I want to start Xolair due to sever allergies, Hives, Asthma, High Ige.

[Guest guest]

The FDA has released a statement that it is reviewing Xolair for possible

association with heart-related issues.

http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/2009/ucm172399.htm

Until we have further information, my suggestion for folks who are concerned

about possible heart-disease related to Xolair is to ask their physician who

prescribed Xolair to contact both the manufacturer and National Jewish Hospital.

National Jewish has been one of the leading institutions researching Xolair from

the get go, and they have a physician consultation program. Candidates for

Xolair who have a history of heart disease may want to consult a cardiologist

before starting. That said, remember this:

Lack of oxygen causes a strain on the heart. A lot of asthmatic patients

experience short-term hypertension during asthma episodes because lack of oxygen

requires the heart to work harder to get what oxygen that is coming in through

the blood stream. My own doctors have been very clear that I need to take Xolair

in order to lower the strain on the rest of my system and drastically reduce how

much prednisone

I need because that drug is killing me slowly.

Addy

Group Co-owner

>

> My doctor has given me a prescription for Xolair but I am terrified of

developing heart problems(FDA has a warning about it). Anyone have any strokes,

heart attacks, clots, etc?

>

> I am also a bit concerned about Churg Strauss Syndrome (ie vasculitis)

>

> I see this forum is very positive about Xolair, it actually makes me happy to

have come across it. I want my life back as I have two amazing kids and i want

to be myself again. I am wondering if anyone has been tested for H.Pylori or any

other parasites, as it can increase IgE.

>

> Thanks so much

> Sheila

>

[Guest guest]

I'm with Addy on this one. Nothing in your body can function well without proper

oxygen. I think breathing well is the best thing you can do for yourself. I also

don't think the warnings are anything more than a CYA move. Maybe time will

prove me wrong, but I would bet that all the warnings and rules will relax as

time goes by. Everyone's just nervous because it's new.

Breathe easy,

> >

> > My doctor has given me a prescription for Xolair but I am terrified of

developing heart problems(FDA has a warning about it). Anyone have any strokes,

heart attacks, clots, etc?

> >

> > I am also a bit concerned about Churg Strauss Syndrome (ie vasculitis)

> >

> > I see this forum is very positive about Xolair, it actually makes me happy

to have come across it. I want my life back as I have two amazing kids and i

want to be myself again. I am wondering if anyone has been tested for H.Pylori

or any other parasites, as it can increase IgE.

> >

> > Thanks so much

> > Sheila

> >

>

[Guest guest]

Thanks so much for the posts so far. My asthma is not terrible, but the

hives are unbearable. I wake up with them on my face, eyes, all over and

they are not under control. My doctor believes lowering the IgE will put

everything back to a calmer state, including asthma. Like I said, I dont

want to creat another issue down the road. I agree about the warnings being

because it is new. More info would be great. My doctor will probably not

contact Novartis or the Hospital because he is extremely busy and there is a

shortage of physicians in our area. But I wonder if I can contact them

directly myself and get some info. Do you think that is possible?

S

[Guest guest]

On Oct 18, 2010, at 8:05 PM, sheila bissonnette wrote:

> Thanks so much for the posts so far. My asthma is not terrible, but the

> hives are unbearable. I wake up with them on my face, eyes, all over and

> they are not under control. My doctor believes lowering the IgE will put

> everything back to a calmer state, including asthma. Like I said, I dont

> want to creat another issue down the road. I agree about the warnings being

> because it is new. More info would be great. My doctor will probably not

> contact Novartis or the Hospital because he is extremely busy and there is a

> shortage of physicians in our area. But I wonder if I can contact them

> directly myself and get some info. Do you think that is possible?

I was in the same boat as you - asthma well controlled, hives outta control. 5

years now on Xolair and no hives. What a godsend.

Janet Boss

Best Friends Dog Obedience

Baltimore/Ellicott City/Frederick MD, US

Trainer/Instructor/Consultant

Member; IACP #2574

Visit our website! www.bestfriendsdogobedience.com

Contact me: janet@...

[Guest guest]

>

> > Thanks so much for the posts so far. My asthma is not terrible, but the

> > hives are unbearable. I wake up with them on my face, eyes, all over and

> > they are not under control. My doctor believes lowering the IgE will put

> > everything back to a calmer state, including asthma. Like I said, I dont

> > want to creat another issue down the road. I agree about the warnings being

> > because it is new. More info would be great. My doctor will probably not

> > contact Novartis or the Hospital because he is extremely busy and there is a

> > shortage of physicians in our area. But I wonder if I can contact them

> > directly myself and get some info. Do you think that is possible?

>

> I was in the same boat as you - asthma well controlled, hives outta control.

5 years now on Xolair and no hives. What a godsend.

>

> Janet Boss

>

> Best Friends Dog Obedience

> Baltimore/Ellicott City/Frederick MD, US

> Trainer/Instructor/Consultant

> Member; IACP #2574

>

> Visit our website! www.bestfriendsdogobedience.com

>

> Contact me: janet@...

I wish it worked for Psoriatic arthritis.

Sigh!