Re: Approval for Shots 100% Covered!

[Guest guest]

Good Luck Darcy - I get my first shot on thursday - we will have to compare

first shot notes

________________________________

From: Darcy <darcy.buckner@...>

Sent: Sun, June 27, 2010 2:16:01 PM

Subject: [ ] Approval for Shots 100% Covered!

 

Finally heard back from insurance - they approved the Xolair shots (I'll be

taking 3 shots every 2 weeks). Also, thrilled that my insurance will cover the

shots 100%. Probably they took a look at my last hospital stay and decided it

would cost them less in the long run! :-) The drug ships Monday and my nurse

said probably will be able to start the shots Wendesday. I see my doctor

tomorrow for an xray (hope it's clear of pnuemonia!) and make a plan for the

shots. I'm nervous, but also excited and encouraged by so many positive reports

by this group. I too live on the Gulf Coast - so I have been smelling fumes from

the oil and dispersants and trying to stay inside as much as possible. I'm

looking foward to coming off medicines and watching the peak flow numbers rise.

[Guest guest]

Hi,

First shots went well! No reaction and other than my own anxiety it was a

normal visit. I had to wait 30 minutes after the shots and of course had to

show my epi pen. I see them again on the 13th. The nurse said my first 3 times I

will wait 30 minutes, but after that I can get the shots and leave.

Looking forward to hearing about your experience.

Darcy

>

> Good Luck Darcy - I get my first shot on thursday - we will have to compare

first shot notes

>

>

>

>

> ________________________________

> From: Darcy <darcy.buckner@...>

>

> Sent: Sun, June 27, 2010 2:16:01 PM

> Subject: [ ] Approval for Shots 100% Covered!

>

>  

> Finally heard back from insurance - they approved the Xolair shots (I'll be

taking 3 shots every 2 weeks). Also, thrilled that my insurance will cover the

shots 100%. Probably they took a look at my last hospital stay and decided it

would cost them less in the long run! :-) The drug ships Monday and my nurse

said probably will be able to start the shots Wendesday. I see my doctor

tomorrow for an xray (hope it's clear of pnuemonia!) and make a plan for the

shots. I'm nervous, but also excited and encouraged by so many positive reports

by this group. I too live on the Gulf Coast - so I have been smelling fumes from

the oil and dispersants and trying to stay inside as much as possible. I'm

looking foward to coming off medicines and watching the peak flow numbers rise.

>

>

>

>

>

>

>

>

[Guest guest]

>

> Hi,

>

> First shots went well! No reaction and other than my own anxiety it was a

normal visit. I had to wait 30 minutes after the shots and of course had to

show my epi pen. I see them again on the 13th. The nurse said my first 3 times I

will wait 30 minutes, but after that I can get the shots and leave.

>

> Looking forward to hearing about your experience.

>

> Darcy

Darcy,

congrats on getting your first shots. I have been on 2 shots every 2 weeks since

September 2003, almost 7 years now. I was the first patient in the state of

Arkansas to get xolair.

They STILL make me wait 30 minutes afterward and carry 2 epi pens the rest of

the day.

I also get a REGULAR allergy shot along with my Xolair too. The regular shot

sings like fire at times but the xolair has not pain whatsoever. Reactions?

Never

Hope you get results soon. It took me just over a year.

Doug

Group founder

[Guest guest]

had my fisrt shots today - I have to wait 2 hours my first three times- then

20minutes after that....  so far so good - I was a bit anxious also - but it

was pretty easy.....my next appointment is on the 15th - it is pretty cool

having someone to compare notes with - I have to say I am jealous that you got

out in 30 minutes. lol

________________________________

From: Ol Wheezy <uca79iii@...>

Sent: Thu, July 1, 2010 7:52:30 AM

Subject: [ ] Re: Approval for Shots 100% Covered!

 

>

> Hi,

>

> First shots went well! No reaction and other than my own anxiety it was a

normal visit. I had to wait 30 minutes after the shots and of course had to show

my epi pen. I see them again on the 13th. The nurse said my first 3 times I will

wait 30 minutes, but after that I can get the shots and leave.

>

> Looking forward to hearing about your experience.

>

> Darcy

Darcy,

congrats on getting your first shots. I have been on 2 shots every 2 weeks since

September 2003, almost 7 years now. I was the first patient in the state of

Arkansas to get xolair.

They STILL make me wait 30 minutes afterward and carry 2 epi pens the rest of

the day.

I also get a REGULAR allergy shot along with my Xolair too. The regular shot

sings like fire at times but the xolair has not pain whatsoever. Reactions?

Never

Hope you get results soon. It took me just over a year.

Doug

Group founder

[Guest guest]

I started my shots April 1st. The infusion center that I go to get shots made me

wait 3 hours the 1st 3 time, now 1 hour. They say until FDA changes guidelines,

I will always wait 1 hour after shots.

Tricia

Sent via BlackBerry from T-Mobile

-----Original Message-----

From: Kathy & Chuck Egan <ckegan33@...>

Sender:

Date: Thu, 1 Jul 2010 09:58:56

< >

Reply-

Subject: Re: [ ] Re: Approval for Shots 100% Covered!

had my fisrt shots today - I have to wait 2 hours my first three times- then

20minutes after that....  so far so good - I was a bit anxious also - but it

was pretty easy.....my next appointment is on the 15th - it is pretty cool

having someone to compare notes with - I have to say I am jealous that you got

out in 30 minutes. lol

________________________________

From: Ol Wheezy <uca79iii@...>

Sent: Thu, July 1, 2010 7:52:30 AM

Subject: [ ] Re: Approval for Shots 100% Covered!

 

>

> Hi,

>

> First shots went well! No reaction and other than my own anxiety it was a

normal visit. I had to wait 30 minutes after the shots and of course had to show

my epi pen. I see them again on the 13th. The nurse said my first 3 times I will

wait 30 minutes, but after that I can get the shots and leave.

>

> Looking forward to hearing about your experience.

>

> Darcy

Darcy,

congrats on getting your first shots. I have been on 2 shots every 2 weeks since

September 2003, almost 7 years now. I was the first patient in the state of

Arkansas to get xolair.

They STILL make me wait 30 minutes afterward and carry 2 epi pens the rest of

the day.

I also get a REGULAR allergy shot along with my Xolair too. The regular shot

sings like fire at times but the xolair has not pain whatsoever. Reactions?

Never

Hope you get results soon. It took me just over a year.

Doug

Group founder

[Guest guest]

Thirty minutes? The last I recall, the requirement was 2 HOURS. Have they

loosened up the standards? It was ridiculous - an hour to the infusion center,

2-1/2 hours there while they prepared and did the paper dance (signing), and

finally the injections (2 hour wait AFTER the injection). Then, something to

eat for 45 minutes on the way home(I was hungry by that time) and finally

another 45 minutes home. The nurse, who was supposed to be their best, injected

very fast creating 3 large very black and painful bruises. They were all close

together on the same arm. The last series of 3 shots were useless - did not

work at all. Then, of course, when I decided I had enough of a filthy infusion

center with people half dead around me and a bad odor, (I only went there once),

it took a year for the side effects to leave my body. (I injected 1-1/2 years

at home successfully before being forced into this insane requirement - infusion

center.)

I don't understand why they give regular allergy shots at the same time as

Xolair? Regular allergy shots are more likely to cause a reaction than Xolair.

> >

> > Good Luck Darcy - I get my first shot on thursday - we will have to compare

first shot notes

> >

> >

> >

> >

> > ________________________________

> > From: Darcy <darcy.buckner@>

> >

> > Sent: Sun, June 27, 2010 2:16:01 PM

> > Subject: [ ] Approval for Shots 100% Covered!

> >

> >  

> > Finally heard back from insurance - they approved the Xolair shots (I'll be

taking 3 shots every 2 weeks). Also, thrilled that my insurance will cover the

shots 100%. Probably they took a look at my last hospital stay and decided it

would cost them less in the long run! :-) The drug ships Monday and my nurse

said probably will be able to start the shots Wendesday. I see my doctor

tomorrow for an xray (hope it's clear of pnuemonia!) and make a plan for the

shots. I'm nervous, but also excited and encouraged by so many positive reports

by this group. I too live on the Gulf Coast - so I have been smelling fumes from

the oil and dispersants and trying to stay inside as much as possible. I'm

looking foward to coming off medicines and watching the peak flow numbers rise.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I am lucky the infusion center I go to is great! I call an hour before I'm

suppose to be there and they have my shots ready when I get there. Every 2

months I have to go and register again and get a new ID number but always goes

fast. I usually can get my shots and be out in alittle over 1 hour

Tricia

Sent via BlackBerry from T-Mobile

-----Original Message-----

From: " instdesgn1 " <instdesgn1@...>

Sender:

Date: Thu, 01 Jul 2010 18:05:33

< >

Reply-

Subject: [ ] Re: Approval for Shots 100% Covered!

Thirty minutes? The last I recall, the requirement was 2 HOURS. Have they

loosened up the standards? It was ridiculous - an hour to the infusion center,

2-1/2 hours there while they prepared and did the paper dance (signing), and

finally the injections (2 hour wait AFTER the injection). Then, something to

eat for 45 minutes on the way home(I was hungry by that time) and finally

another 45 minutes home. The nurse, who was supposed to be their best, injected

very fast creating 3 large very black and painful bruises. They were all close

together on the same arm. The last series of 3 shots were useless - did not

work at all. Then, of course, when I decided I had enough of a filthy infusion

center with people half dead around me and a bad odor, (I only went there once),

it took a year for the side effects to leave my body. (I injected 1-1/2 years

at home successfully before being forced into this insane requirement - infusion

center.)

I don't understand why they give regular allergy shots at the same time as

Xolair? Regular allergy shots are more likely to cause a reaction than Xolair.

> >

> > Good Luck Darcy - I get my first shot on thursday - we will have to compare

first shot notes

> >

> >

> >

> >

> >________________________________

> > From: Darcy <darcy.buckner@>

> >

> > Sent: Sun, June 27, 2010 2:16:01 PM

> > Subject: [ ] Approval for Shots 100% Covered!

> >

> >  

> > Finally heard back from insurance - they approved the Xolair shots (I'll be

taking 3 shots every 2 weeks). Also, thrilled that my insurance will cover the

shots 100%. Probably they took a look at my last hospital stay and decided it

would cost them less in the long run! :-) The drug ships Monday and my nurse

said probably will be able to start the shots Wendesday. I see my doctor

tomorrow for an xray (hope it's clear of pnuemonia!) and make a plan for the

shots. I'm nervous, but also excited and encouraged by so many positive reports

by this group. I too live on the Gulf Coast - so I have been smelling fumes from

the oil and dispersants and trying to stay inside as much as possible. I'm

looking foward to coming off medicines and watching the peak flow numbers rise.

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

On Jul 1, 2010, at 2:05 PM, instdesgn1 wrote:

>

> I don't understand why they give regular allergy shots at the same time as

Xolair? Regular allergy shots are more likely to cause a reaction than Xolair.

My dr. won't. For the Xolair, I get 2 shots in one arm, 1 in the other. The

staff they have now does an excellent job and I leave immediately. I'm going on

5 years with Xolair. I am fortunate that my allergist's office is 4 minutes

from my house as well - if there's a problem, turn around is fast. There never

has been.

Janet Boss

Best Friends Dog Obedience

Baltimore/Ellicott City/Frederick MD, US

Trainer/Instructor/Consultant

Member; IACP #2574

Visit our website! www.bestfriendsdogobedience.com

Contact me: janet@...

[Guest guest]

It depends on the doctor.

Some make us wait 30 minutes, some up to 2 hours or more. Some make us go to

infusion centers.

Mine makes me wait 30 minutes just like people with allergy shots but I have to

carry 2 epi pens for the rest of the day.

He started ok'ing my allergy shots at the same time as xolair 4 years ago when I

did not have any signs of reaction. Every two weeks I get a xolair in each arm

and an allergy shot in the arm of my choosing.

I do wish my doctor would let me self inject but he has a STRICT policy against

this. I self injected allergy shots for 20 years till they started a policy

against that too.

Every time I see the doc I teasingly ask him if he has changed his mind. He

laughs and says nooooooooo LOL!

I have a great relationship with my doc and his staff

Doug

Group founder

breathing GREAT thanks to xolair

[Guest guest]

Two hours! I was watching my watch for 30 minutes. :-) Really glad to hear you

had no issues as well, that's great!

The nurse did have my injections ready when I got there, she said I could call

ahead and she would do that, but then my doctor was 45 minutes late for my

appointment. She's a great doctor though, and things happen.

I'm back to 5 mg prednisone a day, and hoping to eventually come off all the

inhaled steroids too. I'll be logging those peak flows and keeping my fingers

crossed.

> >

> > Hi,

> >

> > First shots went well! No reaction and other than my own anxiety it was a

normal visit. I had to wait 30 minutes after the shots and of course had to show

my epi pen. I see them again on the 13th. The nurse said my first 3 times I will

wait 30 minutes, but after that I can get the shots and leave.

> >

> > Looking forward to hearing about your experience.

> >

> > Darcy

>

> Darcy,

>

> congrats on getting your first shots. I have been on 2 shots every 2 weeks

since September 2003, almost 7 years now. I was the first patient in the state

of Arkansas to get xolair.

>

> They STILL make me wait 30 minutes afterward and carry 2 epi pens the rest of

the day.

>

> I also get a REGULAR allergy shot along with my Xolair too. The regular shot

sings like fire at times but the xolair has not pain whatsoever. Reactions?

Never

>

> Hope you get results soon. It took me just over a year.

>

> Doug

> Group founder

>

>

>

>

>

>

>

>

[Guest guest]

Hi Doug -

Just wondering - do you carry your epi pens all the time or just the day of your

injections?

I'm looking forward to seeing some results. Thanks for this group! If I hadn't

read all your positive reviews, I'm not sure I would have tried Xolair.

Darcy

>

>

>

>

>

>

> It depends on the doctor.

>

> Some make us wait 30 minutes, some up to 2 hours or more. Some make us go to

infusion centers.

>

> Mine makes me wait 30 minutes just like people with allergy shots but I have

to carry 2 epi pens for the rest of the day.

>

> He started ok'ing my allergy shots at the same time as xolair 4 years ago when

I did not have any signs of reaction. Every two weeks I get a xolair in each arm

and an allergy shot in the arm of my choosing.

>

> I do wish my doctor would let me self inject but he has a STRICT policy

against this. I self injected allergy shots for 20 years till they started a

policy against that too.

>

> Every time I see the doc I teasingly ask him if he has changed his mind. He

laughs and says nooooooooo LOL!

>

> I have a great relationship with my doc and his staff

>

> Doug

> Group founder

> breathing GREAT thanks to xolair

>

[Guest guest]

> >

> > had my fisrt shots today - I have to wait 2 hours my first three times- then

20minutes after that....  so far so good - I was a bit anxious also - but it

was pretty easy.....my next appointment is on the 15th - it is pretty cool

having someone to compare notes with - I have to say I am jealous that you got

out in 30 minutes. lol

> >

Darcy,

He only requires me to have them just for the rest day. I have a case that has

two epi pens on my belt.

I had a reaction to a REGULAR allergy shot in the early 60's. (Yes, I have been

asthmatic and on allergy shots that long) when I was just in grade school so my

doc wants me to carry the epi's

It is 7:21 am now. My xolair nurse will call at 8 am to make sure I

will be there today at 11:30.

I will walk in and all the girls behind the desk will say: " Hi Doug, we will

tell you are here. " A few minutes later she will walk out and say

" Hey Doug, are you ready?

She weighs me, takes my BP, I blow on the kazoo and then get my shots. We yack

the whole time. I only feel the allergy shot sting while going in. Two months

ago it hurt so bad I had to have ice on it. Had a lump for a few days but no

reaction. The xolair? No pain at all and can't even tell where she gave them.

I usually yack with the girls at the front desk while I wait my 30 minutes or

read a book. After 30 minutes, I show the regular shot girl my arms and I am

ready to go. I have been there for 6.5 years and we all know one another well.

For me, getting xolair shots are not a chore and a bad experience.

It is my bi weekly chance to visit my good friends at the allergy clinic and get

to the other side of town and shop afterward

Hope yours take effect soon. I waited over a year and almost quit at 6 months

but my doctor encouraged me to stay the course.

Doug

Group founder

[Guest guest]

Hi, I also get three shots every two weeks - been on it for three years now and

what a difference but don't be dissappointed if they don't work immediately.

Because of what I suspect are your IgE levels - they must be close to my highs

of 7,000 - it takes several months to bind what is already in your system - but

I rarely use my inhalers now and only had to be back on pred and antibiotics

last fall because I decided to take a trip on public transportation - big

mistake. The drug won't prevent you from making IgE under the wrong

conditions. Good luck

Anne

________________________________

From: Darcy <darcy.buckner@...>

Sent: Sun, June 27, 2010 2:16:01 PM

Subject: [ ] Approval for Shots 100% Covered!

Finally heard back from insurance - they approved the Xolair shots (I'll be

taking 3 shots every 2 weeks). Also, thrilled that my insurance will cover the

shots 100%. Probably they took a look at my last hospital stay and decided it

would cost them less in the long run! :-) The drug ships Monday and my nurse

said probably will be able to start the shots Wendesday. I see my doctor

tomorrow for an xray (hope it's clear of pnuemonia!) and make a plan for the

shots. I'm nervous, but also excited and encouraged by so many positive reports

by this group. I too live on the Gulf Coast - so I have been smelling fumes

from the oil and dispersants and trying to stay inside as much as possible. I'm

looking foward to coming off medicines and watching the peak flow numbers rise.

[Guest guest]

2nd set of shots on Tuesday - no reaction - just a little anxious - but I think

that will pass in time. After the first set of shots I was really tired for a

couple of days and had a headache the first day. This time I didn't experience

that at all. In fact I woke up yesterday morning feeling GREAT.

Then I went to work and a co-worker behind me who I have asked twice not to wear

or SPRAY perfume in the air around her desk (!) completely bathed herself in

perfume or some kind of perfumed lotion. The whole area reaked of perfume.

Since we all sit in dreaded cubicles, I couldn't get away from it and the rest

of the day was rough. Since I've already asked her twice not to do this and how

it affects me, I reported it to her manager. I'm really hesitant to ask for

things like this, but I'm so optimistic about finally being able to breathe, I

think it makes me a little more bold and frustrated.

Does anyone else deal with perfume, cologne or other strong smells at work?? If

so, how do you handle it?

> >

> > Hi,

> >

> > First shots went well! No reaction and other than my own anxiety it was a

normal visit. I had to wait 30 minutes after the shots and of course had to show

my epi pen. I see them again on the 13th. The nurse said my first 3 times I will

wait 30 minutes, but after that I can get the shots and leave.

> >

> > Looking forward to hearing about your experience.

> >

> > Darcy

>

> Darcy,

>

> congrats on getting your first shots. I have been on 2 shots every 2 weeks

since September 2003, almost 7 years now. I was the first patient in the state

of Arkansas to get xolair.

>

> They STILL make me wait 30 minutes afterward and carry 2 epi pens the rest of

the day.

>

> I also get a REGULAR allergy shot along with my Xolair too. The regular shot

sings like fire at times but the xolair has not pain whatsoever. Reactions?

Never

>

> Hope you get results soon. It took me just over a year.

>

> Doug

> Group founder

>

>

>

>

>

>

>

>

[Guest guest]

I can barely go anywhere, due to other peoples scented products. Not just

perfume and lotion, but deodorant, hairspray, laundry products (I hate dryer

sheets!), etc... It all bothers me. So I understand your problem.

You have the right to a safe working environment. I'm glad that you're standing

up for that. It sounds like you handled the situation well by talking to her

first and then, when she didn't change her behavior, letting management know.

They are legally obligated to give you a safe place to do your job, so, if your

manager doesn't help, you may have to file a formal complaint with someone.

Human resources, personnel management, or something like that, depending on your

company's set up. You could also try wearing a mask at work. That ought to get

some action.

Good job and good luck with it. Let us know how it goes.

>

> 2nd set of shots on Tuesday - no reaction - just a little anxious - but I

think that will pass in time. After the first set of shots I was really tired

for a couple of days and had a headache the first day. This time I didn't

experience that at all. In fact I woke up yesterday morning feeling GREAT.

>

> Then I went to work and a co-worker behind me who I have asked twice not to

wear or SPRAY perfume in the air around her desk (!) completely bathed herself

in perfume or some kind of perfumed lotion. The whole area reaked of perfume.

Since we all sit in dreaded cubicles, I couldn't get away from it and the rest

of the day was rough. Since I've already asked her twice not to do this and how

it affects me, I reported it to her manager. I'm really hesitant to ask for

things like this, but I'm so optimistic about finally being able to breathe, I

think it makes me a little more bold and frustrated.

>

> Does anyone else deal with perfume, cologne or other strong smells at work??

If so, how do you handle it?

>