Re: New to this xolair group - Question

[Guest guest]

Wow, Ellen, you've gone through some rough times! Hope the Xolair helps you.

I had a little bit of dizziness, not bad. I experienced dizziness after just a

few sips of beer, so no more of my one beer on a Saturday night... Oh well. My

challenges with Xolair is my feelings of tiredness and lack of inspiration to do

what I used to.

W. in So Cal

-----Original Message-----

From: ellen84842008 <ellencohen@...>

Sent: Mon, Jan 25, 2010 7:21 am

Subject: [ ] New to this xolair group - Question

Hi All:

I am new to this xolair group and have had four shots over the last 4 months.

Although I have developed food induced wheezing over the last year, I am on this

shot as I have been sick for 4 plus years with eosinophilic gastroenteritis

(EG). I was misdiagnosed for a very long time which has taken a huge toll on my

life.

I will spare everyone the horrible story of going to many medical institutions

and dealing with many doctors. It was not until last year that I found an

immunologist who specializes in EG and asthma that I have gotten a better

diagnosis and which lead to the xolair treatment.

Based on several colonoscopy and upper scopes over the last 5 years, my doctor

found that my IgE level in my gut tissue was very high, however, my blood IgE

and eosinophil levels are very low/normal. With this said the hope is that the

xolair will allow me to regain eating foods that I have terrible reactions (GI,

breathing, etc.) to. Currently I can only eat potato, wheat, tomato, onion

safely.

The xolair seems to be helping with my wheezing and I think some with my gut

problems – time is clearly a factor. My doc has been trialing xolair since it

came out and has had very good results with many of his asthma patients.

With all this said, I am wondering if anyone in this group has had itching or

dizzy spells due to use of xolair. My medical situation is complex and not sure

if these issues are related to the shot. Any feedback would be great. I had

only one really bad dizzy spell, but have noticed that my balance is a little

bit off.

Best,

Ellen C.

Northern VA

[Guest guest]

I have been on Xolair for years, 3 shots every 2 weeks, and have never

experienced any adverse reactions, dizziness, (My wife claims I'm dizzy anyway),

itching, etc. I have experienced adverse reactions/allergic reactions from some

of the other medications I take, of course YMMV, we are all different.

Good luck and hopefully things will work out for you.

Ron

On Jan 26, 2010, at 11:10 AM, pianocat88@... wrote:

>

> Wow, Ellen, you've gone through some rough times! Hope the Xolair helps you.

>

> I had a little bit of dizziness, not bad. I experienced dizziness after just a

few sips of beer, so no more of my one beer on a Saturday night... Oh well. My

challenges with Xolair is my feelings of tiredness and lack of inspiration to do

what I used to.

>

> W. in So Cal

>

> -----Original Message-----

> From: ellen84842008 <ellencohen@...>

>

> Sent: Mon, Jan 25, 2010 7:21 am

> Subject: [ ] New to this xolair group - Question

>

> Hi All:

>

> I am new to this xolair group and have had four shots over the last 4 months.

Although I have developed food induced wheezing over the last year, I am on this

shot as I have been sick for 4 plus years with eosinophilic gastroenteritis

(EG). I was misdiagnosed for a very long time which has taken a huge toll on my

life.

>

> I will spare everyone the horrible story of going to many medical institutions

and dealing with many doctors. It was not until last year that I found an

immunologist who specializes in EG and asthma that I have gotten a better

diagnosis and which lead to the xolair treatment.

>

> Based on several colonoscopy and upper scopes over the last 5 years, my doctor

found that my IgE level in my gut tissue was very high, however, my blood IgE

and eosinophil levels are very low/normal. With this said the hope is that the

xolair will allow me to regain eating foods that I have terrible reactions (GI,

breathing, etc.) to. Currently I can only eat potato, wheat, tomato, onion

safely.

>

> The xolair seems to be helping with my wheezing and I think some with my gut

problems – time is clearly a factor. My doc has been trialing xolair since it

came out and has had very good results with many of his asthma patients.

>

> With all this said, I am wondering if anyone in this group has had itching or

dizzy spells due to use of xolair. My medical situation is complex and not sure

if these issues are related to the shot. Any feedback would be great. I had only

one really bad dizzy spell, but have noticed that my balance is a little bit

off.

>

> Best,

>

> Ellen C.

> Northern VA

>

>

[Guest guest]

Welcome to our group.

I was the first patient in the state of Arkansas to get Xolair in September

2003. I have been getting two injections every two weeks ever since then and

have never had any reactions whatsoever.

I used to be on 40 mg of Prednisone daily which gave me degenerative disk

disease in my neck, pre mature cataracts and diabetes.

One year after starting Xolair I started getting relief and my use for

Prednisone disappeared.

Now, I only neb once sometimes twice a day with xopenex and atrovent. The doc

has kept me on Advair too.

For me xolair has been a Godsend! It has given me life and breath

Doug

Group founder

Co-owner/co-moderator