The missing links, or more news

[Guest guest]

These I had too, but pressed for time they were not posted.

Read about a married couple who are both lp. It's a nice article as

it follows thru the first encounter at an LPA meeting to present day.

http://www.tctimes.com/site/news.cfm?

newsid=19371152 & BRD=2524 & PAG=461 & dept_id=517571 & rfi=6

Click 'Photo Gallery' for more, including their wedding pic:).

Meet Zach:), 'he's 1 in 8 million'.

http://www.state-journal.com/news/article/3456922

and

http://abcnews.go.com/Health/story?id=4466439 & page=1

There is a vid on the second article site, but it's not of him or his

family unfortunately.

Staying with the condition of Progeria the following article was

also online, " When good people fail. "

" Noted rabbi-author Harold Kushner to appear in Easton to talk about

his latest book, " which has now past unfortunately.

Still, I believe Mr. Kushner and his family were members of the LPA

at one time or perhaps are still(?), because their son, , had

Progeria.

http://www.mcall.com/entertainment/all-

rabbi.6293851mar08,0,5927007.story?track=rss

An ap dad of a Silver son worries that the current HGH (Human

Growth Hormone) scandal in Baseball will affect how HGH can be

obtained for those who legitimately need or have to use it.

http://www.nydailynews.com/sports/baseball/yankees/2008/03/16/2008-03-

16_littlest_victims_of_an_hgh_bill.html?ref=rss

Following along that same vein, medically tho not hormonally as with

Silver lp, 2 Canadian Morquio siblings, a brother and sister,

are mentioned in an article from there, " ... to lobby politicians for

more screening tests, funding for experimental therapies and

drugs 'for the orphans in our system'. "

http://www.canada.com/montrealgazette/news/story.html?id=18d5c7e6-

0dc7-4e96-90ac-e1e68b5d1ccb & k=25732

'Remember ', a 's lp who passed away but who is greatly

praised for her work with debunking the myths of those with 's

and increasing the awareness of those without about 's. Wow,

it's some article, great and touching too, written by her father.

http://frontpagemagazine.com/Articles/Read.aspx?GUID=E861DD69-3331-

4159-B3A5-758C86014A24

----------------------

New stuff:

I thought the following, which I just found today, was not only

interesting but cool, and something, no doubt, many of us could not

only relate to but participate in. I found it first because of an OI

lp involved in it, Jon Wos, who has also been on here before, but I

include it too for all of you for this as well: I remember an LP lady

on here, who name I forget who had an eGroup that's members pretty

much all had this in common besides being just short, pain and how

its members deal with it.

So, my friends, read about an interesting art exhibit, now past

unfortunately in San Franscisco:(, but there is to be one coming up

in Chicago from April 17th to July 20th:), that was on 'Pain and

Healing'... and had one of us too:).

http://www.newswise.com/articles/view/538112/?sc=rsmn

-----------------------------------------------------

If links are broken, copy and paste all together;), laterz, grady:)