time,

flash_m@... writes:

,

My heart goes out to you. I hope they find what the problem is...and soon.

I've never heard of this type of reaction from xolair users. Also, you

said that this has been going on for 3 months, but you've only been using

Xolair for 2 months. I'm not a doctor, but the time sequence indicates some

other problem and not Xolair. I hope the test reveal the problem and that its

easily treated. My prayers are with you.

Mark

On Tue Mar 22nd, 2011 7:04 PM EDT _heartabrasions@..._

(mailto:heartabrasions@...) wrote:

>Alright all...

>

>I have a question for all of you on Xolair. This is the only new

>medication I am on. I've had 2 months worth of injections. The only other

change

>in my medications is that the Coumadin was stopped as of last

monday!.....

>I'm having a major problem right now.

>

>I have no saliva. I am having a VERY difficult time swallowing anything

>at all... even water! When I DO get to eat something... like today for

>example, I ate 1/2 of a piece of fish and it took 3 glasses of water to

get it

>all down. I had to drink with every single bite. This has been going on

>for about 3 months but has recently gotten so bad that I'm eating a bag

of

>halls cough drops every day just to keep my mouth and throat moist.

>

>I don't consider this anaphylaxis as I have no trouble breathing. I do

>feel tightness in my throat but no trouble breathing, no break out in

hives

>or angioedema... just this HORRIBLE dryness in my mouth and throat and

not

>being able to swallow!!!

>

>I went to my GI doctor today and he has scheduled my annual colonoscopy

and

> is going to do an endoscopy at the same time. He tested me today for

>sjogren's syndrome!!! We should have results back by the end of the week!

>I'm scared to death this won't go away and its making me

>MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

>

>Has anyone else ever had this reaction???? Anyone had this at all???????

>I need some advise as I'm a tad bit overwhelmed, as you can all tell

>

>Much love to all!

>

>

>

>

>In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

>_heartabrasions@..._ (mailto:heartabrasions@...) writes:

>

>

>

>

>I've only had Xolair for almost a month now but no side effects other

than

>feeling drowsy a little after the 1st injection! Doug, the founder of

this

>group, has been on Xolair for many years. He would be more informative to

>answering that question. Of course,it raises concerns for me as well as

>I've just started xolair! However, I received 3 weeks of relief so far,

so

>I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

>right now... I can't wait to for Monday to get here!

>

>Did you take Xolair for asthma or for Urticaria? If you took it for

>Urticaria, did you come out of remission? (did you start to break out

>again) and

>if so, what are your treatments now that Xolair has been discontinued?

>

>Wishing you the best,

>

>

>

>

>In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

>__surfingshell@..._ (mailto:_surfingshell@...) _

(mailto:_surfingshell@..._ (mailto:surfingshell@...) ) writes:

>

>CPK levels

>

>[Non-text portions of this message have been removed]

>

>

>

>

>

>[Non-text portions of this message have been removed]

>

>

>

>------------------------------------

>

> Groups Links

>

>

>

[Guest guest]

Good for you, Suzanne!! I'm going to take my sugar test right now! My dad

is a diabetic and we've always been scared I'd become diabetic after 3

years of steroids... however, my sugar is always low... I'm going to check it

to see what it is!

Thanks for the support!!!! So, SO very glad you're doing so well....

Many Blessings,

In a message dated 3/22/2011 8:47:35 P.M. Eastern Daylight Time,

SuzFisher@... writes:

I have been having very severe dry mouth for a few months. I have been on

Xolair for over 7 1/2 years. I was going through all types of tests

including tests for Sjogrens. Three weeks ago I found out that I am diabetic.

My

blood sugars were in the 550's and now they have come down to just under 200.

As my numbers have been dropping I have noticed that my mouth is moister

and it is easier to swallow. I still use a dry mouth spray that contains

glycerin which helps a lot. I am hoping by the time I get in the normal range

I will greatly improve. I was not surprised I have diabetes as I have to

take massive amounts of steroids when cedar pollen is in the air and other

wonderful pollens. I am breathing so MUCH better on Xolair - in fact we are

getting ready to go play racquetball right now.

Suzanne

-----Original Message-----

From: _heartabrasions@..._ (mailto:heartabrasions@...)

_ _ (mailto: )

Sent: Tue, Mar 22, 2011 6:04 pm

Subject: Re: [ ] !!!!HELLLLLLLLLLLLLLLLLP

Alright all...

I have a question for all of you on Xolair. This is the only new

medication I am on. I've had 2 months worth of injections. The only other

change

in my medications is that the Coumadin was stopped as of last monday!.....

I'm having a major problem right now.

I have no saliva. I am having a VERY difficult time swallowing anything

at all... even water! When I DO get to eat something... like today for

example, I ate 1/2 of a piece of fish and it took 3 glasses of water to

get it

all down. I had to drink with every single bite. This has been going on

for about 3 months but has recently gotten so bad that I'm eating a bag of

halls cough drops every day just to keep my mouth and throat moist.

I don't consider this anaphylaxis as I have no trouble breathing. I do

feel tightness in my throat but no trouble breathing, no break out in

hives

or angioedema... just this HORRIBLE dryness in my mouth and throat and not

being able to swallow!!!

I went to my GI doctor today and he has scheduled my annual colonoscopy

and

is going to do an endoscopy at the same time. He tested me today for

sjogren's syndrome!!! We should have results back by the end of the week!

I'm scared to death this won't go away and its making me

MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

Has anyone else ever had this reaction???? Anyone had this at all???????

I need some advise as I'm a tad bit overwhelmed, as you can all tell

Much love to all!

In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

_heartabrasions@..._ (mailto:heartabrasions@...) writes:

I've only had Xolair for almost a month now but no side effects other than

feeling drowsy a little after the 1st injection! Doug, the founder of this

group, has been on Xolair for many years. He would be more informative to

answering that question. Of course,it raises concerns for me as well as

I've just started xolair! However, I received 3 weeks of relief so far, so

I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

right now... I can't wait to for Monday to get here!

Did you take Xolair for asthma or for Urticaria? If you took it for

Urticaria, did you come out of remission? (did you start to break out

again) and

if so, what are your treatments now that Xolair has been discontinued?

Wishing you the best,

In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

__surfingshell@..._ (mailto:_surfingshell@...) _

(mailto:_surfingshell@..._ (mailto:surfingshell@...) ) writes:

CPK levels

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

,

My heart goes out to you. I hope they find what the problem is...and soon. I've

never heard of this type of reaction from xolair users. Also, you said that this

has been going on for 3 months, but you've only been using Xolair for 2 months.

I'm not a doctor, but the time sequence indicates some other problem and not

Xolair. I hope the test reveal the problem and that its easily treated. My

prayers are with you.

Mark

On Tue Mar 22nd, 2011 7:04 PM EDT heartabrasions@... wrote:

>Alright all...

>

>I have a question for all of you on Xolair. This is the only new

>medication I am on. I've had 2 months worth of injections. The only other

change

>in my medications is that the Coumadin was stopped as of last monday!.....

>I'm having a major problem right now.

>

>I have no saliva. I am having a VERY difficult time swallowing anything

>at all... even water! When I DO get to eat something... like today for

>example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get it

>all down. I had to drink with every single bite. This has been going on

>for about 3 months but has recently gotten so bad that I'm eating a bag of

>halls cough drops every day just to keep my mouth and throat moist.

>

>I don't consider this anaphylaxis as I have no trouble breathing. I do

>feel tightness in my throat but no trouble breathing, no break out in hives

>or angioedema... just this HORRIBLE dryness in my mouth and throat and not

>being able to swallow!!!

>

>I went to my GI doctor today and he has scheduled my annual colonoscopy and

> is going to do an endoscopy at the same time. He tested me today for

>sjogren's syndrome!!! We should have results back by the end of the week!

>I'm scared to death this won't go away and its making me

>MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

>

>Has anyone else ever had this reaction???? Anyone had this at all???????

>I need some advise as I'm a tad bit overwhelmed, as you can all tell

>

>Much love to all!

>

>

>

>

>In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

>heartabrasions@... writes:

>

>

>

>

>I've only had Xolair for almost a month now but no side effects other than

>feeling drowsy a little after the 1st injection! Doug, the founder of this

>group, has been on Xolair for many years. He would be more informative to

>answering that question. Of course,it raises concerns for me as well as

>I've just started xolair! However, I received 3 weeks of relief so far, so

>I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

>right now... I can't wait to for Monday to get here!

>

>Did you take Xolair for asthma or for Urticaria? If you took it for

>Urticaria, did you come out of remission? (did you start to break out

>again) and

>if so, what are your treatments now that Xolair has been discontinued?

>

>Wishing you the best,

>

>

>

>

>In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

>_surfingshell@..._ (mailto:surfingshell@...) writes:

>

>CPK levels

>

>[Non-text portions of this message have been removed]

>

>

>

>

>

>

[Guest guest]

I have been having very severe dry mouth for a few months. I have been on

Xolair for over 7 1/2 years. I was going through all types of tests including

tests for Sjogrens. Three weeks ago I found out that I am diabetic. My blood

sugars were in the 550's and now they have come down to just under 200. As my

numbers have been dropping I have noticed that my mouth is moister and it is

easier to swallow. I still use a dry mouth spray that contains glycerin which

helps a lot. I am hoping by the time I get in the normal range I will greatly

improve. I was not surprised I have diabetes as I have to take massive amounts

of steroids when cedar pollen is in the air and other wonderful pollens. I am

breathing so MUCH better on Xolair - in fact we are getting ready to go play

racquetball right now.

Suzanne

-----Original Message-----

From: heartabrasions@...

Sent: Tue, Mar 22, 2011 6:04 pm

Subject: Re: [ ] !!!!HELLLLLLLLLLLLLLLLLP

Alright all...

I have a question for all of you on Xolair. This is the only new

medication I am on. I've had 2 months worth of injections. The only other

change

in my medications is that the Coumadin was stopped as of last monday!.....

I'm having a major problem right now.

I have no saliva. I am having a VERY difficult time swallowing anything

at all... even water! When I DO get to eat something... like today for

example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get it

all down. I had to drink with every single bite. This has been going on

for about 3 months but has recently gotten so bad that I'm eating a bag of

halls cough drops every day just to keep my mouth and throat moist.

I don't consider this anaphylaxis as I have no trouble breathing. I do

feel tightness in my throat but no trouble breathing, no break out in hives

or angioedema... just this HORRIBLE dryness in my mouth and throat and not

being able to swallow!!!

I went to my GI doctor today and he has scheduled my annual colonoscopy and

is going to do an endoscopy at the same time. He tested me today for

sjogren's syndrome!!! We should have results back by the end of the week!

I'm scared to death this won't go away and its making me

MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

Has anyone else ever had this reaction???? Anyone had this at all???????

I need some advise as I'm a tad bit overwhelmed, as you can all tell

Much love to all!

In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

heartabrasions@... writes:

I've only had Xolair for almost a month now but no side effects other than

feeling drowsy a little after the 1st injection! Doug, the founder of this

group, has been on Xolair for many years. He would be more informative to

answering that question. Of course,it raises concerns for me as well as

I've just started xolair! However, I received 3 weeks of relief so far, so

I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

right now... I can't wait to for Monday to get here!

Did you take Xolair for asthma or for Urticaria? If you took it for

Urticaria, did you come out of remission? (did you start to break out

again) and

if so, what are your treatments now that Xolair has been discontinued?

Wishing you the best,

In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

_surfingshell@..._ (mailto:surfingshell@...) writes:

CPK levels

[Non-text portions of this message have been removed]

[Guest guest]

, there are some OTC mouthwashes that are good to stimulate saliva

production. They are in the mouthwash aisle. A compounding pharmacy might be

able to make you losenges you can suck on other than Halls.

Anxiety does make dry mouth worse but if its getting this bad, it is a good

thing you are being worked up by your GI.

________________________________

From: " heartabrasions@... " <heartabrasions@...>

Sent: Tue, March 22, 2011 7:04:39 PM

Subject: Re: [ ] !!!!HELLLLLLLLLLLLLLLLLP

Alright all...

I have a question for all of you on Xolair. This is the only new

medication I am on. I've had 2 months worth of injections. The only other

change

in my medications is that the Coumadin was stopped as of last monday!.....

I'm having a major problem right now.

I have no saliva. I am having a VERY difficult time swallowing anything

at all... even water! When I DO get to eat something... like today for

example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get it

all down. I had to drink with every single bite. This has been going on

for about 3 months but has recently gotten so bad that I'm eating a bag of

halls cough drops every day just to keep my mouth and throat moist.

I don't consider this anaphylaxis as I have no trouble breathing. I do

feel tightness in my throat but no trouble breathing, no break out in hives

or angioedema... just this HORRIBLE dryness in my mouth and throat and not

being able to swallow!!!

I went to my GI doctor today and he has scheduled my annual colonoscopy and

is going to do an endoscopy at the same time. He tested me today for

sjogren's syndrome!!! We should have results back by the end of the week!

I'm scared to death this won't go away and its making me

MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

Has anyone else ever had this reaction???? Anyone had this at all???????

I need some advise as I'm a tad bit overwhelmed, as you can all tell

Much love to all!

In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

heartabrasions@... writes:

I've only had Xolair for almost a month now but no side effects other than

feeling drowsy a little after the 1st injection! Doug, the founder of this

group, has been on Xolair for many years. He would be more informative to

answering that question. Of course,it raises concerns for me as well as

I've just started xolair! However, I received 3 weeks of relief so far, so

I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

right now... I can't wait to for Monday to get here!

Did you take Xolair for asthma or for Urticaria? If you took it for

Urticaria, did you come out of remission? (did you start to break out

again) and

if so, what are your treatments now that Xolair has been discontinued?

Wishing you the best,

In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

_surfingshell@..._ (mailto:surfingshell@...) writes:

CPK levels

[Non-text portions of this message have been removed]

[Guest guest]

, I've been taking the max dose of Xolair for many years now and I do

have a mouth problem at night but I really think it's due to a long list of

other meds I take, many which have dry mouth listed as a side effect.

I keep a couple bags of Halls next to my bed and suck on one or two drops a

night. And most importantly, I have a bottle of water sitting next to my bed,

also to be taken as needed, and I usually go through about 16 ounces a night.

Years ago, because of dry mouth at night, I was having a lot of dental problems.

As my dentist explained, the tooth decay bacteria have a feast in your mouth

when saliva flow is poor. So my teeth were rotting out. The solution was to

get serious about flossing which was made easy with those inexpensive little

floss sticks from the drug store or Walmarts and when I started flossing daily

(and of coarse brushing daily) the tooth rot problem totally vanished.

Once again, I want to emphasize that I can't link my dry mouth at night to

Xolair, but suspect the problem is rather due to other drugs like Advair,

Spiriva, Zyrtec, Uniphyl, Triamterenze (diuretic for swollen legs, designed to

dry you up), etc.

Ohhhh, and the really big reason for the dry mouth at night is that my sinuses

swell shut at night for reasons unknown (but probably allergies) so I find

myself breathing through my open mouth and you better believe that's going to

cause a dry mouth, especially in winter when the humidity is low. So for that I

take one inexpensive " behind the counter " pseudofed and when it kicks in after a

few moments I sleep like a baby for five hours, with my mouth closed.

Well, I hope I've helped you , and my first advice is to look outside of

Xolair to see if there are things causing your dry mouth.

>

> Alright all...

>

> I have a question for all of you on Xolair. This is the only new

> medication I am on. I've had 2 months worth of injections. The only other

change

> in my medications is that the Coumadin was stopped as of last monday!.....

> I'm having a major problem right now.

>

> I have no saliva. I am having a VERY difficult time swallowing anything

> at all... even water! When I DO get to eat something... like today for

> example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get

it

> all down. I had to drink with every single bite. This has been going on

> for about 3 months but has recently gotten so bad that I'm eating a bag of

> halls cough drops every day just to keep my mouth and throat moist.

>

> I don't consider this anaphylaxis as I have no trouble breathing. I do

> feel tightness in my throat but no trouble breathing, no break out in hives

> or angioedema... just this HORRIBLE dryness in my mouth and throat and not

> being able to swallow!!!

>

> I went to my GI doctor today and he has scheduled my annual colonoscopy and

> is going to do an endoscopy at the same time. He tested me today for

> sjogren's syndrome!!! We should have results back by the end of the week!

> I'm scared to death this won't go away and its making me

> MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

>

> Has anyone else ever had this reaction???? Anyone had this at all???????

> I need some advise as I'm a tad bit overwhelmed, as you can all tell

>

> Much love to all!

>

>

>

>

> In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

> heartabrasions@... writes:

>

>

>

>

> I've only had Xolair for almost a month now but no side effects other than

> feeling drowsy a little after the 1st injection! Doug, the founder of this

> group, has been on Xolair for many years. He would be more informative to

> answering that question. Of course,it raises concerns for me as well as

> I've just started xolair! However, I received 3 weeks of relief so far, so

> I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

> right now... I can't wait to for Monday to get here!

>

> Did you take Xolair for asthma or for Urticaria? If you took it for

> Urticaria, did you come out of remission? (did you start to break out

> again) and

> if so, what are your treatments now that Xolair has been discontinued?

>

> Wishing you the best,

>

>

>

>

> In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

> _surfingshell@..._ (mailto:surfingshell@...) writes:

>

> CPK levels

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

[Guest guest]

, have you reported this to the doc who prescribed your Xolair? I

definitely would. While it's certainly possible that the dry mouth/throat issue

developed due to other medications and only recently appeared, the swallowing

issues you're having are a red flag for me. Talk about this with your

prescribing physician and ask him to make some calls and see if other physicians

have reported this....

Addy

Group co-owner

>

> Alright all...

>

> I have a question for all of you on Xolair. This is the only new

> medication I am on. I've had 2 months worth of injections. The only other

change

> in my medications is that the Coumadin was stopped as of last monday!.....

> I'm having a major problem right now.

>

> I have no saliva. I am having a VERY difficult time swallowing anything

> at all... even water! When I DO get to eat something... like today for

> example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get

it

> all down. I had to drink with every single bite. This has been going on

> for about 3 months but has recently gotten so bad that I'm eating a bag of

> halls cough drops every day just to keep my mouth and throat moist.

>

> I don't consider this anaphylaxis as I have no trouble breathing. I do

> feel tightness in my throat but no trouble breathing, no break out in hives

> or angioedema... just this HORRIBLE dryness in my mouth and throat and not

> being able to swallow!!!

>

> I went to my GI doctor today and he has scheduled my annual colonoscopy and

> is going to do an endoscopy at the same time. He tested me today for

> sjogren's syndrome!!! We should have results back by the end of the week!

> I'm scared to death this won't go away and its making me

> MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

>

> Has anyone else ever had this reaction???? Anyone had this at all???????

> I need some advise as I'm a tad bit overwhelmed, as you can all tell

>

> Much love to all!

>

>

>

>

> In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

> heartabrasions@... writes:

>

>

>

>

> I've only had Xolair for almost a month now but no side effects other than

> feeling drowsy a little after the 1st injection! Doug, the founder of this

> group, has been on Xolair for many years. He would be more informative to

> answering that question. Of course,it raises concerns for me as well as

> I've just started xolair! However, I received 3 weeks of relief so far, so

> I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

> right now... I can't wait to for Monday to get here!

>

> Did you take Xolair for asthma or for Urticaria? If you took it for

> Urticaria, did you come out of remission? (did you start to break out

> again) and

> if so, what are your treatments now that Xolair has been discontinued?

>

> Wishing you the best,

>

>

>

>

> In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

> _surfingshell@..._ (mailto:surfingshell@...) writes:

>

> CPK levels

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

[Guest guest]

This is interesting to me. I am waking at night on a more frequent basis with a

mouth that is absolutely bone dry. I am not on any of the meds listed below,

although some are probably similar. I use Q-Var, Symbicort, Ventolin,

Albueterol (neb), 2 blood pressure pills, Lasix for edema, Imdur (slow acting

nitro) amd a potassium pill. I sleep with a CPAP and don't breathe through my

mouth at night anymore. I see the pulmo in a few days and had planned on asking

him about the dry mouth.

Mike McBride

Like the apple of Thine eye preserve me, O Lord God; defend me and beneath Thy

wings shelter me from temptations.

St. Ephraim the Syrian

________________________________

From: mister_manganese <barryb@...>

Sent: Tue, March 22, 2011 9:46:37 PM

Subject: [ ] Re: !!!!HELLLLLLLLLLLLLLLLLP

, I've been taking the max dose of Xolair for many years now and I do

have a mouth problem at night but I really think it's due to a long list of

other meds I take, many which have dry mouth listed as a side effect.

I keep a couple bags of Halls next to my bed and suck on one or two drops a

night. And most importantly, I have a bottle of water sitting next to my bed,

also to be taken as needed, and I usually go through about 16 ounces a night.

Years ago, because of dry mouth at night, I was having a lot of dental problems.

As my dentist explained, the tooth decay bacteria have a feast in your mouth

when saliva flow is poor. So my teeth were rotting out. The solution was to

get serious about flossing which was made easy with those inexpensive little

floss sticks from the drug store or Walmarts and when I started flossing daily

(and of coarse brushing daily) the tooth rot problem totally vanished.

Once again, I want to emphasize that I can't link my dry mouth at night to

Xolair, but suspect the problem is rather due to other drugs like Advair,

Spiriva, Zyrtec, Uniphyl, Triamterenze (diuretic for swollen legs, designed to

dry you up), etc.

Ohhhh, and the really big reason for the dry mouth at night is that my sinuses

swell shut at night for reasons unknown (but probably allergies) so I find

myself breathing through my open mouth and you better believe that's going to

cause a dry mouth, especially in winter when the humidity is low. So for that I

take one inexpensive " behind the counter " pseudofed and when it kicks in after a

few moments I sleep like a baby for five hours, with my mouth closed.

Well, I hope I've helped you , and my first advice is to look outside of

Xolair to see if there are things causing your dry mouth.

>

> Alright all...

>

> I have a question for all of you on Xolair. This is the only new

> medication I am on. I've had 2 months worth of injections. The only other

>change

>

> in my medications is that the Coumadin was stopped as of last monday!.....

> I'm having a major problem right now.

>

> I have no saliva. I am having a VERY difficult time swallowing anything

> at all... even water! When I DO get to eat something... like today for

> example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get

it

>

> all down. I had to drink with every single bite. This has been going on

> for about 3 months but has recently gotten so bad that I'm eating a bag of

> halls cough drops every day just to keep my mouth and throat moist.

>

> I don't consider this anaphylaxis as I have no trouble breathing. I do

> feel tightness in my throat but no trouble breathing, no break out in hives

> or angioedema... just this HORRIBLE dryness in my mouth and throat and not

> being able to swallow!!!

>

> I went to my GI doctor today and he has scheduled my annual colonoscopy and

> is going to do an endoscopy at the same time. He tested me today for

> sjogren's syndrome!!! We should have results back by the end of the week!

> I'm scared to death this won't go away and its making me

> MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

>

> Has anyone else ever had this reaction???? Anyone had this at all???????

> I need some advise as I'm a tad bit overwhelmed, as you can all tell

>

> Much love to all!

>

>

>

>

> In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

> heartabrasions@... writes:

>

>

>

>

> I've only had Xolair for almost a month now but no side effects other than

> feeling drowsy a little after the 1st injection! Doug, the founder of this

> group, has been on Xolair for many years. He would be more informative to

> answering that question. Of course,it raises concerns for me as well as

> I've just started xolair! However, I received 3 weeks of relief so far, so

> I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

> right now... I can't wait to for Monday to get here!

>

> Did you take Xolair for asthma or for Urticaria? If you took it for

> Urticaria, did you come out of remission? (did you start to break out

> again) and

> if so, what are your treatments now that Xolair has been discontinued?

>

> Wishing you the best,

>

>

>

>

> In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

> _surfingshell@..._ (mailto:surfingshell@...) writes:

>

> CPK levels

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

[Guest guest]

One other thing that helps me in a big way when I get dry mouth is to pig out on

some tasty Jalapeno peppers, like in a can, from La Costena I think (get them in

the Spanish aisle at the grocery store). And I make some Jalapeno hummus too,

spread on some low calorie crackers. The Jalapeno peppers get the saliva

flowing really good and it lasts for quite a while.

>

> Alright all...

>

> I have a question for all of you on Xolair. This is the only new

> medication I am on. I've had 2 months worth of injections. The only other

change

> in my medications is that the Coumadin was stopped as of last monday!.....

> I'm having a major problem right now.

>

> I have no saliva. I am having a VERY difficult time swallowing anything

> at all... even water! When I DO get to eat something... like today for

> example, I ate 1/2 of a piece of fish and it took 3 glasses of water to get

it

> all down. I had to drink with every single bite. This has been going on

> for about 3 months but has recently gotten so bad that I'm eating a bag of

> halls cough drops every day just to keep my mouth and throat moist.

>

> I don't consider this anaphylaxis as I have no trouble breathing. I do

> feel tightness in my throat but no trouble breathing, no break out in hives

> or angioedema... just this HORRIBLE dryness in my mouth and throat and not

> being able to swallow!!!

>

> I went to my GI doctor today and he has scheduled my annual colonoscopy and

> is going to do an endoscopy at the same time. He tested me today for

> sjogren's syndrome!!! We should have results back by the end of the week!

> I'm scared to death this won't go away and its making me

> MISERABLE!!!!!!!!!!!!!!!!!!!! Not being able to swallow is so scary.

>

> Has anyone else ever had this reaction???? Anyone had this at all???????

> I need some advise as I'm a tad bit overwhelmed, as you can all tell

>

> Much love to all!

>

>

>

>

> In a message dated 3/11/2011 8:45:21 A.M. Eastern Standard Time,

> heartabrasions@... writes:

>

>

>

>

> I've only had Xolair for almost a month now but no side effects other than

> feeling drowsy a little after the 1st injection! Doug, the founder of this

> group, has been on Xolair for many years. He would be more informative to

> answering that question. Of course,it raises concerns for me as well as

> I've just started xolair! However, I received 3 weeks of relief so far, so

> I'm HAPPY!! My next injections are Monday and I'm hiving and swelling

> right now... I can't wait to for Monday to get here!

>

> Did you take Xolair for asthma or for Urticaria? If you took it for

> Urticaria, did you come out of remission? (did you start to break out

> again) and

> if so, what are your treatments now that Xolair has been discontinued?

>

> Wishing you the best,

>

>

>

>

> In a message dated 3/10/2011 9:01:29 P.M. Eastern Standard Time,

> _surfingshell@..._ (mailto:surfingshell@...) writes:

>

> CPK levels

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

[Guest guest]

>

>

> One other thing that helps me in a big way when I get dry mouth is to pig out

on some tasty Jalapeno peppers, like in a can, from La Costena I think (get them

in the Spanish aisle at the grocery store). And I make some Jalapeno hummus

too, spread on some low calorie crackers. The Jalapeno peppers get the saliva

flowing really good and it lasts for quite a while.

>

>

And then they roast marshmellows on your breath for desert? LOL