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Re: Joint Pain ???

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Are you sure it is related to Xolair? Have you had it before? It seems if it

was related it would be more systematic, no? But you should tell your doctor

about it. Do you get your injection in your thigh?

Get it looked at.

S

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " D " <leasbug@...>

Sender:

Date: Sat, 26 Feb 2011 00:15:37

< >

Reply-

Subject: [ ] Joint Pain ???

Hi I just started getting the shots 2 mnths ago. I get them every month. I was

wondering if anyone has had any problem with knee joint pain and if so what u do

for it. It seems to be getting worse and i am not sure what to do, i can barely

walk.

thanks

lisa

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I have been on the shots for 9 months - I have joint pain in my fingers never

had it before. Told it was RA

________________________________

From: " sheilabiss@... " <sheilabiss@...>

Sent: Fri, February 25, 2011 7:33:40 PM

Subject: Re: [ ] Joint Pain ???

Are you sure it is related to Xolair? Have you had it before?  It seems if it

was related it would be more systematic, no?  But you should tell your doctor

about it. Do you get your injection in your thigh?

Get it looked at.

S

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " D " <leasbug@...>

Sender:

Date: Sat, 26 Feb 2011 00:15:37

< >

Reply-

Subject: [ ] Joint Pain ???

Hi I just started getting the shots 2 mnths ago.  I get them every month.  I was

wondering if anyone has had any problem with knee joint pain and if so what u do

for it.  It seems to be getting worse and i am not sure what to do, i can barely

walk.

thanks

lisa

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>

> I have been on the shots for 9 months - I have joint pain in my fingers never

> had it before. Told it was RA

>

I have been on Xolair for 7.5 years. Two years ago I was diagnosed with

psoriatic-arthritis.

All my doctors (Allergist,PCP and Rheumatologist) say that xolair's properties

and actions have nothing to do with my onset of arthritis. It is part of my

aging process. I am 56

Wouldn't it be GREAT if xolair helped arthritis too? :))

Doug

Group founder

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I have been taking the injections for five years and yes I did have joint pain.

Knees, hips, wrists, etc after beginning the injections. I was told by my

pulmonary doctor that the joint pain and the injections were not connected. I

began using MSM, massage therapy, acupuncture and essential oils. Today I am

pain free.

----- Original Message -----

From: Kathy & Chuck Egan

Sent: Friday, February 25, 2011 7:24 PM

Subject: Re: [ ] Joint Pain ???

I have been on the shots for 9 months - I have joint pain in my fingers never

had it before. Told it was RA

________________________________

From: " sheilabiss@... " <sheilabiss@...>

Sent: Fri, February 25, 2011 7:33:40 PM

Subject: Re: [ ] Joint Pain ???

Are you sure it is related to Xolair? Have you had it before? It seems if it

was related it would be more systematic, no? But you should tell your doctor

about it. Do you get your injection in your thigh?

Get it looked at.

S

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " D " <leasbug@...>

Sender:

Date: Sat, 26 Feb 2011 00:15:37

< >

Reply-

Subject: [ ] Joint Pain ???

Hi I just started getting the shots 2 mnths ago. I get them every month. I

was

wondering if anyone has had any problem with knee joint pain and if so what u

do

for it. It seems to be getting worse and i am not sure what to do, i can

barely

walk.

thanks

lisa

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Share on other sites

Did you get a blood test confirmation for RA? Does your health care provider

believe it is caused by Xolair?

Sent from my BlackBerry® smartphone

-----Original Message-----

From: Kathy & Chuck Egan <ckegan33@...>

Sender:

Date: Fri, 25 Feb 2011 17:24:55

< >

Reply-

Subject: Re: [ ] Joint Pain ???

I have been on the shots for 9 months - I have joint pain in my fingers never

had it before. Told it was RA

________________________________

From: " sheilabiss@... " <sheilabiss@...>

Sent: Fri, February 25, 2011 7:33:40 PM

Subject: Re: [ ] Joint Pain ???

Are you sure it is related to Xolair? Have you had it before?  It seems if it

was related it would be more systematic, no?  But you should tell your doctor

about it. Do you get your injection in your thigh?

Get it looked at.

S

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " D " <leasbug@...>

Sender:

Date: Sat, 26 Feb 2011 00:15:37

< >

Reply-

Subject: [ ] Joint Pain ???

Hi I just started getting the shots 2 mnths ago.  I get them every month.  I was

wondering if anyone has had any problem with knee joint pain and if so what u do

for it.  It seems to be getting worse and i am not sure what to do, i can barely

walk.

thanks

lisa

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Share on other sites

I've been on Xolair since 2003. Last fall I started having pain in my wrist.

Extensive (and expensive tests) confirmed no RA or carpal tunnel - simply two

ligaments with small tears (probably from walking both dogs on one leash or

playing tug with them).

Addy

Group co-owner

>

> I have been on the shots for 9 months - I have joint pain in my fingers never

> had it before. Told it was RA

>

>

>

>

>

> ________________________________

> From: " sheilabiss@... " <sheilabiss@...>

>

> Sent: Fri, February 25, 2011 7:33:40 PM

> Subject: Re: [ ] Joint Pain ???

>

> Are you sure it is related to Xolair? Have you had it before?  It seems if it

> was related it would be more systematic, no?  But you should tell your doctor

> about it. Do you get your injection in your thigh?

> Get it looked at.

> S

> Sent from my BlackBerry® smartphone

>

> -----Original Message-----

> From: " D " <leasbug@...>

> Sender:

> Date: Sat, 26 Feb 2011 00:15:37

> < >

> Reply-

> Subject: [ ] Joint Pain ???

>

> Hi I just started getting the shots 2 mnths ago.  I get them every month.  I

was

> wondering if anyone has had any problem with knee joint pain and if so what u

do

> for it.  It seems to be getting worse and i am not sure what to do, i can

barely

> walk.

>

> thanks

> lisa

>

>

>

>

>

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There is no link between RA and xolair documented. If you are tapering pred or

even tapering off high dose inhaled steroids (which do get absorbed systemically

when you take piles of it), you might experience joint pain in the form of

rebound inflammation in the joints (as per my rheumatologist). That is, you take

xolair, then taper pred/steroids, then get joint pain. It will go away with time

and conservative management. An MD can easily rule out RA if you have pain and

are very concerned. Keep in mind, RA joints are red and inflammed too, not just

painful. Don't forget the aging/wear and tear factors as well.

, RN

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Sat, February 26, 2011 7:34:16 AM

Subject: [ ] Re: Joint Pain ???

I've been on Xolair since 2003. Last fall I started having pain in my wrist.

Extensive (and expensive tests) confirmed no RA or carpal tunnel - simply two

ligaments with small tears (probably from walking both dogs on one leash or

playing tug with them).

Addy

Group co-owner

>

> I have been on the shots for 9 months - I have joint pain in my fingers never

> had it before. Told it was RA

>

>

>

>

>

> ________________________________

> From: " sheilabiss@... " <sheilabiss@...>

>

> Sent: Fri, February 25, 2011 7:33:40 PM

> Subject: Re: [ ] Joint Pain ???

>

> Are you sure it is related to Xolair? Have you had it before? It seems if it

> was related it would be more systematic, no? But you should tell your doctor

> about it. Do you get your injection in your thigh?

> Get it looked at.

> S

> Sent from my BlackBerry® smartphone

>

> -----Original Message-----

> From: " D " <leasbug@...>

> Sender:

> Date: Sat, 26 Feb 2011 00:15:37

> < >

> Reply-

> Subject: [ ] Joint Pain ???

>

> Hi I just started getting the shots 2 mnths ago. I get them every month. I

>was

>

> wondering if anyone has had any problem with knee joint pain and if so what u

>do

>

> for it. It seems to be getting worse and i am not sure what to do, i can

>barely

>

> walk.

>

> thanks

> lisa

>

>

>

>

>

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Share on other sites

Thank you. That helps a lot. Btw. I enrolled xhale. Thanks again.

Sent from my BlackBerry® smartphone

-----Original Message-----

From: <carrie72583@...>

Sender:

Date: Sat, 26 Feb 2011 07:35:55

< >

Reply-

Subject: Re: [ ] Re: Joint Pain ???

There is no link between RA and xolair documented. If you are tapering pred or

even tapering off high dose inhaled steroids (which do get absorbed systemically

when you take piles of it), you might experience joint pain in the form of

rebound inflammation in the joints (as per my rheumatologist). That is, you take

xolair, then taper pred/steroids, then get joint pain. It will go away with time

and conservative management. An MD can easily rule out RA if you have pain and

are very concerned. Keep in mind, RA joints are red and inflammed too, not just

painful. Don't forget the aging/wear and tear factors as well.

, RN

________________________________

From: pyle456 <jamcculloch2@...>

Sent: Sat, February 26, 2011 7:34:16 AM

Subject: [ ] Re: Joint Pain ???

I've been on Xolair since 2003. Last fall I started having pain in my wrist.

Extensive (and expensive tests) confirmed no RA or carpal tunnel - simply two

ligaments with small tears (probably from walking both dogs on one leash or

playing tug with them).

Addy

Group co-owner

>

> I have been on the shots for 9 months - I have joint pain in my fingers never

> had it before. Told it was RA

>

>

>

>

>

>________________________________

> From: " sheilabiss@... " <sheilabiss@...>

>

> Sent: Fri, February 25, 2011 7:33:40 PM

> Subject: Re: [ ] Joint Pain ???

>

> Are you sure it is related to Xolair? Have you had it before? It seems if it

> was related it would be more systematic, no? But you should tell your doctor

> about it. Do you get your injection in your thigh?

> Get it looked at.

> S

> Sent from my BlackBerry® smartphone

>

> -----Original Message-----

> From: " D " <leasbug@...>

> Sender:

> Date: Sat, 26 Feb 2011 00:15:37

> < >

> Reply-

> Subject: [ ] Joint Pain ???

>

> Hi I just started getting the shots 2 mnths ago. I get them every month. I

>was

>

> wondering if anyone has had any problem with knee joint pain and if so what u

>do

>

> for it. It seems to be getting worse and i am not sure what to do, i can

>barely

>

> walk.

>

> thanks

> lisa

>

>

>

>

>

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Share on other sites

Thanks so much. I am glad for this group.

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " pyle456 " <jamcculloch2@...>

Sender:

Date: Sat, 26 Feb 2011 12:34:16

< >

Reply-

Subject: [ ] Re: Joint Pain ???

I've been on Xolair since 2003. Last fall I started having pain in my wrist.

Extensive (and expensive tests) confirmed no RA or carpal tunnel - simply two

ligaments with small tears (probably from walking both dogs on one leash or

playing tug with them).

Addy

Group co-owner

>

> I have been on the shots for 9 months - I have joint pain in my fingers never

> had it before. Told it was RA

>

>

>

>

>

>________________________________

> From: " sheilabiss@... " <sheilabiss@...>

>

> Sent: Fri, February 25, 2011 7:33:40 PM

> Subject: Re: [ ] Joint Pain ???

>

> Are you sure it is related to Xolair? Have you had it before?  It seems if it

> was related it would be more systematic, no?  But you should tell your doctor

> about it. Do you get your injection in your thigh?

> Get it looked at.

> S

> Sent from my BlackBerry® smartphone

>

> -----Original Message-----

> From: " D " <leasbug@...>

> Sender:

> Date: Sat, 26 Feb 2011 00:15:37

> < >

> Reply-

> Subject: [ ] Joint Pain ???

>

> Hi I just started getting the shots 2 mnths ago.  I get them every month.  I

was

> wondering if anyone has had any problem with knee joint pain and if so what u

do

> for it.  It seems to be getting worse and i am not sure what to do, i can

barely

> walk.

>

> thanks

> lisa

>

>

>

>

>

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Share on other sites

Glad to hear that you are pain free. Thanks so much for the info. It puts my

mind at ease.

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " Ives " <kaycee47@...>

Sender:

Date: Fri, 25 Feb 2011 21:15:50

< >

Reply-

Subject: Re: [ ] Joint Pain ???

I have been taking the injections for five years and yes I did have joint pain.

Knees, hips, wrists, etc after beginning the injections. I was told by my

pulmonary doctor that the joint pain and the injections were not connected. I

began using MSM, massage therapy, acupuncture and essential oils. Today I am

pain free.

----- Original Message -----

From: Kathy & Chuck Egan

Sent: Friday, February 25, 2011 7:24 PM

Subject: Re: [ ] Joint Pain ???

I have been on the shots for 9 months - I have joint pain in my fingers never

had it before. Told it was RA

________________________________

From: " sheilabiss@... " <sheilabiss@...>

Sent: Fri, February 25, 2011 7:33:40 PM

Subject: Re: [ ] Joint Pain ???

Are you sure it is related to Xolair? Have you had it before? It seems if it

was related it would be more systematic, no? But you should tell your doctor

about it. Do you get your injection in your thigh?

Get it looked at.

S

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " D " <leasbug@...>

Sender:

Date: Sat, 26 Feb 2011 00:15:37

< >

Reply-

Subject: [ ] Joint Pain ???

Hi I just started getting the shots 2 mnths ago. I get them every month. I

was

wondering if anyone has had any problem with knee joint pain and if so what u

do

for it. It seems to be getting worse and i am not sure what to do, i can

barely

walk.

thanks

lisa

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Share on other sites

Body pain is a known side effect of Xolair. Look on the list of side effects -

that's one of them. However, I'm not aware of any connection between Xolair and

Rheumatoid Arthritis which is a different " critter. "

I had an increase in body pain while on Xolair - sometimes I just felt so bad I

didn't care (in a sense) about the improvement in asthma/sinus headaches because

I hurt so much.

Remember, that different people have different reactions to meds.

My rheumy is trying to get me on Arava for arthritis (sero negative is all they

can diagnose as I have high inflammation and swelling and pain) and emphasized

the underlying inflammatory nature of many of the diseases I have - arthritis,

asthma, allergies, skin rashes, etc. I'm not so sure that anti-inflammatory or

disease modifying drugs necessarily translate over as being helpful from one

inflammatory disease to another. Unfortunately, some of the meds for arthritis

actually make lung disease worse - methotrexate was one of them for me. It

would be interesting to see if anyone finds an improvement in joint/body pain on

Xolair.

I've been told, for instance, that MS is like one very big bad allergy yet

antihistamines sure don't do anything for my hubby's MS.

>

> Hi I just started getting the shots 2 mnths ago. I get them every month. I

was wondering if anyone has had any problem with knee joint pain and if so what

u do for it. It seems to be getting worse and i am not sure what to do, i can

barely walk.

>

> thanks

> lisa

>

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Share on other sites

Are you off Xolair?

S

Sent from my BlackBerry® smartphone

-----Original Message-----

From: " instdesgn1 " <instdesgn1@...>

Sender:

Date: Sun, 27 Feb 2011 05:24:49

< >

Reply-

Subject: [ ] Re: Joint Pain ???

Body pain is a known side effect of Xolair. Look on the list of side effects -

that's one of them. However, I'm not aware of any connection between Xolair and

Rheumatoid Arthritis which is a different " critter. "

I had an increase in body pain while on Xolair - sometimes I just felt so bad I

didn't care (in a sense) about the improvement in asthma/sinus headaches because

I hurt so much.

Remember, that different people have different reactions to meds.

My rheumy is trying to get me on Arava for arthritis (sero negative is all they

can diagnose as I have high inflammation and swelling and pain) and emphasized

the underlying inflammatory nature of many of the diseases I have - arthritis,

asthma, allergies, skin rashes, etc. I'm not so sure that anti-inflammatory or

disease modifying drugs necessarily translate over as being helpful from one

inflammatory disease to another. Unfortunately, some of the meds for arthritis

actually make lung disease worse - methotrexate was one of them for me. It

would be interesting to see if anyone finds an improvement in joint/body pain on

Xolair.

I've been told, for instance, that MS is like one very big bad allergy yet

antihistamines sure don't do anything for my hubby's MS.

>

> Hi I just started getting the shots 2 mnths ago. I get them every month. I

was wondering if anyone has had any problem with knee joint pain and if so what

u do for it. It seems to be getting worse and i am not sure what to do, i can

barely walk.

>

> thanks

> lisa

>

Link to comment
Share on other sites

Yes, I'm off Xolair - at least 2-1/2 years now I think. (Sorry, have bronchitis

and upper respiratory infection right now and memory fails me at the moment!)

But, I really went off Xolair because the doc suddenly informed me that I had to

go to an infusion center for shots after I had successfully injected at home for

1-1/2 years. The infusion center was filthy, it looked and smelled like death,

the cost was much higher, the nurse (who was Xolair-trained) injected too fast

and painfully bruised my arm, and the last set of shots did nothing for me.

> >

> > Hi I just started getting the shots 2 mnths ago. I get them every month. I

was wondering if anyone has had any problem with knee joint pain and if so what

u do for it. It seems to be getting worse and i am not sure what to do, i can

barely walk.

> >

> > thanks

> > lisa

> >

>

>

>

>

>

>

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