Guest guest Posted December 11, 2010 Report Share Posted December 11, 2010 Hello to all members I am to go into the hospital this Wednesday for a kidney removal (cancer). I will be starting Xolair treatments in January 2011. Do you think this will be too soon after surgery? What side effects can I expect? I am so glad that this group is available. Thank you in advance for all your support. Bruce Virginia Beach, VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2010 Report Share Posted December 13, 2010 Bruce, I am praying for you and sending you lots of hope and healing energy. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 Hope your surgery goes well. Regarding Xolair - I was on it for about 6 months and at first I felt that it was helping me but at the same time I started getting extreme fatique and pain all over my body. It was an effort to get out of bed some days. Immediately after getting the injection I would feel a little weird. Don't know how to explain it - little short of breath perhaps but nothing major. Also a bit anxious. The last time I had it I got very anxious and started feeling not quite right - for about 15 minutes. The doctor decided to take me off of it as he felt I was having some type of reaction to it. The achiness is gone. I feel like my old self once again. I'm just going to stick with my asthma meds and try to be diligent with my allergy shots. I am a life long asthmatic and at times it is severe but I've realized I need to be more proactive when I feel myself getting sick. Xolair helps for many people but I have to admit I'm worried about the side effects of the drug. Take care, Patty > > Hello to all members > > I am to go into the hospital this Wednesday for a kidney removal (cancer). > > I will be starting Xolair treatments in January 2011. > Do you think this will be too soon after surgery? > > What side effects can I expect? > > I am so glad that this group is available. > > Thank you in advance for all your support. > > Bruce > Virginia Beach, VA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 Bruce, good luck with the surgery, hope they get everything, let us know. I think I would wait til Feb. for the xolair, but that is my opinion. I have noticed my allergies worse this last summer but not sure if it is from the shots or just the area I live in. I also have been very tired all the time. I also have fibromyalgia and that makes you tired but I have noticed a noticable difference. On another note due to me having bronchitis I have missed over 3 weeks of shots, I feel better!! I am not sure if it is a mind thing or what. I have to call tomorrow and make sure they got my serum in, if I start feeling worse then I guess I will know it is from the shots and may just quit. I don't want to open up a can of worms but I wonder if maybe we are being used as subjects and some of us get the real stuff and some something else. Just my wondering. Jan May today be twice as good as yesterday and half as good as tomorrow. Jan From: instdesgn1@... Date: Sun, 2 Jan 2011 21:52:53 +0000 Subject: [ ] Re: New to Group That was something I noticed on Xolair ... the body pain. I had it before Xolair but it seemed like it was more present on Xolair. I felt so bad most of time (aches and pains and frequent upper respiratory infections). I envied those people who seemed to miraculously spring to life because although the breathing improved by maybe 50% and ultimately the sinus headaches improved by 80%, I felt so beat down. Thankfully, I never noticed any breathing problems that I could attribute to Xolair, though, so I don't think I was in any way having any sort of anaphylaxsis. If I missed a shot by a day or so I would get a sort've odd feeling very briefly of everything being very " removed " and " distant " from me. But, no swelling or difficulty with breathing, thankfully. > > > > Hello to all members > > > > I am to go into the hospital this Wednesday for a kidney removal (cancer). > > > > I will be starting Xolair treatments in January 2011. > > Do you think this will be too soon after surgery? > > > > What side effects can I expect? > > > > I am so glad that this group is available. > > > > Thank you in advance for all your support. > > > > Bruce > > Virginia Beach, VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2011 Report Share Posted January 3, 2011 Hi Janice, Rest assured, we are all getting " the real " stuff. Unless you are registered in a randomized, placebo-controlled trial, for which you signed informed consent to participate, you cannot be a guinea pig for anyone and you are not getting a placebo or " something else " . It is simply illegal and unethical for anything remotely like this to occur. Everyone has different reactions to medications for different reasons. It is possible that you do not tolerate xolair and would be better off without it. Best to discuss this personal decision with your treating MD. ________________________________ From: Janice A <janicem611@...> Sent: Mon, January 3, 2011 12:16:18 PM Subject: RE: [ ] Re: New to Group Bruce, good luck with the surgery, hope they get everything, let us know. I think I would wait til Feb. for the xolair, but that is my opinion. I have noticed my allergies worse this last summer but not sure if it is from the shots or just the area I live in. I also have been very tired all the time. I also have fibromyalgia and that makes you tired but I have noticed a noticable difference. On another note due to me having bronchitis I have missed over 3 weeks of shots, I feel better!! I am not sure if it is a mind thing or what. I have to call tomorrow and make sure they got my serum in, if I start feeling worse then I guess I will know it is from the shots and may just quit. I don't want to open up a can of worms but I wonder if maybe we are being used as subjects and some of us get the real stuff and some something else. Just my wondering. Jan May today be twice as good as yesterday and half as good as tomorrow. Jan From: instdesgn1@... Date: Sun, 2 Jan 2011 21:52:53 +0000 Subject: [ ] Re: New to Group That was something I noticed on Xolair ... the body pain. I had it before Xolair but it seemed like it was more present on Xolair. I felt so bad most of time (aches and pains and frequent upper respiratory infections). I envied those people who seemed to miraculously spring to life because although the breathing improved by maybe 50% and ultimately the sinus headaches improved by 80%, I felt so beat down. Thankfully, I never noticed any breathing problems that I could attribute to Xolair, though, so I don't think I was in any way having any sort of anaphylaxsis. If I missed a shot by a day or so I would get a sort've odd feeling very briefly of everything being very " removed " and " distant " from me. But, no swelling or difficulty with breathing, thankfully. > > > > Hello to all members > > > > I am to go into the hospital this Wednesday for a kidney removal (cancer). > > > > I will be starting Xolair treatments in January 2011. > > Do you think this will be too soon after surgery? > > > > What side effects can I expect? > > > > I am so glad that this group is available. > > > > Thank you in advance for all your support. > > > > Bruce > > Virginia Beach, VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 Glad to hear Xolair is working for you Peggy. I've been taking it for around five years with no problems other than taking the time to go to the doctor's office every two weeks. A side benefit, that I really think is due to Xolair, is that I've only been sick twice in five years, once was really minor and the second time was the H1N1 flu which only lasted a day or so. Prior to Xolair I was sick with all kinds of respiratory problems, besides asthma, four or five times a year, usually making me miserable for a week or two. And those sicknesses had been going on for so many many years. I still take other meds, like Advair, Spiriva, Uniphyl and Claritin but my prednisone pills are rotting on the shelf. I take a couple puffs of albuterol once or twice a week, but could really do without. I'm glad to hear you've experienced improvement in your immune system problems, as I feel I have. I'm not proposing that Xolair is some kind of general wonder drug, but I am of the belief that it somehow has strengthened my immune system well beyond the targeted asthma. > > Hi everyone. I've just been reading posts the past week or so get > acquainted with this group. I've only been on Xolair since May, but > already I've had an incredible change not only in my asthma > symptoms, but in a whole host of other immune system problems. Two > years ago I suddenly developed severe asthma, then acute, chronic > pansinusitis, then pancreatitis, then some gastrointestinal thing > (constant vomiting), and I was covered in hives -- over my whole > body. I have seen countless specialists at several prestigious > universities, hospitals and clinics and had every test available. > No one knows what I have, it just seems like I am having a constant > severe allergic reaction. I've had to take 60-90mg of medrol per > day, plus Advair, Flonase, ranitadine, Zyrtec, prevacid, > intraconasole and more... I was perfectly healthy before this > started. No asthma, no sinus problems, I don't drink, I didn't > think I had seasonal allergies... nothing. It has been unbelievably > frustrating. I've had every surgery they suggested and tried every > drug they suggested, even interferon where the side effects were > even worse than the disease. But unless was on high doses of > steroids, I ended up back in the hospital over and over again. I > was terribly cushnoid (like you can be pleasantly cushnoid) and > hated going anywhere. > Finally my doctor suggested Xolair as a last ditch attempt to > control my symptoms. WOW! The day of my first shot, my symptoms > started to improve. That very night my hives started to lessen and > within three days they were almost completely gone. I didn't feel > nauseous, I could breathe... and best of all I had energy!!!! I > feel like I'm alive again. I feel like I have my life back. I can > play with my little boy and I enjoy it! I was qualified by > insurance company (after they orginally turned me down) for this > mediciation because of my asthma, but in reality it's treating all > of my symptoms. I could not be happier. I wish it would work this > well for everyone. > Now why didn't my doctor (or any of the legions of doctors I saw) > suggest this sooner? *sigh* Who knows? > Anyway, I know this is probably way too long, but it's just so nice > to meet some people who understand what a difference this drug can > make in your life. > Quote Link to comment Share on other sites More sharing options...
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