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Hi Georgina,

I'm happy to hear that Josh had not to much problems with his first

injection of Methotrexate. Sammy hates any kind of needles and I just can

not see, how we can drag her weekly to the injections or do this even

ourself, if we have to face a big fuss. The monthly blood examinations are

more than we can handle sometimes. She kicks and screams of top of her

lungs and we have to hold her till it is over usually. So your informations

has assured us, that this might be easier, than we think.

Otherwise, I am reading through all your infos and would like to thank you

for all the work you put into this. It help me to understand the disease

and the seriousness of it, so much better!

Solong for now,

Regina

gorgina <gmckin@...>

>Reply- onelist

> < onelist>

>Subject: [ ] Insurance Coverage

>Date: Mon, 23 Aug 1999 13:27:01 -1000

>

><< text1.html >>

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<!doctype html public " -//w3c//dtd html 4.0 transitional//en " >

<html>

Hi Regina,

<p>In the beginning, they used to monitor Josh's blood every week. Then,

every two weeks. After about 6 months, they started doing it monthly. He

never did kick and scream but he got very nervous beforehand. He always

sat on my lap and held, no ... squeezed, my hand. It wasn't so much the

pain from a drawing, just the thought of a needle going in and taking out

his blood. He used to call the phlebotomists Vampires. He'd cry before

the needle even went in. We had tried Emla cream and it did no good. It

was more a psychological fear than a physical one. By the time the needle

was in, he was already recovering. I've always told him, even though he's

a boy :-) & nbsp; & nbsp; that crying is a way of expressing feelings. Maybe

not the best way but an acceptable way. I told him if he felt better by

crying, by all means do so, because it was necessary to get the blood work,

no matter what. I've asked if it helps him in any way to cry. Used to be

a release for him, of sorts, to let go of some of his frustration at having

JRA. He said he doesn't want to cry about his arthritis everyday but sometimes

he does so he picked when he was getting his blood work done. For the last

two years or so, he hasn't cried during the procedures. Still, even weighing

67 pounds, he wants to sit on my lap, though.

<p>I think he's also gotten a reward nearly every time he's had a blood

test. He's filled an entire sticker book with stickers from the lab techs.

and hospital people. That, or a band aid with cool designs on it. And we

usually made a point of going out for lunch after a drawing, or at least

getting an ice cream cone. Even though all the books say never offer children

a food reward! I figure when I give blood, they always give me a snack

afterwards. I think those things sort of helped along the way.

<p>Actually, last week when he did the MTX injection, it was the first

time he didn't sit on my lap. They had really nice, very comfortable reclining

chairs lined up and he sat in one of those. I guess it gets somewhat easier

as they get older. I think Helge's daughter had a fear of needles,

also. I wonder if that has been solved?

<p>Well, I hope is feeling well for now.

<br>Take care,

<br>Georgina</html>

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  • 3 years later...

Tami,

I wanted to wish you luck battling your insurance company. Hopefully

someone else out there has appealed them and won, and are willing to

share their experiences. Be sure to go to our files section and look

under the 'Help Folder' for tips and sample appeal letters. You can

also find helpful information at

http://www.plagiocephaly.org/support/insurance.htm

Good luck to you, please keep us posted!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi all:

> Well, I am still battling with Blue Shield of

> California. We were successful in our appeal with the

> medical group - Scripps Clinic, which got us a

> preauthorization letter, but now we are going through

> the run around from Blue Shield (3 months of delays).

> It is currently in their medical review department for

> a medical necessity review, which they estimate will

> take another 30-45 days.

>

> Anyone out there have any experience with Blue Shield

> of California? I am ready for a fight, but still

> keeping my fingers crossed.

>

> Thanks,

> Tami, mom to Annika (DOC Grad 8/14/02)

>

> __________________________________________________

>

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Thanks Niki - I will check out the files section.

Tami

--- niki_jay175 <niki_jay175@...> wrote:

> Tami,

>

> I wanted to wish you luck battling your insurance

> company. Hopefully

> someone else out there has appealed them and won,

> and are willing to

> share their experiences. Be sure to go to our files

> section and look

> under the 'Help Folder' for tips and sample appeal

> letters. You can

> also find helpful information at

> http://www.plagiocephaly.org/support/insurance.htm

>

> Good luck to you, please keep us posted!

>

> Niki

> Kaylie & Danny (STAR grads)

> Phila., PA

>

>

> > Hi all:

> > Well, I am still battling with Blue Shield of

> > California. We were successful in our appeal with

> the

> > medical group - Scripps Clinic, which got us a

> > preauthorization letter, but now we are going

> through

> > the run around from Blue Shield (3 months of

> delays).

> > It is currently in their medical review department

> for

> > a medical necessity review, which they estimate

> will

> > take another 30-45 days.

> >

> > Anyone out there have any experience with Blue

> Shield

> > of California? I am ready for a fight, but still

> > keeping my fingers crossed.

> >

> > Thanks,

> > Tami, mom to Annika (DOC Grad 8/14/02)

> >

> > __________________________________________________

> >

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  • 9 months later...
Guest guest

Hi ...

I think that would depend on your specific insurance plan. You should

be able to check your policy for information. You should also talk to

your surgeon's insurance person who will be able to give you a

relatively accurate estimate of what will and will not be covered by

your plan.

Regards,

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  • 8 months later...

Kris,

Sorry to say I had absolutely NO LUCK with Aetna at all. They have

specifically excluded the MGB as " experimental " . I even tried to get my

employer to help me with the appeal since they were self insured and got a

big " NO " . I finally ended up taking a loan against my 401k. It was well

worth it. I would do it again in a minute.

Here is the Coverage policy from Aetna, you can share with your friend...

http://www.aetna.com/cpb/data/CPBA0157.html

G

4/7/03 - Dr R

230/ 155 / 130

insurance coverage

Hi all, Sorry! It has been an extremely long time since I came on

the boards. Too busy doing all the things that I couldn't do before

surgery, I guess! I am doing great and would love to hear from my

littermates!

I have a question for any one. I was very blessed to have my

surgery covered in full with Ameraplan of MI, and I have a dear

friend who is desperately in need of and wants to have the MGB (I

just was showing her the site and had her sign up on the pre op

boards). She has Aetna HMO of MI. Does anyone know if this plan has

covered any or all of the procedure? Thanks for your help. Hope

all are doing great!

God Bless,

Kris in MI

Dr. R.

April 30, 2003

350/217 and still losing!

----------------------------------------------------------------------------

--

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  • 3 weeks later...
Guest guest

Subject: insurance coverage

Hi

Since many of our kids also have sensory intergration dysfunction this question

is directed at all of you.

My insurance is denying claims for OT therapy stating they have reviewed the

requested progress notes provided byt the OT but certain criteria has not been

met. I believe the criteria thaey are looking for is a letter of medical

necessity from the ordering physician stating why OT is needed to RESTORE

previous function lost.

I know how to work this up for speech therapy since my son did in fact have

jaundice and chronic ear infections from 10mo to 3 yo( I use the ear infection

part) put how would I use this to get OT covered. Or is there another angle I

am not thinking of.

I was thinking maybe since he had so many ear infections he has problems in his

vestibular system. Any thoughts on this. Also recently we took him to an ENT

that recommends his adenoids come out..he just had strep again 4th time this

winter. Could this have affected anything in his developement.

Thanks for all your help

Ann in Chgo mom to 9yo Global apraxia DSI and hypotonia

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Guest guest

Hi,

Our OT put coordination problem for OT approval, so far it seems to have gone

thru, my son has balnace problem, so it fit under coordination issue.However

he had two febrile seizures last summer, so that maybe why they approved,

although his problems were there prior to seizures, but at least now they can't

balk about covering it.

Colleen

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  • 7 months later...

Hi Maggie:

> memorial sloan kettering is even worse when it comes to this. it makes me

so

> mad to see their commercials after experiencing their billing department.

if

> you don't have blue cross, medicare or access to unlimited funds, be

prepared

> to be turned away by them.

==>Sloan Kettering is supposed to be one of the top hospitals in the

country. Oh, shame on them for turning away the needy! I just got dumped

by my oncologist and left out in the cold in the middle of ongoing chemo

treatment because Medicare doesn't reimburse him enough. And it's just

getting worse out there kids........

~Amber

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  • 2 months later...

Dear Arnold,

Thank you Arnold, for the advice. I will take it!!

Blessings to you!!

Joanie

> Hi Joanie & list,

> Put in a claim and if it is denied try to involve your local

elected

> representatives. They usually hav social work staff that would love

to get a chance

> to work on a case for you.

> If you are not covered they can inroduce a bill to force coverage.

> arnold

>

>

>

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  • 5 months later...
Guest guest

Hi, I don't have any experience with UHC, but I did want to point you

in the direction of our insurance help section in our files section.

There is a ton of stuff in there including sample letters that were

successful. Hopefully someone w/UHC will chime in though. Good luck

with your appeal.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

--- In Plagiocephaly , " billsiegel1201 " <bsiegel@c...>

wrote:

> I am having trouble obtaining insurance coverage from United

> Healthcare because they claim my daughter's " helmet " is cosmetic. I

> guess you could say it is but there are other issues involved if we

> did not proceed. She is wearing the helmet but I believe the

> carrier's reasons are short sighted and need advice as to how to

> proceed with the appeal process. Does anyone, who has successfully

> appealed, preferably with United HealthCare, have any letters with

> suggested terminology. Thanks.

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Guest guest

Hi, I don't have any experience with UHC, but I did want to point you

in the direction of our insurance help section in our files section.

There is a ton of stuff in there including sample letters that were

successful. Hopefully someone w/UHC will chime in though. Good luck

with your appeal.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

--- In Plagiocephaly , " billsiegel1201 " <bsiegel@c...>

wrote:

> I am having trouble obtaining insurance coverage from United

> Healthcare because they claim my daughter's " helmet " is cosmetic. I

> guess you could say it is but there are other issues involved if we

> did not proceed. She is wearing the helmet but I believe the

> carrier's reasons are short sighted and need advice as to how to

> proceed with the appeal process. Does anyone, who has successfully

> appealed, preferably with United HealthCare, have any letters with

> suggested terminology. Thanks.

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  • 8 months later...
Guest guest

Hi,

You are in a situation that many women find themselves in. Hardly

anyone has ever planned for the expense of implant removal, and as so

many women find themselves sick, have not been able to work to save up

for it either. It is a very difficult situation to be in.

Women have learned to be creative with financing, tapping into home

equity, borrowing from family or friends, hitting retirement accounts,

maxing out credit cards, or whatever it takes to get this paid for.

Insurance coverage is possible. It does take the cooperation of your

explanting surgeon. My insurance paid for my removal, and I credit my

explanting surgeon with being helpful in the way he worded my letter

requesting explant. Having Baker IV contractures will almost

certainly help....it sounds like you have that with the hardening you

describe, and so you should not have any problems as long as your

surgeon stresses that. Some PS's are not willing to deal with

insurance at all, and so you might have to put out the cash and then

ask for reimbursement.

Where are you located? Dr. Kolb in Atlanta Georgia is very good

at working with insurance to get them to pay for removal.

Her website is www.plastikos.com

Patty

>

> Hi

> I've had saline implants for 10 years. I've wanted to have them

> removed but haven't been able to afford it. I have severe hardening

> and many other problems with them.

> Eight years ago my health insurance wouldn't pay for it. I wanted to

> know if any of you have been able to have insurance cover removing

the

> implants and could offer me any advice.

> Thanks

>

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Guest guest

Welcome to ! . . .

I'd check with your insurance again. Most insurance

companies know they save money by removing implants,

rather than allow someone to get sicker by the day.

Contracture is often accepted as a reason.

The main thing you need to be concerned about is that

your surgeon will remove your implants " en bloc " , or

if en bloc is not possible, removes ALL the capsule. A

good surgeon will also use drains as long as you have

significant drainage.

Most docs would like to do a quick and easy (for them)

removal - leaving the capsules behind with all the

contamination they hold.

Hugs and prayers,

Rogene

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Guest guest

I'm in New York city. The PS I saw 8 years ago wanted $14,000 to

remove the implants and scar tissue. I don't have any cash or assets

or family to help me. Two or 3 years after I got the implants I

became depressed and over the next few years my depression spiraled

out of control to where I wasn't able to work. I sold my condo in

California along with everything else I owned, cashed in retirement

accounts, ended up declaring bankruptcy and was actually homeless for

a short time. I'm not saying my depression was all because of the

implants, I went through a series of devasting events that all

contributed. I'm still getting my life back together 10 years later.

My left breast is extremely hard, so hard that I avoid hugging or

getting close to any person. Both breasts have increased in size.

After surgery I was a C cup, my left breast is now an E cup and my

right is probably a D or DD. They're frequently painful and seem to

itch inside. I'm very self conscious, I never wear anything fitted or

that klings because they are so obvious, in fact I slouch to try

to disguise the abnormal shape and I carry my bag in front of me to

cover up.

I recently learned of a cosmetic surgery residency program that

charges a flat fee of $2500. They were going to remove the implants

but not the scar tissue. I got on the waiting list in September 2005,

and managed to save the money. I was scheduled for the surgery for

March 21st. About 2 weeks ago I discovered a lump on my left breast,

I had an MRI and sonogram last week. They don't think it's cancer but

want me to come back for a biopsy. So I'm sure that'll mean I lose

my surgery date. I still can't afford to pay the regular

fee. I'm desperate to get these removed.

>

> Hi,

> You are in a situation that many women find themselves in. Hardly

> anyone has ever planned for the expense of implant removal, and as so

> many women find themselves sick, have not been able to work to save up

> for it either. It is a very difficult situation to be in.

>

> Women have learned to be creative with financing, tapping into home

> equity, borrowing from family or friends, hitting retirement accounts,

> maxing out credit cards, or whatever it takes to get this paid for.

>

> Insurance coverage is possible. It does take the cooperation of your

> explanting surgeon. My insurance paid for my removal, and I credit my

> explanting surgeon with being helpful in the way he worded my letter

> requesting explant. Having Baker IV contractures will almost

> certainly help....it sounds like you have that with the hardening you

> describe, and so you should not have any problems as long as your

> surgeon stresses that. Some PS's are not willing to deal with

> insurance at all, and so you might have to put out the cash and then

> ask for reimbursement.

>

> Where are you located? Dr. Kolb in Atlanta Georgia is very good

> at working with insurance to get them to pay for removal.

> Her website is www.plastikos.com

> Patty

>

>

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Guest guest

Welcome, I had saline implants for six years and have lost alot in the past year due to my illness. I had my implants taken out by Dr. Feng in Ohio. I drove 6 hours and paid for hotel for 6 days. Her cost for a en-bloc procedure was $6650.00. I did not need a lift, but if you feel you do, you can always do one at another time. Make sure you get a total capsulectomy. The pathologist found silicone in my scar tissue. I am so glad that was never left inside, or I may not ever get better. Feel free to ask any question here, there is a wonderful group of Ladies here to help. Hugs, jsei246 <jsei246@...> wrote: I'm in New York city. The PS I saw 8 years ago wanted $14,000

toremove the implants and scar tissue. I don't have any cash or assetsor family to help me. Two or 3 years after I got the implants Ibecame depressed and over the next few years my depression spiraledout of control to where I wasn't able to work. I sold my condo inCalifornia along with everything else I owned, cashed in retirementaccounts, ended up declaring bankruptcy and was actually homeless fora short time. I'm not saying my depression was all because of theimplants, I went through a series of devasting events that allcontributed. I'm still getting my life back together 10 years later.My left breast is extremely hard, so hard that I avoid hugging orgetting close to any person. Both breasts have increased in size. After surgery I was a C cup, my left breast is now an E cup and myright is probably a D or DD. They're frequently painful and seem toitch

inside. I'm very self conscious, I never wear anything fitted orthat klings because they are so obvious, in fact I slouch to tryto disguise the abnormal shape and I carry my bag in front of me tocover up.I recently learned of a cosmetic surgery residency program thatcharges a flat fee of $2500. They were going to remove the implantsbut not the scar tissue. I got on the waiting list in September 2005,and managed to save the money. I was scheduled for the surgery forMarch 21st. About 2 weeks ago I discovered a lump on my left breast,I had an MRI and sonogram last week. They don't think it's cancer butwant me to come back for a biopsy. So I'm sure that'll mean I losemy surgery date. I still can't afford to pay the regular fee. I'm desperate to get these removed. >> Hi,> You are in a situation that many women find themselves in. Hardly > anyone has ever planned for the expense of implant removal, and as so > many women find themselves sick, have not been able to work to save up > for it either. It is a very difficult situation to be in. > > Women have learned to be creative with financing, tapping into home > equity, borrowing from family or friends, hitting retirement accounts, > maxing out credit cards, or whatever it takes to get this paid for.> > Insurance coverage is possible. It does take the cooperation of your > explanting surgeon. My insurance paid for my removal, and I credit my > explanting surgeon with being helpful in the way he worded my letter > requesting explant. Having Baker IV contractures will almost > certainly help....it

sounds like you have that with the hardening you > describe, and so you should not have any problems as long as your > surgeon stresses that. Some PS's are not willing to deal with > insurance at all, and so you might have to put out the cash and then > ask for reimbursement.> > Where are you located? Dr. Kolb in Atlanta Georgia is very good > at working with insurance to get them to pay for removal.> Her website is www.plastikos.com> Patty > >

Relax. virus scanning helps detect nasty viruses!

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Guest guest

, have you noticed that all the 6's in your story? Six

years with implants, 6 hours to have them out, a six day stay

afterwards, paid in the 6 thousands to have them out, and of course

the year you had them out was 2006. Maybe six is your lucky number!!

Sis

> >

> > Hi,

> > You are in a situation that many women find themselves in.

Hardly

> > anyone has ever planned for the expense of implant removal, and

as so

> > many women find themselves sick, have not been able to work to

save up

> > for it either. It is a very difficult situation to be in.

> >

> > Women have learned to be creative with financing, tapping into

home

> > equity, borrowing from family or friends, hitting retirement

accounts,

> > maxing out credit cards, or whatever it takes to get this paid

for.

> >

> > Insurance coverage is possible. It does take the cooperation of

your

> > explanting surgeon. My insurance paid for my removal, and I

credit my

> > explanting surgeon with being helpful in the way he worded my

letter

> > requesting explant. Having Baker IV contractures will almost

> > certainly help....it sounds like you have that with the

hardening you

> > describe, and so you should not have any problems as long as

your

> > surgeon stresses that. Some PS's are not willing to deal with

> > insurance at all, and so you might have to put out the cash and

then

> > ask for reimbursement.

> >

> > Where are you located? Dr. Kolb in Atlanta Georgia is

very good

> > at working with insurance to get them to pay for removal.

> > Her website is www.plastikos.com

> > Patty

> >

> >

>

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given

by licensed health care professionals. Consult your physician or

licensed health care professional before commencing any medical

treatment.

>

> " Do not let either the medical authorities or the politicians

mislead you. Find out what the facts are, and make your own

decisions about how to live a happy life and how to work for a

better world. " - Linus ing, two-time Nobel Prize Winner (1954,

Chemistry; 1963, Peace)

>

> See our photos website! Enter " implants " for access at this link:

> http://.shutterfly.com/action/

>

>

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Guest guest

Jessi (OK to call you that?)

Welcome to . . . I'm glad you found us

before getting your implants removed!

It makes me sick whenever I see another woman who has

lost everything to her implants! . . . We see it over

and over! Still, they keep implanting women! Crazy!

Those who know what's going on apparently are helpless

to stop it!

It's very important to remove the capsule along with

the implant. When a woman is symptomatic, or the

capsules are hard, they contain debris from the

implants and organisms that will continue to make you

sick!

When implants are properly removed (en bloc), they cut

around the capsule and remove it with the implant

still inside to avoid spilling contaminated materials

into the chest cavity. A good doctor will also use

drains to avoid fluid buildup causing pain and

possible further surgery.

Are you on Medicad? They may help you have them

removed. We have several recommended doctors in New

York - I don't know what they charge though!

It's a shame that women aren't told before they get

implants, that they need to establish a fund for

maintaining/explanting! . . . As one plastic surgeon

told me, to my face, that he make money putting them

in and he made money taking them out. He didn't give a

%^ & * what the women did!

Hugs and prayers,

Rogene

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  • 3 weeks later...
Guest guest

--- kathy svetlik <ksvetlik@...> wrote:

> Has anyone received coverage for their helmet after

> appeals etc. even if the insurance contract excluded

> cranial orthotics?

> I am currently in my first appeal with my son's

> StarBand. We appealed on the basis of medical

> necessity. Plus does anyone know if you use the same

> letters from the MD's that you used for the first

> appeal for subsequent appeals?

> Thanks.

> Kathy

>

> --- shields31 <shields31@...> wrote:

>

> > Hi ,

> >

> > Laurel is 7 months old now. Thanks for the

> > clarification about the

> > active/passive thing. She's only been in the

> helmet

> > for about 2.5

> > weeks now, so I'm still learning. She was

> supposed

> > to go in for an

> > adjustment at 3 weeks and then monthly after that.

> >

> > I didn't really have any choice in the ortho

> > department. He's the

> > only one that does the cranial banding for

> infants.

> > He seems very

> > knowledgeable though, and I've been pleased with

> the

> > adjustments.

> > It's just so odd that Laurel would have the helmet

> > on for almost a

> > week and a half and then all of the sudden, it

> seems

> > too tight on

> > one cheek. She had been sick, so I wonder if

> there

> > was some

> > swelling or water retention involved?

> >

> > We go in this afternoon, so I'll post an update

> > later...

> >

> > Thanks again,

> > Kirsten

> > Mom to Laurel - Hanger Helmet 3.15.06

> >

> >

> > > >

> > > > Currently Laurel is out of her Hanger helmet,

> > she has been VERY

> > sick

> > > > with an ear infection and was in and out of

> her

> > helmet over the

> > > > weekend. When her fever would go up, we'd

> take

> > it off until it

> > came

> > > > back down.

> > > >

> > > > I noticed that she was getting a pretty bad

> > indentation on her

> > left

> > > > cheek from the helmet, so I changed her next

> > appointment from

> > April

> > > > 3rd to tomorrow. It seemed to go away, so I

> put

> > the helmet back

> > on

> > > > her. So last night I took it off for her bath

> > and she had a BIG

> > red

> > > > mark on her cheek that didn't go away after an

> > hour...in fact,

> > most

> > > > of the mark is still there this morning! I'm

> > not putting the

> > helmet

> > > > back on now until it's adjusted, plus I

> printed

> > some pictures of

> > > > what happened last night to show the ortho.

> > It's definitely a

> > red

> > > > mark and not a rash.

> > > >

> > > > Anyway, I was doing a search of the boards to

> > see if others had

> > this

> > > > problem and I ran across some info that said

> > that Hanger Helmets

> > > > were active ones and not passive? I was under

> > the impression

> > that

> > > > it was a passive one and that her head was

> > supposed to grow into

> > > > it? Did I just not ask the appropriate

> > questions of the ortho?

> > > >

> > > > With all the issues my girl has had since

> > getting the helmet,

> > I'm

> > > > seriously doubting my decision to treat now.

> In

> > my head I know

> > it

> > > > will be for the best in the long run, but in

> my

> > heart I hate

> > putting

> > > > her through all of this.

> > > >

> > > > Thanks for any input,

> > > > Kirsten

> > > > Mom to Laurel - Hanger Helmet 3.15.06

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

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Guest guest

--- kathy svetlik <ksvetlik@...> wrote:

> Has anyone received coverage for their helmet after

> appeals etc. even if the insurance contract excluded

> cranial orthotics?

> I am currently in my first appeal with my son's

> StarBand. We appealed on the basis of medical

> necessity. Plus does anyone know if you use the same

> letters from the MD's that you used for the first

> appeal for subsequent appeals?

> Thanks.

> Kathy

>

> --- shields31 <shields31@...> wrote:

>

> > Hi ,

> >

> > Laurel is 7 months old now. Thanks for the

> > clarification about the

> > active/passive thing. She's only been in the

> helmet

> > for about 2.5

> > weeks now, so I'm still learning. She was

> supposed

> > to go in for an

> > adjustment at 3 weeks and then monthly after that.

> >

> > I didn't really have any choice in the ortho

> > department. He's the

> > only one that does the cranial banding for

> infants.

> > He seems very

> > knowledgeable though, and I've been pleased with

> the

> > adjustments.

> > It's just so odd that Laurel would have the helmet

> > on for almost a

> > week and a half and then all of the sudden, it

> seems

> > too tight on

> > one cheek. She had been sick, so I wonder if

> there

> > was some

> > swelling or water retention involved?

> >

> > We go in this afternoon, so I'll post an update

> > later...

> >

> > Thanks again,

> > Kirsten

> > Mom to Laurel - Hanger Helmet 3.15.06

> >

> >

> > > >

> > > > Currently Laurel is out of her Hanger helmet,

> > she has been VERY

> > sick

> > > > with an ear infection and was in and out of

> her

> > helmet over the

> > > > weekend. When her fever would go up, we'd

> take

> > it off until it

> > came

> > > > back down.

> > > >

> > > > I noticed that she was getting a pretty bad

> > indentation on her

> > left

> > > > cheek from the helmet, so I changed her next

> > appointment from

> > April

> > > > 3rd to tomorrow. It seemed to go away, so I

> put

> > the helmet back

> > on

> > > > her. So last night I took it off for her bath

> > and she had a BIG

> > red

> > > > mark on her cheek that didn't go away after an

> > hour...in fact,

> > most

> > > > of the mark is still there this morning! I'm

> > not putting the

> > helmet

> > > > back on now until it's adjusted, plus I

> printed

> > some pictures of

> > > > what happened last night to show the ortho.

> > It's definitely a

> > red

> > > > mark and not a rash.

> > > >

> > > > Anyway, I was doing a search of the boards to

> > see if others had

> > this

> > > > problem and I ran across some info that said

> > that Hanger Helmets

> > > > were active ones and not passive? I was under

> > the impression

> > that

> > > > it was a passive one and that her head was

> > supposed to grow into

> > > > it? Did I just not ask the appropriate

> > questions of the ortho?

> > > >

> > > > With all the issues my girl has had since

> > getting the helmet,

> > I'm

> > > > seriously doubting my decision to treat now.

> In

> > my head I know

> > it

> > > > will be for the best in the long run, but in

> my

> > heart I hate

> > putting

> > > > her through all of this.

> > > >

> > > > Thanks for any input,

> > > > Kirsten

> > > > Mom to Laurel - Hanger Helmet 3.15.06

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

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  • 2 weeks later...
Guest guest

Hi Molly,

He has a book that he sells. Everything in his book can be found in

our insurance folders here. Just wanted to let you know.

-- In Plagiocephaly , " Foley, Molly " <mafoley@...> wrote:

>

> I just ran across this web page regarding fighting insurance

companies that

> won't cover cranial bands/helmets:

>

> http://www.plagiocoach.com/

>

> Thought it might help those of you who are going through appeals

with your

> insurance companies.

>

> Take care,

> Molly

> California

> Nicolas, 6 months, tort & plagio, getting STARband in April

> , 3

> , 6

>

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Guest guest

Thanks for clarifying that. Hopefully no one runs out to buy the book if

all the information is in the files :>) I didn't read the website in detail

since we are fortunate to have our insurance covering our band.

Molly

Re: insurance coverage

Hi Molly,

He has a book that he sells. Everything in his book can be found in our

insurance folders here. Just wanted to let you know.

-- In Plagiocephaly , " Foley, Molly " <mafoley@...> wrote:

>

> I just ran across this web page regarding fighting insurance

companies that

> won't cover cranial bands/helmets:

>

> http://www.plagiocoach.com/

>

> Thought it might help those of you who are going through appeals

with your

> insurance companies.

>

> Take care,

> Molly

> California

> Nicolas, 6 months, tort & plagio, getting STARband in April , 3

> , 6

>

For more plagio info

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  • 5 weeks later...
Guest guest

>

I have Humana insurance. Last year, my son's psychologist had to put

psychosis as diagnosis #1, and Aspergers as diagnosis #2. They would

not cover him with Aspergers as #1. Still..........they only cover 20

visits a year.......should be more!

> I have Blue Cross Blue Shield and they will not cover anything that

> has to do with Autism. They wouldn't even cover for a psychologist to

> see him. Autism is not a covered benefit on most insurances. I don't

> understand why. Maybe this is something we need to get started to

> fight these insurance companies.

>

> Cori

>

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Guest guest

I have BCBS as well, and they are covering everything for my Son, who has

diagnosis of PDD,<which asperger's falls into) ADHD and BIPOLAR........they pay

for Doctor's, psychiatrist's and counseling..........but you have to have it

pre-authorized and your doctor or counselor is supposed to do that for you

so they can get the full benefits....mine is paying very well.

Lynda

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Guest guest

I have BCBS also and under our plan, since BCBS is only ADMINISTERING

the plan, meaning the company we get our insurance from is Self-Insured

and they wrote the plan, we've had services related to " treatment " for

Autism covered. It's important to find out if the insurance company is

Administering the Plan, or if they are the Underwriter. Another thing

to consider is what type of plan you have and if there are any

exclusions. PPO, POS, HMO??? These all make a difference in how

insurance companies will pay for services. For example, if you have to

get pre-authorization to go to a psychologist, then make the phone

call. YES, when it comes to dealing with insurance, it's a HUGE pain

in the rear...but you do need to follow the rules. Check your area to

see if there is a non-profit agency that will help you get your

insurance to pay for services. It's also very possible that the

problem is in the coding of the bill. What I've found out is that

almost all insurance companies will scrutinize over the first three

codes in the billing and if " Autism " is coded in one of the first

three, then that may be the problem. If all else fails, you may want

to consider secondary insurance.

>

> I have Blue Cross Blue Shield and they will not cover anything that

> has to do with Autism. They wouldn't even cover for a psychologist to

> see him. Autism is not a covered benefit on most insurances. I don't

> understand why. Maybe this is something we need to get started to

> fight these insurance companies.

>

> Cori

>

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